Parents' perceptions of research with newborns

Journal of Perinatology

Volumn 22, Issue 1, 2002, Pages 57-63

  Singhal, Nalini ^a,b   Oberle, Kathleen ^a   Burgess, Ellen ^a,b   Huber Okrainec, Joelene ^a  

^a UNIVERSITY OF CALGARY   (Canada)

^b CALGARY HEALTH REGION   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ATTITUDE; FEMALE; HUMANS; INFANT, NEWBORN; INFORMED CONSENT; MALE; NEONATOLOGY; PARENTS; RESEARCH;

ADULT; ARTICLE; CONTROLLED STUDY; FEMALE; FISHER EXACT TEST; HUMAN; INFORMED CONSENT; MAJOR CLINICAL STUDY; MALE; MEDICAL RESEARCH; METHODOLOGY; NEWBORN; NEWBORN INTENSIVE CARE; PARENTAL BEHAVIOR; PERCEPTION; PERSUASIVE COMMUNICATION; QUESTIONNAIRE; RISK BENEFIT ANALYSIS; STATISTICAL ANALYSIS;

EID: 85047697218     PISSN: 07438346     EISSN: None     Source Type: Journal    
DOI: 10.1038/sj.jp.7210608     Document Type: Article

References (23)

1. Conducting research with children: Legal and ethical issues
2. Children in medical research: Australian ethical standards
3. NIH policy and guidelines on the inclusion of children as participants in research involving human subjects
4. Ethical conduct for research involving humans
5. Consent panel task force of the National Council on Bioethics in Human Research (NCBHR)
6. Obtaining informed consent for neonatal randomised controlled trials - An "elaborate ritual"?
7. Informed consent, parental permission, and assent in pediatric practice
8. Ethics of consent for babies in randomised clinical trials
9. Your baby is in trial
10. Neonatal research
11. Informed consent in clinical research: The crisis in pediatrics
12. Informed consent in the children's cancer group
13. Clinical trials and neonatal intensive care
14. Variables associated with parental stress in neonatal intensive care units
15. Development of an instrument to investigate parents' perceptions of research with newborns
16. Factors that influence parents' decisions to consent to their child's participation in clinical anesthesia research
17. Determinants of parental authorization for involvement of newborn infants in clinical trials
18. Parental perceptions and attitudes about informed consent in clinical research involving children
19. Interviewing mothers of high-risk infants. What are their support needs?
20. Parent stress and coping in NICU and PICU
21. Psychological distress in mothers of preterm infants
22. The psychological profile of parents who volunteer their children for clinical research: A controlled study
23. Parental willingness to enter a child in a controlled vaccine trial