Ethical research practices across disciplinary boundaries: The process of research involving children with a visual impairment

Child Care in Practice

Volumn 14, Issue 2, 2008, Pages 217-228

  Gray, Colette ^a   Carville, Sheelagh ^a  

^a NONE

Author keywords

[No Author keywords available]

Indexed keywords

EID: 41049097847     PISSN: 13575279     EISSN: 1476489X     Source Type: Journal    
DOI: 10.1080/13575270701868918     Document Type: Article

References (41)

1. Aaby, P., Poulsen, A. G., Larsen, O., Christiansen, C. B., Jensen, H., Melbye, M. and Naucler, A. (1997) Ethics of HIV trials. Lancet, 350, p. 1546.
2. Alderson, P. and Morrow, V. (2004) Ethics, social research and consulting children and young people, Barnardos, Barkingside, UK
3. Allmark, P. (2002) The ethics of research with children. Nurse Researcher, 10:2, pp. 7-19.
4. Beecher, H. (1966) Ethics and clinical research. New England Journal of Medicine, 274, pp. 1354-1360.
5. Beauchamp, T. L. (1996) Looking back and judging our predecessors. Kennedy Institute of Ethics Journal, 6:3, pp. 251-270.
6. Bishop, V. E. (1991) Preschool children with visual impairments, Texas School for the Blind and Visually Impaired
7. Children Act (1989) The Stationery Office, London
8. Children Bill (2004)The Stationery Office, London
9. Connolly, P. (2003) Ethical principles for research with vulnerable groups, Central Print Unit, Belfast, UK
10. Department of Education and skills (2001) Children's and young people's unit. Core principles for the involvement of children and young people, DfES Publications, The Children's Bill, Nottingham, UK
11. Edsall, G. (1971) Experiments at Willowbrook. Lancet, 2:7715, p. 95.
12. Edsall, J. T. (1975) Scientific freedom and responsibility. A Report of the AAAS Committee on Scientific Freedom and Responsibility, American Association for the Advancement of Science, Washington, DC
13. Ellis, R. (1991) Teaching mobility to visually impaired children in a special school. British Journal of Visual Impairment, March, 9:1, p. 709.
14. Faden, R. R. and Beauchamp, T. L. (1986) A history and theory of informed consent, Oxford University Press, New York
15. Family Law Reform Act (1987)The Stationery Office, London
16. Gillick Competent (1985) Gillick v West Norfolk and Wisbech Area Health Authority [1985] 3 All ER 402 (HL)
17. Goldby, S. (1971) Experiments at the Willowbrook State School. Lancet, 1:7702, p. 749.
18. Gray, C. (2005) Inclusion, impact and need: Young children with a visual impairment. Child Care in Practice. Special issue: Inclusion and development in the early years, 11:2, pp. 179-190.
19. Gray, C. (2005) Training and the early years professional: Understanding visual impairment. International Journal of Early Years Education, 13:1, pp. 1-12.
20. Gray, C. Stepping into the future. Mobility, independence & life skills for children and young people between 0 and 19 years of age with a visual impairment
21. Gray, C. and McIlmoyle, J. (2004) The mobility and independence needs of children and young people with sight loss in Northern Ireland, Stranmillis University Press, Belfast, UK
22. Gray, C. and McIlmoyle, J. (2005) Visual impairment and the early years child. An evaluation of training provision in Northern Ireland, Stranmillis University College, Belfast, UK
23. Gray, C., McIlmoyle, J. and Behan, S. (2004) Visual impairment in the early years child: An evaluation of training in the Southern Board, Stranmillis University Press, Belfast, UK
24. Helsinki Declaration (1964) Adopted by the 18th World Medical Assembly Helsinki, Finland, June 1964.
25. Hill, M. (2005) Ethical considerations in researching children's experiences. Researching children's experiences. Approaches and methods, pp. 61-86. Policy Press, Bristol
26. (1996) Multi-method approach research in population geography, University of Manchester Press, Manchester, UK
27. Huebner, K. M. (1986) Social skills. Foundations of education for blind and visually handicapped children and youth. Theory and practice, American Foundation for the Blind, New York
28. Levine, R. J. (1988) Ethics and regulation in clinical research, Yale University Press, New Haven, CT
29. McAllister, R. and Gray, C. (2007) Low vision: Mobility and independence training for the early years child. Early Child Development and Care, 177:8, pp. 839-852.
30. Nuremberg Code (1949) Trials of War Criminals before the Nuremberg Military Tribunals under Control Council Law No. 10, 2, pp. 181-182. US Government Printing Office, Washington, DC
31. Pavey, S., Douglas, G., McLinden, M. and McCall, S. (2003) An investigation into the mobility and independence needs of children with visual impairments. Part 1: The development of a mobility and independence curriculum framework. The British Journal of Visual Impairment, 21:1, pp. 4-8.
32. Roberts-Holmes, G. (2006) Doing your research project. A step-by-step guide, Paul Chapman Publishing, London
33. Sainsbury, S. and Alam, S. (2006) Promoting the social inclusion of visually impaired people from minority ethnic communities. Visual impairment and ethnicity: Policy and practice, Ability & LSE, London
34. Stainbeck, S. and Stainbeck, W. (1988) Educating students with severe learning disabilities in regular classes. Teaching Exceptional Children, 21, pp. 16-19.
35. Stone, J. (1997) Mobility and independence skills. Visual impairment. Access to education for children and young people, pp. 159-168. David Fulton Publishers, London
36. Sugarman, J., Stern, B. and Walsh, L. (1999) Empirical research on informed consent: An annotated bibliography
37. Ravenscoft, J. (2006) Presenting data on visual impairment in the UK and elsewhere
38. Taylor, A. (2000) The UN convention on the rights of the child: Giving children a voice. Researching children's perspectives, Open University Press, Buckingham, UK
39. UN Convention on the Rights of the Child (1989)
40. Varmus, H. and Satcher, D. (1997) Ethical complexities of conducting research in developing countries. New England Journal of Medicine, 337, pp. 1003-1005.
41. Visual Impairment Centre for Teaching and Research (2002) Steps to independence: The mobility and independence needs of children with a visual impairment. Full research report, RNIB, London