Death and dying in the US: The barriers to the benefits of palliative and hospice care

Clinical Interventions in Aging

Volumn 3, Issue 3, 2008, Pages 595-599

  Finestone, Albert J ^a   Inderwies, Gail ^a  

^a TEMPLE UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; DEATH; DYING; HEALTH CARE DELIVERY; HEALTH CARE UTILIZATION; HEALTH SERVICE; HOSPICE CARE; HOSPICE CARE UNDERUTILIZATION; PALLIATIVE THERAPY; PATIENT CARE; PATIENT MONITORING; QUALITY OF LIFE; UNITED STATES;

AGED; AGED, 80 AND OVER; ATTITUDE TO DEATH; HOSPICE CARE; HUMANS; PALLIATIVE CARE; PATIENT ADVOCACY; PROFESSIONAL-PATIENT RELATIONS; UNITED STATES;

EID: 54949154502     PISSN: 11769092     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (39)

1. Born W, Greiner K, et al. 2004. Knowledge, attitudes, and beliefs about endof-life care among inner city African Americans and Latinos. J Palliat Med, 7:247-56.
2. Burrs F. 1995. The African American experience: breaking the barriers to hospices. Hosp J, 10:15-18.
3. Casarett D, Quill T. 2007. "I'm not ready for hospice": strategies for timely and effective hospice discussions. Ann Intern Med, 146:443-9.
4. Colon M, Lyke J. 2003. Comparison of hospice use and demographics among European Americans, African Americans, and Latinos. Am J Hosp Palliat Care, 20:182-90.
5. Connor S, Tecca M, et al. 2004. Measuring hospice care: The National Hospice and Palliative Care Organization National Hospice Data Set. J Pain Symptom Manage, 28:316-28.
6. Connor S, Pyenson B, et al. 2007. Comparing hospice and non-hospice patient survival among patients who die within a three-year window. J Pain Symptom Manage, 33:238-46.
7. Connor S, Teno J, et al. 2005. Family evaluation of hospice care: results from voluntary submission of data via website. J Pain Symptom Manage, 30:9-17.
8. Cort M. 2004. Cultural mistrust and use of hospice care: challenges and remedies. J Palliat Med, 7:63-71.
9. Dawson N. 1991. Need satisfaction in terminal care settings. Soc Sci Med, 32:83-7.
10. Duffy S, Jackson F, et al. 2006. Racial/ethnic preferences, sex preferences, and perceived discrimination related to end of life care. J Am Geriatr Soc, 54:150-7.
11. Enguidanos S, Yip J, et al. 2005. Ethnic variation in site of death of older adults dually eligible for Medicaid and Medicare. J Am Geriatr Soc, 53:1411-16.
12. Foley K, Gelbard HE. 2001. Institute of Medicine Report: Improving palliative care for cancer. Washington, DC: National Academy Press.
13. Gordon A. 1996. Hospice and minorities: a national study of organizational access and practice. Hosp J, 11:49-70.
14. Hanson L. 2004. Palliative care: Innovation in care at the end of life. North Carolina Medical Journal, 65:202-8.
15. Hanson L, Danis M, et al. 1997. What is wrong with end of life care? Opinions of bereaved family members. J Am Geriatr Soc, 45:1339-44.
16. Jenkinson C, Coulter J, et al. 2002. Patients' experiences and satisfaction with health care: results of a questionnaire study of specific aspects of care. Qual Saf Health Care, 11:335-9.
17. Johnson K, Kuchibhatala M, et al. 2005. Ethnic differences in the place of death of elderly hospice enrollees. J Am Geriatr Soc, 53:2209-15.
18. Kapo J, Macmoran H, et al. 2005. Lost to follow-up: Ethnic disparities in continuity of hospice care at the end of life. J Palliat Med, 8:603-8.
19. Koppen J. 2007. Thoughts on the afterlife among US adults 50+. AARP Magazine.
20. Lanford A, Clausen R, et al. 2001. Measuring and improving patients' and families' perceptions of care in a system of pediatric hospitals. Jt Comm J Qual Improv, 27:415-29.
21. Lubitz J, Riley G. 1993. Trends in Medicare payments in the last year of life. N Engl J Med, 328:1092-6.
22. Lynn J, Teno J, et al. 1997. Perceptions by family members of the dying experience of older and seriously ill patients. Ann Intern Med, 126:97-106.
23. NHPCO Facts and Figures: Hospice Care in America. 2006. National Hospice and Palliative Care Organization.
24. National Hospice and Palliative Care Organization National Data Set: National Trend Study. 2004.
25. Nolen-Hoeksema S, Larson J, et al. 2000. Predictors of family members' satisfaction with hospice. Hosp J, 15:29-48.
26. Pyenson B, Connor S, et al. 2004. Medicare cost in matched hospice and non-hospice cohorts. J Pain Symptom Manage, 28:200-10.
27. Reese D, Ahern R, et al. 1999. Hospice access and use by African Americans: Addressing cultural and institutional barriers through participatory action research. Soc Work, 44:549-59.
28. Reynolds K, Henderson M, et al. 2002. Needs of the dying in nursing homes. J Palliat Med, 5:895-901.
29. Rhodes R, Teno J, et al. 2006. Access to hospice for African Americans: Are they informed about the option of hospice? J Palliat Med, 9:268-72.
30. Russell K, LeGrand S. 2006. I'm not that sick! Overcoming the barriers to hospice discussions. Cleveland Clinic J Med, 73:517-24.
31. Searight H, Gafford J. 2005. Cultural diversity at the end of life: issues and guidelines for family physicians. Am Fam Physician, 71:515-22.
32. Seferian E, Afessa B. 2006. Adult intensive care use at the end of life: a population based study. Mayo Clinic Proc, 81:896-901.
33. Solomon M, O'Donnell L, et al. 1993. Decisions near end of life: professional views on life-sustaining treatments. Am J Public Health, 83:14-23.
34. SUPPORT Principal Investigators. 1995. A controlled trial to improve care for seriously ill hospitalized patients. The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). JAMA, 274:15918 (Erratum in: JAMA, 1996. 275:1232).
35. Teno J, Casey V, et al. 2001. Patient-focused, family-centered end-of-life medical care: views of the guidelines and bereaved family members. J Pain Symptom Manage, 22:738-51.
36. Teno J, Clarridge B, et al. 2004. Family perspectives on end-of-life care at the last place of care. JAMA, 291:88-93.
37. Torke A, Garas, et al. 2005. Medical care at the end of life: views of African American patients in an urban hospital. J Palliat Med, 8:593-602.
38. Welch L, Teno J, et al. 2005. End-of-life care in black and white: race matters for medical care of dying patients and their families. J Am Geriatr Soc, 53:145-53.
39. Winzelberg G, Hanson L, et al. 2005. Beyond autonomy: diversifying end-of-life decision-making approaches to serve patients and families. J Am Geriatr Soc, 53:1046-50.