메뉴 건너뛰기




Volumn 12, Issue 1, 2008, Pages 13-23

Evaluating online direct-to-consumer marketing of genetic tests: Informed choices or buyers beware

Author keywords

[No Author keywords available]

Indexed keywords

ADVERTIZING; ALZHEIMER DISEASE; BREAST CANCER; CLINICAL PRACTICE; CONSUMER HEALTH INFORMATION; CONTROLLED STUDY; DIAGNOSTIC TEST; FINANCIAL MANAGEMENT; GENETIC ANALYSIS; GENETIC COUNSELING; HEALTH CARE SYSTEM; HEALTH CARE UTILIZATION; HUMAN; HUNTINGTON CHOREA; INFORMATION SERVICE; INTERNET; MEDICAL INFORMATION; MUSCULAR DYSTROPHY; OVARY CANCER; PATIENT CARE; REVIEW; RISK ASSESSMENT;

EID: 41449113701     PISSN: 10906576     EISSN: None     Source Type: Journal    
DOI: 10.1089/gte.2007.0024     Document Type: Review
Times cited : (69)

References (45)
  • 1
    • 0010089176 scopus 로고    scopus 로고
    • Retrieved January 18, 2007, from
    • American College of Medical Genetics (2005) Policy statements. Retrieved January 18, 2007, from: http://www.acmg.net/resources/policy-list.asp.
    • (2005) Policy statements
  • 2
    • 0242422178 scopus 로고    scopus 로고
    • Genewatch UK. Retrieved January 18, 2007, from
    • Barrett S, Hall H (2003) Dubious genetic testing. Genewatch UK. Retrieved January 18, 2007, from: http://www.quackwatch.org/QuackeryRelatedTopics/Tests/ genomics.html.
    • (2003) Dubious genetic testing
    • Barrett, S.1    Hall, H.2
  • 3
    • 3242664684 scopus 로고    scopus 로고
    • Evaluating direct-to-consumer marketing of race-based pharmacogenomics: A focus group study of public understanding of applied genomic medication
    • Bates BR, Poirot K, Harris TM, Condit CM, Achter PJ (2004) Evaluating direct-to-consumer marketing of race-based pharmacogenomics: a focus group study of public understanding of applied genomic medication. J Health Commun 9:541-559.
    • (2004) J Health Commun , vol.9 , pp. 541-559
    • Bates, B.R.1    Poirot, K.2    Harris, T.M.3    Condit, C.M.4    Achter, P.J.5
  • 4
    • 0037027771 scopus 로고    scopus 로고
    • Genetic testing
    • Burke W (2002) Genetic testing. N Engl J Med 347:1867-1875.
    • (2002) N Engl J Med , vol.347 , pp. 1867-1875
    • Burke, W.1
  • 5
    • 54649083986 scopus 로고    scopus 로고
    • The commercialization of human genetics: A discussion of issues relevant to the Canadian consumer
    • Caulfield T (1998) The commercialization of human genetics: a discussion of issues relevant to the Canadian consumer. J Consum Policy 21:125-167.
    • (1998) J Consum Policy , vol.21 , pp. 125-167
    • Caulfield, T.1
  • 6
    • 0033517748 scopus 로고    scopus 로고
    • Gene testing in the biotech century: Are physicians ready?
    • Caulfield T (1999) Gene testing in the biotech century: are physicians ready? Can Med Assoc J 161:1122-1124.
    • (1999) Can Med Assoc J , vol.161 , pp. 1122-1124
    • Caulfield, T.1
  • 8
    • 3142697174 scopus 로고    scopus 로고
    • Genetic testing for breast and ovarian cancer susceptibility: Evaluating direct-to-consumer marketing - Atlanta, Denver, Raleigh-Durham, and Seattle, 2003
    • Centers for Disease Control and Prevention , 53:603-606
    • Centers for Disease Control and Prevention (2004) Genetic testing for breast and ovarian cancer susceptibility: evaluating direct-to-consumer marketing - Atlanta, Denver, Raleigh-Durham, and Seattle, 2003. Morbidity and Mortality Weekly Report 53:603-606.
    • (2004) Morbidity and Mortality Weekly Report
  • 9
    • 0034302592 scopus 로고    scopus 로고
    • Riskier than we think? The relationship between risk statement completeness and prescriptions of direct to consumer advertised prescription drugs
    • Davis JJ (2000) Riskier than we think? The relationship between risk statement completeness and prescriptions of direct to consumer advertised prescription drugs. J Health Commun 5:349-369.
    • (2000) J Health Commun , vol.5 , pp. 349-369
    • Davis, J.J.1
  • 10
    • 21044449589 scopus 로고    scopus 로고
    • Portrayal of genetic risk for breast cancer in ethnic and non-ethnic newspapers
