How do subjectively-constructed meanings ascribed to anti-HIV treatments affect treatment-adherent practice?

Qualitative Health Research

Volumn 18, Issue 4, 2008, Pages 458-468

  Wong, W K Tim ^a   Ussher, Jane ^a  

^a UNIVERSITY OF WESTERN SYDNEY   (Australia)

Author keywords

Adherence; HIV AIDS; Medical health care disclosure; Narrative methods; Psychosocial issues; Quality of life

Indexed keywords

ACQUIRED IMMUNE DEFICIENCY SYNDROME; ADULT; ANALYTIC METHOD; ARTICLE; AUSTRALIA; CLINICAL ARTICLE; CONTROLLED STUDY; EPISTEMOLOGY; FEMALE; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTED PATIENT; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; MALE; PATIENT COMPLIANCE; PRIORITY JOURNAL;

ADULT; ANTIRETROVIRAL THERAPY, HIGHLY ACTIVE; FEMALE; HIV INFECTIONS; HUMANS; MALE; MIDDLE AGED; PATIENT COMPLIANCE;

EID: 41049100998     PISSN: 10497323     EISSN: 15527557     Source Type: Journal    
DOI: 10.1177/1049732308314852     Document Type: Article

References (63)

1. Anderson, E.H., & Hull Spencer, M. (2002). Cognitive representations of AIDS: A phenomenological study. Qualitative Health Research, 12(10), 1338-1352.
2. Arnsten, J.H., Demas, P.A., Farzadegan, H., Grant, R.W., Gourevitch, M.N., Chang, C.J. et al. (2001). Antiretroviral therapy adherence and viral suppression in HIV-infected drug users: Comparison of self-report and electronic monitoring. Clinical Infectious Diseases, 33(8), 1417-1423.
3. Au, A., Chan, I., Chung, R., Po, L.M., & Yu, P. (2004). Stress and health-related quality of life among HIV-infected persons in Hong Kong. AIDS and Behavior, 8(2), 119-129.
4. Baer, M.R., & Roberts, J. (2002). Complex HIV treatment regimens and patient quality of life. Canadian Psychology, 43(2), 115-121.
5. Bangsberg, D.R., & Deeks, S.G. (2002). Is average adherence to HIV antiretroviral therapy enough? Journal of General Internal Medicine, 17(10), 812-813.
6. Boyatzis, R.E. (1998). Transforming qualitative information: Thematic analysis and code development. Thousand Oaks, London & New Delhi: Sage.
7. Burr, V. (2003). Social constructionism (2nd ed.). London and New York: Routledge.
8. Bury, M. (2001). Illness narratives: Fact or fiction? Sociology of Health & Illness, 23(3), 263-285.
9. Campero, L., Herrera, C., Kendall, T., & Caballero, M. (2007). Bridging the gap between antiretroviral access and adherence in Mexico. Qualitative Health Research, 17(5), 599-611.
10. Carpenter, C.C.J., Fischl, M.A., Hammer, S.M., Hirsch, M.S., Jacobsen, D.M., Katzenstein, D.A. et al. (1996). Antiretroviral therapy for HIV infection in 1996: Recommendations of an international panel. Journal of the American Medical Association, 276(2), 146-154.
11. Charmaz, K. (1995). Grounded theory. In J. A. Smith, R. Harré & L. Van Langenhove (Eds.), Rethinking methods in psychology. London, Thousand Oaks & New Delhi: Sage.
12. Chesney, M., Ickovics, J., Hecht, F.M., Sikipa, G., & Rabkin, J. (1999). Adherence: A necessity for successful HIV combination therapy. AIDS, 13(Supplement A), S271-S278.
13. Cohen, D., McCubbin, M., Collin, J., & Pérodeau, G. (2001). Medications as social phenomena. Health, 5(4), 441-469.
14. Conrad, P. (1985). The meaning of medications: Another look at compliance. Social Science and Medicine, 20(1), 29-37.
15. Edwards, L.V. (2006). Perceived social support and HIV/AIDS medication adherence among African American women. Qualitative Health Research, 16(5), 679-691.
16. Foote-Ardah, C.E. (2003). The meaning of complementary and alternative medicine practices among people with HIV in the United States: Strategies for managing everyday life. Sociology of Health & Illness, 25(5), 481-500.
17. Foote-Ardah, C.E. (2004). Sociocultural barriers to the use of complementary and alternative medicine for HIV. Qualitative Health Research, 14(5), 593-611.
18. Furler, M.D., Einarson, T.R., Walmsley, S., Millson, M., & Bendayan, R. (2004). Polypharmacy in HIV: Impact of data source and gender on reported drug utilization. AIDS Patient Care & STDs, 18(10), 568-586.
