Perceptions of illness, coping, and well-being in persons with mild cognitive impairment and their care partners

Alzheimer Disease and Associated Disorders

Volumn 22, Issue 3, 2008, Pages 284-292

  McIlvane, Jessica M ^a   Popa, Mihaela A ^a   Robinson, Bruce ^c   Houseweart, Kathleen ^c   Haley, William E ^a,b  

^a UNIVERSITY OF SOUTH FLORIDA   (United States)

^b UNIVERSITY OF SOUTH FLORIDA   (United States)

^c SARASOTA MEMORIAL HOSPITAL   (United States)

Author keywords

Coping; Families; Illness perceptions; Mild cognitive impairment

Indexed keywords

ADULT; AGED; ARTICLE; CAREGIVER; CAREGIVER BURDEN; CLINICAL ARTICLE; COGNITIVE DEFECT; CONTROLLED STUDY; COPING BEHAVIOR; DIET; EMOTION; EXERCISE; FEMALE; HEALTH BELIEF; HEALTH CARE NEED; HEALTH PERCEPTIONS QUESTIONNAIRE; HEALTH PROMOTION; HEALTH SERVICE; HUMAN; MALE; MENTAL HEALTH; NUTRITIONAL ASSESSMENT; OPTIMISM; PRIORITY JOURNAL; STATISTICAL MODEL; WELLBEING; WORKING TIME;

ADAPTATION, PSYCHOLOGICAL; AGED; AGED, 80 AND OVER; CAREGIVERS; COGNITION DISORDERS; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; MALE; MIDDLE AGED; NEUROPSYCHOLOGICAL TESTS; PERCEPTION; PSYCHIATRIC STATUS RATING SCALES;

EID: 52649177294     PISSN: 08930341     EISSN: None     Source Type: Journal    
DOI: 10.1097/WAD.0b013e318169d714     Document Type: Article

References (47)

