Internet use and the logics of personal empowerment in health

Health Policy

Volumn 88, Issue 1, 2008, Pages 130-140

  Lemire, Marc ^a   Sicotte, Claude ^a   Paré, Guy ^b  

^a UNIVERSITÉ DE MONTRÉAL   (Canada)

^b HEC MONTRÉAL   (Canada)

Author keywords

Case study; Collective support; Consumerism; Internet; Personal empowerment; Personal health

Indexed keywords

ADULT; AGED; ARTICLE; COMPETENCE; CONCEPTUAL FRAMEWORK; DECISION MAKING; EMPOWERMENT; FEMALE; HUMAN; INTERNET; LOGIC; MALE; MEDICAL INFORMATION; ONLINE SYSTEM; RESPONSIBILITY; STRUCTURED QUESTIONNAIRE;

ADULT; AGED; CANADA; CONSUMER HEALTH INFORMATION; FEMALE; HUMANS; INTERNET; MALE; MIDDLE AGED; PATIENT PARTICIPATION; QUESTIONNAIRES;

EID: 50349097615     PISSN: 01688510     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.healthpol.2008.03.006     Document Type: Article

References (60)

1. Segal L. The importance of patient empowerment in health system reform. Health Policy 44 (1998) 31-44
2. Tritter J.Q., and McCallum A. The snakes and ladders of user involvement: moving beyond Arnstein. Health Policy 76 (2006) 156-168
3. Cappelen A., and Norheim O. Responsibility, fairness and rationing in health care. Health Policy 76 3 (2006) 312-319
4. Minkler M. Personal responsibility for health? a review of the arguments and the evidence at century's end. Health Education & Behavior 26 1 (1999) 121-140
5. Anderson J.M. Empowering patients: issues and strategies. Social Science & Medicine 43 5 (1996) 697-705
6. Renahy E., and Chauvin P. Internet uses for health information seeking: a literature review. Revue d'Epidemiologie et de Sante Publique 54 3 (2006) 263-275
7. Ybarra M.L., and Suman M. Help Seeking behavior and the internet: a national survey. International Journal of Medical Informatics 75 1 (2006) 9-41
8. Rice R.E. Influences, usage, and outcomes of internet health information searching: multivariate results from the Pew surveys. International Journal of Medical Informatics 75 1 (2006) 18-25
9. Nicholas D., Huntington P., Gunter B., Russell C., and Withey R. The British and their use of the web for health information and advice: a survey. Aslib Proceedings 55 5/6 (2003) 258-260
10. Van Uden-Kraan C.F., Drossaert C.H., Taal E., Shaw B.R., Seydel E.R., and Van de Laar M.A.F.J. Empowering processes and outcomes of participation in online support groups for patients with breast cancer, arthritis, or fibromyalgia. Qualitative Health Research 18 3 (2008) 405-417
11. Demiris G. The diffusion of virtual communities in health care: concepts and challenges. Patient Education and Counseling 62 (2006) 178-188
12. Henwood F., Wyatt S., Hart A., and Smith J. 'Ignorance is bliss sometimes': constraints on the emergence of the 'informed patient' in the changing landscapes of health information. Sociology of Health and Illness 25 6 (2003) 589-607
13. Le Bossé Y. De l'habilitation au pouvoir d'agir: vers une appréhension plus circonscrite de la notion d'empowerment. Nouvelles pratiques sociales 16 2 (2004) 30-51
14. Starkey F. The 'empowerment debate': consumerist, professional and liberational perspectives in health and social care. Social Policy & Society 2 4 (2003) 273-284
15. Zimmerman M.A. Psychological empowerment: issues and illustrations. American Journal of Community Psychology 23 5 (1995) 581-599
16. Rappaport J. Studies in empowerment: introduction to the Issue. Prevention in Human Services (1984) 31-37
17. Adams S., and Bont A. Information Rx: prescribing good consumerism and responsible citizenship. Health Care Analysis 15 4 (2007) 273-290
18. Fox N.J., Ward K.J., and O'Rourke A.J. The 'expert patient': empowerment or medical dominance? The case of weight loss, pharmaceutical drugs and the internet. Social Science & Medicine 60 6 (2005) 1299-1309
19. Salmon P., and Hall G.K. Patient empowerment and control: a psychological discourse in the service of medicine. Social Science & Medicine 57 10 (2003) 1969-1980
20. Dixon-Woods M. Writing wrongs? An analysis of published discourses about the use of patient information leaflets. Social Science & Medicine 52 9 (2001) 1417-1432
21. Wilson P.M. A policy analysis of the expert patient in the United Kingdom: self-care as an expression of pastoral power?. Health and Social Care in the Community 9 3 (2001) 134-142
22. Epstein R.M., Alper B.S., and Quill T.E. Communicating evidence for participatory decision making. Journal of the American Medical Association 291 19 (2004) 2359-2366
23. Stevenson F.A., Britten N., Barry C.A., Bradley C.P., and Barber N. Perceptions of legitimacy: the influence on medicine taking and prescribing. Health 6 (2002) 85-104
24. Bissell P., May C.R., and Noyce P.R. From compliance to concordance: barriers to accomplishing a re-framed model of health care interactions. Social Science & Medicine 58 4 (2004 Feb) 851-862
25. Anderson J.M. Home care management in chronic illness and the self-care movement: an analysis of ideologies and economic processes influencing policy decisions. Advanced Nursing Science 12 2 (1990) 71-83
26. Goode J., Greatbatch D., O'cathain A., Luff D., Hanlon G., and Strangleman T. Risk and the responsible health consumer: the problematics of entitlement among callers to NHS Direct. Critical Social Policy 24 2 (2004) 210-232
