-
1
-
-
40649123939
-
-
In: Doyal L, Tobias J, eds. Informed consent in medical research. London: BMJ Books, 2000.
-
In: Doyal L, Tobias J, eds. Informed consent in medical research. London: BMJ Books, 2000.
-
-
-
-
3
-
-
0034648728
-
Protecting research subjects - what must be done
-
Shalala D. Protecting research subjects - what must be done. New Engl J Med 2000;343:808.
-
(2000)
New Engl J Med
, vol.343
, pp. 808
-
-
Shalala, D.1
-
4
-
-
0037160966
-
Ethical analysis in public health
-
Roberts MJ, Reich MR. Ethical analysis in public health. Lancet 2002;359:1055-9.
-
(2002)
Lancet
, vol.359
, pp. 1055-1059
-
-
Roberts, M.J.1
Reich, M.R.2
-
5
-
-
26944471214
-
Does research ethics rest on a mistake?
-
Miller F. Does research ethics rest on a mistake? Am J Bioethics 2005;5:34-6.
-
(2005)
Am J Bioethics
, vol.5
, pp. 34-36
-
-
Miller, F.1
-
6
-
-
0037165265
-
Maintaining the public trust in clinical research
-
Kelch R. Maintaining the public trust in clinical research. New Engl J Med 2002;346:285.
-
(2002)
New Engl J Med
, vol.346
, pp. 285
-
-
Kelch, R.1
-
7
-
-
0035012511
-
Psychological and ethical aspects of prevention trials
-
Roth R. Psychological and ethical aspects of prevention trials. J Pediatr Endocrinol Metab 2001;14(S1):669-74.
-
(2001)
J Pediatr Endocrinol Metab
, vol.14
, Issue.S1
, pp. 669-674
-
-
Roth, R.1
-
8
-
-
12444251685
-
The decision dynamics of clinical research: The context and process of informed consent
-
Kuczewski MG, Marshall P. The decision dynamics of clinical research: the context and process of informed consent. Med Care 2002;40(S):45-54.
-
(2002)
Med Care
, vol.40
, Issue.S
, pp. 45-54
-
-
Kuczewski, M.G.1
Marshall, P.2
-
9
-
-
0035861017
-
Informed consent for population-based research involving genetics
-
Beskow LM, Burke W, Merz JF, et al. Informed consent for population-based research involving genetics. JAMA 2001; 286:2315-21.
-
(2001)
JAMA
, vol.286
, pp. 2315-2321
-
-
Beskow, L.M.1
Burke, W.2
Merz, J.F.3
-
10
-
-
0036255394
-
Children and incompetent adults in genetic research: Consent and safeguards
-
Knoppers B, Avard D, Cardinal G, et al. Children and incompetent adults in genetic research: consent and safeguards. Nature Reviews 2002;3:221-4.
-
(2002)
Nature Reviews
, vol.3
, pp. 221-224
-
-
Knoppers, B.1
Avard, D.2
Cardinal, G.3
-
11
-
-
29244461472
-
Children, longitudinal studies, and informed consent
-
Helgesson G. Children, longitudinal studies, and informed consent. Med Health Care Philos 2005;8:307-3.
-
(2005)
Med Health Care Philos
, vol.8
, pp. 307-313
-
-
Helgesson, G.1
-
12
-
-
23944469329
-
Attitudes and misconceptions about predictive genetic testing for cancer risk
-
Rose AL, Peters N, Shea JA, et al. Attitudes and misconceptions about predictive genetic testing for cancer risk. Community Genet 2005;8:145-51.
-
(2005)
Community Genet
, vol.8
, pp. 145-151
-
-
Rose, A.L.1
Peters, N.2
Shea, J.A.3
-
13
-
-
25644441777
-
Mothers' experiences of serious life events increase the risk of diabetes-related autoimmunity in their children
-
Sepa A, Frodi A, Ludvigsson J. Mothers' experiences of serious life events increase the risk of diabetes-related autoimmunity in their children. Diabetes Care 2005;10:2394-9.
