Psychometric characteristics of PIMS-Compared to PDQ-39 and PDQL-To evaluate quality of life in Parkinson's disease patients: Validation in Spanish (Ecuadorian style)

Parkinsonism and Related Disorders

Volumn 14, Issue 2, 2008, Pages 126-132

  Serrano Dueñas, Marcos ^a,b   Serrano, Soledad ^b  

^a HOSPITAL CARLOS ANDRADE MARÍN   (Ecuador)

^b PONTIFICIA UNIVERSIDAD CATÓLICA DEL ECUADOR   (Ecuador)

Author keywords

Metric properties; Parkinson's disease; PDQ 39; PDQL; PIMS; Quality of life; Validity

Indexed keywords

LEVODOPA;

AGED; ARTICLE; CONSTRUCT VALIDITY; CONTROLLED STUDY; FEMALE; HUMAN; INTERNAL CONSISTENCY; MAJOR CLINICAL STUDY; MALE; PARKINSON DISEASE; PRIORITY JOURNAL; PSYCHOMETRY; QUALITY OF LIFE; QUESTIONNAIRE; RELIABILITY;

AGED; CROSS-SECTIONAL STUDIES; DEPRESSION; ECUADOR; FEMALE; HUMANS; LANGUAGE; MALE; MIDDLE AGED; PARKINSON DISEASE; PSYCHOMETRICS; QUALITY OF LIFE; REPRODUCIBILITY OF RESULTS;

EID: 44249122354     PISSN: 13538020     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.parkreldis.2007.07.006     Document Type: Article

References (52)

