-
2
-
-
0031082775
-
Nuance, complexity, and context: Qualitative methods in genetic counseling research
-
Beeson, D. (1997). Nuance, complexity, and context: Qualitative methods in genetic counseling research. Journal of Genetic Counseling, 6, 21-43.
-
(1997)
Journal of Genetic Counseling
, vol.6
, pp. 21-43
-
-
Beeson, D.1
-
3
-
-
0032554222
-
The new genetics in clinical practice
-
Bell, J. (1998). The new genetics in clinical practice. British Medical Journal, 316, 618-620.
-
(1998)
British Medical Journal
, vol.316
, pp. 618-620
-
-
Bell, J.1
-
4
-
-
29744443746
-
A critical evaluation of the use of Interpretative Phenomenological Analysis (IPA) in health psychology
-
Brocki, J., & Wearden, A. (2006). A critical evaluation of the use of Interpretative Phenomenological Analysis (IPA) in health psychology. Psychology & Health, 21, 87-108.
-
(2006)
Psychology & Health
, vol.21
, pp. 87-108
-
-
Brocki, J.1
Wearden, A.2
-
5
-
-
0037607584
-
Ethical dilemmas in testing for late onset conditions: Reactions to testing and perceived impact on other family members
-
Chapman, E. (2002). Ethical dilemmas in testing for late onset conditions: Reactions to testing and perceived impact on other family members. Journal of Genetic Counseling, 11, 351-367.
-
(2002)
Journal of Genetic Counseling
, vol.11
, pp. 351-367
-
-
Chapman, E.1
-
6
-
-
0036129827
-
Interpretative phenomenological analysis and the new genetics
-
Chapman, E., & Smith, J. (2002). Interpretative phenomenological analysis and the new genetics. Journal of Health Psychology, 7, 125-130.
-
(2002)
Journal of Health Psychology
, vol.7
, pp. 125-130
-
-
Chapman, E.1
Smith, J.2
-
7
-
-
0033922967
-
Patient motivation, satisfaction and coping in genetic counseling and testing for BRCA1 and BRCA2
-
Clark, S., Bluman, L., Borstelmann, N., Regan, K., Winer, E., Rimer, B., et al. (2000). Patient motivation, satisfaction and coping in genetic counseling and testing for BRCA1 and BRCA2. Journal of Genetic Counseling, 9, 219-235.
-
(2000)
Journal of Genetic Counseling
, vol.9
, pp. 219-235
-
-
Clark, S.1
Bluman, L.2
Borstelmann, N.3
Regan, K.4
Winer, E.5
Rimer, B.6
-
8
-
-
21044456586
-
Genetic professionals' reports of nondisclosure of genetic risk information within families
-
Clarke, A., Richards, M., Kerzin-Storrar, L., Halliday, J., Young, M., Simpson, S., et al. (2005). Genetic professionals' reports of nondisclosure of genetic risk information within families. European Journal of Human Genetics, 13, 556-562.
-
(2005)
European Journal of Human Genetics
, vol.13
, pp. 556-562
-
-
Clarke, A.1
Richards, M.2
Kerzin-Storrar, L.3
Halliday, J.4
Young, M.5
Simpson, S.6
-
9
-
-
0028022712
-
Psychological costs and benefits of predictive testing for Huntington's disease
-
Codori, A., & Brandt, J. (1994). Psychological costs and benefits of predictive testing for Huntington's disease. American Journal of Medical Genetics, 54, 174-184.
-
(1994)
American Journal of Medical Genetics
, vol.54
, pp. 174-184
-
-
Codori, A.1
Brandt, J.2
-
11
-
-
3943063596
-
Stories in decisions: How at-risk individuals decide to request predictive testing for Huntington disease
-
Cox, S. (2003). Stories in decisions: How at-risk individuals decide to request predictive testing for Huntington disease. Qualitative Sociology, 26, 257-280.
