The use of patient and provider perspectives to develop a patient-oriented website for women diagnosed with breast cancer

Patient Education and Counseling

Volumn 72, Issue 3, 2008, Pages 429-435

  Clayman, Marla L ^a   Boberg, Eric W ^a   Makoul, Gregory ^a,b  

^a NORTHWESTERN UNIVERSITY   (United States)

^b SAINT FRANCIS HOSPITAL AND MEDICAL CENTER   (United States)

Author keywords

Breast cancer; Internet; Patient education

Indexed keywords

ADULT; AGED; ARTICLE; BREAST CANCER; CANCER PATIENT; CLINICAL ARTICLE; CONTENT ANALYSIS; CONTROLLED STUDY; EDUCATION PROGRAM; FEMALE; HEALTH CARE PERSONNEL; HEALTH PROGRAM; HUMAN; INFORMATION PROCESSING; INTERNET; INTERVIEW; MEDICAL INFORMATION; PATIENT EDUCATION; PRIORITY JOURNAL;

BREAST NEOPLASMS; FEMALE; HUMANS; INTERNET; LONGITUDINAL STUDIES; NEEDS ASSESSMENT; PATIENT EDUCATION AS TOPIC; PROGRAM DEVELOPMENT; SOCIAL SUPPORT; USER-COMPUTER INTERFACE;

EID: 48949087076     PISSN: 07383991     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pec.2008.05.032     Document Type: Article

References (33)