1. Chaudhuri K.R., Yates L., and Martínez-Martín P. The non-motor symptom complex of Parkinson's disease: a comprehensive assessment is essential. Curr Neurol Neurosci Rep 5 (2005) 275-283
2. Lang A.E., and Lozano A.M. Parkinson's disease. First of two parts. N Engl J Med 339 (1998) 1044-1053
3. Lang A.E., and Lozano A.M. Parkinson's disease. Second of two parts. N Engl J Med 339 (1998) 1130-1143
4. Schrag A., Ben-Shlomo Y., and Quinn N.P. Cross sectional prevalence survey of idiopathic Parkinson's disease and parkinsonism in London. BMJ 321 (2000) 21-22
5. Tanner C.M., and Ben-Schlomo Y. Epidemiology of Parkinson's disease. Adv Neurol 80 (1999) 153-159
6. Martínez-Martín P. An introduction to the concept of "quality of life in Parkinson's disease". J Neurol 245 Suppl. 1 (1998) S2-S6
7. Martínez-Martín P., and Cubo Delgado E. Calidad de vida en la enfermedad de Parkinson. In: Martínez-Martín P. (Ed). Calidad de vida en neurología (2006), Ars Medica, Barcelona 203-220
8. Martinez-Martin P. Calidad de vida relacionada con la salud en la enfermedad de Parkinson (2002), Ars Medica, Barcelona
9. Netuveli G., Wiggins R.D., Hildon Z., Montgomery S.M., and Blane D. Functional limitation in long standing illness and quality of life: evidence from a national survey. BMJ 331 (2005) 1382-1383
10. Calne S., Schulzer M., Mak E., Guyette C., Rohs G., Hatchard S., et al. Validating a quality of life rating scale for idiopathic Parkinsonism: Parkinson's Impact Scale (PIMS). Parkinsonism Relat Disord 2 (1996) 55-61
11. Schulzer M., Mak E., and Calne S.M. The psychometric properties of the Parkinson's Impact Scale (PIMS) as a measure of quality of life in Parkinson's disease. Parkinsonism Relat Disord 9 (2003) 291-294
12. Calne S.M., Mak E., Hall J., Fortin M.-J., King P., McInnes G., et al. Validating a quality of life rating scale in caregivers of patients with Parkinson's disease: Parkinson's Impact Scale (PIMS). Adv Neurol 91 (2003) 115-122
13. Damiano A.M., Snyder C., Strausser B., and William M.K. A review of health-related quality-of-life concepts and measures for Parkinson's disease. Qual Life Res 8 (1999) 235-243
14. Marinus J., Ramaker C., van Hilten J.J., and Stiggelbout A.M. Health related quality of life in Parkinson's disease: a systemic review of disease specific instruments. J Neurol Neurosurg Psychiatry 72 (2002) 241-248
15. Scientific Advisory Committee of the Medical Outcomes Trust. Assessing health status and quality-of-life instruments: attributes and review criteria. Qual Life Res 11 (2002) 193-205
16. Peto V., Jenkinson C., Fitzpatrick R., and Greenhall R. The development and validation of a short measure of functioning and well being for individuals with Parkinson's disease. Qual Life Res 4 (1995) 241-248
17. de Boer A.G.E.M., Wijker W., Speelman J.D., and de Haes J.C.J.M. Quality of life in patients with Parkinson's disease: development of a questionnaire. J Neurol Neurosurg Psychiatry 61 (1996) 70-74
18. Cella D.F., Lloyd S.R., and Wright B.D. Cross-cultural instrument equating: current research and future directions. In: Spilker B. (Ed). Quality of life and pharmacoeconomics in clinical trials. 2nd ed (1996), Lippincott-Raven Publishers, Philadelphia 707-715
19. Anderson R.T., McFarlane M., Naughton M.J., and Shumaker S.A. Conceptual issues and considerations in cross-cultural validation of generic health-related quality of life instruments. In: Spilker B. (Ed). Quality of life and pharmacoeconomics in clinical trials. 2nd ed. (1996), Lippincott-Raven Publishers, Philadelphia 605-612
20. McKenna S.P., and Whalley D. Coping with language barriers. Good Clin Pract J 4 (1997) 14-17
21. Streiner D.L., and Normal G.R. Health measurement scales. A practical guide to their development and use. 3rd ed. (2003), Oxford University Press, Oxford
22. Gibb W.R.G., and Lees A.J. The relevance of the Lewy body to the pathogenesis of idiopathic Parkinson's disease. J Neurol Neurosurg Psychiatry 51 (1988) 745-752
23. Serrano-Dueñas M., Martínez-Martín P., and Vaca-Baquero V. Validation and cross-cultural adjustment of PDQL-questionnaire, Spanish version (Ecuador) (PDQL-EV). Parkinsonism Relat Disord 10 (2004) 433-437
24. Martínez-Martín P., Serrano-Dueñas M., and Vaca-Baquero V. Psychometric characteristics of the Parkinson′s disease questionnaire (PDQ-39)-Ecuadorian version. Parkinsonism Relat Disord 11 (2005) 297-304
25. Schwab R.S., and England A.C. Projection technique for evaluating surgery in Parkinson's disease. In: Gillingham F.J., and Donaldson I.M.L. (Eds). Third symposium on Parkinson's disease (1969), E and S Livingstone, Edinburgh 152-157
26. Hoehn M.M., and Yahr M.D. Parkinsonism: onset, progression, and mortality. Neurology 17 (1967) 427-442
