The impact of individualized evidence-based decision support on aneurysm patients' decision making, ideals of autonomy, and quality of life

Medical Decision Making

Volumn 28, Issue 5, 2008, Pages 751-762

  Stiggelbout, Anne M ^a   Molewijk, Albert C ^a   Otten, Wilma ^a   Van Bockel, J Hajo ^a   Bruijninckx, Cornelis M A ^b   Van Der Salm, Ilse ^a   Kievit, Job ^a  

^a LEIDEN UNIVERSITY MEDICAL CENTER   (Netherlands)

^b LEYENBURG HOSPITAL   (Netherlands)

Author keywords

Autonomy; Decision analysis; Patient satisfaction; Physician patient relations; Vascular surgical procedures

Indexed keywords

ABDOMINAL AORTA ANEURYSM; ARTICLE; CHECKLIST; CLINICAL TRIAL; CONSULTATION; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; DECISION SUPPORT SYSTEM; DOCTOR PATIENT RELATION; HUMAN; MAJOR CLINICAL STUDY; MEDICAL INFORMATION; PATIENT ATTITUDE; PATIENT DECISION MAKING; PATIENT PARTICIPATION; PATIENT SATISFACTION; QUALITY OF LIFE; QUESTIONNAIRE; RANDOMIZED CONTROLLED TRIAL; SURGEON; SURVIVAL; TREATMENT PLANNING; VASCULAR SURGERY;

AGED; AORTIC ANEURYSM, ABDOMINAL; DECISION MAKING; EVIDENCE-BASED MEDICINE; FEMALE; HUMANS; MALE; MASS MEDIA; MIDDLE AGED; NETHERLANDS; PATIENT EDUCATION AS TOPIC; PATIENT PARTICIPATION; PATIENT SATISFACTION; PERSONAL AUTONOMY; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 52149100152     PISSN: 0272989X     EISSN: 1552681X     Source Type: Journal    
DOI: 10.1177/0272989X08321680     Document Type: Article

References (24)

1. Sackett D. Evidence Based Medicine. How to Practice and Teach EBM. New York: Churchill Livingstone ; 1997.
2. Holmes-Rovner M., Kroll J., Rovner DR, et al. Patient decision support intervention: increased consistency with decision analytic models. Med Care. 1999 ; 37 (3). 270-84.
3. Edwards A., Elwyn G. Evidence-Based Patient Choice. Inevitable or Impossible? New York: Oxford University Press ; 2001.
4. Entwistle VA, Sheldon TA, Sowden A., Watt IS Evidence-informed patient choice. Practical issues of involving patients in decisions about health care technologies. Int J Technol Assess Health Care. 1998 ; 14 (2). 212-25.
5. Protheroe J., Fahey T., Montgomery AA, Peters TJ The impact of patients' preferences on the treatment of atrial fibrillation: observational study of patient based decision analysis. BMJ. 2000 ; 320 (7246). 1380-4.
6. Stiggelbout AM, Molewijk AC, Otten W., Timmermans DR, van Bockel JH, Kievit J. Ideals of patient autonomy in clinical decision making: a study on the development of a scale to assess patients' and physicians' views. J Med Ethics. 2004 ; 30 (3). 268-74.
7. Beauchamp TL, Childress JF Principles of Biomedical Ethics. New York: Oxford University Press ; 1994.
8. Auerbach SM Do patients want control over their own health care? A review of measures, findings, and research issues. J Health Psychol. 2001 ; 6 (2). 191-203.
9. Bekker H., Thornton JG, Airey CM, et al. Informed decision making: an annotated bibliography and systematic review. Health Technol Assess. 1999 ; 3 (1). 1-156.
10. Schneider CE The Practice of Autonomy. Patients, Doctors, and Medical Decisions. New York: Oxford University Press ; 1998.
11. Bates T. Ethics of consent to surgical treatment. Br J Surg. 2001 ; 88 (10). 1283-4.
12. Degner LF, Sloan JA Decision making during serious illness: what role do patients really want to play ? J Clin Epidemiol. 1992 ; 45 (9). 941-50.
13. Falkum E., Forde R. Paternalism, patient autonomy, and moral deliberation in the physician-patient relationship. Attitudes among Norwegian physicians. Soc Sci Med. 2001 ; 52 (2). 239-48.
14. Steyerberg EW, Kievit J., de Mol Van Otterloo JC, van Bockel JH, Eijkemans MJ, Habbema JD Perioperative mortality of elective abdominal aortic aneurysm surgery. A clinical prediction rule based on literature and individual patient data. Arch Intern Med. 1995 ; 155 (18). 1998-2004.
15. Timmermans D., van Bockel H., Kievit J. Improving the quality of surgeons' treatment decisions: a comparison of clinical decision making with a computerised evidence based decision analytical model. Qual Health Care. 2001 ; 10 (1). 4-9.
16. Molewijk AC Risky business. Individualised evidence-based decision support and the ideal of patient autonomy [thesis]. Leiden University, 2006.
17. Zigmond AS, Snaith RP The hospital anxiety and depression scale. Acta Psychiatr Scand. 1983 ; 67 (6). 361-70.
18. de Haes JCJM. Kwaliteit van leven van kankerpatiënten [Quality of Life of Cancer Patients]. Amsterdam / Lisse: Swets-Zeitlinger ; 1988.
19. Ashcroft R., Hope T., Parker M. Ethical issues and evidence based patient choice. In: Edwards A, Elwyn G, editors. Evidence-Based Patient Choice. Inevitable or Impossible? New York: Oxford University Press ; 2001. p. 53-65.
20. Coulter A. Partnerships with patients: the pros and cons of shared clinical decision-making. J Health Serv Res Policy. 1997 ; 2 (2). 112-21.
21. Agich GJ Reassessing autonomy in long-term care. Hastings Cent Rep. 1990 ; 20 (6). 12-17.
22. Manschot H. Levenskunst of lijfsbehoud? Een humanistische kritiek op het beginsel van autonomie in de gezondheidszorg [Art of Living or to Save One's Life? A Humanitarian Critique on the Principle of Autonomy in Health Care]. Utrecht: Universiteit voor Humanistiek ; 1992.
23. Moody HR Ethics in an Aging Society. Baltimore: The Johns Hopkins University Press ; 1992.
24. Deber RB, Kraetschmer N., Irvine J. What role do patients wish to play in treatment decision making ? Arch Intern Med. 1996 ; 156 (13). 1414-20.