-
1
-
-
17144470109
-
-
Pollitt RJ, Green A, McCabe CJ, Booth A, Cooper NJ, Leonard JV, et al. Neonatal screening for inborn errors of metabolism: cost, yield and outcome. Health Technol Assess. 199751(7).
-
Pollitt RJ, Green A, McCabe CJ, Booth A, Cooper NJ, Leonard JV, et al. Neonatal screening for inborn errors of metabolism: cost, yield and outcome. Health Technol Assess. 199751(7).
-
-
-
-
2
-
-
21744455286
-
Newborn screening: New developments, new dilemmas
-
Kerruish NJ, Robertson SP. Newborn screening: new developments, new dilemmas. J Med Ethics. 2005;31:393-8.
-
(2005)
J Med Ethics
, vol.31
, pp. 393-398
-
-
Kerruish, N.J.1
Robertson, S.P.2
-
3
-
-
0034794064
-
-
Therrell Jr BL. U.S. newborn screening policy dilemmas for the twenty-first century. Mol Genet Metab. 2001;74:64-74.
-
Therrell Jr BL. U.S. newborn screening policy dilemmas for the twenty-first century. Mol Genet Metab. 2001;74:64-74.
-
-
-
-
4
-
-
25844516484
-
Balancing benefits and risks for cystic fibrosis newborn screening: Implications for policy decisions
-
Wilfond BS, Parad RB, Fost N. Balancing benefits and risks for cystic fibrosis newborn screening: implications for policy decisions. J Pediatr. 2005;147:8109-13.
-
(2005)
J Pediatr
, vol.147
, pp. 8109-8113
-
-
Wilfond, B.S.1
Parad, R.B.2
Fost, N.3
-
5
-
-
33745075959
-
Mini-Symposium: Newborn screening for inborn errors of metabolism-clinical effectiveness
-
Wilcken B. Mini-Symposium: newborn screening for inborn errors of metabolism-clinical effectiveness. J Inherit Metab Dis. 2006;29:366-9.
-
(2006)
J Inherit Metab Dis
, vol.29
, pp. 366-369
-
-
Wilcken, B.1
-
6
-
-
33747591403
-
ACMG Newborn Screening Expert Group. Newborn screening: Toward a uniform screening panel and system
-
Watson MS, Lloyd-Puryear MA, Mann MY, Rinaldo P, Howell RR editors
-
Watson MS, Lloyd-Puryear MA, Mann MY, Rinaldo P, Howell RR editors, ACMG Newborn Screening Expert Group. Newborn screening: toward a uniform screening panel and system. Genet Med. 2006;8(1):1S-252S.
-
(2006)
Genet Med
, vol.8
, Issue.1
-
-
-
7
-
-
33750493316
-
Newborn screening: Complexities in universal genetic testing
-
Green NS, Dolan SM, Murray TH. Newborn screening: complexities in universal genetic testing. Am J Public Health. 2006;96:1955-9.
-
(2006)
Am J Public Health
, vol.96
, pp. 1955-1959
-
-
Green, N.S.1
Dolan, S.M.2
Murray, T.H.3
-
8
-
-
33745297628
-
Expanded newborn screening for biochemical disorders: The effect of a false-positive result
-
Gurian EA, Kinnamon DD, Henry JJ, Waisbren SE. Expanded newborn screening for biochemical disorders: the effect of a false-positive result. Pediatrics. 2006;117:1915-21.
-
(2006)
Pediatrics
, vol.117
, pp. 1915-1921
-
-
Gurian, E.A.1
Kinnamon, D.D.2
Henry, J.J.3
Waisbren, S.E.4
-
9
-
-
33645034271
-
From public health emergency to public health service: The implications of evolving criteria for newborn screening panels
-
Grosse SD, Boyle CA, Kenneson A, Khoury MJ, Wilfond BS. From public health emergency to public health service: the implications of evolving criteria for newborn screening panels. Pediatrics. 2006; 117:923-9.