-
(2003)
Qualitative Sociology
, vol.26
, pp. 257-280
-
-
Cox, S.1
-
12
-
-
0034997291
-
Experiences of genetic risk: Disclosure and the gendering of responsibility
-
d'Agincourt-Canning, L. (2001). Experiences of genetic risk: Disclosure and the gendering of responsibility. Bioethics, 15, 231-247.
-
(2001)
Bioethics
, vol.15
, pp. 231-247
-
-
d'Agincourt-Canning, L.1
-
13
-
-
30344445067
-
Genetic testing for hereditary breast and ovarian cancer: Responsibility and choice
-
d'Agincourt-Canning, L. (2006). Genetic testing for hereditary breast and ovarian cancer: Responsibility and choice. Qualitative Health Research, 16, 97-118.
-
(2006)
Qualitative Health Research
, vol.16
, pp. 97-118
-
-
d'Agincourt-Canning, L.1
-
14
-
-
2942639683
-
Living with Huntington's disease: Need for supportive care
-
Dawson, S., Kristjanson, L., Toye, C., & Flett, P. (2004). Living with Huntington's disease: Need for supportive care. Nursing and Health Sciences, 6, 123-130.
-
(2004)
Nursing and Health Sciences
, vol.6
, pp. 123-130
-
-
Dawson, S.1
Kristjanson, L.2
Toye, C.3
Flett, P.4
-
15
-
-
1642514709
-
Predictive testing for Huntington's disease: Relationship with partners after testing
-
Decruyenaere, M., Evers-Kiebooms, G., Cloostermans, T., Boogaerts, A., Demyttenaere, K., et al. (2004). Predictive testing for Huntington's disease: Relationship with partners after testing. Clinical Genetics, 65, 24-31.
-
(2004)
Clinical Genetics
, vol.65
, pp. 24-31
-
-
Decruyenaere, M.1
Evers-Kiebooms, G.2
Cloostermans, T.3
Boogaerts, A.4
Demyttenaere, K.5
-
16
-
-
21344461203
-
Negotiating responsibility: Case studies of reproductive decision-making and prenatal genetic testing in families facing Huntington disease
-
Downing, C. (2005). Negotiating responsibility: Case studies of reproductive decision-making and prenatal genetic testing in families facing Huntington disease. Journal of Genetic Counseling, 14, 219-234.
-
(2005)
Journal of Genetic Counseling
, vol.14
, pp. 219-234
-
-
Downing, C.1
-
17
-
-
33645354566
-
Genetic testing for Huntington disease - How is the decision taken?
-
Etchegary, H. (2006). Genetic testing for Huntington disease - How is the decision taken? Genetic Testing, 10, 60-67.
-
(2006)
Genetic Testing
, vol.10
, pp. 60-67
-
-
Etchegary, H.1
-
18
-
-
27744534654
-
It's their blood not mine:' Who's responsible for (not) telling relatives about genetic risk?
-
Forrest Kennan, K., Simpson, S., Wilson, B., van Teijlingen, E., McKee, L., Haites, N., et al. (2005). 'It's their blood not mine:' Who's responsible for (not) telling relatives about genetic risk? Health, Risk & Society, 7, 209-226.
-
(2005)
Health, Risk & Society
, vol.7
, pp. 209-226
-
-
Forrest Kennan, K.1
Simpson, S.2
Wilson, B.3
van Teijlingen, E.4
McKee, L.5
Haites, N.6
-
19
-
-
0036327263
-
Genetic testing for breast and ovarian cancer predisposition: Cancer burden and responsibility
-
Foster, C., Watson, M., Moyhnihan, C., Ardern-Jones, A., & Eeles, R. (2002). Genetic testing for breast and ovarian cancer predisposition: Cancer burden and responsibility. Journal of Health Psychology, 7, 469-484.
