Informed consent and human genetic database research

The Ethics and Governance of Human Genetic Databases: European Perspectives

Volumn , Issue , 2007, Pages 199-216

  Kristinsson, Sigurdur ^a   Árnason, Vilhjálmur ^a  

^a UNIVERSITY OF AKUREYRI   (Iceland)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 56349159681     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.1017/CBO9780511611087.023     Document Type: Chapter

References (14)

1. Henry Greely, ‘Human Genomics Research: New Challenges for Research Ethics’, Perspectives in Biology and Medicine 44 (2001), pp. 221-229.
2. Sigurdur Kristinsson, ‘Databases and Informed Consent: Can Broad Consent Legitimate Research?’, in Gardar Arnason, Salvor Nordal and Vilhjalmur Arnason (eds.), Blood and Data: Ethical, Legal and Social Aspects of Human Genetic Databases (Reykjavı´k: University of Iceland Press and Centre for Ethics, 2004), pp. 111-119.
3. Herman T. Tavani, ‘Genomic Research and Data-Mining Technology: Implications for Personal Privacy and Informed Consent’, Ethics and Information Technology 6 (2004), pp. 15-28.
4. Henry Greely, ‘Breaking the Stalemate: A Prospective Regulatory Framework for Unforeseen Research Uses of Human Tissue Samples and Health Information’, Wake Forest Law Review 34 (1999), pp. 737-766
5. Tom L. Beauchamp and James F. Childress, Principles of Biomedical Ethics, 5th edn (New York: Oxford University Press, 2001), p. 79.
6. Ruth R. Faden and Tom L. Beauchamp, A History and Theory of Informed Consent (New York: Oxford University Press, 1986), pp. 280-283;
7. Joel Feinberg, ‘Autonomy’, in John Christman (ed.), The Inner Citadel (New York: Oxford University Press, 1989), p. 29.
8. Onora O’Neill, (2001) ‘Informed Consent and Genetic Information’, Studies in History and Philosophy of Biological and Biomedical Sciences 32, pp. 689-704.
9. Thomas Hill, ‘The Kantian Conception of Autonomy’, in Christman, The Inner Citadel, pp. 91-105;
10. Matti Ha¨yry, ‘The Tension Between Self Governance and Absolute Inner Worth in Kant’s Moral Philosophy’, Journal of Medical Ethics 31 (2005), pp. 645-647.
11. Matti Ha¨yry, ‘The Tension Between Self Governance and Absolute Inner Worth in Kant’s Moral Philosophy’, Journal of Medical Ethics 31 (2005), pp. 645-647.
12. L. J. Melton III, ‘The Threat to Medical Records Research’, New England Journal of Medicine 337 (1997), pp. 1466-1469
13. A. Buchanan, (2000) ‘An Ethical Framework for Biological Samples Policy: A Commissioned Paper’, in National Bioethics Advisory Commission (NBAC), Research Involving Human Biological Materials: Ethical Issues and Policy Guidance, 2 vols. (Rockville, MD: Nbac, 2000), vol. Ii, pp. B1-B31.
14. V. A´ rnason, ‘Coding and Consent. Moral Challenges of the Database Project in Iceland’, Bioethics 18 (2004), pp. 39-61.