    • Donelle L, Hoffman-Goetz L, Clarke JN (2004) Portrayal of genetic risk for breast cancer in ethnic and non-ethnic newspapers. Women Health 40:93-111.
    • (2004) Women Health , vol.40 , pp. 93-111
    • Donelle, L.1    Hoffman-Goetz, L.2    Clarke, J.N.3
  • 11
    • 41449090283 scopus 로고    scopus 로고
    • Genetics and Public Policy Centre, September 26, Retrieved October 5, 2006, from
    • Genetics and Public Policy Centre (2006, September 26) Lax oversight of genetic tests "a risk to public health" - public policy groups file petition for rulemaking with CMS. Retrieved October 5, 2006, from: http://www.dnapolicy.org/news.release.php?action=detail&pressrelease_id=61.
    • (2006) Lax oversight of genetic tests a risk to public health
  • 12
    • 23644455625 scopus 로고    scopus 로고
    • Benefits and harms of direct to consumer advertising: A systematic review
    • Gilbody S, Wilson P, Watt I (2005) Benefits and harms of direct to consumer advertising: a systematic review. Qual Saf Health Care 14:246-250.
    • (2005) Qual Saf Health Care , vol.14 , pp. 246-250
    • Gilbody, S.1    Wilson, P.2    Watt, I.3
  • 13
    • 0037048668 scopus 로고    scopus 로고
    • Limitations of direct-to-consumer advertising for clinical genetic testing
    • Gollust SE, Chandros Hull S, Wilfond BS (2002) Limitations of direct-to-consumer advertising for clinical genetic testing. J Am Med Assoc 288:1762-1766.
    • (2002) J Am Med Assoc , vol.288 , pp. 1762-1766
    • Gollust, S.E.1    Chandros Hull, S.2    Wilfond, B.S.3
  • 14
    • 0042525886 scopus 로고    scopus 로고
    • Direct-to-consumer sales of genetic services on the internet
    • Gollust SE, Wilfond BS, Hull SC (2003) Direct-to-consumer sales of genetic services on the internet. Genet Med 5:332-337.
    • (2003) Genet Med , vol.5 , pp. 332-337
    • Gollust, S.E.1    Wilfond, B.S.2    Hull, S.C.3
  • 15
    • 0141576776 scopus 로고    scopus 로고
    • Direct-to-consumer marketing of genetic tests for cancer: Buyer beware
    • Gray S, Olopade OI (2003) Direct-to-consumer marketing of genetic tests for cancer: buyer beware. J Clin Oncol 21:3191-3193.
    • (2003) J Clin Oncol , vol.21 , pp. 3191-3193
    • Gray, S.1    Olopade, O.I.2
  • 16
    • 5644273777 scopus 로고    scopus 로고
    • Public experiences, knowledge and expectations about medical genetics and the use of genetic information
    • Henneman L, Timmermans DRM, van der Wal G (2004) Public experiences, knowledge and expectations about medical genetics and the use of genetic information. Community Genet 7:33-43.
    • (2004) Community Genet , vol.7 , pp. 33-43
    • Henneman, L.1    Timmermans, D.R.M.2    van der Wal, G.3
  • 17
    • 0004215041 scopus 로고    scopus 로고
    • Promoting safe and effective genetic testing in the United States
    • Holtzman NA, Watson MS, eds, Retrieved September 20, 2006, from
    • Holtzman NA, Watson MS, eds. (1997) Promoting safe and effective genetic testing in the United States: final report of the Task Force on Genetic Testing. Retrieved September 20, 2006, from: http://www.genome.gov/10001733.
    • (1997) final report of the Task Force on Genetic Testing
  • 18
    • 0035514345 scopus 로고    scopus 로고
    • Reading between the lines: Direct-to-consumer advertising for genetic testing in the USA
    • Hull SC, Prasad K (2001) Reading between the lines: direct-to-consumer advertising for genetic testing in the USA. Reprod Health Matters 9:44-48.
    • (2001) Reprod Health Matters , vol.9 , pp. 44-48
    • Hull, S.C.1    Prasad, K.2
  • 21
    • 0031819136 scopus 로고    scopus 로고
    • Physician knowledge and attitudes towards molecular genetic (DNA) testing of their patients
    • Hunter A, Wright P, Cappelli M, Kasaboski A, Surh L (1998) Physician knowledge and attitudes towards molecular genetic (DNA) testing of their patients. Clin Genet 53:447-455.
    • (1998) Clin Genet , vol.53 , pp. 447-455
    • Hunter, A.1    Wright, P.2    Cappelli, M.3    Kasaboski, A.4    Surh, L.5
  • 22
    • 33645696795 scopus 로고    scopus 로고
    • Federal neglect: Regulation of genetic testing
