Short breaks for families caring for a disabled child with complex health needs

Child and Family Social Work

Volumn 6, Issue 1, 2001, Pages 67-75

  Robinson, C ^a   Jackson, P ^b   Townsley, R ^a  

^a UNIVERSITY OF BRISTOL   (United Kingdom)

^b BRUNEL UNIVERSITY   (United Kingdom)

Author keywords

children; complex health needs; disability; invasive treatments; respite; short term care breaks

Indexed keywords

EID: 84937334361     PISSN: 13567500     EISSN: 13652206     Source Type: Journal    
DOI: 10.1046/j.1365-2206.2001.00185.x     Document Type: Article

References (17)

1. Alberman, E., Nicholson, A. & Wald, K. (1992) Severe Learning Disability in Young Children: Likely Future Trends. Wolfson Centre, Institute of Preventive Medicine, London.
2. Beckford, V. & Robinson, C. (1993) Consolidation or Change? A Second Survey of Family Based Respite Care Services in the UK. Shared Care UK, Bristol.
3. Beresford, B. (1995) Expert Opinions: A National Survey of Parents Caring for a Severely Disabled Child. Policy Press, Bristol.
4. British Artificial Nutrition Survey (1997) Annual Report [On-line]. Available at: http://www.bapen.org.uk/bans1997.htm.
5. Chamba, R., Ahmed, W., Hirst, M., Lawton, D. & Beresford, B. (1999) On the Edge: Minority Ethnic Families Caring for a Severely Disabled Child. Policy Press, Bristol.
6. Department of Health (1991a) The Arrangement of Placement of Children (General) Regulations. HMSO, London.
7. Department of Health (1991b) The Review of Children’s Cases Regulations. HMSO, London.
8. Glendinning, C., Kirk, S., Guiffrida, A. & Lawton, D. (1999) The Community Based Care of Technology Dependent Children in the UK: Definitions, Numbers and Costs. Report commissioned by the Department of Health. National Centre for Primary Care Research and Development, Manchester University, Manchester.
9. Jardine, E., O'Toole, M., Paton, J.Y. & Wallis, C. (1999) The current status of long term ventilation of children in the United Kingdom. British Medical Journal, 318, 295–298.
10. Macadam, M. & Robinson, C. (1995) Balancing the Act: The Impact of the Children Act, 1989 on Family Link Services for Children with Disabilities. National Children’s Bureau, London.
11. Newitt, B., Jones, V. & Robinson, C. (1997) Quality Counts: A Review of Quality Assurance in Family Based Short Term Care. Shared Care Network, Bristol.
12. Prewett, E. (1999) Short Term Break – Long Term Benefit. University of Sheffield and Community Care – Joint Monographs Series. Joint Unit for Social Services Research, University of Sheffield, Sheffield.
13. Robinson, C. & Jackson, P. (1999) Children’s Hospices: A Lifeline for Families? National Children’s Bureau, London.
14. Robinson, C. & Stalker, S. (1989) Time for a Break: Respite Care: A Study of Providers, Consumers and Patterns of Use. Norah Fry Research Centre, University of Bristol, Bristol.
15. Stalker, S. & Robinson, C. (1991) You’re on the Waiting List: Families waiting for Respite Care Services. Norah Fry Research Centre, University of Bristol, Bristol.
16. Townsley, R. & Robinson, C. (1997) On Line Support: Effective Support Services to Disabled Children who are Tube Fed. Interim Report to the NHS Executive. Norah Fry Research Centre, University of Bristol, Bristol.
17. Townsley, R. & Robinson, C. (2000) Food for Thought? Effective Support for Families Caring for a Child who is Tube Fed. Norah Fry Research Centre, University of Bristol, Bristol.