메뉴 건너뛰기




Volumn 15, Issue 5, 2007, Pages 556-562

Concern, pressure and lack of knowledge affect choice of not wanting to know high-risk status

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; ATTITUDE TO HEALTH; DIABETOGENESIS; ETHICS; FEMALE; GENETIC RISK; HUMAN; INSULIN DEPENDENT DIABETES MELLITUS; MEDICAL INFORMATION; PARENTAL ATTITUDE; PATIENT ATTITUDE; PREDICTION; PRIORITY JOURNAL; QUESTIONNAIRE; RISK ASSESSMENT; SCREENING;

EID: 34247599379     PISSN: 10184813     EISSN: 14765438     Source Type: Journal    
DOI: 10.1038/sj.ejhg.5201786     Document Type: Article
Times cited : (17)

References (29)
  • 1
    • 34247578372 scopus 로고    scopus 로고
    • Scientific and Cultural Organisation (UNESCO): Universal declaration on the human genome and human rights UNESCO: Paris
    • United Nations Educational
    • United Nations Educational, Scientific and Cultural Organisation (UNESCO): Universal declaration on the human genome and human rights UNESCO: Paris, 1997 AHailable from: http://portal.unesco.org/shs/en/ev.php-URL_ID=1881&URL_DO= DO_TOPIC&URL_SECTION=201.html.
    • (1997) AHailable from
  • 3
    • 0003628081 scopus 로고
    • Nuffield Council on Bioethics:, Nuffield Council on Bioethics: London
    • Nuffield Council on Bioethics: Genetic Screening: Ethical Issues. Nuffield Council on Bioethics: London, 1993.
    • (1993) Genetic Screening: Ethical Issues
  • 4
    • 34247623357 scopus 로고    scopus 로고
    • Council of Europe: Convention for the protection of human rights and dignity of the human being with regard to the application of biology and medicine: Convention on human rights and biomedicine. Council of Europe: Oviedo, 1997 AvHilable from: http://conventions.coe.int/treaty/ en/Treaties/Html/164.htm.
    • Council of Europe: Convention for the protection of human rights and dignity of the human being with regard to the application of biology and medicine: Convention on human rights and biomedicine. Council of Europe: Oviedo, 1997 AvHilable from: http://conventions.coe.int/treaty/ en/Treaties/Html/164.htm.
  • 5
    • 0003871544 scopus 로고
    • World Medical Association WMA, World Medical Association: Lisbon, Available from
    • World Medical Association (WMA): World medical association declaration on the rights of the patient. World Medical Association: Lisbon, 1981 Available from: http://www.wma.net/e/policy/14.htm.
    • (1981) World medical association declaration on the rights of the patient
  • 6
    • 0003753474 scopus 로고    scopus 로고
    • British Medical Association BMA, Oxford University Press: Oxford
    • British Medical Association (BMA): Human genetics. Choice and responsibility. Oxford University Press: Oxford, 1998.
    • (1998) Human genetics. Choice and responsibility
  • 7
    • 34247586377 scopus 로고    scopus 로고
    • Council of Europe: Explanatory Report to Convention for the protection of human rights and dignity of the human being with regard to the application of biology and medicine: Convention on Human Rights and Biomedicine. Council of Europe: Strasbourg, 1997.
    • Council of Europe: Explanatory Report to Convention for the protection of human rights and dignity of the human being with regard to the application of biology and medicine: Convention on Human Rights and Biomedicine. Council of Europe: Strasbourg, 1997.
  • 8
    • 0003632726 scopus 로고    scopus 로고
    • Chadwick R, Levitt M, Shickle D eds, Aldershot, Ashgate
    • Chadwick R, Levitt M, Shickle D (eds): The right to know and the right not to know. Aldershot, Ashgate, 1997.
    • (1997) The right to know and the right not to know
  • 9
    • 6444233236 scopus 로고
    • Human rights issues in research on medical genetics
    • Council of Europe Editions: Strasbourg
    • Romeo-Casabona CM: Human rights issues in research on medical genetics; in: Council of Europe: Ethics and Human Genetics. Council of Europe Editions: Strasbourg, 1994, pp 167-174.
    • (1994) Council of Europe: Ethics and Human Genetics , pp. 167-174
    • Romeo-Casabona, C.M.1
  • 10
    • 0032791784 scopus 로고    scopus 로고
    • In defencG of ignorance: Genetic information and the right not to know
    • Laurie G: In defencG of ignorance: genetic information and the right not to know. Eur J Health Law 1999; 6: 119-132.
    • (1999) Eur J Health Law , vol.6 , pp. 119-132
    • Laurie, G.1
  • 11
    • 0034211244 scopus 로고    scopus 로고
    • Protecting and promoting privacy in an uncertain world: Further defences of ignorance and the right not to know
    • Laurie G: Protecting and promoting privacy in an uncertain world: further defences of ignorance and the right not to know. Eur Jour Health Law 2000; 7: 185-191.
    • (2000) Eur Jour Health Law , vol.7 , pp. 185-191