27. Zigmond A.S., and Snaith R.P. The hospital anxiety and depression scale. Acta Psychiatr Scand 67 (1983) 361-370
28. Pfeiffer E. A short portable mental status questionnaire for the assessment of organic brain deficit in elderly patients. J Am Geriatr Soc 23 (1975) 433-441
29. Marinus J., Visser M., Stiggelbout A.M., Rabey J.M., Martínez-Martín P., Bonuccelli U., et al. A short scale for the assessment of motor impairments and disabilities in Parkinson's disease: the SPES/SCOPA. J Neurol Neurosurg Psychiatry 75 (2004) 388-395
30. Fahn S., and Elton R.L. Members of The UPDRS Development Committee. Unified Parkinson's disease rating scale. In: Fahn S., Marsden C.D., Goldstein M., and Calne D.B. (Eds). Recent development in Parkinson's disease vol. 2 (1987), McMillan, NJ 153-163
31. Altman D.G., and Gardner M.J. Means and their differences. In: Altman D.G., Machin D., Bryant T.N., and Gardner M.J. (Eds). Statistics with confidence. 2nd ed. (2000), BMJ Books, Bristol 28-35
32. Smith S.C., Lamping D.L., Banerjee S., Harwood R., Foley B., Smith P., et al. Measurement of health-related quality of life for people with dementia: a development of a new instrument (DEMQOL) and an evaluation of current methodology. Health Technol Assess 9 (2005) 17
33. McHorney C., and Tarlov A. Individual-patient monitoring in clinical practice: are available health status measures adequate?. Qual Life Res 4 (1995) 293-307
34. Hays R.D., Anderson R., and Revicki D. Psychometric considerations in evaluating health-related quality of life measures. Qual Life Res 2 (1993) 441-449
35. Fisk J.D., Brown M.G., Sketris I.S., Metz L.M., Murray T.J., and Standnyk K.J. A comparison of health utility measures for the evaluation of multiple sclerosis treatments. J Neurol Neurosurg Psychiatry 76 (2005) 58-63
36. Marsden C.D., Parkes J.D., and Quinn N. Fluctuations of disability in Parkinson's disease-clinical aspects. In: Marsden C.D., and Fahn S. (Eds). Movement disorders (1982), Butterworth Scientific, London 96-122
37. Streiner D.L. Starting at the beginning: an introduction to coefficient alpha and internal consistency. J Pers Assess 80 (2003) 99-103
38. Schulzer M., Calne S., and Calne D.B. Present and future of Quality of Life questionnaires in Parkinson's disease: a statistical evaluation. In: Martínez-Martín P., and Koller W.C. (Eds). Quality of life in Parkinson's disease (1999), Masson, Barcelona 161-180
39. Brooks D.J., and Doder M. Depression in Parkinson's disease. Curr Opin Neurol 14 (2001) 465-470
40. Kuopio A.-M., Marttila R.J., Helenius H., Toivonen M., and Rinne U.K. The quality of life in Parkinson's disease. Mov Disord 15 (2000) 216-223
41. Schrag A., Jahanshahi M., and Quinn N. What contributes to quality of life in patients with Parkinson's disease?. J Neurol Neurosurg Psychiatry 69 (2000) 308-312
42. Karlsen K.H., Larsen J.P., Tandberg E., and Maeland J.G. Influence of clinical and demographic variables on quality of life in patients with Parkinson's disease. J Neurol Neurosurg Psychiatry 66 (1999) 431-435
43. Gupta A., and Bhatia S. Psychological functioning in patients with Parkinson's disease. Parkinsonism Relat Disord 6 (2000) 185-190
44. Schrag A., Jahanshahi M., and Quinn N.P. How does Parkinson's disease affect quality of life? A comparison with quality of life in the general population. Mov Disord 15 (2000) 1112-1118
45. Badía Llach X., and Lizán Tudela L. Calidad de vida: definiciones y conceptos. In: Martínez-Martín P. (Ed). Calidad de vida en neurología (2006), Ars Medica, Barcelona 3-18
46. Ginsberg T.B., Pomerantz S.C., and Kramer-Feeley V. Sexuality in older adults: behaviours and preferences. Age Ageing 34 (2005) 475-480
47. Schrag A., Selai C., Jahanshahi M., and Quinn N.P. The EQ-5D-a generic quality of life measure-is a useful instrument to measure quality of life in patients with Parkinson's disease. J Neurol Neurosurg Psychiatry 69 (2000) 67-73
48. Haapaniemi T.H., Sotaniemi K.A., Sintonen H., and Taimela E for the EcoPD Study Group. The generic 15D instrument is valid and feasible for measuring health related quality of life in Parkinson's disease. J Neurol Neurosurg Psychiatry 75 (2004) 976-983
49. Bruce M.L. Depression and disability in late life. Directions for future research. Am J Geriatr Psychiatry 9 (2001) 102-112
50. Elinson L., Houck P., Marcus S.C., and Pincus H.A. Depression and the ability to work. Psychiatr Serv 55 (2004) 29-34
51. Wilson I.B., and Cleary P.D. Linking clinical-variables with health-related quality-of-life-a conceptual-model of patient outcomes. JAMA 273 (1995) 59-65
52. Forjaz M.J., and Martínez-Martín P. Determinantes de calidad de vida: contribución de los modelos de ecuaciones estructurales. In: Martínez-Martín P. (Ed). Calidad de vida en neurología (2006), Ars Medica, Barcelona 115-133