    • Spring:, Spring, Retrieved October 6, 2006, from
    • Javitt GH, Hudson K (2006) Federal neglect: regulation of genetic testing. Issues Sci Technol Spring: 59-66 Spring 2006. Retrieved October 6, 2006, from: http://www.dnapolicy.org/resources/Issues_in_Science_and_Technology. pdf#search=%22federal%20neglect%3A%20regulation%20of%20genetic%20testing%22.
    • (2006) Issues Sci Technol , pp. 59-66
    • Javitt, G.H.1    Hudson, K.2
  • 23
    • 0036324751 scopus 로고    scopus 로고
    • A consumer charter for genomic services
    • Ledley F (2002) A consumer charter for genomic services. Nat Biotechnol 20:767.
    • (2002) Nat Biotechnol , vol.20 , pp. 767
    • Ledley, F.1
  • 24
    • 0842284214 scopus 로고    scopus 로고
    • Direct-to-consumer genetic testing: Access and marketing
    • McCabe LL, McCabe ERB (2004) Direct-to-consumer genetic testing: access and marketing. Genet Med 6:58-59.
    • (2004) Genet Med , vol.6 , pp. 58-59
    • McCabe, L.L.1    McCabe, E.R.B.2
  • 25
    • 33745924410 scopus 로고    scopus 로고
    • Genetic diagnosis and testing in clinical practice
    • McPherson E (2006) Genetic diagnosis and testing in clinical practice. Clin Med Res 4:123-129.
    • (2006) Clin Med Res , vol.4 , pp. 123-129
    • McPherson, E.1
  • 28
    • 27344450445 scopus 로고    scopus 로고
    • Assessing controversial direct-to-consumer advertising for heriditary breast cancer testing: Reactions from women and their physicians in a managed care organization
    • Mouchawar J, Laurion S, Rizwoller DP, Ellis J, Kulchak-Rahm A, Hensley-Alford S (2005b) Assessing controversial direct-to-consumer advertising for heriditary breast cancer testing: reactions from women and their physicians in a managed care organization. Am J Man Care 11:601-608.
    • (2005) Am J Man Care , vol.11 , pp. 601-608
    • Mouchawar, J.1    Laurion, S.2    Rizwoller, D.P.3    Ellis, J.4    Kulchak-Rahm, A.5    Hensley-Alford, S.6
  • 29
    • 1842739564 scopus 로고    scopus 로고
    • Caveat emptor: Direct-to-consumer supply and advertising of genetic testing
    • Mykitiuk R (2004) Caveat emptor: direct-to-consumer supply and advertising of genetic testing. Clin Invest Med 27:23-32.
    • (2004) Clin Invest Med , vol.27 , pp. 23-32
    • Mykitiuk, R.1
  • 30
    • 41449110944 scopus 로고    scopus 로고
    • Myriad Genetics (2002, September 12) Myriad Genetics launches direct to consumer advertising campaign for breast cancer test. Retrieved January 18, 2007, from: http://www.myriad.com.
    • Myriad Genetics (2002, September 12) Myriad Genetics launches direct to consumer advertising campaign for breast cancer test. Retrieved January 18, 2007, from: http://www.myriad.com.
  • 31
    • 41449098383 scopus 로고    scopus 로고
    • National Cancer Institute (2002) Genetic testing for BRCA1 and BRCA2: it's your choice. Retrieved January 18, 2007, from: http://www.cancer.gov/cancertopics/factsheet/Risk/BRCA.
    • National Cancer Institute (2002) Genetic testing for BRCA1 and BRCA2: it's your choice. Retrieved January 18, 2007, from: http://www.cancer.gov/cancertopics/factsheet/Risk/BRCA.
  • 32
    • 41449086689 scopus 로고    scopus 로고
    • March 23, Retrieved January 18, 2007, from the National Institutes of Health Web site
    • National Human Genome Research Institute (2004, March 23). Direct to consumer marketing of genetic tests. Retrieved January 18, 2007, from the National Institutes of Health Web site: http://www.genome.gov/12010659.
    • (2004) Direct to consumer marketing of genetic tests
  • 33
    • 41449112453 scopus 로고    scopus 로고
    • Retrieved October 6, 2006, from
    • National Library of Medicine (2006) What is direct-to-consumer genetic testing? Retrieved October 6, 2006, from: http://ghr.nlm.nih.gov/handbook/ testing/directtoconsumer.
    • (2006) What is direct-to-consumer genetic testing
  • 35
    • 0034904689 scopus 로고    scopus 로고
    • Use of the internet by patients and their families to obtain genetics-related information
