Genomic research and data-mining technology: Implications for personal privacy and informed consent

Ethics and Information Technology

Volumn 6, Issue 1, 2004, Pages 15-28

  Tavani, Herman T ^a  

^a RIVIER COLLEGE   (United States)

Author keywords

Data mining; DeCODE genetics; Distributional group profiles; Epidemiology; Genetic exceptionalism; Genomic research; Informed consent; Non distributional group profiles; Personal privacy; Population genomics

Indexed keywords

CHROMOSOMES; DATA MINING; DATA PRIVACY; DECODING; EPIDEMIOLOGY; GENES; PHILOSOPHICAL ASPECTS; TELEMEDICINE;

DECODE GENETICS; GENETIC EXCEPTIONALISM; GENOMIC RESEARCH; GENOMICS; GROUP PROFILES; INFORMED CONSENT; PERSONAL PRIVACY;

POPULATION STATISTICS;

ANALYTICAL APPROACH; ARTICLE; BIOLOGY; BIOMEDICAL AND BEHAVIORAL RESEARCH; DECODE GENETICS; ETHICS; GENETIC DATABASE; GENETIC PRIVACY; GENETICS; GENETICS AND REPRODUCTION; GENOMICS; HUMAN; HUMAN GENOME PROJECT; ICELAND; INDUSTRY; INFORMATION PROCESSING; INFORMED CONSENT; METHODOLOGY; POPULATION GENETICS; PRACTICE GUIDELINE; RESEARCH SUBJECT;

ANALYTICAL APPROACH; BIOMEDICAL AND BEHAVIORAL RESEARCH; DECODE GENETICS; GENETICS AND REPRODUCTION;

COMPUTATIONAL BIOLOGY; DATA COLLECTION; DATABASES, GENETIC; GENETIC PRIVACY; GENETIC RESEARCH; GENETICS, POPULATION; GENOMICS; GUIDELINES; HUMAN GENOME PROJECT; HUMANS; ICELAND; INDUSTRY; INFORMED CONSENT; PRESUMED CONSENT; RESEARCH SUBJECTS;

EID: 33748995094     PISSN: 13881957     EISSN: 15728439     Source Type: Journal    
DOI: 10.1023/B:ETIN.0000036156.77169.31     Document Type: Article

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