Contending visions in the evolution of genetic medicine: The case of cancer genetic services in Ontario, Canada

Social Science and Medicine

Volumn 67, Issue 1, 2008, Pages 152-160

  Miller, Fiona Alice ^a   Giacomini, Mita ^a   Ahern, Catherine ^a  

^a UNIVERSITY OF TORONTO   (Canada)

Author keywords

Canada; Cancer genetics; Genetic risk assessment; Models of care; Professions

Indexed keywords

CANCER; ETHICS; GENETIC ANALYSIS; GENETICS; HEALTH CARE; MEDICINE; RISK ASSESSMENT; TESTING METHOD;

ARTICLE; BREAST CANCER; CANADA; CANCER GENETICS; CLINICAL PRACTICE; COLORECTAL CANCER; HEALTH CARE; HEALTH CARE PERSONNEL; HEALTH PROGRAM; HEALTH SERVICE; LEADERSHIP; OVARY CANCER;

ATTITUDE OF HEALTH PERSONNEL; ATTITUDE TO HEALTH; FEMALE; GENETIC PREDISPOSITION TO DISEASE; GENETICS, MEDICAL; HUMANS; INTERVIEWS AS TOPIC; MALE; MEDICAL ONCOLOGY; NEOPLASMS; ONTARIO; QUALITATIVE RESEARCH;

CANADA; NORTH AMERICA; ONTARIO [CANADA];

EID: 44449136984     PISSN: 02779536     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.socscimed.2008.03.035     Document Type: Article

References (35)