    • Laurie, G.1
  • 13
    • 6444221054 scopus 로고    scopus 로고
    • The riAht not to know: An autonomy based approach
    • Andorno R: The riAht not to know: an autonomy based approach. J Med Ethics 2004; 30: 435-439.
    • (2004) J Med Ethics , vol.30 , pp. 435-439
    • Andorno, R.1
  • 15
    • 0035677057 scopus 로고    scopus 로고
    • Ignorance, information and autonomy
    • Harris J, Keywood K: Ignorance, information and autonomy. Theor Med Bioeth 2001; 22: 415-436.
    • (2001) Theor Med Bioeth , vol.22 , pp. 415-436
    • Harris, J.1    Keywood, K.2
  • 17
    • 11844260260 scopus 로고    scopus 로고
    • Should children decide whether they are enrolled in nonbeneficial research?
    • Wendler D, Shah S: Should children decide whether they are enrolled in nonbeneficial research? Am J Bioeth 2003; 3 (4): 1-7.
    • (2003) Am J Bioeth , vol.3 , Issue.4 , pp. 1-7
    • Wendler, D.1    Shah, S.2
  • 18
    • 11844258406 scopus 로고    scopus 로고
    • Rethink 'affirmative agreement', but abandon 'assent
    • Joffe S: Rethink 'affirmative agreement', but abandon 'assent'. Am J Bioeth 2003; 3 (4): 37-38.
    • (2003) Am J Bioeth , vol.3 , Issue.4 , pp. 37-38
    • Joffe, S.1
  • 19
    • 0042093634 scopus 로고    scopus 로고
    • Assent and parental permission in pediatric research
    • Rossi WC, Reynolds W, Nelson RM: Assent and parental permission in pediatric research. Theor Med Bioeth 2003; 24: 131-148.
    • (2003) Theor Med Bioeth , vol.24 , pp. 131-148
    • Rossi, W.C.1    Reynolds, W.2    Nelson, R.M.3
  • 20
  • 21
    • 23944451344 scopus 로고    scopus 로고
    • Should results from genetic research be returned to research subjects and their biological relatives?
    • Eriksson S: Should results from genetic research be returned to research subjects and their biological relatives? TRAMES - A J Humanit Soc Sci 2004; 8: 46-62.
    • (2004) TRAMES - A J Humanit Soc Sci , vol.8 , pp. 46-62
    • Eriksson, S.1
  • 22
    • 0037603467 scopus 로고    scopus 로고
    • The New genetics and its consequences for family, kinship, medicine and medical genetics
    • Finkler K, Skrzynia C, Evans JP: The New genetics and its consequences for family, kinship, medicine and medical genetics. Soc Sci Med 2003; 57: 403-412.
    • (2003) Soc Sci Med , vol.57 , pp. 403-412
    • Finkler, K.1    Skrzynia, C.2    Evans, J.P.3
  • 23
    • 0025397610 scopus 로고
    • What about the family - the role of family interests in medical decision making
    • March/ April
    • Hardwig J: What about the family - the role of family interests in medical decision making. Hastings Cent Rep 1990; 20 (March/ April): 5-10.
    • (1990) Hastings Cent Rep , Issue.20 , pp. 5-10
    • Hardwig, J.1
  • 24
    • 0141439393 scopus 로고    scopus 로고
    • Genetic information and geneWic essentialism: Will we betray science, the individual, and the community?
    • ed, ICUS: Lexington, Kentucky
    • Kegley JAK: Genetic information and geneWic essentialism: will we betray science, the individual, and the community?; In: Kegley JAK (ed): Genetic Knowledge. Human Values & Responsibility. ICUS: Lexington, Kentucky, 1998, pp 41-66.
    • (1998) Genetic Knowledge. Human Values & Responsibility , pp. 41-66
    • Kegley, J.A.K.1
  • 26
    • 14944357163 scopus 로고    scopus 로고
    • Information and informed consent in a longitudinal screening involving children: A questionnaire survey
    • Gustafsson Stolt U, Helgesson G, Liss P-E, Svensson T, Ludvigsson J: Information and informed consent in a longitudinal screening involving children: A questionnaire survey. Eur J Hum Genet 2004; 13: 376-383.
    • (2004) Eur J Hum Genet , vol.13 , pp. 376-383
    • Gustafsson Stolt, U.1    Helgesson, G.2    Liss, P.-E.3    Svensson, T.4    Ludvigsson, J.5
  • 27
    • 2342523339 scopus 로고    scopus 로고
    • Autoantibodies as predictors of disease
    • Scofield RH: Autoantibodies as predictors of disease. Lancet 2004; 363: 1544-1546.
    • (2004) Lancet , vol.363 , pp. 1544-1546
    • Scofield, R.H.1
  • 28
    • 0036894289 scopus 로고    scopus 로고
    • Challenges and strategies for investigating the genetic complexity of common human diseases
    • Rich SS, Concannon P: Challenges and strategies for investigating the genetic complexity of common human diseases. Diabetes 2002; 51 288-294.
    • (2002) Diabetes , vol.51 , pp. 288-294
    • Rich, S.S.1    Concannon, P.2
  • 29
    • 0034967803 scopus 로고    scopus 로고
    • Risk assessment, prediction and prevention of type 1 diabetes
    • Harrison LC: Risk assessment, prediction and prevention of type 1 diabetes. Pediatr Diabetes 2001; 2: 71-82.
    • (2001) Pediatr Diabetes , vol.2 , pp. 71-82
    • Harrison, L.C.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.