Use of the Palliative Outcome Scale in Argentina: A Cross-Cultural Adaptation and Validation Study

Journal of Pain and Symptom Management

Volumn 35, Issue 2, 2008, Pages 188-202

  Eisenchlas, Jorge H ^a,b   Harding, Richard ^c   Daud, María Laura ^b   Pérez, Marisa ^a,b   De Simone, Gustavo G ^a,b   Higginson, Irene J ^c  

^a HOSPITAL DE GASTROENTEROLOGÍA DR CARLOS BONORINO UDAONDO   (Argentina)

^b Hospital B Udaondo amp Pallium Latinoamerica   (Argentina)

^c KING'S COLLEGE LONDON   (United Kingdom)

Author keywords

cross cultural; outcome measures; Palliative care; quality of life; Spanish; validation

Indexed keywords

ADULT; AGED; ARGENTINA; ARTICLE; CANCER PATIENT; CLINICAL RESEARCH; CONTROLLED STUDY; CULTURAL FACTOR; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; OUTCOME ASSESSMENT; PALLIATIVE THERAPY; PSYCHOMETRY; QUALITY OF LIFE; VALIDATION STUDY;

ADULT; AGED; AGED, 80 AND OVER; ARGENTINA; CULTURE; FEMALE; HUMANS; MALE; MEDICAL AUDIT; MIDDLE AGED; OUTCOME ASSESSMENT (HEALTH CARE); PALLIATIVE CARE; QUALITY OF LIFE; REPRODUCIBILITY OF RESULTS;

EID: 38349180162     PISSN: 08853924     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2007.02.045     Document Type: Article

References (67)

