Family-based short breaks (respite) for disabled children: Results from the fourth national survey

British Journal of Social Work

Volumn 38, Issue 6, 2008, Pages 1060-1075

  Cramer, Helen ^a   Carlin, Jeanne ^b  

^a UNIVERSITY OF BRISTOL   (United Kingdom)

^b NONE

Author keywords

Disabled children; Family based short breaks; Respite; Services

Indexed keywords

EID: 51849142344     PISSN: 00453102     EISSN: 1468263X     Source Type: Journal    
DOI: 10.1093/bjsw/bcl393     Document Type: Article

References (35)

1. Beckford, V. and Robinson, C. (1993) Consolidation or Change? A Second Survey of Family-Based Respite Care Services in the UK, Bristol, Shared Care Network.
2. Beresford, B. (1995) Expert Opinions: A National Survey of Parents Caring for a Severely Disabled Child, Bristol/York, The Policy Press/JRF.
3. Cabinet Office (June 2004) Improving the Life Chances of Disabled People, London, Prime Minister's Strategy Unit.
4. Carlin, J. and Cramer, H. (in press) Creative Responses to Changing Needs: Fourth National Survey of Family-Based Short Break Services for Disabled Children, York, York Publishing Service.
5. Carlin, J., Morrison, J., Bullock, J. and Nawaz, S. (2004) All Kinds of Short Breaks: A Guide to Providing a Range of Quality Services to Disabled Children and Young People, Bristol, Shared Care Network.
6. Chan, J. B. and Sigafoos, J. (2001) 'Does respite care reduce parental stress in families with developmentally disabled children?', Child and Youth Care Forum, 30(5), pp. 253-63.
7. Cocks, A. (2000) 'Respite care for disabled children: Micro and macro reflections', Disability and Society, 15(3), pp. 507-19.
8. Contact a Family (2004) No Time for Us: Relationships Between Parents Who Have a Disabled Child: A Survey of Over 2,000 Parents in the UK, London, Contact a Family.
9. Cotterill, L., Hayes, L., Flynn, M. and Sloper, P. (1997) 'Reviewing respite services: some lessons from the literature', Disability and Society, 12(5), pp. 775-88.
10. Department for Education and Skills and Department of Health (2006) Options for Excellence: Building the Social Care Workforce of the Future, London, DH Publications.
11. Department of Health, Social Services Inspectorate (1998) Removing Barriers for Disabled Children: Inspection of Services to Disabled Children and their Families, London, HMSO.
12. Department of Health, Local Authority Circular (2000)22, Health Services Circular 2000/ 033. The Quality Protects Programme: Transforming Children's Services 2001-02, London, Crown Copyright, available online at www.dh.gov.uk/PublicationsAndStatistics/LettersAndCirculars/ HealthServiceCirculars/HealthServiceCircularsArticle/fs/en? CONTENT_ID= 4003877&chk=94ScvB (accessed 5 December 2006).
13. Evidence Network (2003) What Works for Children? Meeting the Needs of Families with Disabled Children: What Works and What's Promising? University of York/City University/Barnardo's/ESRC, available online at www.whatworksforchildren.org.uk/docs/Briefings/Disability%20Briefing.pdf (accessed 4 August 2006).
14. Flynn, R. (2002) Short Breaks: Providing Better Access and More Choice for Black Disabled Children and Their Parents, Bristol, Policy Press and Joseph Rowntree Foundation.
15. Franklin, A. and Sloper, P. (2006) 'Participation of disabled children and young people in decision making within social services departments: A survey of current and recent activities in England', British Journal of Social Work, 36, pp. 723-41.
16. Gray, P. and The Special Needs Consultancy (2006) National Audit of Support Services and Provision for Low Incidence Needs, London, Department for Education and Skills, available online at www.dfes.gov.uk/research/data/ uploadfiles/RR729.pdf (accessed 4 August 2006).
17. Heslop, P. and Robinson, C. (2004) Befriending: More than Just Finding Friends? Bristol, Shared Care Network.
18. Heslop, P., Byford, S. and Weatherly, H. (2003) Better Rewards: The Cost and Effectiveness of Employing Salaried Support Carers to Reduce Waiting Lists for Short-Term Care, Bristol, Norah Fry Research Centre and Shared Care Network.
19. MacDonald, H. and Callery, P. (2004) 'Different meanings of respite: A study of parents, nurses and social workers caring for children with complex needs', Child: Care, Health and Development, 30(3), pp. 279-88.
20. McConkey, R. and Adams, L. (2000) 'Matching short break services for children with learning disabilities to family needs and preferences', Child: Care, Health and Development, 26(5), pp. 429-44.
21. Morris, J. (1997) 'Gone missing? Disabled children living away from their families', Disability and Society, 12(2), pp. 241-58.
22. Orlik, C., Robinson, C. and Russell, O. (1991) A Survey of Family Based Respite Care Services in the UK, Bristol, Shared Care UK.
23. Prewett, B. (1999) Short-Term Break Long-Term Benefit, Sheffield, University of Sheffield, Joint Unit for Social Services Research.
24. Prewett, B. (2000) Committed to Caring: The Views of Short Break Carers for Children Who are 'Hard to Place', York, Joseph Rowntree Foundation.
25. Robinson, C. (1994) 'Making the break from "respite care": A keynote review', British Journal of Learning Disabilities, 22, pp. 42-5.
26. Robinson, C. and Stalker, K. (1993) 'Patterns of provision in respite care and the Children Act', British Journal of Social Work, 23, pp. 45-63.
27. Robinson, C., Jackson, P. and Townsley, R. (2001) 'Short breaks for families caring for a disabled child with complex health needs', Child and Family Social Work, 6(1), pp. 67-75.
28. Shared Care Scotland (1996) All Change - What Change? A Report based on a 1996 Survey of Family-Based Respite Care Schemes in Scotland, Dunfermline, Fife, Shared Care Scotland.
29. Shaw, I. (2005) 'Practitioner research: Evidence or critique?', British Journal of Social Work, 35, pp. 1231-48.
30. Sloper, P. (1999) 'Models of service support for parents of disabled children: What do we know? What do we need to know?' Child: Care, Health and Development, 25(2), pp. 85-99.
31. Sloper, P. (2002) Meeting the Needs of Disabled Children, Quality Protects Research Briefing No. 6 2002, London, Department of Health, Making Research Count, Research in Practice, available online at www.rip.org.uk/ publications/documents/QPB/brief6.pdf (accessed 4 August 2006).
32. Stalker, K. (1996) 'Principles, policy and practice in short-term care', in K. Stalker (ed.), Developments in Short-Term Care: Breaks and Opportunities, London and Bristol, Jessica Kingsley Publishers.
33. Stalker, K. and Robinson, C. (1994) 'Parents views of different respite care services', Mental Handicap Research, 7, pp. 97-117.
34. Tarleton, B. and Macaulay, F. (2002) Better for the Break? Short Break Services for Children and Teenagers with Autistic Spectrum Disorders and their Families, York, York Publishing Services.
35. Treneman, M., Corker, A., Dowdney, L. and Hammond, J. (1997) 'Respite-care needs met and unmet: Assessment of needs for children with disability', Developmental Medicine and Child Neurology, 39, pp. 548-53.