Do older adults presenting with memory complaints wish to be told if later diagnosed with Alzheimer's disease?

International Journal of Geriatric Psychiatry

Volumn 21, Issue 5, 2006, Pages 419-425

  Elson, Paul ^a,b  

^a CARDIFF AND VALE UNIVERSITY HEALTH BOARD   (United Kingdom)

^b St Davids Hospital   (United Kingdom)

Author keywords

Alzheimer's disease; Dementia; Disclosure of diagnosis

Indexed keywords

ADJUSTMENT; AGED; ALZHEIMER DISEASE; ANXIETY; ARTICLE; CONTROLLED STUDY; DISTRESS SYNDROME; DOCTOR PATIENT RELATION; FAMILY COPING; FEMALE; GERONTOPSYCHIATRY; GOOD CLINICAL PRACTICE; HUMAN; INTERPERSONAL COMMUNICATION; MAJOR CLINICAL STUDY; MALE; MEDICAL INFORMATION; MEMORY DISORDER; PATIENT ATTITUDE; PATIENT DECISION MAKING; TREATMENT PLANNING;

AGED; AGED, 80 AND OVER; ALZHEIMER DISEASE; ATTITUDE TO HEALTH; FEMALE; HUMANS; MALE; MEMORY DISORDERS; PATIENT SATISFACTION; TRUTH DISCLOSURE;

EID: 33646798766     PISSN: 08856230     EISSN: 10991166     Source Type: Journal    
DOI: 10.1002/gps.1485     Document Type: Article

References (25)

1. Bahro M, Silber E, Sunderland T. 1995. How do patients with Alzheimer's disease cope with their illness? - A clinical experience report. J Am Geriatric Soc 43: 41-46.
2. Barnes RC. 1997. Telling the diagnosis to patients with Alzheimer's disease: relatives should act as proxy for patient. BMJ 314: 375-376.
3. Charlton RC. 1992. Breaking bad news. Med J Aust 157: 615-618.
4. Clafferty RA, Brown KW, McCabe E. 1998. Under half of psychiatrists tell patients their diagnosis of Alzheimer's disease. BMJ 317: 394-395.
5. Downs M, Clibbens R, Rae C, Cook A, Woods W. 2002. What do general practitioners tell people with dementia and their families about the condition? Int J Social Res Pract 1(1): 47-58.
6. Drickamer MA, Lachs MS. 1992. Should patients with Alzheimer's disease be told their diagnosis? New Eng J Med 326(14): 947-951.
7. Erde EL, Nadal EC, Scholl TO. 1988. On truth telling and the diagnosis of Alzheimer's disease. J Fam Pract 26: 401-406.
8. Fallowfield L, Ford S, Lewis S. 1995. No news is not good news: information preferences of patients with cancer. Psycho-oncology 4: 197-202.
9. Folstein MF, Folstein SC, McHugh PR. 1975. 'Mini-Mental State': a practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res 12: 607-614.
10. Gilliard J, Gwilliam C. 1996. Sharing the diagnosis: a survey of memory disorders clinics, their policies on informing people with dementia and their families, and the support they offer. Int J Geriatr Psychiatry 11: 1001-1003.
11. Holroyd S, Snustad DG, Chalifoux ZL. 1996. Attitudes of older adults on being told the diagnosis of Alzheimer's disease. J Am Geriatr Soc 44(4): 400-403.
12. Johnson H, Bouman WP, Pinner G. 2000. On telling the truth in Alzheimer's disease: a pilot study of current practice and attitudes. Int Psychogeriatr 12: 221-229.
13. Kitwood T. 1997. Dementia Reconsidered: The Person Comes First. Open University Press: Buckingham.
14. Maguire CP, Kirby M, Coen R, Coakley D, Lawlor BA, O'Neill D. 1996. Family members' attitudes toward telling the patient with Alzheimer's disease their diagnosis. BMJ 313: 529-530.
15. Marzanski M. 2000. Would you like to know what is wrong with you? On telling the truth to patients with dementia. J Medic Ethics 26: 108-113.
16. Post SG, Whitehouse PJ. 1995. Fairhill guidelines on ethics of the care of people with Alzheimer's disease: a clinical summary. J Am Geriatri Soc 43: 1423-1429.
17. Pratt R, Wilkinson H. 2001. 'Tell Me the Truth' - The Effect of Being Told the Diagnosis of Dementia from the Perspective of the Person with Dementia. Mental Health Foundation: London.
18. Pratt R, Wilkinson H. 2003. A psychosocial model of understanding the experience of receiving a diagnosis of dementia. Int J Social Res Pract 2(2): 181-199.
19. Pucci E, Belardinelli N, Borsetti G, Guiliani G. 2003. Relatives' attitudes towards informing patients about the diagnosis of Alzheimer's disease. J Medical Ethics 29: 51-54.
20. Rice K, Warner N. 1994. Breaking the bad news: what do psychiatrists tell patients with dementia about their illness? Int J Geriatr Psychiatry 9: 467-471.
21. Rice K, Warner N, Tye T, Bayer A. 1997. Geriatricians' and psychiatrists' practice differs. BMJ 314: 376.
22. Sabat S. 1994. Excess disability and malignant social psychology: a case study of Alzheimer's disease. J Commun Appl Social Psychol 4: 157-166.
23. Sabat S. 1995. The Alzheimer's disease sufferer as a semiotic subject. Philosoph Psychiatry Psychol 1: 145-160.
24. Vassilas CA, Donaldson J. 1998. Telling the truth: what do general practitioners say to patients with dementia or terminal cancer? Br J Gen Pract 48: 1081-1082.
25. Yale R. 1999. Support groups and other services for individuals with early stage Alzheimer's disease. Generations (J Am Soc Aging) 23(3): 57-61.