19. Golub, S.A., Indyk, D., & Wainberg, M.L. (2006). Reframing HIV adherence as part of the experience of illness. Social Work in Health Care, 42(3/4), 167.
20. Haug, N.A., Sorensen, J.L., Lollo, N.D., Gruber, V.A., Delucchi, K.L., & Hall, S.M. (2005). Gender differences among HIV-positive methadone maintenance patients enrolled in a medication adherence trial. AIDS Care, 17(8), 1022-1029.
21. Holtgrave, D.R. (2005). Causes of the decline in AIDS deaths, United States, 1995-2002: Prevention, treatment or both? International Journal of STD & AIDS, 16(12), 777-781.
22. Hopkins, H., Wade, T., & Weir, D. (2000). "Take as directed," whatever that means. Australian Prescriber, 23(5), 103-104.
23. Hubbard, M. (2006). Dealing with the obstacles in adhering to highly active antiretroviral therapy. Journal of the Association of Nurses in AIDS Care, 17(1), 18-25.
24. Hunt, S.M. (1997). The problem of quality of life. Quality of Life Research, 6(2), 205-212.
25. Katschnig, H. (1997). How useful is the concept of quality of life in psychiatry ? Current Opinion in Psychiatry, 10(5), 337-345.
26. Kremer, H., & Ironson, G. (2006). To tell or not to tell: Why people with HIV share or dont share with their physicians whether they are taking their medications as prescribed. AIDS Care, 18(5), 520-528.
27. Laws, M.B., Wilson, I.B., Bowser, D.M., & Kerr, S.E. (2000). Taking antiretroviral therapy for HIV infection. Journal of General Internal Medicine, 15(12), 848-858.
28. Lewis, M.P., Colbert, A., Erlen, J., & Meyers, M. (2006). A qualitative study of persons who are 100% adherent to antiretroviral therapy. AIDS Care, 18(2), 140-148.
29. Liamputtong, P., & Ezzy, D. (2005). Qualitative research methods (2nd ed.). Melbourne: Oxford University Press.
30. Mannheimer, S.B., Matts, J., Telzak, E., Chesney, M., Child, C., Wu, A.W. et al. (2005). Quality of life in HIV-infected individuals receiving antiretroviral therapy is related to adherence. AIDS Care, 17(1), 10-22.
31. Marshall, H., Stenner, P., & Lee, H. (1999). Young peoples accounts of personal relationships in a multi-cultural East London environment: Questions of community, diversity and inequality. Journal of Community & Applied Social Psychology, 9(2), 155-171.
32. McPherson-Baker, S., Jones, D., Duran, R.E., Klimas, N., & Schneiderman, N. (2005). Development and implementation of a medication adherence training instrument for persons living with HIV. Behavior Modification, 29(2), 286-317.
33. Meystre-Agustoni, G., Dubois-Arber, F., Cochand, P., & Telenti, A. (2000). Antiretroviral therapies from the patients perspective. AIDS Care, 12(6), 717-721.
34. Montagne, M. (1988). The metaphorical nature of drugs and drug taking. Social Science & Medicine, 26(4), 417-424.
35. Mykhalovskiy, E., McCoy, L., & Bresalier, M. (2004). Compliance/ adherence, HIV, and the critique of medical power. Social Theory and Health, 2(4), 315-340.
36. Nichter, M., & Vuckovic, N. (1994). Agenda for an anthropology of pharmaceutical practice. Social Science and Medicine, 39(11), 1509-1525.
37. Paterson, D.L., Swindells, S., Mohr, J., Brester, M., Vergis, E.N., Squier, C. et al. (2000). Adherence to protease inhibitor therapy and outcomes in patients with HIV infection. Annals of Internal Medicine, 133(1), 21-30.
38. Persson, A. (2004). Incorporating pharmakon: HIV, medicine, and body shape change. Body & Society, 10(4), 45-67.
39. Préau, M., Leport, C., Salmon-Ceron, D., Carrieri, P., Portier, H., Chene, G. et al. (2004). Health-related quality of life and patient-provider relationships in HIV-infected patients during the first three years after starting PI-containing antiretroviral treatment. AIDS Care, 16(5), 649-661.
40. Prutkin, J.M., & Feinstein, A.R. (2002). Quality-of-life measurements: Origins and pathogenesis. Yale Journal of Biology and Medicine, 75(2), 79-93.
41. Rabkin, J., & Ferrando, S. (1997). A "second life" agenda. Archives of General Psychiatry, 54(11), 1049-1053.
42. Remien, R., Hirky, A.E., Johnson, M.O., Weinhardt, L.S., Whittier, D., & Le, G.M. (2003). Adherence to medication treatment: A qualitative study of facilitators and barriers among a diverse sample of HIV+ men and women in four U.S. cities. AIDS and Behavior, 7(1), 61-72.
