Does choice influence quality of life for people with mild intellectual disabilities?

Intellectual and Developmental Disabilities

Volumn 46, Issue 1, 2008, Pages 12-26

  Neely Barnes, Susan ^a   Marcenko, Maureen ^b   Weber, Lisa ^c  

^a UNIVERSITY OF TENNESSEE HEALTH SCIENCE CENTER   (United States)

^b UNIVERSITY OF WASHINGTON   (United States)

^c Washington State Division of Developmental Disabilities   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; DECISION MAKING; FEMALE; HUMAN; HUMAN RELATION; MALE; MENTAL DEFICIENCY; MIDDLE AGED; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL THEORY; QUALITY OF LIFE; QUESTIONNAIRE;

ADULT; AGED; AGED, 80 AND OVER; CHOICE BEHAVIOR; FEMALE; HUMANS; INTERPERSONAL RELATIONS; MALE; MENTAL RETARDATION; MIDDLE AGED; PSYCHOLOGICAL THEORY; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 42449130232     PISSN: 19349556     EISSN: None     Source Type: Journal    
DOI: 10.1352/0047-6765(2008)46[12:DCIQOL]2.0.CO;2     Document Type: Article

References (45)

1. Bambara, L. M. (2004). Fostering choice-making skills: We've come a long way but still have a long way to go. Research and Practice for Persons with Severe Disabilities, 29, 169-171.
2. Brown, R. I., & Brown, I. (2005). The application of quality of life. Journal of Intellectual Disability Research, 49, 718-727.
3. Campo, S. F., Sharpton, W. R., Thompson, B., & Sexton, D. (1996). Measurement characteristics of the quality of life index when used with adults who have severe mental retardation. American Journal on Mental Retardation, 100, 546-550.
4. Campo, S. F., Sharpton, W. R., Thompson, B., & Sexton, D. (1997). Correlates of the quality of life of adults with severe or profound mental retardation. Mental Retardation, 35, 329-337.
5. Cummins, R. A. (2005). Moving from the quality of life concept to a theory. Journal of Intellectual Disability Research, 49, 699-706.
6. Davis, P., & Faw, G. (2002). Residential preferences in person-centered planning. In S. Holburn & P. M. Vietze (Eds.), Person-centered planning: Research, practice and future directions (pp. 203-221). Baltimore: Brookes.
7. DeJong, G. (1983). Defining and implementing the independent living concept. In N. M. Crewe & I. K. Zola (Eds.), Independent living for physically disabled people: Developing, implementing, and evaluating self-help rehabilitation programs (pp. 4-27). San Francisco: Jossey-Bass.
8. Duvdevany, I., Ben-Zur, H., & Ambar, A. (2002). Self-determination and mental retardation: Is there an association with living arrangement and lifestyle satisfaction?. Mental Retardation, 40, 379-389.
9. Gardner, J. F., & Carran, D. T. (2005). Attainment of personal outcomes by people with developmental disabilities. Mental Retardation, 43, 157-174.
10. Gardner, J. F., Carran, D. T., & Nudler, S. (2001). Measuring quality of life and quality of services through personal outcome measures: Implications for public policy. In L. M. Glidden (Ed.), International review of research in mental retardation (Vol. 24, pp. 7-99). San Diego, CA: Academic Press.
11. Hagner, D., Snow, J., & Klein, J. (2006). Meaning of homeownership for individuals with developmental disabilities: A qualitative study. Mental Retardation, 44, 295-303.
12. Halle, J. W. (1995). Innovations in choice-making research: An editorial introduction. Journal of the Association of Persons With Severe Handicaps, 20, 173-174.
13. Hu, L., & Bentler, P. M. (1998). Fit indices in covariance structure modeling: Sensitivity to underparameterized model misspecification. Psychological Methods, 3, 424-453.
14. Human Services Research Institute. (2001a). Consumer survey: Phase II technical report. Cambridge, MA: Author.
15. Human Services Research Institute. (2001b). Core indicators project: Consumer survey. Cambridge, MA: Author.
16. Human Services Research Institute. (2003, March). Consumer survey: Final report 2001-2002. Cambridge, MA: Author.
17. Keith, K. D., Schalock, R. L., & Hoffman, K. (1986). Quality of life: Measurement and programmatic implications. Lincoln, NE: Region V Mental Retardation Services.
18. Kline, R. B. (1998). Principles and practices of structural equation modeling. New York: Guilford Press.
19. Kosciulek, J. F., & Merz, M. (2001). Structural analysis of the consumer-directed theory of empowerment. Rehabilitation Counseling Bulletin, 44, 209-216.
20. Lachapelle, Y., Wehmeyer, M. L., Haelewyck, M. C., Courbois, Y., Keith, K. D., Schalock, R., Verdugo, M. A., & Walsh, P. N. (2005). The relationship between quality of life and self-determination: An international study. Journal of Intellectual Disability Research, 49, 740-744.
