New York City's initiatives on diabetes and HIV/AIDS: Implications for patient care, public health, and medical professionalism

American Journal of Public Health

Volumn 98, Issue 5, 2008, Pages 807-813

  Goldman, Janlori ^a,b   Kinnear, Sydney ^a   Chung, Jeannie ^a   Rothman, David J ^a,c  

^a Columbia University ^*  (United States)

^b Health Privacy Project   (United States)

^c Institute on Medicine as a Profession   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ACQUIRED IMMUNE DEFICIENCY SYNDROME; DIABETES MELLITUS; DOCTOR PATIENT RELATION; HEALTH PRACTITIONER; HEALTH PROGRAM; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; INCIDENCE; INFORMED CONSENT; MEDICAL PRACTICE; MEDICAL PROFESSION; PATIENT CARE; PATIENT COUNSELING; REVIEW; RISK FACTOR; UNITED STATES; VIRUS EXAMINATION; ARTICLE; CONFIDENTIALITY; FEMALE; HEALTH CARE POLICY; LEGAL ASPECT; MALE; MANDATORY REPORTING; MORTALITY; NON INSULIN DEPENDENT DIABETES MELLITUS; NUTRITION; PREVALENCE; PUBLIC HEALTH; REGISTER; STATISTICS;

CONFIDENTIALITY; DIABETES MELLITUS, TYPE 2; FEMALE; HEALTH POLICY; HIV INFECTIONS; HUMANS; INFORMED CONSENT; MALE; MANDATORY REPORTING; NEW YORK CITY; NUTRITION SURVEYS; PHYSICIAN-PATIENT RELATIONS; PREVALENCE; PUBLIC HEALTH; REGISTRIES;

EID: 43049173778     PISSN: 00900036     EISSN: 15410048     Source Type: Journal    
DOI: 10.2105/AJPH.2007.121152     Document Type: Review

References (73)