-
(2006)
Pediatrics
, vol.117
, pp. 923-929
-
-
Grosse, S.D.1
Boyle, C.A.2
Kenneson, A.3
Khoury, M.J.4
Wilfond, B.S.5
-
10
-
-
0344081182
-
Effect of expanded newborn screening for biochemical genetic disorders on child outcomes and parental stress
-
Waisbren SE, Albers S, Amato S, Ampola M, Brewster TG, Demmer L, et al. Effect of expanded newborn screening for biochemical genetic disorders on child outcomes and parental stress. JAMA. 2003;290:2564-72.
-
(2003)
JAMA
, vol.290
, pp. 2564-2572
-
-
Waisbren, S.E.1
Albers, S.2
Amato, S.3
Ampola, M.4
Brewster, T.G.5
Demmer, L.6
-
11
-
-
4944235029
-
Newborn screening for cystic fibrosis: Evaluation of benefits and risks and recommendations for state newborn screening programs
-
Grosse SD, Boyle CA, Botkin JR, Comeau AM, Kharrazi M, Rosenfeld M, et al. Newborn screening for cystic fibrosis: evaluation of benefits and risks and recommendations for state newborn screening programs. MMWR Recomm Rep. 2004;53:1-36.
-
(2004)
MMWR Recomm Rep
, vol.53
, pp. 1-36
-
-
Grosse, S.D.1
Boyle, C.A.2
Botkin, J.R.3
Comeau, A.M.4
Kharrazi, M.5
Rosenfeld, M.6
-
12
-
-
41249102789
-
Newborn screening for sickle cell disease: Socio-ethical implications
-
McLean, SAM editor, Aldershot, UK: Ashgate Publishing Ltd;, Chapter 31
-
Avard D, Kharaboyan L, Knoppers BM. Newborn screening for sickle cell disease: socio-ethical implications. In: McLean, SAM editor. First Do No Harm: Law, Ethics and Healthcare. Aldershot, UK: Ashgate Publishing Ltd; 2006, Chapter 31.
-
(2006)
First Do No Harm: Law, Ethics and Healthcare
-
-
Avard, D.1
Kharaboyan, L.2
Knoppers, B.M.3
-
14
-
-
33947141892
-
Guidelines for implementation of cystic fibrosis newborn screening programs: Cystic Fibrosis Foundation workshop report
-
Comeau AM, Accurso FJ, White TB, Campbell III PW, Hoffman G, Parad RB, et al. Guidelines for implementation of cystic fibrosis newborn screening programs: Cystic Fibrosis Foundation workshop report. Pediatrics. 2007;119:6495-518.
-
(2007)
Pediatrics
, vol.119
, pp. 6495-6518
-
-
Comeau, A.M.1
Accurso, F.J.2
White, T.B.3
Campbell III, P.W.4
Hoffman, G.5
Parad, R.B.6
-
15
-
-
32644432197
-
The cost effectiveness of universal versus selective newborn screening for sickle cell disease in the US and the UK: A critique
-
Grosse SD, Olney RS, Baily MA. The cost effectiveness of universal versus selective newborn screening for sickle cell disease in the US and the UK: a critique. Appl Health Econ Health Policy. 2005;4:239-47.
-
(2005)
Appl Health Econ Health Policy
, vol.4
, pp. 239-247
-
-
Grosse, S.D.1
Olney, R.S.2
Baily, M.A.3
-
16
-
-
33745095968
-
International perspectives on newborn screening
-
Pollitt RJ. International perspectives on newborn screening. J Inherit Metab Dis. 2006;29:390-6.
-
(2006)
J Inherit Metab Dis
, vol.29
, pp. 390-396
-
-
Pollitt, R.J.1
-
17
-
-
0038293333
-
Deliberations about deliberative methods: Issues in the design and evaluation of public participation processes
-
Abelson J, Forest PG, Eyles J, Smith P, Martin E, Gauvin FP. Deliberations about deliberative methods: issues in the design and evaluation of public participation processes. Soc Sci Med. 2003;57:239-51.
-
(2003)
Soc Sci Med
, vol.57
, pp. 239-251
-
-
Abelson, J.1
Forest, P.G.2
Eyles, J.3
Smith, P.4
Martin, E.5
Gauvin, F.P.6
-
18
-
-
0035042606
-
A seat at the table: Membership in federal advisory committees evaluating public policy in genetics
-
Ard CF, Natowicz MR. A seat at the table: membership in federal advisory committees evaluating public policy in genetics. Am J Public Health. 2001;91:787-90.