-
(2002)
Journal of Health Psychology
, vol.7
, pp. 469-484
-
-
Foster, C.1
Watson, M.2
Moyhnihan, C.3
Ardern-Jones, A.4
Eeles, R.5
-
20
-
-
0141745418
-
Disturbing notions of chronic illness and individual responsibility: Towards a genealogy of morals
-
Galvin, R. (2002). Disturbing notions of chronic illness and individual responsibility: Towards a genealogy of morals. Health, 6, 10-137.
-
(2002)
Health
, vol.6
, pp. 10-137
-
-
Galvin, R.1
-
21
-
-
0033181470
-
Doing the right thing: Genetic risk and responsibility
-
Hallowell, N. (1999). Doing the right thing: Genetic risk and responsibility. Sociology of Health & Illness, 21,597-621.
-
(1999)
Sociology of Health & Illness
, vol.21
, pp. 597-621
-
-
Hallowell, N.1
-
22
-
-
0034785677
-
Surveillance or surgery? A description of the factors that influence high risk premenopausal women's decisions about prophylactic oophorectomy
-
Hallowell, N., Jacobs, I., Richards, M., Mackay, J., & Gore, M. (2001). Surveillance or surgery? A description of the factors that influence high risk premenopausal women's decisions about prophylactic oophorectomy. Journal of Medical Genetics, 38, 683-691.
-
(2001)
Journal of Medical Genetics
, vol.38
, pp. 683-691
-
-
Hallowell, N.1
Jacobs, I.2
Richards, M.3
Mackay, J.4
Gore, M.5
-
23
-
-
2442521134
-
Accommodating risk: Responses to BRCA1/2 genetic testing of women who have had cancer
-
Hallowell, N., Foster, C., Eeles, R., Ardern-Jones, A., & Watson, M. (2004). Accommodating risk: Responses to BRCA1/2 genetic testing of women who have had cancer. Social Science & Medicine, 59, 553-565.
-
(2004)
Social Science & Medicine
, vol.59
, pp. 553-565
-
-
Hallowell, N.1
Foster, C.2
Eeles, R.3
Ardern-Jones, A.4
Watson, M.5
-
24
-
-
0037398070
-
Balancing autonomy and responsibility: The ethics of generating and disclosing genetic information
-
Hallowell, N., Foster, C., Eeles, R., Ardern-Jones, A., Murday, V., & Watson, M. (2003). Balancing autonomy and responsibility: The ethics of generating and disclosing genetic information. Journal of Medical Ethics, 29, 74-83.
-
(2003)
Journal of Medical Ethics
, vol.29
, pp. 74-83
-
-
Hallowell, N.1
Foster, C.2
Eeles, R.3
Ardern-Jones, A.4
Murday, V.5
Watson, M.6
-
25
-
-
21344449524
-
Men's decision-making about predictive BRCA1/2 testing: The role of family
-
Hallowell, N., Ardern-Jones, A., Eeles, R., Foster, C., Lucassen, A., Moynihan, C., et al. (2005). Men's decision-making about predictive BRCA1/2 testing: The role of family. Journal of Genetic Counseling, 14, 207-217.
-
(2005)
Journal of Genetic Counseling
, vol.14
, pp. 207-217
-
-
Hallowell, N.1
Ardern-Jones, A.2
Eeles, R.3
Foster, C.4
Lucassen, A.5
Moynihan, C.6
-
27
-
-
0009877958
-
The human genome project: Creator of the potentially sick, potentially vulnerable and potentially stigmatized?
-
I. Robinson Ed, London: Manchester University Press
-
Kenea, R. (1994). The human genome project: Creator of the potentially sick, potentially vulnerable and potentially stigmatized? In I. Robinson (Ed), Life and death under high technology medicine (pp. 49-64). London: Manchester University Press.
-
(1994)
Life and death under high technology medicine
, pp. 49-64
-
-
Kenea, R.1
-
29
-
-
0034097460
-
Assessing quality in qualitative research
-
Mays, N., & Pope, C. (2000). Assessing quality in qualitative research. British Medical Journal, 320, 50-52.