1. Hearn J., and Higginson I.J. Development and validation of a core outcome measure for palliative care: the Palliative Care Outcome Scale. Palliative Care Core Audit Project Advisory Group. Qual Health Care 8 (1999) 219-227
2. Higginson I. Audit methods: a community schedule. In: Higginson I. (Ed). Clinical audit in palliative care (1993), Radcliffe Medical Press, Oxford 34-47
3. Higginson I. Innovations in end-of-life care. Available from (2000). http://www2.edc.org/lastacts/issues.asp Accessed May 2006
4. Shaw C.D. Criterion-based audit. In: Smith R. (Ed). Audit in action (1992), British Medical Publishing Group, London 122-128
5. Baker R. Clinical audit in primary health care: towards quality assurance. BMJ 310 (1995) 413
6. Goonan K.J. The Juran prescription: Clinical quality management (1995), Jossey-Bass Inc, San Francisco
7. Higginson I.J., and Bruera E. Do we need palliative care audit in developing countries?. Palliat Med 16 (2002) 546-547
8. Sartorius N., and Kuyken W. Translation of health status instruments. In: Orley J., and Kuyken W. (Eds). Quality of life assessment in health care settings Vol. I (1994), Springer, Berlin
9. Sartorius N., and Helmchen H. Aims and implementation of muticentre studies. Mod Probl Pharmacopsychiatry 16 (1981) 1-8
10. Streiner D.L., and Norman G.R. Health measurement scales. A practical guide to their development and use. 2nd ed. (1999), Oxford University Press, Oxford
11. Stewart A., and Napoles-Springer A. Health-related quality-of-life assessment in diverse population groups in the United States. Med Care 38 SII (2000) S102-S124
12. Hearn J., and Higginson I.J. Outcome measures in palliative care for advanced cancer patients: a review. J Public Health Med 19 (1997) 193-199
13. Steel K., Ljunggren G., Topinkova E., et al. The RAI-PC: an assessment instrument for palliative care in all settings. Am J Hosp Palliat Care 20 (2003) 211-219
14. Mystakidou K., Tsilika E., Kouloulias V., et al. The "Palliative Care Quality of Life Instrument (PQLI)" in terminal cancer patients. Health Qual Life Outcomes 2 1 (2004) 8
15. Ewing G., Todd C., Rogers M., et al. Validation of a symptom measure suitable for use among palliative care patients in the community: CAMPAS-R. J Pain Symptom Manage 27 (2004) 287-299
16. Functional Assessment of Chronic Illness Therapy Questionnaires. Available from. http://www.facit.org/qview/qlist.aspx Accessed January 2007
17. Cohen S.R., Mount B.M., Strobel M.G., and Bui F. The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability. Palliat Med 9 (1995) 207-219
18. Bruera E., Kuehn N., Miller M.J., Selmser P., and Macmillan K. The Edmonton Symptom Assessment System (ESAS): a simple method for the assessment of palliative care patients. J Palliat Care 7 (1991) 6-9
19. Groenvold M., Petersen M.A., Aaronson N.K., et al. EORTC QLQ-C15-PAL: the new standard in the assessment of health-related quality-of-life in advanced cancer?. Palliat Med 20 (2006) 59-61
20. Kaasa S., and Loge J.H. Quality of life in palliative care: principles and practice. Palliat Med 17 (2003) 11-20
21. Bausewein C., Fegg M., Radbruch L., et al. Validation and clinical application of the German version of the Palliative Care Outcome Scale. J Pain Symptom Manage 30 (2005) 51-62
22. Serra-Prat M., Nabal M., Santacruz V., Picaza J.M., Trelis J., and Grupo Catalan de estudio de la efectividad de los cuidados paliativos. Validation of the Spanish version of the Palliative Care Outcome Scale. [Spanish]. Med Clin 123 (2004) 406-412
23. Brandt H.E., Deliens L., van der Steen J.T., et al. The last days of life of nursing home patients with and without dementia assessed with the palliative care outcome scale. Palliat Med 19 (2005) 334-342
24. Slater A., and Freeman E. Is the Palliative Care Outcome Scale useful to staff in a day hospice unit?. Int J Palliat Nurs 11 (2005) 346-354
25. Stevens A.M., Gwilliam B., A'hern R., Broadley K., and Hardy J. Experience in the use of the Palliative Care Outcome Scale. Support Care Cancer 13 (2005) 1027-1034
26. Horton R. Differences in assessment of symptoms and quality of life between patients with advanced cancer and their specialist palliative care nurses in a home care setting. Palliat Med 16 (2002) 488-494
27. Barbour R. Checklists for improving rigour in qualitative research: a case of the tail wagging the dog?. BMJ 322 (2001) 1115-1117
28. Beaton D.E., Bombardier C., Guillemin F., and Ferraz M.B. Recommendations for the cross-cultural adaptation of health status measures. American Academy of Orthopaedic Surgeons Institute for Work & Health. Available from. http://www.dash.iwh.on.ca/assets/images/pdfs/xculture2002.pdf Accessed October 2007
29. Lynn M.R. Determination and quantification of content validity. Nurs Res 35 (1986) 382-385
30. Waltz C.F., Strickland O., and Lenz E. Measurement in nursing research. 2nd ed. (1991), F.A. Davis, Philadelphia, PA
31. Bonicatto S., and Soria J.J. Psychometric properties of the EORTC QLQ-C30 version 2.0 in a sample of cancer patients in Argentina. Qual Life Res 6 (1997) 625
32. Aaronson N., Ahmedzai S., Bergman B., et al. The European Organisation for Research and Treatment of Cancer-QLQ30: a quality of life instrument for use in international clinical trials in oncology. J Natl Cancer Inst 85 (1993) 365-376
33. Cann A. Maths from scratch for biologists (2003), John Wiley and Sons Ltd, Chichester
34. Tooth L.R., and Ottenbacher K.J. The kappa statistic in rehabilitation research: an examination. Arch Phys Med Rehabil 85 (2004) 1371-1376
35. De Simone G, Roca E, Solves A, Boerr L. Psychosocial aspects of terminally ill cancer patients: an Argentine study. Unpublished.