1. Goldman J. Balancing in a crisis? Bioterrorism, public health and privacy. J Health Law. 2005;38:481-527.
2. Mariner WK. Medicine and public health: crossing legal boundaries. J Health Care Law and Policy. 2007;10:121-151.
3. Fairchild AL, Bayer R, Colgrove J, Wolfe D. Searching Eyes: Privacy, the State, and Disease Surveillance in America. Berkeley: University of California Press/ Milbank Books on Health and the Public; 2007.
4. Department of Health and Mental Hygiene (DOHMH) A1C Registry Web site. Available at: http://www.nyc.gov/html/doh/html/diabetes/diabetes-nycar.shtml. Accessed June 12, 2007.
5. Silver L, Berger D. Improving diabetes care for all New Yorkers. DOHMH. Available at: http://www.nyc.gov/html/doh/downloads/pdf/diabetes/ diabetespresentation-a1c-registry.pdf. Accessed June 12, 2007.
6. New York City Department of Health and Mental Hygiene. NYC Diabetes Newsletter. Spring 2007, Issue 1. Available at: http://www.nyc.gov/html/doh/ downloads/pdf/diabetes/diabetes_newsletter_61207.pdf. Accessed October 12, 2007.
7. DOHMH Proposal A06825, March 20, 2007. Available at: http://assembly. state.ny.us/leg/?bn=A06825&sh=t. Accessed June 12, 2007.
8. Branson BM, Handsfield HH, Lampe MA, et al. Revised recommendations for HIV testing of adults, adolescents, and pregnant women in healthcare settings. MMWR Recomm Rep. 2006;55(RR-14):1-17. Available at: http://www.cdc.gov/ mmwR/preview/mmwrhtml/rr5514a1.htm. Accessed June 12, 2007.
9. Lifson AR, Rybicki SL. Routine opt-out HIV testing. Lancet. 2007;369:539-540.
10. World Health Organization. WHO and UNAIDS issue new guidance on HIV testing and counseling in health facilities [press release]. May 30, 2007. Available at: http://www.who.int/mediacentre/news/releases/2007/pr24/ en/index.html. Accessed June 12, 2007.
11. US Department of Health and Human Services. Office of Civil Rights. Available at: http://www.hhs.gov/ocr/hipaa. Accessed October 15, 2007.
12. Health Insurance Portability and Accountability Act of 1996, Pub L No. 104-191, § 264, 110 Stat 1936, 2033. 42 USC HIPAA 1996. Section 1178b. 42 USC. http://aspe.hhs.gov/admnsimp/pl104191.htm. Accessed October 23, 2007.
13. The Privacy Rule. Rules and Regulations. 65 Federal Register 82471 (2000). Codified at 45 CFR Parts 160 and 164. Available at: http://www.hhs.gov/ocr/part1.pdf. Accessed October 24, 2007.
14. Centers for Disease Control and Prevention. Epidemiology in the classroom an introduction to epidemiology. Available at: http://www.cdc.gov/EXCITE/ classroom/intro_epi.htm. Accessed January 3, 2008.
15. The American Heritage Dictionary of the English Language. 4th ed. Boston, MA: Houghton Mifflin Co; 2000.
16. Gostin LO. Public Health Law: Power, Duty, Restraint. Berkeley: University of California Press; 2000.
17. Annas GJ. American Bioethics: Crossing Human Rights and Health Law Boundaries. New York, NY: Oxford University Press; 2004.
18. DOHMH. More than 100,000 New Yorkers face complications due to seriously out-of-control diabetes [press release]. January 30, 2007. Available at: http://www.nyc.gov/html/doh/html/pr2007/pr002-07.shtml. Accessed January 3, 2008.
19. DOHMH. Summary of vital statistics 2005: the city of New York. Available at: http://www.nyc.gov/html/doh/downloads/pdf/vs/2005sum.pdf. Accessed June 12, 2007.
20. Department of Health and Mental Hygiene. Notice of adoption to amend Article 13 of the NYC Health Code. December 14, 2005. Available at: http://www.nyc.gov/html/doh/downloads/pdf/public/notice-adoption-a1c.pdf. Accessed June 12, 2007.
21. Department of Health and Mental Hygiene. Diabetes prevention and control. DOHMH Diabetes Web site. Available at: http://www.nyc.gov/html/doh/html/ diabetes/diabetes-nycar.shtml. Accessed June 12, 2007.
22. Fairchild AL. Diabetes and disease surveillance. Science. 2006;14:175-176.
23. Kleinfield NR. Diabetics in the workplace confront a tangle of laws. New York Times. December 26, 2006, Section A; National Desk; 1.
24. Health Privacy Project. Health privacy stories. Health Privacy Project Web site. Available at: http://www.healthprivacy.org/usr_doc/Privacystories.pdf. Accessed June 12, 2007.
25. Gonzalez D. Paying a price for doughnuts, burgers, and pizza. New York Times. January 25, 2005:B1.
26. Kleinfield NR. Diabetes and its awful toll quietly emerge as a crisis. New York Times. January 9, 2006:A1.
27. Kleinfield NR. Living at an epicenter of diabetes, defiance and despair. New York Times. January 10, 2006:A1.