1. Addison R.B. A grounded hermeneutic editing approach. In: Crabtree B.F., and Miller W.L. (Eds). Doing qualitative research (1999), Sage, Thousand Oaks, London, New Delhi 145-161
2. Baars M.J., Henneman L., and ten Kate L.P. Deficiency of knowledge of genetics and genetic tests among general practitioners, gynecologists, and pediatricians: a global problem. Genetics in Medicine 7 9 (2005) 605-610
3. Biesecker B.B. Future directions in genetic counseling: practical and ethical considerations. Kennedy Institute of Ethics Journal 8 2 (1998) 145-160
4. Carroll J.C., Brown J.B., Blaine S., Glendon G., Pugh P., and Medved W. Genetic susceptibility to cancer. Family physicians' experience. Canadian Family Physician 49 (2003) 45-52
5. Charmaz K. Grounded theory: objectivist and constructivist methods. In: Denzin N.K., and Lincoln Y.S. (Eds). The handbook of qualitative research (2000), Sage Publications, Thousand Oaks, London, New Delhi 509-535
6. Clarke A.E. Disciplining reproduction: modernity, American life sciences, and the problems of sex (1998), University of California Press, Berkeley
7. Clarke A.E., and Montini T. The many faces of RU 486: tales of situated knowledges and technological contestations. Science, Technology and Human Values 18 (1993) 42-78
8. Cotterchio M., McKeown-Eyssen G., Sutherland H., Buchan G., Aronson M., Easson A., et al. Ontario familial colon cancer registry: methods and first year response rates. Chronic Diseases in Canada 21 2 (2000) 81-86
9. Elwyn G., Gray J., and Clarke A. Shared decision making and non-directiveness in genetic counselling. Journal of Medical Genetics 37 2 (2000) 135-138
10. Essential science indicators (2005). Breast cancer: an interview with Steven Narod. Special topics.
11. Anonymous, (1999). Expanded genetic services - Genetic services for inherited cancer, Fiscal 2000-2001. Brief submitted to the Ontario Ministry of Health and Long-Term Care (unpublished MS, in personal archives of author).
12. Gostin L.O., and Hodge J.G. Genetic privacy and the law: an end to genetics exceptionalism. Jurimetrics 40 1 (1999) 21-58
13. Green M., and Jeffrey B. Genetic exceptionalism in medicine: clarifying the differences between genetic and nongenetic tests. Annual International Medicine 138 (2003) 571-575
14. Greendale K., and Pyeritz R.E. Empowering primary care health professionals in medical genetics: how soon? how fast? how far?. American Journal of Medical Genetics 106 (2001) 223-232
15. Guttmacher A., and Collins F.S. Realizing the promise of genomics in biomedical research. Journal of American Medical Association 294 11 (2005) 1399-1402
16. Guttmacher A., Jenkins J., and Uhlmann W.R. Genomic medicine: who will practice it? A call to open arms. American Journal of Medical Genetics 106 (2001) 216-222
17. Guttmacher A., Porteous M.E., and McInerney J.D. Educating health-care professionals about genetics and genomics. Nature Review Genetics 8 2 (2007) 151-157
18. Khoury M.J. Genetics and genomics in practice: the continuum from genetic disease to genetic information in health and disease. Genetics in Medicine 5 4 (2003) 261-268
19. Koch L., and Svendsen M.N. Providing solutions defining problems the imperative of disease prevention in genetic counselling. Social Science & Medicine 60 (2005) 823-832
20. Lehoux P., Daudelin G., Poland B., Andrews G., and Holmes D. Designing a better place for patients: professional struggles surrounding satellite and mobile dialysis units. Social Science & Medicine (2007) E-pub ahead of print
21. Mehnert A., Bergelt C., and Koch U. Knowledge and attitudes of gynecologists regarding genetic counseling for hereditary breast and ovarian cancer. Patient Education and Counseling 49 2 (2003) 183-188
22. Ontario Ministry of Health and Long-Term Care. Bulletin: provincial predictive genetic testing service for hereditary breast, ovarian and colon cancer (2000), Ministry of Health and Long-Term Care, Toronto, ON
23. Patenaude A.F. Pediatric psychology training and genetics: what will twenty-first century pediatric psychologists need to know?. Journal of Pediatric Psychology 28 2 (2003) 135-145
24. Patton M.Q. Qualitative research & evaluation methods (2002), Sage Publications, Thousand Oaks, London, New Delhi
25. Predictive Cancer Genetics Steering Committee (2000). Minutes - meeting of May 19, 2000. Toronto, Ontario (unpublished MS, in personal archives of author).
26. Risch H.A., McLaughlin J.R., Cole D.E., Rosen B., Bradley L., Kwan E., et al. Prevalence and penetrance of germline BRCA1 and BRCA2 mutations in a population series of 649 women with ovarian cancer. American Journal of Human Genetics 68 (2001) 700-710
27. Robins R., and Metcalfe S. Integrating genetics as practices of primary care. Social Science & Medicine 59 (2004) 223-233
28. Stemerding D., and Nelis A. Cancer genetics and its 'different faces of autonomy'. New Genetics and Society 25 1 (2006) 1-19
29. Sullivan T., Evans W.E., Angus H., and Hudson A. Strengthening the quality of cancer services in Ontario (2003), CHA Press, Ottawa
30. Sutherland H.J., Lacroix J., Knight J., Andrulis I.L., Boyd N.F., and Ontario Cancer Genetics Network. The cooperative familial registry for breast cancer studies: design and first year recruitment rates in Ontario. Journal of Clinical Epidemiology 54 (2001) 93-98
31. van Langen I.M., Birnie E., Leschot N.J., Bonsel G.J., and Wilde A.A.M. Genetic knowledge and counselling skills of Dutch cardiologists: sufficient for the genomics era?. European Heart Journal 24 (2003) 560-566
32. van Langen I.M., Birnie E., Schuurman E., Tan H., Hofman N., Bonsei G., et al. Preferences of cardiologists and clinical geneticists for the future organization of genetic care in hypertrophic cardiomyopathy: a survey. Clinical Genetics 68 (2005) 360-368
33. Wailoo K. Drawing blood: technology and disease identity in twentieth century America (1997), Johns Hopkins University Press, Baltimore, MD
34. Watson E.K., Shickle D., Qureshi N., Emery J., and Austoker J. The 'new genetics' and primary care: GPs' views on their role and their educational needs. Family Practice 16 4 (1999) 420-425
35. Yin R.K. Case study research: design and methods (2003), Sage Publications, Newbury Park, London, New Delhi