1. Alzheimer's Association. Fact sheet: mild cognitive impairment (MCI). 2006. Available at: http://www.alz.org/documents/national/ FSMildCognitiveImpairment.pdf. Accessed August 18, 2006.
2. Petersen RC, Doody R, Kurz A, et al. Current concepts in mild cognitive impairment. Arch Neurol. 2001;58:1985-1992.
3. Petersen RC. Mild cognitive impairment as a diagnostic entity. J Int Med. 2004;256:183-194.
4. Petersen RC. Mild cognitive impairment: Where are we? Alzheimer Dis Assoc Disord. 2005;19:166-169.
5. Winblad B, Palmer K, Kivipelto M, et al. Mild cognitive impairment - beyond controversies, towards a consensus: A report of international working group on mild cognitive impairment. J Int Med. 2004; 256: 240-246.
6. Burgener S, Twigg P. Relationships among caregiver factors and quality of life in care recipients with irreversible dementia. Alzheimer Dis Assoc Disord. 2002;16:88-102.
7. Croog SH, Sudilovsky A, Burleson JA, et al. Vulnerability of husband and wife caregivers of Alzheimer disease patients to caregiving stressors. Alzheimer Dis Assoc Dis. 2001;15:201-210.
8. Pinquart M, Sörensen S. Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis. Psychol Aging. 2003;18:250-267.
9. Mittelman M, Haley WE, Clay O, et al. Improving caregiver well-being delays nursing home placement of patients with Alzheimer disease. Neurology. 2006;67:1592-1599.
10. Pinquart M, Sörensen S. Helping caregivers of persons with dementia: Which interventions work and how large are their effects? Int Psychogeriatr. 2006;18:577-595.
11. Zarit SH, Femia EE, Watson J, et al. Memory club: a group intervention for people with early-stage dementia and their care partners. Gerontologist. 2004;44:262-269.
12. Ready RE, Ott BR, Grace J. Patient versus informant perspectives of quality of life in mild cognitive impairment and Alzheimer's disease. Int J Geriatr Psychiatry. 2004;19:256-265.
13. Garand L, Dew MA, Eazor LR, et al. Caregiving burden and psychiatric morbidity in spouses of persons with mild cognitive impairment. Int J Geriatr Psychiatry. 2005;20:512-522.
14. Blieszner R. Roberto KA, Wilcox KL, et al., Dimensions of ambiguous loss in couples coping with mild cognitive impairment. Eam Relations. 2007;56:196-209,
15. Elson P. Do older adults presenting with memory complaints wish to be told if later diagnosed with Alzheimer's disease? Int J Gerialr Psychiatry. 2006;21:419-425.
16. Boustani M. Watson L. Fultz B, et al. Acceptance of dementia screening in continuous care retirement communities: a mailed survey. Int J Geriatr Psychiatry. 2003;18:780-786.
17. Artero S, Touchon J, Ritchie K. Disability and mild cognitive impairment: a longitudinal population-based study. Int J Geriatr Psychiatry. 2001; 16:1092-1097.
18. Chan DC. Kasper JD, Black BS, et al. Prevalence and correlates of behavioral and psychiatric symptoms in community-dwelling elders with dementia or mild cognitive impairment: the memory and medical care study. Int J Gerialr Psychiatry. 2003;18:174-182.
19. Farias ST, Mungas D. Jagust W. Degree of discrepancy between self and other-reported everyday functioning by cognitive status: dementia, mild cognitive impairment, and healthy elders. Int J Geriatr Psychiatry. 2005;20:827-834.
20. Farias ST. Mungas D, Reed BR, et al. MCI is associated with deficits in everyday functioning. Alzheimer Dis Assoc Disord. 2006;20:217-223.
21. Gauthier S, Reisberg B, Zaudig M, et al. Mild cognitive impairment. Lancet. 2006;367:1262-1270.
22. Radloff LS. The CES-D scale: a self-report depression scale for research "in the general population. Appl Psvchol Meas. 1977:1: 385-401.
23. Wood V, Wylie ML, Sheafor B. An analysis of a short self-report measure of life satisfaction: correlation with rater judgements. J Gerontol. 1969;24:465-469.
24. Pearlin LI. Schooler C. The structure of coping. J Health Soc Behav. 1978;18:2-21.
25. Ware JE. Sherbourne CD. The MOS 36-item short-form health survey (SF-36): I. conceptual framework and item selection. Med Care. 1992;30:473-483.
26. Ware JE, Gandek B. Overview of the SF-36 Health Survey and the International Quality of Life Assessment (IQOLA) Project. J Clin Epidemiol. 1998;51:903-912.
27. Carver CS. You want to measure coping but your protocol's too long: consider the brief COPE. Int J Behav Med. 1997;4:92-100.
28. Cooper C, Katona C, Orrell M, et al. Coping strategies and anxiety in caregivers of people with Alzheimer's disease: The LASER-AD study. J Affect Disord. 2006;90:15-20.
29. Coolidge FL, Segal DL, Hook JN, et al. Personality disorders and coping among anxious older adults. J Anxietv Disord. 2000; 14: 157-172.
30. Katz S, Ford AB, Moskowitz RW, et al. Studies of illness in the aged. The index of ADL: a standardized measure of biological and psychosocial function. JAMA. 1963;185:914-919.
31. Lawton MP, Brody E. Assessment of older people: self-maintaining and instrumental activities of daily living. Gerontologist. 1969;9: 179-186.
32. Haley WE. West CAC. Wadley VG. et al. Psychological. social, and health impact of caregiving: a comparison of Black and White dementia family caregivers and noncaregivers. Psvchol Aging. 1995; 10:540 552.
33. Lewinsohn PM. Seeley JR. Roberts RE. et al. Center for Epidemiological Studies-Depression Scale (CES-D) as a screening instrument for depression among community-residing older adults. Psychol Aging. 1997;12:277-287.
34. Schulz R, O'Brien AT, Bookwala J. et al. Psychiatric and physical morbidity effects of dementia caregiving: prevalence, correlates, and causes. Gerontologist. 1995;35:771-791.
35. Wisniewski SR. Belle SH, Coon DW, et al. The Resources for Enhancing Alzheimer's Caregiver Health (REACH): project design and baseline characteristics. Psychol Aging. 2003;18:375-384.
36. Robb C, Haley WE, Balducci L, et al. Impact of breast cancer survivorship on quality of life in older women. Crit Rev Oncol Hematol. 2007;62:84-91.
37. Markowitz JS, Gutterman EM, Sadik K, et al. Health related quality of life for caregivers of patients with Alzheimer disease. Alzheimer Dis Assoc Disord. 2003;17:209-214.
38. DeKosky S. Early intervention is key to successful management of Alzheimer disease. Alzheimer Dis Assoc Disord. 2003; 17: S99-S104.
39. Thal LJ. Therapeutics and mild cognitive impairment: current status and future directions. Alzheimer Dis Assoc Disord. 2003;17: S69-S71.
40. Hinton L, Haan M, Geller S, et al. Neuropsychiatric symptoms in Latino elders with dementia or cognitive impairment without dementia and factors that modify their association with caregiver depression. Gerontologist. 2003;43:669-677.
41. Lingler JH, Nightingale MC, Erlen JA, et al. Making sense of mild cognitive impairment: a qualitative exploration of the patient's experience. Gerontologist. 2006;46:791-800.
42. Crowe M, Andel R, Pedersen NL, et al. Does participation in leisure activities lead to reduced risk of Alzheimer's disease? A prospective study of Swedish twins. J Gerontol Psychol Sci. 2003;58: 249-255.
43. Andel R, Crowe M, Pedersen NL, et al. Physical exercise at midlife and risk of dementia three decades later: a population-based study of Swedish twins. J Gerontol Med Sci. 2008;63:62-66.
44. Wilson RS, Evans DA, Bienias JL, et al. Proneness to psychological distress is associated with risk of Alzheimer's disease. Neurology. 2003;61:1479-1485.
45. Small GW, Silverman DHS, Siddarth P, et al. Effects of a 14-day healthy longevity lifestyle program on cognition and brain function. Am J Gerialr Psychiatry. 2006;14:538-545.
46. Peterson RC, Thomas RG, Grundman M, et al. Vitamin E and donepezil for the treatment of mild cognitive impairment. N Engl J Med. 2005;352:1-10.
47. Feldman HH, Ferris S. Winblad B, et al. Effect of rivastigmine on delay to diagnosis of Alzheimer's disease from mild cognitive impairment: The InDDEx study. Lancet Neurol. 2007;6: 501-512.