Aging with developmental disabilities: An overview

Topics in Geriatric Rehabilitation

Volumn 24, Issue 1, 2008, Pages 2-11

  Long, Toby ^a,b   Kavarian, Sarkis ^b  

^a Center for Child and Human Development   (United States)

^b GEORGETOWN UNIVERSITY   (United States)

Author keywords

Cerebral palsy; Developmental disabilities; Down syndrome; Intellectual disability

Indexed keywords

AGING; CARDIOVASCULAR DISEASE; CEREBRAL PALSY; DEMOGRAPHY; DEVELOPMENTAL DISORDER; DOWN SYNDROME; ELDERLY CARE; HEALTH CARE; HEALTH CARE POLICY; HEALTH CARE SYSTEM; HEALTH SERVICE; HUMAN; INTELLECTUAL IMPAIRMENT; OBESITY; REVIEW; WORLD HEALTH ORGANIZATION;

EID: 39149116662     PISSN: 08827524     EISSN: None     Source Type: Journal    
DOI: 10.1097/01.TGR.0000311402.16802.b1     Document Type: Review

References (69)

1. The Developmental Disabilities Act of 2000, 42 USC §15001.
2. Heller T, Factor A. Older Adults With Developmental Disabilities and Their Aging Family Caregivers. Chicago: Research and Training Center on Aging with Developmental Disabilities: University of Illinois at Chicago; 2004.
3. Healthy People 2010. Available at: www.healthypeople.gov. Accessed June 12, 2007.
4. Closing the Gap: A National Blueprint to Improve the Health of Persons with Mental Retardation. 2002. Available at: http://www.surgeongeneral.gov/ topics/mentalretardation. Accessed June 13, 2007.
5. Surgeon General's Call to Action to Improve the Health and Wellness of Persons with Disabilities. 2005. Available at: http://www.surgeongeneral.gov/ library/disabilities. Accessed April 7, 2007.
6. World Health Organization. Ageing and Intellectual Disabilities - Improving Longevity and Promoting Healthy Ageing: Summative Report. Geneva: World Health Organization; 2000.
7. Evenhuis H, Henderson CM, Beange H, Lennox N, Chicoine B, Working Group. Healthy Ageing - Adults With Intellectual Disabilities: Physical Health Issues. Geneva: World Health Organization; 2000.
8. Walsh PN, Heller T, Schupf N, van Schrojenstein Lantman-de Valk H, Working Group. Healthy Ageing - Adults With Intellectual Disabilities: Women's Health Issues. Geneva: World Health Organization; 2000.
9. Thorpe L, Davidson P, Janicki MP, Working Group. Healthy Ageing - Adults With Intellectual Disabilities: Biobehavioral Issues. Geneva:World Health Organization; 2000.
10. Hogg J, Lucchino R, Wang K, Janicki MP, Working Group. Healthy Ageing - Adults With Intellectual Disabilities: Ageing & Social Policy. Geneva: World Health Organization; 2000.
11. Bickenbach JE, Chatterji S, Badley EM, et al. Models of disablement, universalism and the international classification of impairments, disabilities and handicaps. Soc Sci Med. 1999;48:1173-1187.
12. Frey GC, Temple VA, Stanish HI. Introduction: preventive health and individuals with mental retardation. Ment Retard Dev Disabil Res Rev. 2006;12:1-2.
13. Intermediate Care Facilities/Mental Retardation Program of Title XIX (Medicaid) of the 1971 Social Security Act, 42 USC § 410.
14. Wyatt v Stickney, 325 F Supp781 (MD Ala 1971).
15. Section 504 of the Rehabilitation Act of 1973, 29 USC § 701.
16. The Education for All Handicapped Children's Act (now called the Individuals with Disabilities Education Improvement Act), 20 USC §1400, Amended 1997, 2004.
17. Omnibus Budget Reconciliation Act of 1981, 42 USC §210.
18. Older American Act Amendments of 1987, 42 USC § 3001.
19. Developmental Disabilities Assistance and Bill of Rights Act of 1987, 42 USC § 6081-6083.
20. Olmstead v LC, 119 S Ct 2176 (1999).
21. Americans With Disabilities Act of 1990, 42 USC § 12101.
22. Cooper S, Melville C, Morrison J. People with intellectual disabilities. Br Med J. 2004;329:414-415.