-
(2001)
Am J Public Health
, vol.91
, pp. 787-790
-
-
Ard, C.F.1
Natowicz, M.R.2
-
19
-
-
0034715904
-
Accountability for reasonableness
-
Daniels N. Accountability for reasonableness. BMJ. 2000;321:1300-1.
-
(2000)
BMJ
, vol.321
, pp. 1300-1301
-
-
Daniels, N.1
-
20
-
-
11344287919
-
Community involvement in developing policies for genetic testing: Assessing the interests and experiences of individuals affected by genetic conditions
-
Gollust SE, Apse K, Fuller BP, Miller PS, Biesecker BB. Community involvement in developing policies for genetic testing: assessing the interests and experiences of individuals affected by genetic conditions. Am J Public Health. 2005;95:35-41.
-
(2005)
Am J Public Health
, vol.95
, pp. 35-41
-
-
Gollust, S.E.1
Apse, K.2
Fuller, B.P.3
Miller, P.S.4
Biesecker, B.B.5
-
21
-
-
0030746725
-
Public participation in medical policy-making and the status of consumer autonomy: The example of newborn-screening programs in the United States
-
Hiller EH, Landenburger G, Natowicz MR. Public participation in medical policy-making and the status of consumer autonomy: the example of newborn-screening programs in the United States. Am J Public Health. 1997;87:1280-8.
-
(1997)
Am J Public Health
, vol.87
, pp. 1280-1288
-
-
Hiller, E.H.1
Landenburger, G.2
Natowicz, M.R.3
-
23
-
-
0036318183
-
Newborn and childhood screening programmes: Criteria, evidence, and current policy
-
Elliman DA, Dezateux C, Bedford HE. Newborn and childhood screening programmes: criteria, evidence, and current policy. Arch Dis Child. 2002;87:6-9.
-
(2002)
Arch Dis Child
, vol.87
, pp. 6-9
-
-
Elliman, D.A.1
Dezateux, C.2
Bedford, H.E.3
-
25
-
-
41249088401
-
-
Available at, accessed 1 October 2007
-
UK National Screening Committee. Website. Available at www.nsc.nhs.uk, accessed 1 October 2007.
-
Website
-
-
-
27
-
-
41249087734
-
-
NHS Sickle Cell and Thalassaemia Screening Programme. Newborn screening. Available at www.sickleandthal.org.uk/newborn.htm, accessed 1 October 2007.
-
NHS Sickle Cell and Thalassaemia Screening Programme. Newborn screening. Available at www.sickleandthal.org.uk/newborn.htm, accessed 1 October 2007.
-
-
-
-
28
-
-
41249092787
-
-
Available at, accessed 1 October 2007
-
Department of Health. New screening test for all babies to be introduced; 2007. Available at www.gnn.gov.uk/environment/Full Detail.asp?ReleaseID=262490&NewsAreaID-2&NavigatedFromDepartment-False, accessed 1 October 2007.
-
(2007)
New screening test for all babies to be introduced
-
-
-
29
-
-
0027945216
-
The genetic testing of children. Working party of the Clinical Genetics Society (UK)
-
Clarke A. The genetic testing of children. Working party of the Clinical Genetics Society (UK). J Med Genet. 1994;31:785-97.
-
(1994)
J Med Genet
, vol.31
, pp. 785-797
-
-
Clarke, A.1
-
30
-
-
0029059310
-
GIG response to the UK Clinical Genetics Society report "The genetic testing of children
-
Dalby S. GIG response to the UK Clinical Genetics Society report "The genetic testing of children". J Med Genet. 1995;32:490-491.
-
(1995)
J Med Genet
, vol.32
, pp. 490-491
-
-
Dalby, S.1
-
31
-
-
0001373172
-
Serving the family from birth to the medical home. Newborn screening: A blueprint for the future - a call for a national agenda on state newborn screening programs
-
American Academy of Pediatrics
-
American Academy of Pediatrics. Serving the family from birth to the medical home. Newborn screening: a blueprint for the future - a call for a national agenda on state newborn screening programs. Pediatrics. 2000;106:389-427.
