Motivations of mothers to enroll their newborn infants in general clinical research on well-infant care and development

Pediatrics

Volumn 121, Issue 3, 2008, Pages

  Maayan Metzger, Ayala ^a,c   Kedem Friedrich, Peri ^b   Kuint, Jacob ^a  

^a TEL AVIV UNIVERSITY   (Israel)

^b BAR ILAN UNIVERSITY   (Israel)

^c SHEBA MEDICAL CENTER   (Israel)

Author keywords

Altruism; Attitudes; Clinical research; Ethics; Newborn; Parents

Indexed keywords

ADULT; ARTICLE; ATTITUDE TO HEALTH; CHILD DEVELOPMENT; CLINICAL RESEARCH; DEMOGRAPHY; FEMALE; HUMAN; HUMAN EXPERIMENT; INFANT; MATERNAL ATTITUDE; MOTIVATION; NEWBORN; NEWBORN CARE; NORMAL HUMAN; PARENTAL CONSENT; PRIORITY JOURNAL; PROBLEM SOLVING; QUESTIONNAIRE; RISK ASSESSMENT; RISK BENEFIT ANALYSIS; TELEPHONE; ALTRUISM; CHILD CARE; COMPARATIVE STUDY; ETHICS; INFORMED CONSENT; ISRAEL; MALE; MEDICAL ETHICS; MEDICAL RESEARCH; METHODOLOGY; MOTHER; MULTIVARIATE ANALYSIS; PATIENT PARTICIPATION; PHYSIOLOGY; PREMATURITY; PROBABILITY; PSYCHOLOGICAL ASPECT; TERM BIRTH; UNIVERSITY HOSPITAL;

ACADEMIC MEDICAL CENTERS; ADULT; ALTRUISM; BIOMEDICAL RESEARCH; CHILD DEVELOPMENT; ETHICS, CLINICAL; FEMALE; HUMANS; INFANT CARE; INFANT, NEWBORN; INFANT, PREMATURE; INFORMED CONSENT; ISRAEL; MALE; MOTHERS; MOTIVATION; MULTIVARIATE ANALYSIS; PARENTAL CONSENT; PATIENT PARTICIPATION; PROBABILITY; QUESTIONNAIRES; TERM BIRTH;

EID: 40949147474     PISSN: 00314005     EISSN: 10984275     Source Type: Journal    
DOI: 10.1542/peds.2007-1571     Document Type: Article

References (13)

1. Hoehn KS, Wernovsky G, Rychik J, et al. What factors are important to parents making decisions about neonatal research? Arch Dis Child Fetal Neonatal Ed. 2005;90(3):F267-F269
2. Mason SA, Allmark PJ. Obtaining informed consent to neonatal randomised controlled trials: interviews with parents and clinicians in the Euricon study. Lancet. 2000;356(9247):2045-2051
3. Morley CJ, Lau R, Davis PG, Morse C. What do parents think about enrolling their premature babies in several research studies? Arch Dis Child Fetal Neonatal Ed. 2005;90(3):F225-F228
4. Rothmier JD, Lasley MV, Shapiro GG. Factors influencing parental consent in pediatric clinical research. Pediatrics. 2003; 111(5 pt 1):1037-1041
5. Zupacnic JA, Gillie P, Streiner DL, Watts JL, Schmidt B. Determinants of parental authorization for involvement of newborn infants in clinical trials. Pediatrics. 1997;99(1). Available at: www.pediatrics.org/cgi/content/ full/99/1/e6
6. Stenson BJ, Becher JC, Mcintosh N. Neonatal research: the parental perspective. Arch Dis Child Fetal Neonatal Ed. 2004; 89(4):F321-F323
7. McKechnie L, Gill AB. Consent for neonatal research. Arch Dis Child Fetal Neonatal Ed. 2006;91(5):F374-F376
8. Platt MW. Participation in multiple neonatal research studies. Arch Dis Child Fetal Neonatal Ed. 2005;90(3):F191
9. Hayman RM, Taylor BJ, Peart NS, Galland BC, Sayers RM. Participation in research: informed consent, motivation and influence. J Paediatr Child Health. 2001;37(1):51-54
10. Madsen S, Holm S, Riis P. Ethical aspects of clinical trials: the attitudes of the public and outpatients. J Intern Med. 1999;245(6):571-579
11. Maayan-Metzger A, Kedem-Friedrich P, Kuint J. To vaccinate or not to vaccinate: that is the question-why are some mothers opposed to giving their infants hepatitis B vaccine? Vaccine. 2005;23(16):1941-1948
12. Oberle K, Singhal N, Huber J, Burgess E. Development of an instrument to investigate parents' perceptions of research with newborn babies. Nurs Ethics. 2000;7(4):327-338
13. Singhal N, Oberle K, Burgess E, Huber J. Parents' perceptions of research with newborns. J Perinatol. 2002;22(1):57-63