23. Janicki MP, Dalton AJ, Henderson CM, Davidson PW. Mortality and morbidity among older adults with intellectual disability: health services considerations. Disabil Rehabil. 1999;21:284-294.
24. Roizen NJ. Down syndrome: progress in research. Ment Retard Devel Disabil Res Rev. 2001;7:38-44.
25. Janicki MP, Dalton AJ. Prevalence of dementia and impact on intellectual disability services. Ment Retard. 2000;38:277-289.
26. Poulos, AS, Balandin G, Llewellyn A. Women with cerebral palsy and breast cancer: screening by mammography. Arch Phys Med Rehabil. 2006;87(2):304-307.
27. Klingbeil H, Baer HR,Wilson PE. Aging with a disability. Arch Phys Med Rehabil. 2004;85(7, suppl 3):S68-S73.
28. Nosek MA, Howland CA. Breast and cervical cancer screening among women with physical disabilities. Arch Phys Med Rehabil. 1997;78 (12, suppl 5):S39-S44.
29. Balandin S. It's hard for them to understand. In: Millar S, ed. Communications Matters. Leicester, UK: International Society for Augmentative and Alternative Communication; 2004:7-8.
30. Lauver J, Henriques L, Settersten L, Bumann M. Psychosocial variables, external barriers, and stage of mammography adoption. Health Psychol. 2003;22:649-653.
31. Davis D, Fox-Grage W, Gehshan S. Deinstitutionalization of Persons With Developmental Disabilities: A Technical Assistance Report for Legislators. 2005. Available at: www.ncsl.org. Accessed July 21, 2007.
32. Long T, Toscano K. Older persons with developmental disabilities. In: Guccione A, ed. Geriatric Physical Therapy. 2nd ed. St Louis, Mo: Mosby; 2000:chap 31.
33. Salvatori P, Tremblay M, Tryssenaar J. Living and aging with a developmental disability: perspectives of individuals, family members and service providers. J Dev Disabil. 2003;10:1-19.
34. Yamaki K. Body weight status among adults with intellectual disability in the community. Ment Retard. 2005; 43:1-10.
35. Rimmer JH, Wang E. Obesity prevalence among a group of Chicago residents with disabilities. Arch Phys Med Rehabil. 2005;86(7):1461-1464.
36. Rimmer JH, Yamaki K. Obesity and intellectual disability. Ment Retard Dev Disabil Res Rev. 2006;12(1):22-27.
37. Janicki MP, Davidson PW, Henderson CM, et al. Health characteristics and health services utilization in older adults with intellectual disability living in community residences. J Intellect Disabil Res. 2002;46:287-298.
38. Fisher K, Kettl P. Aging with mental retardation: increasing population of older adults with MR require health interventions and prevention strategies. Geriatrics. 2005;60:26-29.
39. Draheim CC. Cardiovascular disease prevalence and risk factors of persons with mental retardation. Ment Retard Dev Disabil Res Rev. 2006;12:3-12.
40. Silverman W, Zigman WB, Kim H, Krinksy-McHale S, Wisniewski HM. Aging and dementia among adults with mental retardation and Down syndrome. Top Geriatr Rehabil. 1998;13(3):49-64.
41. Kozma C. Down syndrome and dementia. Topics Geriat Rehab. 2008;24(1):41-53.
42. Lott I. Alzheimer's disease and Down syndrome. Available at: www.ndss.org. Accessed August 7, 2007.
43. Dalton A,Wallace R. Down syndrome. J Dev Disabil. 2006;12(1):1-91.
44. Sparrow SS, Bulla DA, Cicchetti DV. Vineland Adaptive Behavior Scales-II. Circle Pines, Minn: Pearson Educational Inc; 2006.
45. Sung H, Hawkins BA, Eklund SJ, et al. Depression and dementia in aging adults with Down syndrome: a case study approach. Ment Retard. 1997;35:27-38.
46. Ailey H, Miller AM, Heller T, Smith EV. Evaluating an interpersonal model of depression among adults with Down syndrome. Res Theory Nurs Prac Inter J. 2006;20:229-245.
47. Svien LR, Berg P, Stephenson C. Issues in aging with cerebral palsy. Topics Geriat Rehab. 2008;24(1):26-40