-
(2000)
Pediatrics
, vol.106
, pp. 389-427
-
-
-
34
-
-
33846014705
-
Advisory committee on heritable disorders and genetic diseases in newborns and children
-
Howell RR. Advisory committee on heritable disorders and genetic diseases in newborns and children. Ment Retard Dev Disabil Res Rev. 2006;12:313-5.
-
(2006)
Ment Retard Dev Disabil Res Rev
, vol.12
, pp. 313-315
-
-
Howell, R.R.1
-
35
-
-
0031566022
-
-
Centers for Disease Control and Prevention. Newborn screening for cystic fibrosis: a paradigm for public health genetics policy development. Proceedings of a 1997 workshop. MMWR Recomm Rep. 1997;46:1-24.
-
Centers for Disease Control and Prevention. Newborn screening for cystic fibrosis: a paradigm for public health genetics policy development. Proceedings of a 1997 workshop. MMWR Recomm Rep. 1997;46:1-24.
-
-
-
-
36
-
-
0011240438
-
Using tandem mass spectrometry for metabolic disease screening among newborns. A report of a work group
-
Centers for Disease Control and Prevention
-
Centers for Disease Control and Prevention. Using tandem mass spectrometry for metabolic disease screening among newborns. A report of a work group. MMWR Recomm Rep. 2001;50:1-34.
-
(2001)
MMWR Recomm Rep
, vol.50
, pp. 1-34
-
-
-
37
-
-
33744786549
-
Status of newborn screening programs in the United States
-
Therrell BL, Johnson A, Williams D. Status of newborn screening programs in the United States. Pediatrics. 2006;117:S212-52.
-
(2006)
Pediatrics
, vol.117
-
-
Therrell, B.L.1
Johnson, A.2
Williams, D.3
-
38
-
-
0036016988
-
Addressing consumer grievances in medicine: Policies and practices of newborn screening programs in the United States
-
Natowicz MR, Hiller EH. Addressing consumer grievances in medicine: policies and practices of newborn screening programs in the United States. Genet Test. 2002;6:31-8.
-
(2002)
Genet Test
, vol.6
, pp. 31-38
-
-
Natowicz, M.R.1
Hiller, E.H.2
-
39
-
-
17844379715
-
Newborn screening report sparks debate in USA
-
Black H. Newborn screening report sparks debate in USA. Lancet. 2005;365:1453-4.
-
(2005)
Lancet
, vol.365
, pp. 1453-1454
-
-
Black, H.1
-
40
-
-
33646853843
-
Newborn screening technology: Proceed with caution
-
Botkin JR, Clayton EW, Fost NC, Burke W, Murray TH, Baily MA, et al. Newborn screening technology: proceed with caution. Pediatrics. 2006;117:1793-9.
-
(2006)
Pediatrics
, vol.117
, pp. 1793-1799
-
-
Botkin, J.R.1
Clayton, E.W.2
Fost, N.C.3
Burke, W.4
Murray, T.H.5
Baily, M.A.6
-
41
-
-
33646843914
-
-
Howell RR. We need expanded newborn screening. Pediatrics. 2006;117:1800-5
-
Howell RR. We need expanded newborn screening. Pediatrics. 2006;117:1800-5.
-
-
-
-
42
-
-
0028872836
-
Points to consider: Ethical, legal, and psychosocial implications of genetic testing in children and adolescents. American Society of Human Genetics Board of Directors, American College of Medical Genetics Board of Directors
-
American Society of Human Genetics and American College of Medical Genetics
-
American Society of Human Genetics and American College of Medical Genetics. Points to consider: ethical, legal, and psychosocial implications of genetic testing in children and adolescents. American Society of Human Genetics Board of Directors, American College of Medical Genetics Board of Directors.. Am J Hum Genet. 1995;57:1233-41.
-
(1995)
Am J Hum Genet
, vol.57
, pp. 1233-1241
-
-
-
43
-
-
0038624107
-
-
Nelson RM, Botkjin JR, Kodish ED, Levetown M, Truman JT, Wilfond BS, et al. Ethical issues with genetic testing in pediatrics. Pediatrics. 2001;107:1451-5. (Note: statement reaffirmed in October 2004; see May 2005 issue).
