A model for quality of life measures in patients with dementia: Lawton's next step

Dementia and Geriatric Cognitive Disorders

Volumn 18, Issue 2, 2004, Pages 159-164

  Jonker, C ^a   Gerritsen, D L ^a   Bosboom, P R ^b   Van Der Steen, J T ^a  

^a VU UNIVERSITY MEDICAL CENTER   (Netherlands)

^b VU UNIVERSITY AMSTERDAM   (Netherlands)

Author keywords

Broadness; Dementia; Domains; Model; Quality of life; Subjectivity; Well being

Indexed keywords

COGNITION; DAILY LIFE ACTIVITY; DEMENTIA; HUMAN; MEASUREMENT; MEDICAL RESEARCH; PRIORITY JOURNAL; QUALITY OF LIFE; REVIEW; WELLBEING;

ACTIVITIES OF DAILY LIVING; AGED; ALZHEIMER DISEASE; FEMALE; HEALTH STATUS; HUMANS; MALE; MODELS, PSYCHOLOGICAL; NEUROPSYCHOLOGICAL TESTS; PERSONAL SATISFACTION; QUALITY OF LIFE; SOCIAL ENVIRONMENT;

EID: 4344675189     PISSN: 14208008     EISSN: None     Source Type: Journal    
DOI: 10.1159/000079196     Document Type: Review

References (34)

1. Brod M, Stewart AL, Sands L, et al: Conceptualization and measurement of quality of life in dementia: The dementia quality of life instrument (DQOL). Gerontologist 1999;39:25-35.
2. Logsdon RG, Gibbons LE, McCurry SM, et al: Quality of life in Alzheimer's disease: Patient and caregiver reports. Ment Health Aging 1999;5:21-32.
3. Selai CE, Trimble MR, Rossor MN, Harvey RJ: Assessing quality of life in dementia: Preliminary psychometric testing of the Quality of Life Assessment Schedule (QOLAS). Neuropsychol Rehabil 2001;11:219-243.
4. Ready RE, Ott BR, Grace J, Fernandez I: The Cornell-Brown scale for quality of life in dementia. Alzheimer Dis Assoc Disord 2002;16:109-115.
5. de Haes JCJM, van Knippenberg FCE: The quality of life of cancer patients: A review of the literature. Soc Sci Med 1985;20:809-817.
6. Lehman AF: The well-being of chronic mental patients: Assessing their quality of life. Arch Gen Psychiatry 1983;40:369-373.
7. Brod M, Stewart AL, Sands L: Conceptualization of quality of life in dementia. Ment Health Aging 1999;5:7-19.
8. Mozley CG, Huxley P, Sutcliffe C, et al: 'Not knowing where I am doesn't mean I don't know what I like': Cognitive impairment and quality of life responses in elderly people. Int J Geriatr Psychiatry 1999;14:776-783.
9. Rabins PV, Kasper JD, Kleinman L, Black BS, Patrick DL: Concepts and methods in the development of the ADRQL, an instrument for assessing health-related quality of life in persons with Alzheimer's disease. Ment Health Aging 1999;5:33-48.
10. Novella JL, Jochum C, Jolly D, Morrone I, Ankri J, Bureau F, Blanchard F: Agreement between patients' and proxies' reports of quality of life in Alzheimer's patients. Qual Life Res 2001;10:443-452.
11. Karlawish JH, Casaret D, Klocinski J, Clark CM: The relationship between caregivers' global ratings of Alzheimer's disease patients' quality of life, disease severity, and the caregiving experience. J Am Geriatr Soc 2001;49:1066-1070.
12. Logsdon RG, Gibbons LE, McCurry SM, Teri L: Assessing quality of life in older adults with cognitive impairment. Psychosom Med 2002;64:510-519.
13. Volicer L, Bloom CL: Enhancing the Quality of Life in Advanced Dementia. Philadelphia, Brunner/Mazel, 1999.
14. Gurland B, Katz S: Quality of Life and Mental Disorders of Elders; in Katschnig H, Freeman H, Sartorius N (eds): Quality of Life in Mental Disorders. New York, Wiley & Sons, 1997, pp 193-212.
15. Lawton MP: Quality of life in Alzheimer disease. Alzheimer Dis Assoc Disord 1994;8 (suppl 3):138-150.
16. Zautra A, Goodhart D: Quality of life indicators: A review of literature. Community Ment Health Rev 1979;4:1-10.
17. Schuessler KF, Fisher GA: Quality of life research and sociology. Annu Rev Sociol 1985;11:129-149.
18. Diener E: Subjective wellbeing. Psychol Bull 1984;95:542-575.
19. Diener E: Assessing subjective wellbeing: Progress and opportunities. Soc Indicators Res 1994;31:103-157.
20. Wilson IB, Cleary PD: Linking clinical variables with health-related quality of life: A conceptual model of patient outcomes. JAMA 1995;273:59-65.
21. World Health Organization: Constitution of World Health Organization; Basic Documents. Geneva, 1948.
22. Bergner M, Bobbit RA, Kressel S, Pollard WE, Gilson BS, Morris JR: The Sickness Impact Profile: Conceptual formulation and methodology for the development of a health status measure. Int J Health Serv 1976;6:393-415.
23. Hunt SM, McKenna SP, McEwen J, Backett EM, Williams J, Papp E: A quantitative approach to perceived health status. J Epidemiol Community Health 1980;34:281-286.
24. Ware JE, Sherbourne CD: The MOS 36-Item Short-Form Health Status Survey (SF-36). I. Conceptual framework and item selection. Med Care 1992;30:473-483.
25. Patrick DL, Erickson P: Health Status and Health Policy: Quality of Life in Health Care Evaluation and Resource Allocation. New York, Oxford University Press, 1993.
26. Katschnig H: How useful is the concept of quality of life in psychiatry? Anniversary editorial. Curr Opin Psychiatry 1997;10:337-345.
27. Guyatt GH, Feeny DH, Patrick DL: Measuring health-related quality of life. Ann Intern Med 1993;118:622-629.
28. Gill TM: Quality of life assessment: Values and pitfalls. J R Soc Med 1995;88:680-682.
29. Hunt SM: The problem of quality of life (editorial). Qual Life Res 1997;6:205-212.
30. Lawton MP: Environment and other determinants of well-being in older people. Gerontologist 1983;4:349-357.
31. Lawton MP: A multidimensional view of quality of life in frail elders; in Birren JE, Lubben JE, Rowe JC, Deutchman DE (eds): Quality of Life in the Frail Elderly. San Diego, Academic Press, 1991, pp 3-27.
32. Lawton MP: Assessing quality of life in Alzheimer disease research. Alzheimer Dis Assoc Disord 1997;11(suppl 6):91-99.
33. Carr AJ, Higginson IJ: Are quality of life measures patient centred? BMJ 2001;322:1357-1360.
34. Rabins PV, Kasper JD: Measuring quality of life in dementia: Conceptual and practical issues. Alzheimer Dis Assoc Disord 1997;11 (suppl 6):100-104.