27. Prewo W. Consumer empowerment as a solution to health system financing. Pharmacoeconomics 18 Suppl. 1 (2000) 77-83
28. Kelner M., and Wellman B. Health care and consumer choice: medical and alternative therapies. Social Science & Medicine 45 (1997) 203-212
29. Haug M., and Lavin B. Consumerism in medicine: challenging physician authority (1983), Sage, Beverly Hills
30. Kalichman S.C., Benotsch E.G., Weinhardt L.S., Austin J., and Luke W. Internet use among people living with HIV/AIDS: association of health information, health behaviors, and health status. AIDS Education and Prevention 14 1 (2002) 51-61
31. Eysenbach G., and Jadad A. Evidence-based patient choice and consumer health informatics in the internet age. Journal of Medical Informatics Research 3 2 (2001) e19
32. Higgins J.W. Citizenship and empowerment: a remedy for citizen participation in health reform. Community Development Journal 34 4 (1999) 287-307
33. VanderPlaat M. Empowerment, emancipation and health promotion policy. Canadian Journal of Sociology 23 1 (1998) 71-90
34. Kieffer C.H. Citizen empowerment: a developmental perspective. Preventive Human Services 2 3 (1984) 9-36
35. Tran A.N., Haidet P., Street Jr. R.L., O'Malley K.J., Martin F., and Ashton C.M. Empowering communication: a community-based intervention for patients. Patient Education and Counseling 52 1 (2004) 113-121
36. Brainard L.A., and Siplon P.D. Cyberspace challenges to mainstream nonprofit health organizations. Administration and Society 34 2 (2002) 141-175
37. Burrows R., Nettleton S., Pleace N., Loader B., and Muncer S. Virtual community care? Social policy and the emergence of computer mediated social support. Information, Communication & Society 3 1 (2000) 95-121
38. Hoey L.M., Ieropoli S.C., White V.M., and Jefford M. Systematic review of peer-support programs for people with cancer. Patient Education and Counseling 70 3 (2008 Mar) 315-337
39. Macvean M.L., White V.M., and Sanson-Fisher R. One-to-one volunteer support programs for people with cancer: a review of the literature. Patient Education and Counseling 70 (2007) 10-24
40. Hsiung R.C. The best of both worlds: an online self-help group hosted by a mental health professional. Cyber Psychology & Behaviors 3 6 (2000) 935-950
41. Radin P. To me, it's my life: medical communication, trust, and activism in cyberspace. Social Science & Medicine 62 (2006) 591-601
42. Sandaunet A.G. The challenge of fitting in: non-participation and withdrawal from an online self-help group for breast cancer patients. Sociology of Health & Illness 30 1 (2008) 131-144
43. Hoffman-Goetz L., and Donelle L. Chat room computer-mediated support on health issues for aboriginal women. Health Care for Women International 28 4 (2007) 397-418
44. Broom A. Virtually healthy: the impact of internet use on disease experience and the doctor-patient relationship. Qualitative Health Research 15 3 (2005) 325-345
45. Høybye M.T., Johansen C., and Tjørnhøj-Thomsen T. Online interaction: effects of storytelling in an internet breast cancer support group. Psycho-Oncology 14 3 (2005) 211-220
46. Powell J., McCarthy N., and Eysenbach G. Crosssectional survey of users of internet depression communities. BMC Psychiatry 10 3 (2003) 19
47. Menon S.T. Toward a model of psychological health empowerment: implications for health care in multicultural communities. Nurse Education Today 22 (2002) 28-39
48. Welie J.V.M., and Welie S.P.K. Patient decision making competence: outlines of a conceptual analysis. Medicine, Health Care and Philosophy 4 (2001) 127-138
49. Robinson J.P., and Shaver P.R. Measure of psychological attitudes (1970), University of Michigan, Ann Arbor, MI
50. Nunnally J. Psychometric methods. 2nd edition (1978), McGraw-Hill, New York, NY
51. Lewis T. Seeking health information on the internet: lifestyle choice or a bad attack of cyberchondria?. Media, Culture & Society 28 4 (2006) 521-539
52. Wilson P.M., Kendall S., and Brooks F. The expert patients programme: a paradox of patient empowerment and medical dominance. Health & Social Care in the Community 15 5 (2007) 426-438
53. Shaw J., and Baker M. Expert patient: dream or nightmare?. British Medical Journal 328 (2004) 723-724
54. Ziebland S. The importance of being expert: the quest for cancer information on the internet. Social Science & Medicine 59 9 (2004) 1783-1793
55. Hogg G., Laing A.W., and Winkelman D. The professional service encounter in the age of the internet. Journal of Services Marketing 17 5 (2003) 476-494
56. Ahmad F., Hudak P.L., Bercovitz K., Hollenberg E., and Levinson W. Are physicians ready for patients with Internet-based health information?. Journal of Medical Internet Research 8 3 (2006) e22
57. Diaz J.A., Griffith R.A., Ng J.J., Reinert S.E., Friedmann P.D., and Moulton A.W. Patients' use of the internet for medical information. Journal of General Internal Medicine 17 3 (2002) 180-185
58. Votova K., and Wister A.V. Self-care dimensions of complementary and alternative medicine use among older adults. Gerontology 53 1 (2006) 21-27
59. Lupton D. Consumerism, reflexivity and medicine. Social Science & Medicine 43 3 (1997) 373-381
60. Reeves P.M. Coping in cyberspace: the impact of internet use on the ability of HIV-positive individuals to deal with their illness. Journal of Health Communication 5 Suppl. (2000) 47-59