-
(2000)
British Medical Journal
, vol.320
, pp. 50-52
-
-
Mays, N.1
Pope, C.2
-
30
-
-
0040443914
-
Genetic risk and the birth of the somatic individual
-
Novas, C., & Rose, N. (2000). Genetic risk and the birth of the somatic individual. Economy & Society, 29, 485-513.
-
(2000)
Economy & Society
, vol.29
, pp. 485-513
-
-
Novas, C.1
Rose, N.2
-
31
-
-
0003628081
-
-
Available at
-
Nuffield Council on Bioethics. (1993). Genetic screening: Ethical issues. Available at http://www.nuffieldbioethics.org
-
(1993)
Genetic screening: Ethical issues
-
-
-
33
-
-
0029007707
-
Exploration of the effects of predictive testing for Huntington disease on intimate relationships
-
Quaid, K., & Wesson, M. (1995). Exploration of the effects of predictive testing for Huntington disease on intimate relationships. American Journal of Medical Genetics, 57, 46-51.
-
(1995)
American Journal of Medical Genetics
, vol.57
, pp. 46-51
-
-
Quaid, K.1
Wesson, M.2
-
34
-
-
0038279865
-
Attitudes towards genetic screening for predisposition to colon cancer among cancer patients, their relatives and members of the community
-
Ramsey, S., Wilson, S., Spencer, A., Geidzinska, A., & Newcomb, P. (2003). Attitudes towards genetic screening for predisposition to colon cancer among cancer patients, their relatives and members of the community. Community Genetics, 6, 29-36.
-
(2003)
Community Genetics
, vol.6
, pp. 29-36
-
-
Ramsey, S.1
Wilson, S.2
Spencer, A.3
Geidzinska, A.4
Newcomb, P.5
-
35
-
-
0033199926
-
Breast cancer risk after bilateral prophylactic oophorectomy in BRCA1 mutation carriers
-
Rebbeck, T., Levin, A., Eisen, A., Snyder, C., Watson, P., Cannon-Albright, L., et al. (1999). Breast cancer risk after bilateral prophylactic oophorectomy in BRCA1 mutation carriers. Journal of National Cancer Institute, 91, 1457-1479.
-
(1999)
Journal of National Cancer Institute
, vol.91
, pp. 1457-1479
-
-
Rebbeck, T.1
Levin, A.2
Eisen, A.3
Snyder, C.4
Watson, P.5
Cannon-Albright, L.6
-
36
-
-
0032015961
-
Annotation: Genetic research, family life and clinical practice
-
Richards, M. (1998). Annotation: Genetic research, family life and clinical practice. Journal of Child Psychology Q? Psychiatry, 39, 291-305.
-
(1998)
Journal of Child Psychology Q? Psychiatry
, vol.39
, pp. 291-305
-
-
Richards, M.1
-
37
-
-
1842429080
-
Couples' experiences of predictive testing and living with the risk or reality of Huntington disease: A qualitative study
-
Richards, F. (2004). Couples' experiences of predictive testing and living with the risk or reality of Huntington disease: A qualitative study. American Journal of Medical Genetics, 126A, 170-182.
-
(2004)
American Journal of Medical Genetics
, vol.126 A
, pp. 170-182
-
-
Richards, F.1
-
38
-
-
1842429088
-
Impact on couple relationships of predictive testing for Huntington disease: A longitudinal study
-
Richards, F., & Williams, K. (2004). Impact on couple relationships of predictive testing for Huntington disease: A longitudinal study. American Journal of Medical Genetics, 126A, 161-169.
-
(2004)
American Journal of Medical Genetics
, vol.126 A
, pp. 161-169
-
-
Richards, F.1
Williams, K.2
-
40
-
-
0031584044
-
Using research to develop care for patients with Huntington's disease
-
Skirton, H., & Glendinning, N. (1997). Using research to develop care for patients with Huntington's disease. British Journal of Nursing, 6, 83-90.