-
Nelson RM, Botkjin JR, Kodish ED, Levetown M, Truman JT, Wilfond BS, et al. Ethical issues with genetic testing in pediatrics. Pediatrics. 2001;107:1451-5. (Note: statement reaffirmed in October 2004; see May 2005 issue).
-
-
-
-
44
-
-
33744814955
-
American Academy of Pediatrics Newborn Screening Task Force recommendations: How far have we come?
-
Lloyd-Puryear MA, Tonniges T, van Dyck PC, Mann MY, Brin A, Johnson K, et al. American Academy of Pediatrics Newborn Screening Task Force recommendations: how far have we come? Pediatrics. 2006;117:S194-211.
-
(2006)
Pediatrics
, vol.117
-
-
Lloyd-Puryear, M.A.1
Tonniges, T.2
van Dyck, P.C.3
Mann, M.Y.4
Brin, A.5
Johnson, K.6
-
45
-
-
41249087285
-
Public testimony to Secretary's Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children
-
Available at, accessed 1 October 2007
-
Terry SF. Public testimony to Secretary's Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children. Genetic Alliance; 2004. Available at http://www.geneticalliance.org/ws_display.asp? filter=%7B03333436%2DD71E%2D4554%2D93A0%2DDE88FA87B037%7D, accessed 1 October 2007.
-
(2004)
Genetic Alliance
-
-
Terry, S.F.1
-
46
-
-
41249097173
-
-
Terry SF. Comments submitted by Genetic Alliance to the Secretary's Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children. We must ensure that all newborns have access to appropriate and effective screening programs. Genetic Alliance; 2005. Available at http://www.geneticalliance.org/ws_display. asp?filter= %7B35CD2C75%2D98C7%2D41F1%2D988F%2D92C048FCB472%7D, accessed 1 October 2007.
-
Terry SF. Comments submitted by Genetic Alliance to the Secretary's Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children. "We must ensure that all newborns have access to appropriate and effective screening programs". Genetic Alliance; 2005. Available at http://www.geneticalliance.org/ws_display. asp?filter= %7B35CD2C75%2D98C7%2D41F1%2D988F%2D92C048FCB472%7D, accessed 1 October 2007.
-
-
-
-
47
-
-
33845971923
-
Critical role of the March of Dimes in the expansion of newborn screening
-
Howse JL, Weiss M, Green NS. Critical role of the March of Dimes in the expansion of newborn screening. Ment Retard Dev Disabil Res Rev. 2006;12:280-7.
-
(2006)
Ment Retard Dev Disabil Res Rev
, vol.12
, pp. 280-287
-
-
Howse, J.L.1
Weiss, M.2
Green, N.S.3
-
48
-
-
0033847166
-
The importance of newborn screening
-
Howse JL, Katz M. The importance of newborn screening. Pediatrics. 2000;106:695.
-
(2000)
Pediatrics
, vol.106
, pp. 695
-
-
Howse, J.L.1
Katz, M.2
-
49
-
-
41249086197
-
-
March of Dimes. March of Dimes statement on newborn screening report. 2004. Available at www.marchofdimes.com/aboutus/10651_13507.asp, accessed 1 October 2007.
-
March of Dimes. March of Dimes statement on newborn screening report. 2004. Available at www.marchofdimes.com/aboutus/10651_13507.asp, accessed 1 October 2007.
-
-
-
-
50
-
-
41249100032
-
-
March of Dimes. Professionals and researchers. Quick references and fact sheets. Recommended newborn screening tests: 29 disorders. Available at www.marchofdimes.com/professionals/14332_15455.asp, accessed 1 October 2007.
-
March of Dimes. Professionals and researchers. Quick references and fact sheets. Recommended newborn screening tests: 29 disorders. Available at www.marchofdimes.com/professionals/14332_15455.asp, accessed 1 October 2007.
-
-
-
-
51
-
-
25844517871
-
Newborn screening for cystic fibrosis: An opportunity to improve care and outcomes
-
Campbell III PW, White TB. Newborn screening for cystic fibrosis: an opportunity to improve care and outcomes. J Pediatr. 2005;147:82-5.