28. Perez-Pena R. One in eight adults in the city has diabetes, a study finds. NY Times. January 31, 2007:B1.
29. Forrester Research, Inc. National Consumer Health Privacy Survey 2005. California HealthCare Foundation. November 2005. Available at: http://www.chcf.org/topics/view.cfm?itemID=115694. Accessed June 12, 2007.
30. Princeton Survey Research Associates. Medical Privacy and Confidentiality Survey. California HealthCare Foundation. January 1999. Available at: http://www.chcf.org/topics/view.cfm?itemID=12500. Accessed June 12, 2007.
31. Goldman J. Protecting privacy to improve health care. Health Aff. 1998;17:6.
32. Fairchild AL, Bayer R, Colgrove J, with Wolfe D. Searching Eyes: Privacy, the State, and Disease Surveillance in America. Berkeley: University of California Press/Milbank Books on Health and the Public; 2007.
33. Gostin LO. Public Health Law: Power, Duty, Restraint. Berkeley: University of California Press; 2000.
34. Garrett L. Betrayal of Trust: The Collapse of Global Public Health. New York, NY: Hyperion Books; 2000.
35. Rothman S. Living in the Shadow of Death: Tuberculosis and the Social Experience of Illness in American History. Baltimore, MD: Basic Books; 1994.
36. Hunter N, Rubenstein WB, eds. AIDS Agenda: Emerging Issues in Civil Rights. New York, NY: New Press; 1992.
37. Burack JH, Impellizzeri P, Homel P, Cunningham JN Jr. Public reporting of surgical mortality: a survey of New York state cardiothoracic surgeons. Ann Thorac Surg. 1999;68:1195-1202.
38. Turi ZG. The big chill. J Am Coll Cardiol. 2005;45:1766-1768.
39. Long C. NYC neighborhoods short on healthy foods. Washington Post. May 18, 2007. Available at: http://www.washingtonpost.com/wp-dyn/content/ article/2007/05/18/AR2007051801498.html. Accessed June 12, 2007.
40. Cardwell D. City hires coordinator of food policy. New York Times. January 21, 2006:A30.
41. Lueck T. New York City plans limits on restaurants' use of trans fats. New York Times. September 27, 2006:A1.
42. NYC Department of Parks and Recreation. Mayor Bloomberg Unveils South Bronx Greenway Plan [press release]. New York, NY: Mayor's Office; September 2, 2007. Available at: http://www.nycgovparks.org/sub_newsroom/images/metro_parks. pdf. Accessed January 3, 2008.
43. Department of Health and Mental Hygiene. Shape Up New York: a free family fitness program. Available at: http://www.nyc.gov/html/doh/html/cdp/shapeupny. shtml. Accessed June 12, 2007.
44. Department of Health and Mental Hygiene. City Health Department begins 1% Milk Initiative in Central Brooklyn, South Bronx and Harlem Bodegas [press release]. New York, NY: Department of Health and Mental Hygiene; January 19, 2006. Available at: http://www.nyc.gov/html/doh/html/pr2006/pr005-06.shtml. Accessed January 3. 2008.
45. Department of Health and Mental Hygiene. Health Department launches "Move to Fruits and Vegetables" Campaign with Bodegas [press release]. New York, NY: Department of Health and Mental Hygiene; December 7, 2006. Available at: http://www.nyc.gov/html/doh/html/pr2006/pr116-06.shtml. Accessed January 3, 2008.
46. Department of Health and Mental Hygiene. NYC School Wellness Council Project. Available at: http://home2.nyc.gov/html/doh/html/cdp/cdp_pan_programs. shtml#school. Accessed June 12, 2007.
47. Health and Hospitals Corporation. New electronic registry will track 50,000 diabetic patients [press release]. October 26, 2006. Available at: http://www.nyc.gov/html/hhc/html/pressroom/press-release-20061026.shtml. Accessed June 12, 2007.
48. NYC Health and Hospitals Corporation. Tapping technology: diabetic registry set to improve treatment. October 2006 [online newsletter]. Available at: http://home.nyc.gov/html/hhc/html/newsletter/technology-200610- diabetesregistry. shtml. Accessed June 12, 2007.
49. MacLean CD, Littenberg B, Gagnon M. Diabetes decision support: initial experience with the Vermont diabetes information system. Am J Pub Health. 2006;96:593-595.
50. MacLean CD, Littenberg B, Gagnon M, Reardon M, Turner PD, Jordan C. The Vermont Diabetes Information System (VDIS): study design and subject recruitment for a cluster randomized trial of a decision support system in a regional sample of primary care practices. Clin Trials. 2004;1:532-544.
51. NYC HIV/AIDS Annual Surveillance Statistics 2005. HIV Epidemiology Program, NYC Department of Health and Mental Hygiene. Available at: http://www.nyc.gov/html/doh/html/dires/hivepi.shtml. Accessed June 12, 2007.
52. DOHMH Memorandum in Support of Bill A11958. Available at: http://www.nyc.gov/html/doh/downloads/pdf/ah/ah-bill-A11958-memo.pdf. Accessed June 12, 2007.