21. Lakin, K. C., Anderson, L., Prouty, R., & Polister, B. (1999). State institution populations less than one third of 1977, residents older with more impairments. Mental Retardation, 37, 85-86.
22. Little, R. J. A., & Rubin, D. B. (1987). Statistical analysis with missing data. New York: Wiley.
23. Mary, N. L. (1998). Social work and the support model of services for people with developmental disabilities. Journal of Social Work Education, 34, 247-260.
24. Muthén, B. O. (2004). Mplus: Statistical analysis with latent variables technical appendices. Los Angeles: Muthén & Muthén.
25. Muthén, L. K., & Muthén, B. O. (2004). Mplus: Statistical analysis with latent variables user's guide. Los Angeles: Muthén & Muthén.
26. Neely-Barnes, S. L. (2005). Consumer choice in developmental disability services: Assessing the impact on quality of life indicators [Doctoral dissertation, University of Washington, Seattle]. Dissertation Abstracts International, 66, 2725
27. O'Brien, C. L., & O'Brien, J. (2002). The origins of person-centered planning. In S. Holburn & P. M. Vietze (Eds.), Person-centered planning: Research, practice and future directions (pp. 3-27). Baltimore: Brookes.
28. Reid, D. H., & Green, C. W. (2002). Person-centered planning with people who have severe multiple disabilities: Validated practices and misapplications. In S. Holburn & P. M. Vietze (Eds.), Person-centered planning: Research, practice, and future directions (pp. 183-202). Baltimore: Brookes.
29. Renz-Beaulaurier, R. (1998). Empowering people with disabilities: The role of choice. In L. M. Gutierrez, R. J. Parsons, & E. O. Cox (Eds.), Empowerment in social work practice: A sourcebook (pp. 73-84). Pacific Grove, CA: Brooks/Cole.
30. Schafer, J. L., & Graham, J. W. (2002). Missing data: Our view of the state of the art. Psychological Methods, 7, 147-177.
31. Schalock, R. L. (2004). The concept of quality of life: What we know and do not know. Journal of Intellectual Disability Research, 48, 203-216.
32. Schalock, R., Brown, I., Brown, R., Cummins, R. A., Felce, D., Matikka, L., Keith, K. D., & Parmenter, T. (2002). Conceptualization, measurement, and application of quality of life for persons with intellectual disabilities: Report of an international panel of experts. Mental Retardation, 40, 457-470.
33. Schalock, R. L., Bonham, G. S., & Marchand, C. B. (2000). Consumer-based quality of life assessment: A path model of perceived satisfaction. Evaluation and Program Planning, 23, 77-87.
34. Spss, Inc. (2004). SPSS 13.0 [computer software]. Chicago: Author.
35. Stancliffe, R. J. (1995). Assessing opportunities for choice making: A comparison of self and staff reports. American Journal on Mental Retardation, 99, 418-429.
36. Stancliffe, R. J. (2000). Proxy respondents and quality of life. Evaluation and Program Planning, 23, 89-93.
37. Stancliffe, R. J., Abery, B. H., & Smith, J. (2000). Personal control and the ecology of community living settings: Beyond living-unit size and type. American Journal on Mental Retardation, 100(431-454).
38. Stancliffe, R. J., & Lakin, K. C. (1998). Analysis of expenditures and outcomes of residential alternatives for persons with developmental disabilities. American Journal on Mental Retardation, 102, 552-568.
39. Stancliffe, R. J., & Lakin, K. C. (2006). Longitudinal frequency and stability of family contact in institutional and community living. Mental Retardation, 44, 418-429.
40. Tossebro, J. (1995). Impact of size revisited: Relation of number of residents to self-determination and deprivatization. American Journal on Mental Retardation, 100, 59-67.
41. Umb-Carlsson, O., & Sonnander, K. (2005). Comparison of reports by relatives and staff on living conditions of adults with intellectual disabilities. Mental Retardation, 44, 120-127.
42. Wehmeyer, M. L. (2001). Self-determination and mental retardation: Assembling the puzzle pieces. In H. N. Switzky (Ed.), Personality and motivational differences in persons with mental retardation (pp. 147-198). Mahwah, NJ: Erlbaum.
43. Wehmeyer, M. L., & Bolding, N. (1999). Self-determination across living and working environments: A matched samples study of adults with mental retardation. Mental Retardation, 37, 353-363.
44. Wehmeyer, M. L., & Garner, N. W. (2003). The impact of personal characteristics of people with intellectual and developmental disability on self-determination and autonomous functioning. Journal of Applied Research in Intellectual Disabilities, 16, 255-265.
45. Wehmeyer, M., & Schwartz, M. (1998). The relationship between self-determination and quality of life for adults with mental retardation. Education and Training in Mental Retardation and Developmental Disabilities, 33, 3-12.