Ethical Issues in the Care of Vulnerable Chronic Kidney Disease Patients: The Elderly, Cognitively Impaired, and Those From Different Cultural Backgrounds

Advances in Chronic Kidney Disease

Volumn 15, Issue 2, 2008, Pages 177-185

  Davison, Sara N ^a   Holley, Jean L ^a  

^a UNIVERSITY OF ALBERTA   (Canada)

Author keywords

Chronic kidney disease; Cross cultural; Decision making; Ethics; Withdrawal from dialysis

Indexed keywords

AGING; ARTICLE; CHRONIC KIDNEY DISEASE; COGNITIVE DEFECT; CONFLICT; CULTURAL FACTOR; DECISION MAKING; DIALYSIS; HUMAN; KIDNEY FAILURE; MEDICAL ETHICS; PRIORITY JOURNAL; RENAL REPLACEMENT THERAPY; RISK BENEFIT ANALYSIS; SELF EVALUATION; TREATMENT WITHDRAWAL;

AGE FACTORS; AGED; COGNITION DISORDERS; CULTURE; ETHNIC GROUPS; HUMANS; RENAL DIALYSIS; RENAL INSUFFICIENCY, CHRONIC; SOCIAL JUSTICE; TERMINAL CARE; WITHHOLDING TREATMENT;

EID: 40449133994     PISSN: 15485595     EISSN: None     Source Type: Journal    
DOI: 10.1053/j.ackd.2008.01.004     Document Type: Article

References (59)