53. Department of Health and Mental Hygiene. Proposal A06825. March 20, 2007. Available at: http://assembly.state.ny.us/leg/?bn=A06825&sh=t. Accessed June 12, 2007.
54. Federal Report: Frieden/Cordero face-off [newsletter]. March 23, 2006. Housing Works AIDS Issues Update. Available at: http://www.hwupdate.org/ update/2006/03/federal_report.html. Accessed October 23, 2007.
55. Frieden TR. The state of HIV/AIDS in NYC and what we need to do to stop the epidemic. March 2006. [Power-Point]. Presidential Advisory Council on HIV/AIDS. Available at: http://pacha.gov/meetings/presentations/p0306. Accessed October 23, 2007.
56. New York State Assembly. Bill AO9195. Introduced June 15, 2007. http://assembly.state.ny.us/leg/?bn=A09195&sh=t. Accessed October 16, 2007.
57. Glantz LH. Control of personal behavior and the informed consent model. In: Wing KR, Mariner WK, Annas GJ, Strouse DS. Public Health Law. Newark, NJ: LexisNexis Matthew Bender; 2007:507-512.
58. NYC Health and Hospitals Corporation. New York City public hospitals expand HIV testing [press release]. New York, NY: NYC Health and Hospitals Corporation; October 3, 2006. Available at: http://www.nyc.gov/html/hhc/html/ pressroom/press-release-20061003. shtml. Accessed June 12, 2007.
59. Hanssens C. Testimony at New York State Assembly, public hearing on HIV testing, counseling and informed consent. Center for HIV Law and Policy. December 20, 2006. Available at: http://www.hivlawandpolicy.org/resources/index. php?cat_id=21&type_id=4. Accessed June 12, 2007.
60. Horberg M. Ensuring access to care - the Kaiser Permanente experience [transcript]. As part of: Opportunities for Improving HIV Diagnosis, Prevention, and Access to Care in the US [symposium]. National Institutes of Health. November 30, 2006.
61. Kamb ML, Fishbein M, Douglas JM, et al. Efficacy of risk-reduction counseling to prevent human immunodeficiency virus and sexually transmitted diseases: a randomized controlled trial. JAMA. 1998;280:1161-1167.
62. Herek GM, Capitanio JP, Widaman KF. Stigma, social risk, and health policy: public attitudes toward HIV surveillance policies and the social construction of illness. Health Psych. 2003;22:533-540.
63. New York City DOHMH HIV/ AIDS Free and Confidential Clinics Web site. Available at: http://www.nyc.gov/html/doh/html/std/std2.shtml. Accessed June 12, 2007.
64. Thom DH, Ribisl KM, Stewart AL, Luke DA. Further validation and reliability testing of the trust in physician scale. Med Care. 1999;37:510-517.
65. Safran DG, Taira DA, Rogers WH, Kosinski M, Ware JE, Tarlov AR. Linking primary care performance to outcomes of care. J Fam Pract. 1998;47:213-220.
66. New York State Public Health Law, Article 21, Title 3, Section 2130. AIDS and HIV Infection: Duty To Report. Available at: http://public.leginfo.state.ny.us/menuf.cgi. Accessed June 13, 2007.
67. Kaiser Public Opinion Spotlight. Attitudes About Stigma and Discrimination Related to HIV/AIDS. 2006. Available at: http://www.kff.org/ spotlight/hivstigma/index.cfm. Accessed June 12, 2007.
68. Herek G, Widaman KF, Capitanio JP. When sex equals AIDS: symbolic stigma and heterosexual adults' inaccurate beliefs about sexual transmission of AIDS. Soc Probl. 2005;52:15-37.
69. Smedley BD, Stith AY, Nelson AR, eds. Unequal Treatment: What Healthcare Consumers Need to Know About Racial and Ethnic Disparities in Healthcare. Washington, DC: National Academies Press; 2002.
70. Bowman CF. Testimony at New York State Assembly, public hearing on HIV testing, counseling and informed consent. South Brooklyn Legal Services. December 20, 2006.
71. Surplus City. Housing Works AIDS Issues Update [newsletter]. June 22, 2007. Available at: http://www.hwupdate.org/update/2007/06/surplus_city. html. Accessed October 24, 2007.
72. Sears B, Ho D. HIV Discrimination in health care services in Los Angeles County: the results of three testing studies. The Williams Institute of Sexual Orientation and Public Policy. Los Angeles, CA: UCLA School of Law; 2006. Available at: http://www.law.ucla.edu/williamsinstitute/publications/ Discrimination%20in%20Health%20Care%20LA%20County.pdf. Accessed March 27, 2008.
73. Hanssens C. Testimony at New York State Assembly, public hearing on HIV testing, counseling and informed consent. Center for HIV Law and Policy. December 20, 2006. Available at: http://www.hivlawandpolicy.org/resources/index. php?cat_id=21&type_id=4. Accessed June 12, 2007.