Perceptions of risk in research participation among underserved minority drug users

Substance Use and Misuse

Volumn 43, Issue 11, 2008, Pages 1640-1652

  Slomka, Jacquelyn ^a   Ratliff, Eric A ^a   McCurdy, Sheryl ^a   Timpson, Sandra ^a   Williams, Mark L ^a  

^a UNIVERSITY OF TEXAS SCHOOL OF PUBLIC HEALTH   (United States)

Author keywords

Drug use; HIV AIDS; Research ethics; Research participation; Research risk; Risk perception; Underserved minorities

Indexed keywords

COCAINE;

ADULT; AFRICAN AMERICAN; ARTICLE; CLINICAL ARTICLE; COCAINE DEPENDENCE; DRUG USE; FEMALE; HUMAN; MALE; PRIORITY JOURNAL; RISK; RISK ASSESSMENT; SEMI STRUCTURED INTERVIEW; ADDICTION; ETHICS; HEALTH CARE PLANNING; HUMAN EXPERIMENT; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; INTERVIEW; MIDDLE AGED; MINORITY GROUP; RESEARCH SUBJECT; SAFETY; SELF CONCEPT; UNITED STATES;

ADULT; AFRICAN AMERICANS; CRACK COCAINE; FEMALE; HIV INFECTIONS; HUMAN EXPERIMENTATION; HUMANS; INTERVIEWS AS TOPIC; MALE; MEDICALLY UNDERSERVED AREA; MIDDLE AGED; MINORITY GROUPS; RESEARCH SUBJECTS; RISK; SAFETY MANAGEMENT; SELF CONCEPT; SUBSTANCE-RELATED DISORDERS; TEXAS;

EID: 50649087934     PISSN: 10826084     EISSN: 15322491     Source Type: Journal    
DOI: 10.1080/10826080802241243     Document Type: Article

References (25)

1. Anderson, E. E., DuBois, J. M. (2007). The need for evidence-based research ethics: A review of the substance abuse literature. Drug and Alcohol Dependence 86:95-105.
2. Bloor, M. (1995). A user's guide to contrasting theories HIV-related risk behavior. In J. Gabe (Ed.), Medicine, health and risk: The need for a sociological approach. Oxford: Blackwell Publishers, Ltd.
3. Coleman, C. H. (2004). Rationalizing risk assessment in human subject research. Arizona Law Review 46:1-51.
4. Coletti, A. S., Heagerty, P., Sheon, A. R., Gross, M., Koblin, B. A., Metzger, D. S., et al. (2003). Randomized, controlled evaluation of a prototype informed consent process for HIV vaccine efficacy trials. Journal of Acquired Immune Deficiency Syndromes 32:161-169.
5. Connors, M. M. (1992). Risk perception, risk taking and risk management among intravenous drug users: implications for AIDS prevention. Social Science and Medicine 34:591-601.
6. Douglas, M., Wildavsky, A. (1983). Risk and culture: an essay on the selection of technological and environmental dangers. Berkeley, CA: University of California Press.
7. Gifford, A. L., Cunningham, W. E., Heslin, K. C., Andersen, R. M., Nakazono, T., Lieu, D. K., et al. (2002). Participation in research and access to experimental treatments by HIV-infected patients. New England Journal of Medicine 346:1373-1382.
8. Gordon, E. J. (2003). Trials and tribulations of navigating IRBs: anthropological and biomedical perspectives of "risk" in conducting human subjects research. Anthropological Quarterly 76:299-320.
9. Hsieh, H., Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research 15:1277-1288.
10. Kalichman, S.C., Simbayi, L.C., Jooste, S., Cherry, C., Cain, D. (2005). Poverty-related stressors and HIV/AIDS transmission risks in two South African communities. Journal of Urban Health 82:237-249.
11. Kimmelman, J. (2004). Valuing risk: the ethical review of clinical trial safety. Kennedy Institute of Ethics Journal 14:369-393.
12. Lidz, C. W., Appelbaum, P. S., Grisso, T., Renaud, M. (2004). Therapeutic misconception and the appreciation of risk in clinical trials. Social Science and Medicine 58:1689-1697.
13. Lidz, C. W., Appelbaum, P. S. (2002). The therapeutic misconception: problems and solutions. Medical Care 40:V-55-V63.
14. Mastroianni, A., Kahn, J. (2001). Swinging on the pendulum. Shifting views of justice in human subjects research. Hastings Center Report 31:21-28.
15. Patton, M. Q. (2002). Qualitative research and evaluation methods (3rd ed.). Thousand Oaks, CA: Sage.
16. Redelmeier, D. A., Rozin, D. A., Kahneman, D. (1993). Understanding patients' decisions: cognitive and emotional perspectives. Journal of the American Medical Association 270:72-76.
17. Rhodes, T. (1997). Risk theory in epidemic times: sex, drugs and the social organization of 'risk behaviour'. Sociology of Health & Illness 19:208-227.
18. Rhodes, T., Singer, M., Bourgois, P., Friedman, S. R., Strathdee, S. A. (2005). The social structural production of HIV risk among injecting drug users. Social Science and Medicine 61:1026-1044.
19. Roth, L. H., Meisel, A., Lidz, C. W. (1977). Tests of competency to consent to treatment. American Journal of Psychiatry 134:279-284.
20. Sieber, J. E. (2004). Empirical research on research ethics. Ethics and Behavior 14:397-412.
21. Slomka, J., McCurdy, S., Ratliff, E. A., Timpson, S., Williams, M. L. (2007). Perceptions of financial payment for research participation among African-American drug users in HIV studies. Journal of General Internal Medicine 22:1403-1409.
22. Slomka, J., Ratliff, E. A., McCurdy, S. A., Timpson, S., Williams, M. L. (2008). Decisions to participate in research: views of underserved minority drug users with or at risk for HIV. AIDS Care. (Online publication 17 June 2008).
23. Slovic, P. (1999). Trust, emotion, sex, politics, and science: surveying the risk-assessment battlefield. Risk Analysis 19:689-701.
24. Vosvick, M., Gore-Felton, C., Ashton, E., Koopman, C., Fluery, T., Israelski, D., et al. (2004). Sleep disturbances among HIV-positive adults. The role of pain, stress, and social support. Journal of Psychosomatic Research 57:459-463.
25. Wojtasiewicz, M. E. (2006). Damage compounded: Disparities, distrust, and disparate impact in end-of-life conflict resolution policies. The American Journal of Bioethics 6:8-12.