1. American Cancer Society. Breast Cancer Facts and Figures 2005-2006. Atlanta: American Cancer Society, Inc; 2005.
2. American Cancer Society. Cancer Facts and Figures 2006. Atlanta, Georgia, 2006.
3. Baum M., and Ravdin P.M. Decision-making in early breast cancer: guidelines and decision tools. Eur J Cancer 38 6 (2002) 745-749
4. Duric V., and Stockler M. Patients' preferences for adjuvant chemotherapy in early breast cancer: a review of what makes it worthwhile. Lancet Oncol 2 11 (2001) 691-697
5. Feldman M., Stanford R., Catcheside A., and Stotter A. The use of a prognostic table to aid decision making on adjuvant therapy for women with early breast cancer. Eur J Surg Oncol 28 6 (2002) 615-619
6. Irwin E., Arnold A., Whelan T.J., Reyno L.M., and Cranton P. Offering a choice between two adjuvant chemotherapy regimens: a pilot study to develop a decision aid for women with breast cancer. Patient Educ Couns 37 3 (1999) 283-291
7. Molenaar S., Sprangers M.A., Rutgers E.J., Luiten E.J., Mulder J., Bossuyt P.M., et al. Decision support for patients with early-stage breast cancer: effects of an interactive breast cancer CDROM on treatment decision, satisfaction, and quality of life. J Clin Oncol 19 6 (2001) 1676-1687
8. O'Connor A.M., Llewellyn-Thomas H.A., Sawka C., Pinfold S.P., To T., and Harrison D.E. Physicians' opinions about decision aids for patients considering systemic adjuvant therapy for axillary-node negative breast cancer. Patient Educ Couns 30 2 (1997) 143-153
9. Ravdin P.M., Siminoff I.A., and Harvey J.A. Survey of breast cancer patients concerning their knowledge and expectations of adjuvant therapy. J Clin Oncol 16 2 (1998) 515-521
10. Elit L., Charles C., Gold I., Gafni A., Farrell S., Tedford S., et al. Women's perceptions about treatment decision making for ovarian cancer. Gynecol Oncol 88 2 (2003) 89-95
11. Blanchard C.G., Labrecque M.S., Ruckdeschel J.C., and Blanchard E.B. Information and decision-making preferences of hospitalized adult cancer patients. Soc Sci Med 27 11 (1988) 1139-1145
12. Cassileth B.R., Zupkis R.V., Sutton-Smith K., and March V. Information and participation preferences among cancer patients. Ann Intern Med 92 6 (1980) 832-836
13. Henman M.J., Butow P.N., Brown R.F., Boyle F., and Tattersall M.H. Lay constructions of decision-making in cancer. Psychooncology 11 4 (2002) 295-306
14. Stewart D., and Shamdasani P. Focus groups: theory and practice (1990), Sage, Newbury Park, CA
15. Arora N.K., Finney Rutten L.J., Gustafson D.H., Moser R., and Hawkins R.P. Perceived helpfulness and impact of social support provided by family, friends, and health care providers to women newly diagnosed with breast cancer. Psychooncology 16 5 (2007) 474-486
16. O'Leary K.A., Estabrooks C.A., Olson K., and Cumming C. Information acquisition for women facing surgical treatment for breast cancer: influencing factors and selected outcomes. Patient Educ Couns 69 1-3 (2007) 5-19
17. van Dulmen A.M., Verhaak P.F., and Bilo H.J. Shifts in doctor-patient communication during a series of outpatient consultations in non-insulin-dependent diabetes mellitus. Patient Educ Couns 30 3 (1997) 227-237
18. Graugaard P.K., Holgersen K., Eide H., and Finset A. Changes in physician-patient communication from initial to return visits: a prospective study in a haematology outpatient clinic. Patient Educ Couns 57 1 (2005) 22-29
19. Salminen E., Vire J., Poussa T., and Knifsund S. Unmet needs in information flow between breast cancer patients, their spouses, and physicians. Support Care Cancer 12 9 (2004) 663-668
20. National Cancer Institute. Making health communication programs work: NIH; 2001. Report no., 04-5145.
21. Lincoln Y.S., and Guba E.G. Naturalistic inquiry (1985), Sage, Beverly Hills, CA
22. Strauss A., and Corbin J. Basics of qualitative research: grounded theory procedures and techniques (1990), Sage, Newbury Park, CA
23. Makoul G, Cameron K, Baker D, Francis L, Scholtens D, Wolf M. A multimedia patient education program on colorectal cancer screening increases knowledge and willingness to consider screening among Hispanic/Latino patients. Patient Educ Couns, in press.
24. Cameron K, Rintamaki L, Kamanda-Kosseh M, Noskin G, Baker D, Makoul G. Using theoretical constructs to identify key issues for targeted message design: African American seniors' perceptions about influenza and influenza vaccination. Health Communication, in press.
25. Christopher K., and Makoul G. Patient narrative videos: learning from the illness experience. In: Fisher R., and Twohig P. (Eds). Making Sense of Health, Illness and Disease (2004), Rodopi, New York
26. Ardern-Jones A., Kenen R., and Eeles R. Too much, too soon? Patients and health professionals' views concerning the impact of genetic testing at the time of breast cancer diagnosis in women under the age of 40. Eur J Cancer Care (Engl) 14 3 (2005) 272-281
27. Ahlers-Schmidt C.R., Golbeck A.L., Paschal A.M., Zackula R., and Taylor N.T. Breast cancer counts: numeracy in breast cancer information on the web. J Cancer Educ 21 2 (2006) 95-98
28. Friedman D.B., Hoffman-Goetz L., and Arocha J.F. Readability of cancer information on the internet. J Cancer Educ 19 2 (2004) 117-122
29. Carvin A. More than just access: fitting literacy and content into the digital divide equation. EDUCAUSE review 35 6 (2000) 29-47
30. Meric-Bernstam F., Walji M., Sagaram S., Sagaram D., and Bernstam E. Currency of online breast cancer information. Medinfo 12 Pt 2 (2007) 973-976
31. Bernstam E.V., Walji M.F., Sagaram S., Sagaram D., Johnson C.W., and Meric-Bernstam F. Commonly cited website quality criteria are not effective at identifying inaccurate online information about breast cancer. Cancer 112 6 (2008) 1206-1213
32. Hesse B.W., Nelson D.E., Kreps G.L., Croyle R.T., Arora N.K., Rimer B.K., et al. Trust and sources of health information: the impact of the Internet and its implications for health care providers: findings from the first Health Information National Trends Survey. Arch Intern Med 165 22 (2005) 2618-2624
33. Rozmovits L., and Ziebland S. What do patients with prostate or breast cancer want from an Internet site? A qualitative study of information needs. Patient Educ Couns 53 1 (2004) 57-64