    • Taylor MR, Alman A, Manchester DK (2001) Use of the internet by patients and their families to obtain genetics-related information. Mayo Clin Proc 76:772-776.
    • (2001) Mayo Clin Proc , vol.76 , pp. 772-776
    • Taylor, M.R.1    Alman, A.2    Manchester, D.K.3
  • 36
    • 40149088492 scopus 로고    scopus 로고
    • United States Government Accountability Office, June 27, Retrieved September 2, 2006, from
    • United States Government Accountability Office (2006, June 27) Nutrigenetic testing: tests purchased from four web sites mislead consumers. Retrieved September 2, 2006, from: http://www.gao.gov/new.items/d06977t.pdf.
    • (2006) Nutrigenetic testing: Tests purchased from four web sites mislead consumers
  • 37
    • 33751017064 scopus 로고    scopus 로고
    • Ethical and clinical practice considerations for genetic counselors related to direct-to-consumer marketing of genetic tests
    • Wade CH, Wilfond BS (2006) Ethical and clinical practice considerations for genetic counselors related to direct-to-consumer marketing of genetic tests. Am J Med Genet 142C:284-292.
    • (2006) Am J Med Genet , vol.142 C , pp. 284-292
    • Wade, C.H.1    Wilfond, B.S.2
  • 38
    • 34548039042 scopus 로고    scopus 로고
    • Direct-to-consumer online genetic testing and the four principles: An analysis of the ethical issues
    • Retrieved April 30, 2007, from
    • Wasson K (2006) Direct-to-consumer online genetic testing and the four principles: an analysis of the ethical issues. Ethics & Med. Retrieved April 30, 2007, from: http://findarticles.com/p/articles/mi_qa4004/is_200607/ ai_n17172948.
    • (2006) Ethics & Med
    • Wasson, K.1
  • 39
    • 1642487168 scopus 로고    scopus 로고
    • The code, the text and the language of God
    • Weigmann K (2004) The code, the text and the language of God. Eur Mol Biol Organ Rep 5:116-118.
    • (2004) Eur Mol Biol Organ Rep , vol.5 , pp. 116-118
    • Weigmann, K.1
  • 40
    • 0032483689 scopus 로고    scopus 로고
    • Uncertainties in genetic testing for chronic disease
    • Welch G, Burke W (1998) Uncertainties in genetic testing for chronic disease. J Am Med Assoc 280:1525-1527.
    • (1998) J Am Med Assoc , vol.280 , pp. 1525-1527
    • Welch, G.1    Burke, W.2
  • 41
    • 34249825558 scopus 로고    scopus 로고
    • Retrieved January 18, 2007, from the Genetics and Public Policy Centre Web site
    • Williams S (2006) Direct-to-consumer genetic testing: empowering or endangering the public? Retrieved January 18, 2007, from the Genetics and Public Policy Centre Web site: http://www.dnapolicy.org/policy.issue.php?action= detail&issuebrief_id=32.
    • (2006) Direct-to-consumer genetic testing: Empowering or endangering the public
    • Williams, S.1
  • 42
    • 0033291809 scopus 로고    scopus 로고
    • Re-framing the discussion: Commercial genetic testing in Canada
    • Williams-Jones B (1999) Re-framing the discussion: commercial genetic testing in Canada. Health Law J 7:49-67.
    • (1999) Health Law J , vol.7 , pp. 49-67
    • Williams-Jones, B.1
  • 43
    • 0037942643 scopus 로고    scopus 로고
    • Where there's a web, there's a way: Commercial genetic testing and the internet
    • Williams-Jones B (2003) Where there's a web, there's a way: commercial genetic testing and the internet. Community Genet 6:46-57.
    • (2003) Community Genet , vol.6 , pp. 46-57
    • Williams-Jones, B.1
  • 44
    • 33645774422 scopus 로고    scopus 로고
    • Be ready against cancer now: Direct-to-consumer advertising for genetic testing
    • Williams-Jones B (2006) "Be ready against cancer now": direct-to-consumer advertising for genetic testing. New Genet Soc 25:89-107.
    • (2006) New Genet Soc , vol.25 , pp. 89-107
    • Williams-Jones, B.1
  • 45
    • 33746924564 scopus 로고    scopus 로고
    • Genes on the web-direct-to-consumer marketing of genetic testing
    • Wolfberg AJ (2006) Genes on the web-direct-to-consumer marketing of genetic testing. N Engl J Med 355:543-545.
    • (2006) N Engl J Med , vol.355 , pp. 543-545
    • Wolfberg, A.J.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.