Fetal palliative care

Clinics in Perinatology

Volumn 31, Issue 3, 2004, Pages 649-665

  Leuthner, Steven R ^a  

^a MEDICAL COLLEGE OF WISCONSIN   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

CENTRAL NERVOUS SYSTEM DISEASE; CHILD CARE; CHILD HEALTH; DEATH; DELIVERY; DELIVERY ROOM; DIAGNOSTIC ACCURACY; ENVIRONMENTAL FACTOR; FAMILY; FAMILY COUNSELING; GENETICS; HEALTH CARE PLANNING; HEART DISEASE; HUMAN; KIDNEY DISEASE; MEDICAL DECISION MAKING; MEDICAL ETHICS; MORALITY; NEWBORN CARE; PALLIATIVE THERAPY; PATIENT CARE; PREMATURITY; PRENATAL DIAGNOSIS; PRENATAL SCREENING; PRIORITY JOURNAL; PROGNOSIS; PSYCHOLOGICAL ASPECT; RELIGION; REVIEW; SOCIAL PSYCHOLOGY; ULTRASOUND;

FAMILY; FEMALE; FETAL DISEASES; HUMANS; INFANT, NEWBORN; PALLIATIVE CARE; PASTORAL CARE; PATIENT SELECTION; PREGNANCY; PROGNOSIS; QUALITY OF LIFE;

EID: 4344663856     PISSN: 00955108     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.clp.2004.04.018     Document Type: Review

References (51)