48. Murphy KP, Molnar GE, Lankasky K. Medical and functional status of adults with cerebral palsy. Dev Med Child Neurol. 1995;37:1075-1084.
49. Gajdosik CG, Cicirello N. Secondary conditions of the musculoskeletal system in adolescents and adults with cerebral palsy. Phys Occup Ther Pediatr. 2001;21:49-68.
50. Schwartz L, Engel JM, Jensen MP. Pain in persons with cerebral palsy. Arch Phys Med Rehabil. 1999;80:1243-1246.
51. Jahnsen R, Villien L, Aamodt G, Stanghelle JK, Holm I. Musculo-skeletal pain in adults with cerebral palsy compared with the general population. J Rehabil Med. 2003;35:1-7.
52. Engel JM, Kartin D, Jensen MP. Pain treatment in persons with cerebral palsy: frequency and helpfulness. Am J Phys Med Rehabil. 2002;81:291-292.
53. Jahnsen R, Villien L, Stanghelle JK, Holm I. Fatigue in adults with cerebral palsy in Norway - compared with the general population. Dev Med Child Neurol. 2003;45:296-303.
54. Andersson C, Mattsson E. Adults with cerebral palsy: a survey describing problems, needs, and resources, with special emphasis on locomotion. Dev Med Child Neurol. 2001;43:76-82.
55. Buttos M, Feliciangeli A, Sciuto L, Gericke C, Vianello A. Functional status of adults with cerebral palsy and implications for treatment of children. Dev Med Child Neurol. 2001;43:516-528.
56. American Association on Intellectual and Developmental Disabilities. Definition of mental retardation. Available at: http://www.aamr.org/Policies/ faq_mental_retardation.shtml. Accessed August 6, 2007.
57. Krahn GL, Laura H, Turner A. Cascade of disparities: health and health care access for people with intellectual disabilities. Ment Retard Dev Disabil Res Rev. 2006;12:70-82.
58. Patja K, Molso P, Iivanainen M. Cause specific mortality of people with intellectual disabilities in a population-based, 35 year follow-up study. J Intell Disabil Res. 2001;45:30-40.
59. Drum CE, Krahn G, Horner-Johnson W. Healthy lifestyles curriculum for people with intellectual and other disabilities. J Intellect Disabil Res. 2004;48:454.
60. Heller T, Marks B, Ailey SH. Exercise and Nutrition Health Education Curriculum for Adults With Developmental Disabilities. 2nd ed. Chicago: Research and Training Center on Aging With Developmental Disabilities, University of Illinois at Chicago; 2004.
61. Lunsky Y, Straiko A, Armstrong SC. Women Be Healthy: A Curriculum for Women With Mental Retardation and Other Developmental Disabilities. Chapel Hill, NC: Frank Porter Graham Child Development Institute; 2002.
62. Thomas J, Hall J, Long T, Brady R. The M.E.E. Calendar Washington, DC: Georgetown University. Available at: www.gucchdgeorgetown.net/ucedd/documents/ mee_calendar_P4.pdf. Accessed August 7, 2007.
63. Lennox N, Eastgate G. Adults with intellectual disability and the GP. Aust Fam Phys. 2004;33:601-606.
64. Koch T, Marks J, Tooke E. Evaluating a community nursing service: listening to the voices of clients with an intellectual disability and/or their proxies. J Clin Nurs. 2001;10:352-363.
65. Russo RJ. Applying a strengths-based approach in working with people with developmental disabilities and their families. Fam Soc. 1999;80:25-33.
66. Ballard M. Health promotion and learning disability. Nurs Stand. 2002;16:47-53.
67. Special Olympics Healthy Athletes Initiatives. 1996. Available at: http://www.specialolympics.org/Special+Olympics+Public+Website/English/ Initiatives/Healthy_Athletes/default.htm. Accessed August 7, 2007.
68. Mohr C, Curran J, Coutts A, et al. Collaboration: together we can find the way in dual diagnosis. Issues Ment Health Nurs. 2002;23:171-180.
69. VanderSchie-Bezyak JL. Service problems and solutions for individuals with mental retardation and mental illness. J Rehabil. 2003;69:53-58.