Self-reported quality of life in adolescents with cerebral palsy

Physical and Occupational Therapy in Pediatrics

Volumn 28, Issue 1, 2008, Pages 41-57

  Maher, Carol A ^a   Olds, Timothy ^a   Williams, Marie T ^a   Lane, Alison E ^a  

^a UNIVERSITY OF SOUTH AUSTRALIA   (Australia)

Author keywords

Adolescents; Cerebral palsy; Gealth related quality of life; Physical disability; Quality of life; Self report

Indexed keywords

ADOLESCENT; ARTICLE; AUSTRALIA; CEREBRAL PALSY; CHILD; CLASSIFICATION; FEMALE; HOSPITALIZATION; HUMAN; MALE; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; QUESTIONNAIRE; SELF DISCLOSURE; SOCIAL CLASS; SOCIAL ISOLATION;

ADOLESCENT; CEREBRAL PALSY; CHILD; FEMALE; HUMANS; MALE; PSYCHOSOCIAL DEPRIVATION; QUALITY OF LIFE; QUESTIONNAIRES; SELF DISCLOSURE; SEVERITY OF ILLNESS INDEX; SOCIAL CLASS; SOUTH AUSTRALIA;

EID: 42449083388     PISSN: 01942638     EISSN: 15413144     Source Type: Journal    
DOI: 10.1300/J006v28n01_04     Document Type: Article

References (23)

1. Albrecht, G., & Devlieger, P. (1999). The disability paradox: High quality of life against all odds. Social Science and Medicine, 48(8), 977-988.
2. Dillman, D. (1991). The design and administration of mail surveys. Annual review of sociology, 17, 225-249. doi:10.1146/annurev.so.17. 080191.001301.
3. Himmelmann, K., Beckung, E., Hagberg, G., & Uvebrant, P. (2006). Gross and fine motor function and accompanying impairments in cerebral palsy. Developmental Medicine & Child Neurology, 48(6), 417-423. doi: 10.1017/S0012162206000922.
4. Houlihan, C., O'Donnell, M., Conaway, M., & Stevenson, R. (2004). Bodily pain and health-related quality of life in children with cerebral palsy. Developmental Medicine & Child Neurology, 46(5), 305-310. doi:10.1017/S0012162204000507.
5. Howard, J., Soo, B., Graham, H., Boyd, R., Reid, S., Lanigan, A. et al. (2005). Cerebral palsy in Victoria: Motor types, topography and gross motor function Journal of Paediatrics and Child Health, 41(9-10), 479-483. doi: 10.1111/j.1440-1754. 2005.00687.x.
6. Johnson, A. (2002). Prevalence and characteristics of children with cerebral palsy in Europe. Developmental Medicine & Child Neurology, 44(9), 633-640. doi: 10.1017/ S0012162201002675.
7. Liptak, G., O'Donnell, M., Conaway, M., Chumlea, W., Worley, G., Henderson, R. et al. (2001). Health status of children with moderate to severe cerebral palsy. Developmental Medicine & Child Neurology, 43(6), 364-370. doi:10.1017/S0012 16220100069X.
8. Palisano, R., Rosenbaum, P., Walter, S., Russell, D., Wood, E., & Galuppi, B. (1997). Development and reliability of a system to classify gross motor function in children with cerebral palsy. Developmental Medicine & Child Neurology, 39(4), 214-223.
9. Rajmil, L., Herdman, M., Fernandez de Sanmamed, M., Detmar, S., Bruil, J., Ravens-Sieberer, U. et al. (2004). Generic Health-related quality of life instruments in children and adolescents: A qualitative analysis of content. Journal of Adolescent Health, 34, 37-45. doi:10.1016/S1054-139X(03)00249- 0.
10. Ravens-Sieberer, U., Gosch, A., Rajmil, L., Erhart, M., Bruil, J., Duer, W. et al. (2005). The KIDSCREEN-52 quality-of-life measure for children and adolescents. Expert Review of Pharmacoeconomics and Outcomes Research, 5(3), 353-364. doi:10.1586/ 14737167.5.3.353.
11. Sawyer, M., Carbone, J., Whitham, J., Roberton, D., Taplin, J., Varni, J. et al. (2005). The relationship between health-related quality of life, pain, and coping strategies in juvenile arthritis - A one year prospective study. Quality of life research, 14(6), 1585-1598. doi: 10.1007/s11136-004-7710- 3.
12. Souza, L., Braga, L., Filho, G., & Dellatolas, G. (2007). Quality-of-life: Child and parent perspectives following severe traumatic brain injury. Developmental Neurore-habilitation, 10(1), 35/47. doi: 10.1080/13638490600822239.
13. The European KIDSCREEN Group. (2005). Manual of the KIDSCREEN questionnaires. Retrieved 29th June 2006, from http://kidscreen.diehauptstadt. de/kidscreen/ uk/index.html.
14. Thomas, C., Mitchell, P., O'Rourke, P., & Wainwright, C. (2006). Quality-of-life in children and adolescents with cystic fibrosis managed in both regional outreach and cystic fibrosis center settings in Queensland. The Journal of Pediatrics 148(4), 508-516. doi:10.1016/j.jpeds.2005.11.040
15. Vargus-Adams, J. (2006). Longitudinal use of the Child Health Questionnaire in childhood cerebral palsy. Developmental Medicine & Child Neurology, 48(5), 343-347. doi:10.1017/S0012162206000752.
16. Varni, J., Burwinkle, T., Berrin, S., Sherman, S., Artavia, K., Malcarne, V. et al. (2006). The PedsQL in pediatric cerebral palsy: Reliability, validity, and sensitivity of the Generic Core Scales and Cerebral Palsy Module. Developmental Medicine & Child Neurology, 48(6), 442-449. doi:10.1017/S001216220600096X.
17. Varni, J., Burwinkle, T., Katz, E., Meeske, K., & Dickinson, P. (2002). The PedsQL in pediatric cancer: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module. Cancer, 94(7), 2090-2106. doi: 10.1002/cncr.10428.
18. Varni, J., Burwinkle, T., Seid, M., & Skarr, D. (2003). The PedsQL 4.0 as a pediatric population health measure: Feasibility, reliability, and validity. Ambulatory pediatrics, 3(6), 329-341. doi: 10.1367/1539-4409.
19. Varni, J., Burwinkle, T., Sherman, S., Hanna, K., Berrin, S., Malcarne, V. et al. (2005). Health-related quality of life of children and adolescents with cerebral palsy: Hearing the voices of the children. Developmental Medicine & Child Neurology, 47(9), 592-597. doi:10.1017/ S0012162205001179.
20. Varni, J., Seid, M., Smith Knight, T., Burwinkle, T., Brown, J., & Szer, I. (2002). The PedsQL in pediatric rheumatology: Reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory Generic Core Scales and Rheumatology Module. Arthritis and Rheumatism, 46(3), 714-725. doi: 10.1002/art.10095.
21. Wake, M., Hesketh, K., Olds, T., Carlin, J., Waters, E., & Patton, G. (2005). Health of Young Victorian's Study-Adolescent Questionnaire. Melbourne: Centre of Community Child Health, Royal Children's Hospital.
22. Wake, M., Salmon, L., & Reddihough, D. (2003). Health status of Australian children with mild to severe cerebral palsy: Cross-sectional survey using the Child Health Questionnaire. Developmental Medicine & Child Neurology, 45(3), 194-199. doi:10.1017/S0012162203000379.
23. World Health Organization. (2001). ICF International Classification of Functioning, Disability and Health. Geneva: World Health Organization.