-
(2005)
Diabetes Care
, vol.10
, pp. 2394-2399
-
-
Sepa, A.1
Frodi, A.2
Ludvigsson, J.3
-
15
-
-
34247599379
-
Concern, pressure and lack of knowledge affect choice of not wanting to know high-risk status
-
Swartling U, Eriksson S, Ludvigsson J, et al. Concern, pressure and lack of knowledge affect choice of not wanting to know high-risk status, Eur J Hum Genet, 2007;15:556-62.
-
(2007)
Eur J Hum Genet
, vol.15
, pp. 556-562
-
-
Swartling, U.1
Eriksson, S.2
Ludvigsson, J.3
-
16
-
-
33748207767
-
Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think?
-
Kettis-Lindblad A, Ring L, Viberth E, et al. Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think? Eur J Public Health 2006;16:433-40.
-
(2006)
Eur J Public Health
, vol.16
, pp. 433-440
-
-
Kettis-Lindblad, A.1
Ring, L.2
Viberth, E.3
-
17
-
-
0842287305
-
Science is really needed - that's all I know': Informed consent and the non-verbal practices of collecting blood for genetic research in northern Sweden
-
Hoeyer K. 'Science is really needed - that's all I know': informed consent and the non-verbal practices of collecting blood for genetic research in northern Sweden. New Genet Soc 2003;22:229-44.
-
(2003)
New Genet Soc
, vol.22
, pp. 229-244
-
-
Hoeyer, K.1
-
18
-
-
33646155336
-
Motivating donors to genetic research? Anthropological reasons to rethink the role of informed consent
-
Hoeyer K, Lynoe N. Motivating donors to genetic research? Anthropological reasons to rethink the role of informed consent. Med Health Care Philos 2006;9:13-23.
-
(2006)
Med Health Care Philos
, vol.9
, pp. 13-23
-
-
Hoeyer, K.1
Lynoe, N.2
-
19
-
-
0037397542
-
Issues of consent and feedback in a genetic epidemiological study of women with breast cancer
-
Richards MPM, Ponder M, Pharoah P, et al. Issues of consent and feedback in a genetic epidemiological study of women with breast cancer. J Med Ethics 2003;29:93-6.
-
(2003)
J Med Ethics
, vol.29
, pp. 93-96
-
-
Richards, M.P.M.1
Ponder, M.2
Pharoah, P.3
-
20
-
-
23944451344
-
Should results from genetic research be returned to research subjects and their biological relatives?
-
Eriksson S. Should results from genetic research be returned to research subjects and their biological relatives? Trames 2004; 8:46-62.
-
(2004)
Trames
, vol.8
, pp. 46-62
-
-
Eriksson, S.1
-
21
-
-
23844537980
-
-
German National Ethics Council Nationaler Ethikrat, Berlin
-
German National Ethics Council (Nationaler Ethikrat). Biobanks for research. Opinion. Berlin, 2004.
-
(2004)
Biobanks for research. Opinion
-
-
-
23
-
-
33744812397
-
Why test children for adult-onset genetic diseases?
-
Rhodes R. Why test children for adult-onset genetic diseases? Mt Sinai J Med 2006;73:609-16.
-
(2006)
Mt Sinai J Med
, vol.73
, pp. 609-616
-
-
Rhodes, R.1
-
24
-
-
0031994762
-
Genetic links, family ties, and social bonds: Rights and responsibilities in the face of genetic knowledge
-
Rhodes R. Genetic links, family ties, and social bonds: rights and responsibilities in the face of genetic knowledge, J Med Philos 1998;23:10-30.
-
(1998)
J Med Philos
, vol.23
, pp. 10-30
-
-
Rhodes, R.1
-
25
-
-
33750532967
-
It's no skin off my nose': Why people take part in qualitative research
-
Peel E, Parry O, Douglas M, et al. 'It's no skin off my nose': Why people take part in qualitative research. Qual Health Res 2006;16:1335-49.
-
(2006)
Qual Health Res
, vol.16
, pp. 1335-1349
-
-
Peel, E.1
Parry, O.2
Douglas, M.3
-
26
-
-
17844395718
-
What factors are important to parents making decisions about neonatal research?