1. Association for Children with Life-threatening or Terminal Conditions and their Families A guide to the development of children's palliative care services. 1997;Royal College of Paediatrics and Child Health, Cambridge (UK)
2. World Health Organization Cancer pain relief and palliative care in children. 1998;World Health Organization, Geneva (Switzerland)
3. MacDorman M.F., Minino A.M., Strobino D.M., Guyer B. Annual summary of vital statistics - 2001. Pediatrics. 110:2002;1037-1052
4. Liu S., Joseph K.S., Wen S.W. Trends in fetal and infant deaths caused by congenital anomalies. Semin Perinatol. 26:2002;268-276
5. Hoeldtke N., Calhoun B. Perinatal hospice. Am J Obstet Gynecol. 185:2001;525-529
6. Fletcher J.C. The fetus as patient: ethical issues. JAMA. 246(7):1981;772-773
7. Harrison M.R. The fetus as a patient: historical perspective. Harrison M.R., Globus M.S., Filly R.A. The unborn patient: prenatal diagnosis and treatment. 2nd edition:1991;3-7 WB Saunders, Philadelphia
8. American Academy of Pediatrics Committee on Bioethics Fetal therapy - ethical considerations. Pediatrics. 103(5):1999;1061-1063
9. Fleischman A.R., Chervenak F.A., McCullough L.B. The physician's moral obligations to the pregnant woman, the fetus, and the child. Semin Perinatol. 22(3):1998;184-188
10. Chervenak F.A., McCullough L.B. Ethical issues in recommending and offering fetal therapy. West J Med. 159:1993;396-399
11. Nelson L.J., Milliken N. Compelling medical treatment of pregnant women: life, liberty and law in conflict. JAMA. 259(7):1988;1060-1066
12. Carter B.S., Bhatia J. Comfort/palliative care guidelines for neonatal practice: development and implementation in an academic medical center. J Perinatol. 21(5):2001;279-283
13. Leuthner S.L., Pierucci R.L. Experience with neonatal palliative care consultation at the Medical College of Wisconsin-Children's Hospital of Wisconsin. J Palliat Med. 4(1):2001;39-47
14. Pierucci R.L., Kirby R.S., Leuthner S.R. End-of-life care for neonates and infants: the experience and effects of a palliative care consultation service. Pediatrics. 108:2001;653-660
15. Catlin A.J., Carter B.S. Creation of a neonatal end of life palliative care protocol. J Perinatol. 22:2002;184-195
16. Yellin P.B., Fleischman A.R. DNR in the DR? J Perinatol. 15(3):1995;232-236
17. Halamek L.P. The advantages of prenatal consultation by a neonatologist. J Perinatol. 21:2001;116-120
18. Wisconsin Association for Perinatal Care Position statement: guidelines for the responsible utilization of neonatal intensive care. 1997;Wisconsin Association for Perinatal Care and the Perinatal Foundation, Madison (WI)
19. International guidelines for neonatal resuscitation: an excerpt from the guidelines 2000 for cardiopulmonary resuscitation and emergency cardiovascular care. International consensus on science. Pediatrics. 106(3 e29):2000;1-16
20. MacDonald H. American Academy of Pediatrics, Committee on Fetus and Newborn: perinatal care at the threshold of viability. Pediatrics. 110(5):2002;1024-1027
21. American Academy of Pediatrics Committee on Fetus and Newborn The initiation or withdrawal of treatment for high-risk newborns. Pediatrics. 96:1995;362-363
22. American Academy of Pediatrics Committee on Bioethics Ethics and the care of critically ill infants and children. Pediatrics. 98:1996;149-152
23. American Academy of Pediatrics, Committee on Bioethics Guidelines on forgoing life-sustaining medical treatment. Pediatrics. 93:1994;532-536
24. Leuthner S.R. Decisions regarding resuscitation of the extremely premature infant and models of best interest. J Perinatol. 21:2001;1-6
25. Carter B.S., Leuthner S.R. The ethics of withholding/withdrawing nutrition in the newborn. Semin Perinatol. 27(6):2003;480-487
26. Carter B.S., Leuthner S.R. Decision making communication in the NICU: strategies, statistics, and "satisficing" Bioethics Forum. 18(3/4):2002;7-15
27. Miller v HCA, Inc, 118 SW3d 758 (Tex 2003).
28. Montalvo v Borkovec, 647 NW 2d 413 (Wis Ct App 2002), review denied 653 NW2d 890 (Wis 2002).
29. Jeanty P. Fetal biometry. Fleischer A.L., Manning F.A., Jeanty P., Romero R. Sonography in obstetrics and gynecology: principles & practice. 5th edition:1996;137-139 Appleton & Lange, Stamford (CT)
30. Donovan E.F., Tyson J.E., Ehrenkranz R.A., Verter J., Wright L.L., Korones S.B., et al. Inaccuracy of Ballard scores before 28 weeks' gestation: National Institute of Child Health and Human Development Neonatal Research Network. J Pediatr. 135(2 Pt 1):1999;147-152
31. Meadow W., Reimshisel T., Lantos J. Birth weight-specific mortality for extremely low birth weight infants vanishes by four days of life: epidemiology and ethics in the neonatal intensive care unit. Pediatrics. 97(5):1996;636-643
32. Meadow W., Frain L., Ren Y., Lee G., Soneji S., Lantos J. Serial assessment of mortality in the neonatal intensive care unit by algorithm and intuition: certainty, uncertainty, and informed consent. Pediatrics. 109(5):2002;878-886
33. Schindl M., Birner P., Reingrabner M., Joura E., Husslein P., Langer M. Elective cesarean section vs. spontaneous delivery: a comparative study of birth experience. Acta Obstet Gynecol Scand. 82(9):2003;834-840
34. Narrow W.E., Rae D.S., Robins L.N., Regeir D.A. Revised prevalence estimates of mental disorders in the United States: using a clinical significance criterion to reconcile 2 surveys' estimates. Arch Gen Psychiatry. 59:2002;115-123
35. Loveland Cook C.A., Flick L.H., Homan S.M., Campbell C., McSweeney M., Gallagher M.E. Posttraumatic stress disorder in pregnancy: prevalence, risk factors, and treatment. Obstet Gynecol. 103:2004;710-717
36. Holditch-Davis D., Bartlett T.R., Blickman A.L., Miles M.S. Posttraumatic stress symptoms in mothers of premature infants. J Obstet Gynecol Neonatal Nurs. 32(2):2003;161-171
37. Soet J.E., Brack G.A., DiIorio C. Prevalence and predictors of women's experience of psychological trauma during childbirth. Birth. 30(1):2003;36-46
38. Engelhard I.M., van den Hout M.A., Kindt M., Arntz A., Schouten E. Peritraumatic dissociation and posttraumatic stress after pregnancy loss: a prospective study. Behav Res Ther. 41(1):2003;67-78
39. Leuthner S.R., Bolger M., Frommelt M., Nelson R.M. The impact of abnormal fetal echocardiography on expectant parents' experience of pregnancy - a pilot study. J Psychosom Obstet Gynecol. 24(2):2003;121-129
40. Paris J.J., Schreiber M.D., Ryan M.A. Induced early delivery of a fetus with hypoplastic left heart: a moral choice when neither surgery nor abortion is an acceptable option. J Perinatol. 17(4):1997;314-317
41. Whitfield M.B., Siegle R.E., Glicken A.D. The application of hospice concepts to neonatal care. J Dis Child. 135:1982;421-424
42. Mangurten H.H. Home death and hospital follow-up of the dying infant. Am J Perinatol. 7:1990;302-306
43. Lindheim R. Birthing centers and hospices: reclaiming birth and death. Annu Rev Public Health. 2:1981;1-29
44. Harrison H. The principles for family-centered neonatal care. Pediatrics. 92:1993;643-650
45. Taylor A.I. Autosomy trisomy syndromes: a detailed study of 27 cases of Edwards' syndrome and 27 cases of Patau's syndrome. J Med Genet. 5:1968;227-241
46. Root S., Carey J.C. Survival in trisomy 18. Am J Med Genet. 49:1994;170-174
47. Medical Task Force on Anencephaly The infant with anencephaly. N Engl J Med. 332:1990;669-674
48. Leuthner S.R., Boldt A.M., Kirby R.S. Where infants die: examination of place of death and hospice/home health care options in the state of Wisconsin. J Palliat Med. 7(2):2004;269-277
49. Hughes P., Turton P., Evans C.D.H. Assessment of guidelines for good practice in psychosocial care of mothers after stillbirth: a cohort study. Lancet. 360:2002;114-118
50. Heath L.S., Gensch B.K. RTS counselor training manual. 3rd edition:1997;Gundersen Lutheren Bereavement Services, Lacrosse (WI)
51. Vance J.C., et al. Psychological changes in parents eight months after the loss of an infant from stillbirth, neonatal death, or sudden infant death syndrome - a longitudinal study. Pediatrics. 96:1995;933-938