43. Riessman, C.K. (1993). Narrative analysis - Qualitative research methods. Newbury Park: Sage.
44. Schönnesson, L.N. (2002). Psychological and existential issues and quality of life in people living with HIV infection. AIDS Care, 14(3), 399-404.
45. Schönnesson, L.N., Ross, M.W., & Williams, M. (2004). The HIV medication self-reported nonadherence reasons (SNAR) index and its underlying psychological dimensions. AIDS and Behavior, 8(3), 293-301.
46. Selwyn, P.A., & Forstein, M.M.D. (2003). Overcoming the false dichotomy of curative vs. palliative care for late-stage HIV/AIDS: "Let me live the way I want to live, until I cant." Journal of American Medical Association, 290(6), 806-814.
47. Shernoff, M. (1999). Introduction. In M. Shernoff (Ed.), AIDS and mental health practice: Clinical and policy issues (pp. xxiii-xxviii). New York: The Haworth Press.
48. Shibuyama, S., Gevorkyan, A., Yoo, U., Tim, S., Dzhangiryan, K., & Scott, J.D. (2006). Understanding and avoiding antiretroviral adverse events. Current Pharmaceutical Design, 12(9), 1075-1090.
49. Siegel, K., Schrimshaw, E.W., & Raveis, V.H. (2000). Accounts for non-adherence to antiviral combination therapies among older HIV-infected adults. Psychology, Health & Medicine, 5(1), 29-42.
50. Smith, J.A., & Osborn, M. (2004). Interpretative phenomenological analysis. In G. M. Breakwell (Ed.), Doing social psychology research (pp. 229-254). Malden: BPS Blackwell.
51. Sowell, R.L., Phillips, K.D., & Grier, J. (1998). Restructuring life to face the future: The perspective of men after a positive response to protease inhibitor therapy. AIDS Patient Care and STDs, 12(1), 33-42.
52. Stenner, P. (1993). Discoursing jealousy. In E. Burman & I. Parker (Eds.), Discourse analytic research: Repertoires and readings of texts in action (pp. 114-132). London: Routledge.
53. Thomas, M. (1999). An exploration of change: The influence of combination therapies on PWA support groups. In M. Shernoff (Ed.), AIDS and mental health practice: Clinical and policy issues (pp. 31-42). New York: The Haworth Press.
54. Trainor, A., & Ezer, H. (2000). Rebuilding life: The experience of living with AIDS after imminent death. Qualitative Health Research, 10(5), 646-660.
55. Ussher, J.M. (2003). The role of premenstrual dysphoric disorder in the subjectification of women. Journal of Medical Humanities, 24(1/2), 131-146.
56. Vanable, P.A., Ostrow, D.G., & McKirnan, D.J. (2003). Viral load and HIV treatment attitudes as correlates of sexual risk behavior among HIV-positive gay men. Journal of Psychosomatic Research, 54(3), 263-269.
57. Viswanathan, H., Anderson, R., & Thomas, J., III. (2005). Evaluation of an antiretroviral medication attitude scale and relationships between medication attitudes and medication nonadherence. AIDS Patient Care & STDs, 19(5), 306-316.
58. Ware, N.C., Wyatt, M.A., & Tugenberg, T. (2006). Social relationships, stigma and adherence to antiretroviral therapy for HIV/ AIDS. AIDS Care, 18(8), 904-910.
59. Westburg, N.G., & Guindon, M.H. (2004). Hope, attitudes, emotions, and expectations in healthcare providers of services to patients infected with HIV. AIDS and Behavior, 8(1), 1-8.
60. Wheeler, D.P., & Shernoff, M. (1999). The role of mental health professionals in medical decision making regarding protease inhibitors. In M. Shernoff (Ed.), AIDS and mental health practice: Clinical and policy issues (pp. 3-18). New York: The Haworth Press.
61. Wilson, H.S., Hutchinson, S.A., & Holzemer, W.L. (2002). Reconciling incompatibilities: A grounded theory of HIV medication adherence and symptom management. Qualitative Health Research, 12(10), 1309-1322.
62. Wong, L. (2006). A report on a survey of certified human resources professionals regarding episodic disabilities. Toronto: Canadian Working Group on HIV and Rehabilitation.
63. Wright, M.T. (2000). The old problem of adherence: Research on treatment adherence and its relevance for HIV/AIDS. AIDS Care, 12(6), 703-710.