-
(2005)
J Pediatr
, vol.147
, pp. 82-85
-
-
Campbell III, P.W.1
White, T.B.2
-
52
-
-
41249083637
-
-
Cystic Fibrosis Foundation, Available at, accessed 1 October 2007
-
Cystic Fibrosis Foundation. Website (various statements). Available at www.cff.org, accessed 1 October 2007.
-
Website (various statements)
-
-
-
54
-
-
33845897373
-
Outcome of neonatal screening for medium-chain acyl-CoA dehydrogenase deficiency in Australia: A cohort study
-
Wilcken B, Haas M, Joy P, Wiley V, Chaplin M, Black C, et al. Outcome of neonatal screening for medium-chain acyl-CoA dehydrogenase deficiency in Australia: a cohort study. Lancet. 2007;369:37-42.
-
(2007)
Lancet
, vol.369
, pp. 37-42
-
-
Wilcken, B.1
Haas, M.2
Joy, P.3
Wiley, V.4
Chaplin, M.5
Black, C.6
-
55
-
-
41249097864
-
-
Human Genetics Society of Australasia and Royal Australasian College of Physicians Newborn Screening Joint Subcommittee. HGSA policy statement 2004. Newborn blood-spot screening. 2004. Available at, accessed 1 October 2007
-
Human Genetics Society of Australasia and Royal Australasian College of Physicians Newborn Screening Joint Subcommittee. HGSA policy statement 2004. Newborn blood-spot screening. 2004. Available at http://www.hgsa.com.au/, accessed 1 October 2007.
-
-
-
-
56
-
-
41249093846
-
-
Human Genetics Society of Australasia and Royal Australasian College of Physicians Newborn Screening Joint Subcommittee. Policy statement on the retention, storage and use of sample cards from newborn screening programs. Available at, accessed 1 October 2007
-
Human Genetics Society of Australasia and Royal Australasian College of Physicians Newborn Screening Joint Subcommittee. Policy statement on the retention, storage and use of sample cards from newborn screening programs. Available at http://www.hgsa.com.au/, accessed 1 October 2007.
-
-
-
-
57
-
-
33845896312
-
Exploring existing and deliberated community perspectives of newborn screening: Informing the development of state and national policy standards in newborn screening and the use of dried blood spots
-
Muchamore I, Morphett L, Barlow-Stewart K. Exploring existing and deliberated community perspectives of newborn screening: informing the development of state and national policy standards in newborn screening and the use of dried blood spots. Aust New Zealand Health Policy. 2006;53:14.
-
(2006)
Aust New Zealand Health Policy
, vol.53
, pp. 14
-
-
Muchamore, I.1
Morphett, L.2
Barlow-Stewart, K.3
-
61
-
-
41249102013
-
-
Available at, accessed 1 October 2007
-
Health; 2006. Available at http://www.genomics.health.wa.gov. au/publications/docs/Newbom_Screening_Framework.pdf, accessed 1 October 2007.
-
Health; 2006
-
-
-
62
-
-
18944393591
-
Newborn screening in Canada - Are we out of step?
-
Hanley WB. Newborn screening in Canada - Are we out of step? Paediatrics and Child Health. 2005;10:203-7.
-
(2005)
Paediatrics and Child Health
, vol.10
, pp. 203-207
-
-
Hanley, W.B.1
-
63
-
-
41249100371
-
-
National Newborn Screening and Genetics Resource Center. Newborn screening in Canada status report. Updated 11 May 2007. Available at http://genes-r-us.uthscsa.edu/, accessed 1 October 2007.
-
National Newborn Screening and Genetics Resource Center. Newborn screening in Canada status report. Updated 11 May 2007. Available at http://genes-r-us.uthscsa.edu/, accessed 1 October 2007.
-
-
-
-
64
-
-
41249102682
-
-
Available at, accessed 1 October 2007
-
Ontario Ministry of Health and Long-Term Care. Backgrounder: McGuinty government expands newborn screening program. 2005; Available at http://www.health.gov.on.ca/english/media/news_releases/archives/nr_05/ bg_090705.pdf, accessed 1 October 2007.
-
(2005)
Backgrounder: McGuinty government expands newborn screening program
-
-
-
65
-
-
41249102682
-
-
Available at, accessed 1 October 2007
-
Ontario Ministry of Health and Long-Term Care. Backgrounder (2): McGuinty government expands newborn screening program. 2005. Available at http://www.health.gov.on.ca/english/media/news_releases/archives/nr_o5/ bg_110205.pdf, accessed 1 October 2007.