1. Anantharaman P., and Moss A.H. Should the Medicare ESRD program pay for daily dialysis? An ethical analysis. Adv Chronic Kidney Dis 14 (2007) 290-296
2. US Renal Data Systems. 2005 Annual Report: Atlas of ESRD in the United States (2005), National Institutes of Health and National Institute of Diabetes and Kidney Disease, Bethesda, MD
3. Kurella M., Covinsky K.E., Collins A.J., et al. Octogenarians and nonagenarians starting dialysis in the United States. Ann Intern Med 146 (2007) 177-183
4. Villar E., Remontet L., Labeeuw M., et al. Effect of age, gender, and diabetes on excess death in end-stage renal failure. J Am Soc Nephrol 18 (2007) 2125-2134
5. Joly D., Anglicheau D., Alberti C., et al. Octogenarians reaching end-stage renal disease: Cohort study of decision-making and clinical outcomes. J Am Soc Nephrol 14 (2003) 1012-1021
6. Murtagh F.E., Marsh J.E., Donohoe P., et al. Dialysis or not? A comparative survival study of patients over 75 years with chronic kidney disease stage 5. Nephrol Dial Transplant 22 (2007) 1955-1962
7. Brunori G., Viola B.F., Parrinello G., et al. Efficacy and safety of a very-low-protein diet when postponing dialysis in the elderly: A prospective randomized multicenter controlled study. Am J Kidney Dis 49 (2007) 569-580
8. Sekkarie M.A., and Moss A.H. Withholding and withdrawing dialysis: The role of physician specialty and education and patient functional status. Am J Kidney Dis 31 (1998) 464-472
9. McKenzie J.K., Moss A.H., Feest T.G., et al. Dialysis decision making in Canada, the United Kingdom, and the United States. Am J Kidney Dis 31 (1998) 12-18
10. Holley J.L., Foulks C.J., and Moss A.H. Nephrologists reported attitudes about factors influencing recommendations to initiate or withdraw dialysis. J Am Soc Nephrol 1 (1991) 1284-1288
11. Mendelssohn D.C., Kua B.T., and Singer P.A. Referral for dialysis in Ontario. Arch Intern Med 155 (1995) 2473-2478
12. Renal Physicians Association and American Society of Nephrology Clinical Practice Guideline. Shared Decision-Making in the Appropriate Initiation and Withdrawal from Dialysis. Washington, DC, 2000, Report No. 2
13. Li M., Porter E., Lam R., et al. Quality improvement through the introduction of interdisciplinary geriatric hemodialysis rehabilitation care. Am J Kidney Dis 50 (2007) 90-97
14. Leggat Jr. J.E., Bloembergen W.E., Levine G., et al. An analysis of risk factors for withdrawal from dialysis before death. J Am Soc Nephrol 8 (1997) 1755-1763
15. Neu S., and Kjellstrand C.M. Stopping long-term dialysis. An empirical study of withdrawal of life-supporting treatment. N Engl J Med 314 (1986) 14-20
16. Hackett A.S., and Watnick S.G. Withdrawal from dialysis in end-stage renal disease: Medical, social, and psychological issues. Semin Dial 20 (2007) 86-90
17. Rao P.S., Merion R.M., Ashby V.B., et al. Renal transplantation in elderly patients older than 70 years of age: Results from the Scientific Registry of Transplant Recipients. Transplantation 83 (2007) 1069-1074
18. Doyle S.E., Matas A.J., Gillingham K., et al. Predicting clinical outcome in the elderly renal transplant recipient. Kidney Int 57 (2000) 2144-2150
19. Fabrizii V., Winkelmayer W.C., Klauser R., et al. Patient and graft survival in older kidney transplant recipients: Does age matter?. J Am Soc Nephrol 15 (2004) 1052-1060
20. Cardinal H., Hebert M.J., Rahme E., et al. Modifiable factors predicting patient survival in elderly kidney transplant recipients. Kidney Int 68 (2005) 345-351
21. Spike J.P. Responding to requests for dialysis for severely demented and brain injured patients. Semin Dial 20 (2007) 387-390
22. Davison S.N., Jhangri G.S., Holley J.L., et al. Nephrologists' reported preparedness for end-of-life decision-making. Clin J Am Soc Nephrol 1 (2006) 1256-1262
23. Holley J.L., Davison S.N., and Moss A.H. Nephrologists' changing practices in reported end-of-life decision-making. Clin J Am Soc Nephrol 2 (2007) 107-111
24. Murray A.M., Tupper D.E., Knopman D.S., et al. Cognitive impairment in hemodialysis patients is common. Neurology 67 (2006) 216-223
25. Hallenbeck J., and Goldstein M.K. Decisions at the end of life: Cultural considerations beyond medical ethics. Generations 23 (1999) 24-29
26. Fox S., and Swazey J.P. China and the United States. Medical Morality Is Not Nioethics-Medical ethics (1984), University of Chicago, Chicago, IL
27. Bowman K.W., and Hui E.C. Bioethics for clinicians: 20. Chinese bioethics. CMAJ 163 (2000) 1481-1485
28. Coward H., and Sidhu T. Bioethics for clinicians: 9. Hinduism and Sikhism. CMAJ 163 (2000) 1167-1170
29. Kelly L., and Minty A. End-of-life issues for aboriginal patients: A literature review. Can Fam Physician 53 (2007) 1459-1465
30. Brant C.C. Native ethics and rules of behaviour. Can J Psychiatry 35 (1990) 534-539