36. Dapueto J.J., Francolino C., Gotta I., et al. Evaluation of the Functional Assessment of Cancer Therapy-General Questionnaire (FACT-G) in a South American Spanish-speaking population. Psychooncology 10 (2001) 88-92
37. Dapueto J.J., Francolino C., Servente L., et al. Evaluation of the Functional Assessment of Cancer Therapy-General (FACT-G) Spanish Version 4 in South America: classic psychometric and item response theory analyses. Health Qual Life Outcomes 1 (2003) 32
38. Eisenchlas J. Cross-cultural adaptation of the palliative outcome scale (POS) into Argentine Spanish. Presented as Dissertation for the MSc in Palliative Medicine. UWCM, Cardiff, Wales, 2005.
39. Brislin R. Back-translation for cross-cultural research. J Cross Cult Psychol 1 (1970) 185
40. Cella D., Hernandez L., Bonomi A.E., et al. Spanish language translation and initial validation of the Functional Assessment of Cancer Therapy quality-of-life instrument. Med Care 36 (1998) 1407-1418
41. Dunckley M., Aspinal F., Addington-Hall J.M., Hughes R., and Higginson I.J. A research study to identify facilitators and barriers to outcome measure implementation. Int J Palliat Nurs 11 (2005) 218-225
42. Hughes R.A., Aspinal F., Higginson I.J., et al. Assessing palliative care outcomes for people with motor neurone disease living at home. Int J Palliat Nurs 10 (2004) 449-453
43. Slater A., and Freeman E. Patients' views of using an outcome measure in palliative day care: a focus group study. Int J Palliat Nurs 10 (2004) 343-351
44. Tassinari D., Maltoni M., Sartori S., et al. Outcome research in palliative care: could it represent a new dimension of clinical research or clinical practice?. Support Care Cancer 13 (2005) 176-181
45. von Gunten CF, Ferris FD, Portenoy RK, Glajchen M, eds. Proposed definition of palliative care. How to Establish A Palliative Care Program. Available from http://64.85.16.230/educate/content/elements/palliativecaredefinition.html. Accessed January 2007.
46. Knudsen H.C., Vazquez-Barquero J.L., and Welcher B. Translation and cross-cultural adaptation of outcome measurements for schizophrenia. EPSILON Study 2. European Psychiatric Services: inputs linked to outcome domains and needs. Br J Psychiatry 39 Suppl (2000) S8-S14
47. Berry J.W., Poortinga Y.H., Segall M.H., and Dasen P.R. Cross-cultural psychology: Research and applications (1992), Cambridge University Press, Cambridge
48. Bucquet D., Condon S., and Ritchie K. The French version of the Nottingham Health Profile. A comparison of item weights with those of the source version. Soc Sci Med 30 (1990) 829-835
49. Anderson R.T., Aaronson N.K., Leplège A.P., and Wilkin D. International use and application of generic health-related quality of life instruments. In: Spilker B. (Ed). Quality of life and pharmacoeconomics in clinical trials. 2nd ed. (1996), Lippincott-Raven, Philadelphia, PA 613-632
50. Cella D., Lloyd S.R., and Wright B. Cross-cultural instrument equating: current research and future directions. In: Spilker B. (Ed). Quality of life and pharmacoeconomics in clinical trials. 2nd ed. (1996), Lippincott-Raven, Philadelphia, PA 707-715
51. Beaton D.E., Bombardier C., Guillemin F., and Ferraz M.B. Guidelines for the process of cross-cultural adaptation of self-report measures. Spine 15 (2000) 3186-3191
52. Herdman M., Fox-Rushby J., and Badia X. A model of equivalence in the cultural adaptation of HRQL instruments: the universalist approach. Qual Life Res 7 (1998) 323-335
53. Guillemin F., Bombardier C., and Beaton D. Cross-cultural adaptation of health-related quality of life measures: literature review and proposed guidelines. J Clin Epidemiol 46 (1993) 1417-1432
54. Sprangers M.A., and Aaronson N.K. The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: a review. J Clin Epidemiol 45 (1992) 743-760
55. Detmar S.B., Muller M.J., Schornagel J.H., Wever L.D., and Aaronson N.K. Health-related quality-of-life assessments and patient-physician communication: a randomized controlled trial. JAMA 288 23 (2002) 3027-3034
56. Higginson I.J., and Donaldson N. Relationship between three palliative care outcome scales. Health Qual Life Outcomes 2 (2004) 68-75
57. Terwee C.B., Bot S.D., de Boer M.R., et al. Quality criteria were proposed for measurement properties of health status questionnaires. J Clin Epidemiol 60 (2007) 34-42
58. Barnett A.G., van der Pols J.C., and Dobson A.J. Regression to the mean: what it is and how to deal with it. Int J Epidemiol 34 (2005) 215-220
59. Sprangers M.A., and Schwartz C.E. Integrating response shift into health-related quality of life research: a theoretical model. Soc Sci Med 48 (1999) 1507-1515
60. Stromgren A.S., Sjogren P., Goldschmidt D., et al. A longitudinal study of palliative care: patient-evaluated outcome and impact of attrition. Cancer 103 (2005) 1747-1755
61. Jordhøy M.S., Fayers P., Loge H., Ahlner-Elmqvist M., and Kaasa S. Quality of life in palliative cancer care: results from a cluster randomized trial. J Clin Oncol 19 (2001) 3884-3894
62. Spitzer W.O., Dobson A.J., Hall J., et al. Measuring the quality of life of cancer patients: a concise QL index for use by physicians. J Chronic Dis 34 (1981) 585-597
63. Mount B.M., and Scott J.F. Whither hospice evaluation?. J Chronic Dis 36 (1983) 731-736
64. Carr A.J., and Higginson I.J. Are quality of life measures patient-centred?. BMJ 322 (2001) 1357-1360
65. Grande G., and Todd C. Why are trials in palliative care so difficult?. Palliat Med 14 (2000) 69-74
66. Groenvold M. Methodological issues in the assessment of health-related quality of life in palliative care trials. Acta Anaesthesiol Scand 43 (1999) 948-953
67. Saunders C. Global developments and the hospice information service. Palliat Med 14 (2000) 1-2