-
(2005)
Backgrounder (2): McGuinty government expands newborn screening program
-
-
-
66
-
-
41249092676
-
-
Ontario Ministry of Health and Long-Term Care. Backgrounder. Cystic fibrosis and newborn screening. 2006. Available at www.health.gov.on.ca/ english/media/news_releases/archives/nr_06/nov/bg_112306. pdf, accessed 1 October 2007.
-
Ontario Ministry of Health and Long-Term Care. Backgrounder. Cystic fibrosis and newborn screening. 2006. Available at www.health.gov.on.ca/ english/media/news_releases/archives/nr_06/nov/bg_112306. pdf, accessed 1 October 2007.
-
-
-
-
67
-
-
41249098062
-
-
Government of Alberta. New programs promote better health for children and youth. 2006. Available at www.gov.ab.ca/acn/200609/20573F516B93A-F6B0- E6D2-5886A88B8708BC9D.html, accessed i October 2007;98:284-86.
-
Government of Alberta. New programs promote better health for children and youth. 2006. Available at www.gov.ab.ca/acn/200609/20573F516B93A-F6B0- E6D2-5886A88B8708BC9D.html, accessed i October 2007;98:284-86.
-
-
-
-
68
-
-
26944443539
-
-
Eggertson L. Canada lags on newborn screening. CMAJ. 20055173:23.
-
Eggertson L. Canada lags on newborn screening. CMAJ. 20055173:23.
-
-
-
-
69
-
-
34548507241
-
Newborn screening by tandem mass spectrometry: Ethical and social issues
-
Avard D, Vallance H, Greenberg C, Potter B. Newborn screening by tandem mass spectrometry: Ethical and social issues. Can J Public Health. 2007; 98:284-86.
-
(2007)
Can J Public Health
, vol.98
, pp. 284-286
-
-
Avard, D.1
Vallance, H.2
Greenberg, C.3
Potter, B.4
-
70
-
-
41249096274
-
-
Health Canada. Family-centred maternity and newborn care: National guidelines. 2000. Available at http://www.phac-aspc.gc.ca/dca-dea/prenatal/ fcmci_e.html, accessed 1 October 2007: www.phac-aspc.gc.ca/dca-dea/ pdfa_Zenglish.html#fi4.
-
Health Canada. Family-centred maternity and newborn care: National guidelines. 2000. Available at http://www.phac-aspc.gc.ca/dca-dea/prenatal/ fcmci_e.html, accessed 1 October 2007: www.phac-aspc.gc.ca/dca-dea/ pdfa_Zenglish.html#fi4.
-
-
-
-
71
-
-
41249096595
-
-
Available at, accessed 1 October 2007
-
Canadian Task Force on Preventive Health Care. Website. Available at www.ctfphc.org/, accessed 1 October 2007.
-
Website
-
-
-
72
-
-
41249094075
-
-
Canadian College of Medical Geneticists. Position statement - genetic testing of children. Available at http://ccmg.medical.org/, accessed i October 2007.
-
Canadian College of Medical Geneticists. Position statement - genetic testing of children. Available at http://ccmg.medical.org/, accessed i October 2007.
-
-
-
-
73
-
-
41249083539
-
-
Canadian College of Medical Geneticists. CF testing/screening statement. Available at http://ccmg.medical.org/, accessed 1 October 2007.
-
Canadian College of Medical Geneticists. CF testing/screening statement. Available at http://ccmg.medical.org/, accessed 1 October 2007.
-
-
-
-
74
-
-
28844455735
-
Guidelines for genetic testing of healthy children. Position statement (B 2003-01)
-
Canadian Paediatric Society
-
Canadian Paediatric Society. Guidelines for genetic testing of healthy children. Position statement (B 2003-01). Paediatr Child Health. 2003;8:42-5.