31. Newbold K.B. Disability and use of support services within the Canadian aboriginal population. Health Soc Care Community 7 (1999) 291-300
32. Witherspoon G. Language and Art in the Navajo Universe (1977), University of Michigan Press, Ann Arbour, MI pp 40-67
33. Kaufert J.M., Putsch R.W., and Lavallee M. End-of-life decision making among Aboriginal Canadians: Interpretation, mediation, and discord in the communication of "bad news.". J Palliat Care 15 (1999) 31-38
34. Wojtasiewicz M.E. Damage compounded: disparities, distrust, and disparate impact in end-of-life conflict resolution policies. Am J Bioeth 6 (2006) 8-12
35. Schneiderman L.J. Medical futility and aging: Ethical implications. Generations 18 (1994) 61-65
36. Weijer C., Singer P.A., Dickens B.M., et al. Bioethics for clinicians: 16. Dealing with demands for inappropriate treatment. CMAJ 159 (1998) 817-821
37. Singer P.A., Thiel E.C., Naylor C.D., et al. Life-sustaining treatment preferences of hemodialysis patients: Implications for advance directives. J Am Soc Nephrol 6 (1995) 1410-1417
38. Stonington S., and Ratanakul P. Is there a global bioethics? End-of-life in Thailand and the case for local difference. PLoS Med 3:e439 (2006)
39. Ratanakul P: To save or let go: Tai Buddhist perspectives on euthanasia, in Keown D (ed): Contemporary Buddhist Ethics. Richmond, Surrey, Curzon, 2007, pp 169-182
40. Baker M.E. Economic, political and ethnic influences on end-of-life decision-making: A decade in review. J Health Soc Policy 14 (2002) 27-39
41. Hopp F.P., and Duffy S.A. Racial variations in end-of-life care. J Am Geriatr Soc 48 (2000) 658-663
42. McGrath P. Exploring Aboriginal people's experience of relocation for treatment during end-of-life care. Int J Palliat Nurs 12 (2006) 102-108
43. Frankenfield D.L., Ramirez S.P., McClellan W.M., et al. Differences in intermediate outcomes for Asian and non-Asian adult hemodialysis patients in the United States. Kidney Int 64 (2003) 623-631
44. Frankenfield D.L., Rocco M.V., Roman S.H., et al. Survival advantage for adult Hispanic hemodialysis patients? Findings from the end-stage renal disease clinical performance measures project. J Am Soc Nephrol 14 (2003) 180-186
45. Frankenfield D.L., Rocco M.V., Frederick P.R., et al. Racial/ethnic analysis of selected intermediate outcomes for hemodialysis patients: Results from the 1997 ESRD Core Indicators Project. Am J Kidney Dis 34 (1999) 721-730
46. Murthy B.V., Molony D.A., and Stack A.G. Survival advantage of Hispanic patients initiating dialysis in the United States is modified by race. J Am Soc Nephrol 16 (2005) 782-790
47. Pei Y.P., Greenwood C.M., Chery A.L., et al. Racial differences in survival of patients on dialysis. Kidney Int 58 (2000) 1293-1299
48. Siminoff L.A., Lawrence R.H., and Arnold R.M. Comparison of black and white families' experiences and perceptions regarding organ donation requests. Crit Care Med 31 (2003) 146-151
49. Tonelli M., Hemmelgarn B., Kim A.K., et al. Association between residence location and likelihood of kidney transplantation in Aboriginal patients treated with dialysis in Canada. Kidney Int 70 (2006) 924-930
50. Tonelli M., Hemmelgarn B., Gill J.S., et al. Patient and allograft survival of Indo Asian and East Asian dialysis patients treated in Canada. Kidney Int 72 (2007) 499-504
51. Randhawa G. The challenge of kidney transplantation among minority ethnic groups in the UK. EDTNA ERCA J 30 (2004) 182-187
52. Darr A., and Randhawa G. Awareness and attitudes towards organ donation and transplantation among the asian population. A preliminary survey in Luton, UK. Transpl Int 12 (1999) 365-371
53. Randhawa G. An exploratory study examining the influence of religion on attitudes towards organ donation among the Asian population in Luton. UK. Nephrol Dial Transplant 13 (1998) 1949-1954
54. Exley C., Sim J., Reid N., et al. Attitudes and beliefs within the Sikh community regarding organ donation: A pilot study. Soc Sci Med 43 (1996) 23-28
55. Randhawa G. Promoting organ donation and transplantation among South Asians in the United Kingdom: The role of social networks in the South Asian community. Prog Transplant 15 (2005) 286-290
56. Ellerby J.H., McKenzie J., McKay S., et al. Bioethics for clinicians: 18. Aboriginal cultures. CMAJ 163 (2000) 845-850
57. Spencer J.L., Silva D.T., Snelling P., et al. An epidemic of renal failure among Australian Aboriginals. Med J Aust 168 (1998) 537-541
58. Tonelli M., Hemmelgarn B., Manns B., et al. Use and outcomes of peritoneal dialysis among Aboriginal people in Canada. J Am Soc Nephrol 16 (2005) 482-488
59. Kuczewski M.G. Our cultures, our selves: Toward an honest dialogue on race and end-of-life decisions. Am J Bioeth 6 (2006) 13-17