-
Hoehn KS, Wernovsky G, Rychik J, et al. What factors are important to parents making decisions about neonatal research? Arch Dis Child Fetal Neonatal Ed 2005;90:F267-9.
-
(2005)
Arch Dis Child Fetal Neonatal Ed
, vol.90
-
-
Hoehn, K.S.1
Wernovsky, G.2
Rychik, J.3
-
27
-
-
33645951385
-
Parents' perspectives on research involving children
-
Rodriguez A, Tuvemo T, Hansson MG. Parents' perspectives on research involving children. Ups J Med Sci 2006;111:73-86.
-
(2006)
Ups J Med Sci
, vol.111
, pp. 73-86
-
-
Rodriguez, A.1
Tuvemo, T.2
Hansson, M.G.3
-
28
-
-
10344221002
-
The ALSPAC Study Team. The Avon longitudinal study of parents and children (ALSPAC) - study design and collaborative opportunities
-
Golding J, The ALSPAC Study Team. The Avon longitudinal study of parents and children (ALSPAC) - study design and collaborative opportunities. Eur J Endocrinol 2004;151:U119-23.
-
(2004)
Eur J Endocrinol
, vol.151
-
-
Golding, J.1
-
29
-
-
0035130957
-
-
Golding J, Pembrey M, Jones R, the ALSPAC Study Team. ALSPAC - The Avon longitudinal study of parents and children I. Study methodology. Paediatr Perinat Epidemiol 2001;15:74-87.
-
Golding J, Pembrey M, Jones R, the ALSPAC Study Team. ALSPAC - The Avon longitudinal study of parents and children I. Study methodology. Paediatr Perinat Epidemiol 2001;15:74-87.
-
-
-
-
30
-
-
33947509049
-
Levels and styles of participation in genetic databases. A case study of the North Cumbria Community Genetics Project
-
Tutton R, Corrigan O eds, London: Routledge
-
Haimes E, Whong-Barr M. Levels and styles of participation in genetic databases. A case study of the North Cumbria Community Genetics Project. In Tutton R, Corrigan O (eds.). Genetic databases: Socio-ethical issues in the collection and use of DNA. London: Routledge, 2004:57-77.
-
(2004)
Genetic databases: Socio-ethical issues in the collection and use of DNA
, pp. 57-77
-
-
Haimes, E.1
Whong-Barr, M.2
-
31
-
-
33947532011
-
Key issues in genetic epidemiology: Lessons from a UK based empirical study
-
Haimes E, Whong-Barr M, Key issues in genetic epidemiology: lessons from a UK based empirical study. Trames 2004; 8:150-63.
-
(2004)
Trames
, vol.8
, pp. 150-163
-
-
Haimes, E.1
Whong-Barr, M.2
-
32
-
-
0031945194
-
The North Cumbria community genetics project
-
Chase D, Tawn E, Parker L, et al. The North Cumbria community genetics project. J Med Genet 1998;35:413-6.
-
(1998)
J Med Genet
, vol.35
, pp. 413-416
-
-
Chase, D.1
Tawn, E.2
Parker, L.3
-
33
-
-
84909267778
-
Children's participation in genetic epidemiology
-
Tutton R, Corrigan O, eds, London: Routledge
-
Williamson E, Goodenough T, Kent J, et al. Children's participation in genetic epidemiology, In: Tutton R, Corrigan O, eds. Genetic databases: Socio-ethical issues in the collection and use of DNA. London: Routledge, 2004:139-60.
-
(2004)
Genetic databases: Socio-ethical issues in the collection and use of DNA
, pp. 139-160
-
-
Williamson, E.1
Goodenough, T.2
Kent, J.3
-
34
-
-
2342555103
-
What Did You Think about That? Researching children's perceptions of participation in a longitudinal genetic epidemiological study'
-
Goodenough T, Williamson E, Kent J, Ashcroft R. "What Did You Think about That?" Researching children's perceptions of participation in a longitudinal genetic epidemiological study', Children & Society 2003;17:113-25.
-
(2003)
Children & Society
, vol.17
, pp. 113-125
-
-
Goodenough, T.1
Williamson, E.2
Kent, J.3
Ashcroft, R.4
|