-
(2003)
Paediatr Child Health
, vol.8
, pp. 42-45
-
-
-
77
-
-
41249089445
-
-
Canadian Organization for Rare Disorders. Position statement on newborn screening September 27, 2005, as quoted in the Legislative Assembly of Ontario on September 28, 2005. Available at http://www. ontla.on.ca/ committee-proceedings/transcripts/files_pdf/2005-09-28_ pdfT016.pdf, accessed 1 October 2007(see statement from John Adams, representative of the Canadian Organization for Rare Disorders).
-
Canadian Organization for Rare Disorders. Position statement on newborn screening September 27, 2005, as quoted in the Legislative Assembly of Ontario on September 28, 2005. Available at http://www. ontla.on.ca/ committee-proceedings/transcripts/files_pdf/2005-09-28_ pdfT016.pdf, accessed 1 October 2007(see statement from John Adams, representative of the Canadian Organization for Rare Disorders).
-
-
-
-
78
-
-
41249103433
-
-
Health Council of Canada, Available at, accessed 1 October 2007. ISBN 0-9739726-2-9 2
-
Gauvin FP, Abelson J. Primer on Public Involvement. Health Council of Canada, 2006. Available at www.healthcouncilcanada.ca, accessed 1 October 2007. ISBN 0-9739726-2-9 2.
-
(2006)
Primer on Public Involvement
-
-
Gauvin, F.P.1
Abelson, J.2
-
79
-
-
54649083051
-
An overview of public consultation mechanisms developed to address the ethical and social issues raised by biotechnology
-
Leroux T, Hirtle M, Fortin LN. An overview of public consultation mechanisms developed to address the ethical and social issues raised by biotechnology. Journal of Consumer Policy. 1998;21:445-81.
-
(1998)
Journal of Consumer Policy
, vol.21
, pp. 445-481
-
-
Leroux, T.1
Hirtle, M.2
Fortin, L.N.3
-
80
-
-
33644701044
-
The snakes and ladders of user involvement: Moving beyond Amstein
-
Tritter JQ, McCallum A. The snakes and ladders of user involvement: Moving beyond Amstein. Health Policy. 2006;76:156-68.
-
(2006)
Health Policy
, vol.76
, pp. 156-168
-
-
Tritter, J.Q.1
McCallum, A.2
-
81
-
-
0141785057
-
Does deliberation make a difference? Results from a citizens panel study of health goals priority setting
-
Abelson J, Eyles J, McLeod CB, Collins P, McMullan C, Forest PG. Does deliberation make a difference? Results from a citizens panel study of health goals priority setting. Health Policy. 2003;66:95-106.
-
(2003)
Health Policy
, vol.66
, pp. 95-106
-
-
Abelson, J.1
Eyles, J.2
McLeod, C.B.3
Collins, P.4
McMullan, C.5
Forest, P.G.6
-
82
-
-
0033519057
-
Effect of discussion and deliberation on the public's views of priority setting in health care: Focus group study
-
Dolan P, Cookson R, Ferguson B. Effect of discussion and deliberation on the public's views of priority setting in health care: focus group study. BMJ. 1999;318:916-9.
-
(1999)
BMJ
, vol.318
, pp. 916-919
-
-
Dolan, P.1
Cookson, R.2
Ferguson, B.3
-
83
-
-
41249103788
-
-
Marin A. The right to be impatient. Whether the Ministry of Health and Long-Term Care has failed to properly administer Newborn Screening in Ontario. Ombudsman report. Ombudsman of Ontario, 2005. Available at http://www.ombudsman.on.ca/UploadFiles/File/PDF/TheRightToBeImpatient_REPORT. pdf, accessed 1 October 2007.
-
Marin A. The right to be impatient. Whether the Ministry of Health and Long-Term Care has failed to properly administer Newborn Screening in Ontario. Ombudsman report. Ombudsman of Ontario, 2005. Available at http://www.ombudsman.on.ca/UploadFiles/File/PDF/TheRightToBeImpatient_REPORT. pdf, accessed 1 October 2007.
-
-
-
-
84
-
-
29544432808
-
Wanted: A new ethics field for health policy analysis
-
Kenny N, Giacomini M. Wanted: a new ethics field for health policy analysis. Health Care Anal. 2005;13:247-60.
-
(2005)
Health Care Anal
, vol.13
, pp. 247-260
-
-
Kenny, N.1
Giacomini, M.2
|