-
(1997)
British Journal of Nursing
, vol.6
, pp. 83-90
-
-
Skirton, H.1
Glendinning, N.2
-
41
-
-
85075290880
-
Interpretative phenomenological analysis and the psychology of health and illness
-
L. Yardley Ed, London: Routledge
-
Smith, J. A., Flowers, P., & Osborn, M. (1997). Interpretative phenomenological analysis and the psychology of health and illness. In L. Yardley (Ed), Material discourses of health and illness (pp. 68-91). London: Routledge.
-
(1997)
Material discourses of health and illness
, pp. 68-91
-
-
Smith, J.A.1
Flowers, P.2
Osborn, M.3
-
42
-
-
0000531578
-
Doing interpretative phenomenological analysis
-
M. Murray & K. Chamberlain Eds, London: Sage
-
Smith, J. A., Jarman, M., & Osborn, M. (1999). Doing interpretative phenomenological analysis. In M. Murray & K. Chamberlain (Eds), Qualitative health psychology: Theories and methods (pp. 218-240). London: Sage.
-
(1999)
Qualitative health psychology: Theories and methods
, pp. 218-240
-
-
Smith, J.A.1
Jarman, M.2
Osborn, M.3
-
43
-
-
0033989352
-
Impact of genetic testing for Huntington disease on the family system
-
Sobel, S., & Cowan, D. (2000). Impact of genetic testing for Huntington disease on the family system. American Journal of Medical Genetics, 90, 49-59.
-
(2000)
American Journal of Medical Genetics
, vol.90
, pp. 49-59
-
-
Sobel, S.1
Cowan, D.2
-
45
-
-
0142186776
-
Predictive genetic test decisions for Huntington's disease: Context, appraisal and new moral imperatives
-
Taylor, S. (2004). Predictive genetic test decisions for Huntington's disease: Context, appraisal and new moral imperatives. Social Science & Medicine, 58, 137-149.
-
(2004)
Social Science & Medicine
, vol.58
, pp. 137-149
-
-
Taylor, S.1
-
46
-
-
0030636102
-
Three year follow-up after presymptomatic testing for Huntington's disease in tested individuals and partners
-
Tibben, A., Timman, R., Bannink, E. C., & Duivenvoorden, H. J. (1997). Three year follow-up after presymptomatic testing for Huntington's disease in tested individuals and partners. Health Psychology, 16, 20-35.
-
(1997)
Health Psychology
, vol.16
, pp. 20-35
-
-
Tibben, A.1
Timman, R.2
Bannink, E.C.3
Duivenvoorden, H.J.4
-
47
-
-
0027537895
-
Presymptomatic DNA-testing for Huntington disease: Pretest attitudes and expectations of applicants and their partners in the Dutch program
-
Tibben, A., Frets, P., van de Kamp, J., Niermeijer, M., Vegter-van der Vlis, M., Roos, R., et al. (1993). Presymptomatic DNA-testing for Huntington disease: Pretest attitudes and expectations of applicants and their partners in the Dutch program. American Journal of Medical Genetics, 48, 10-16.
-
(1993)
American Journal of Medical Genetics
, vol.48
, pp. 10-16
-
-
Tibben, A.1
Frets, P.2
van de Kamp, J.3
Niermeijer, M.4
Vegter-van der Vlis, M.5
Roos, R.6
-
48
-
-
26044442224
-
Factors influencing uptake of genetic testing for colorectal cancer risk in an Australian Jewish population
-
Warner, B., Curnow, L., Polglase, A., & Debinski, H. (2006). Factors influencing uptake of genetic testing for colorectal cancer risk in an Australian Jewish population. Journal of Genetic Counseling, 14, 387-394.
-
(2006)
Journal of Genetic Counseling
, vol.14
, pp. 387-394
-
-
Warner, B.1
Curnow, L.2
Polglase, A.3
Debinski, H.4
|