A patient-centered approach to developing a comprehensive symptom and quality of life assessment of anal incontinence

Diseases of the Colon and Rectum

Volumn 51, Issue 1, 2008, Pages 82-87

  Cotterill, Nikki ^a   Norton, Christine ^b   Avery, Kerry N L ^c   Abrams, Paul ^a   Donovan, Jenny L ^c  

^a SOUTHMEAD HOSPITAL   (United Kingdom)

^b ST MARK S HOSPITAL   (United Kingdom)

^c UNIVERSITY OF BRISTOL   (United Kingdom)

Author keywords

Fecal incontinence; Outcome assessment; Qualitative research; Quality of life; Questionnaires; Terminology

Indexed keywords

ARTICLE; COPING BEHAVIOR; FEAR; FECES INCONTINENCE; GASTROINTESTINAL SYMPTOM; HUMAN; HYGIENE; INCONTINENCE; INTERVIEW; MAJOR CLINICAL STUDY; ODOR; OUTCOME ASSESSMENT; PHYSICAL ACTIVITY; QUALITATIVE RESEARCH; QUALITY OF LIFE; QUESTIONNAIRE; SEXUAL INTERCOURSE; SHAME; SOCIAL INTERACTION;

FECAL INCONTINENCE; HUMANS; INTERVIEWS AS TOPIC; PATIENT-CENTERED CARE; QUALITY OF LIFE; QUESTIONNAIRES; SEVERITY OF ILLNESS INDEX; TERMINOLOGY AS TOPIC;

EID: 38349039804     PISSN: 00123706     EISSN: 15300358     Source Type: Journal    
DOI: 10.1007/s10350-007-9069-3     Document Type: Article

References (37)

1. Norton C, Chelvanayagam S, Wilson-Barnett J, Redfern S, Kamm MA. Randomized controlled trial of biofeedback for fecal incontinence. Gastroenterology 2003;125:1320-9.
2. Jensen L. Fecal incontinence: evaluation and treatment. JWOCN 1997;24:277-82.
3. Kouraklis G, Andromanakos N. Evaluating patients with anorectal incontinence. Surg Today 2004;34:304-12.
4. Nicholls T. Ano-rectal physiology investigation techniques. In: Norton C, Chelvanayagam S. Bowel continence nursing. Beaconsfield: Beaconsfield Publishers Ltd, 2004:69-82.
5. Donovan J, Bosch JL, Gotoh M, et al. Symptom and quality of life assessment. In: Abrams P, Cardozo L, Khoury S, Wein A. Incontinence. 3rd ed. Plymouth: Health Publication Ltd, 2005:519-84.
6. Khullar V, Damiano R, Toozs-Hobson P, Cardozo L. Prevalence of faecal incontinence among women with urinary incontinence. BJOG 1998;105:1211-3.
7. Leigh RJ, Turnberg LA. Faecal incontinence: the unvoiced symptom. Lancet 1982;1:1349-51.
8. Edwards NI, Jones D. The prevalence of faecal incontinence in older people living at home. Age Ageing 2001;30:503-7.
9. Johanson JF, Lafferty J. Epidemiology of fecal incontinence: the silent affliction. Am J Gastroenterol 1996;91:33-6.
10. Boreham MK, Richter HE, Kenton KS, et al. Anal incontinence in women presenting for gynecologic care: prevalence, risk factors, and impact upon quality of life. Am J Obstet Gynecol 2005;192:1637-42.
11. Bugg GJ, Hosker G, Kiff ES. Routine symptom screening for postnatal urinary and anal incontinence in new mothers from a district. Int Urogynecol J 2005;16:405-8.
12. Bakx R, Sprangers MA, Oort FJ, et al. Development and validation of a colorectal functional outcome questionnaire. Int J Colorectal Dis 2005;20:126-36.
13. Bugg GJ, Kiff ES, Hosker G. A new condition-specific health-related quality of life questionnaire for the assessment of women with anal incontinence. BJOG 2001;108:1057-67.
14. Cockell SJ, Oates-Johnson T, Gilmour DT, Vallis TM, Turnbull GK. Postpartum flatal and fecal incontinence quality-of-life scale: a disease- and population-specific measure. Qualitative Health Res 2003;13:1132-44.
15. Hiller L, Radley S, Mann CH, et al. Development and validation of a questionnaire for the assessment of bowel and lower urinary tract symptoms in women. BJOG 2002;109:413-23.
16. Rockwood TH, Church JM, Fleshman JW, et al. Fecal incontinence quality of life scale: quality of life instrument for patients with fecal incontinence. Dis Colon Rectum 2000;43:9-16.
17. Wei JT, Dunn RL, Litwin MS, Sandler HM, Sanda MG. Development and validation of the expanded prostate cancer index composite (EPIC) for comprehensive assessment of health-related quality of life in men with prostate cancer. Urology 2000;56:899-905.
18. Bowling A. Research methods in health: Investigating health in health services. Maidenhead: Open University Press, 2002.
19. Barber MD, Walters MD, Bump RC. Short forms of two condition-specific quality of life questionnaires for women with pelvic floor disorders. Am J Obstet Gynecol 2005;193:103-13.
20. Bharucha AE, Locke GR III, Seide BM, Zinsmeister AR. A new questionnaire for constipation and faecal incontinence. Aliment Pharmacol Ther 2004;20:355-64.
21. Bharucha AE, Wald A, Enck P, Rao SS. Functional anorectal disorders. Gastroenterology 2006;130:1510-8.
22. Eypasch E, Williams JI, Wood-Dauphinee S, et al. Gastrointestinal quality of life index: development, validation and application of a new instrument. Br J Surg 1995;82:216-22.
23. Hull TL, Floruta C, Piedmonte M. Preliminary results of an outcome tool used for evaluation of surgical treatment for fecal incontinence. Dis Colon Rectum 2001;44:799-805.
24. Jorge JM, Wexner SD. Etiology and management of fecal incontinence. Dis Colon Rectum 1993;36:77-97.
25. O'Keefe EA, Talley NJ, Tangalos EG, Zinsmeister AR. A bowel symptom questionnaire for the elderly. J Gerontol 1992;47:M116-21.
26. Parks AG. Anorectal incontinence. Proc R Soc Med 1975;68:681-90.
27. Pescatori M, Anastasio G, Bottini C, Mentasti A. New grading and scoring for anal incontinence. Dis Colon Rectum 1992;35:482-7.
28. Reilly WT, Talley NJ, Pemberton JH, Zinsmeister AR. Validation of a questionnaire to assess fecal incontinence and associated risk factors: fecal incontinence questionnaire. Dis Colon Rectum 2000;43:146-54.
29. Rockwood TH, Church JM, Fleshman JW, et al. Patient and surgeon ranking of the severity of symptoms associated with fecal incontinence: the fecal incontinence severity index. Dis Colon Rectum 1999;42:1525-31.
30. Talley NJ, Phillips SF, Melton LJ III, Wiltgen C, Zinsmeister AR. A patient questionnaire to identify bowel disease. Ann Intern Med 1989;111:671-4.
31. Vaizey CJ, Carapeti E, Cahill JA, Kamm MA. Prospective comparison of faecal incontinence grading systems. Gut 1999;44:77-80.
32. Gantley M, Harding G, Kumar S, Tissier J. An introduction to qualitative methods for health professionals. London: The Royal College of General Practitioners, 1999.
33. Streiner DL, Norman GR. Health measurement scales: a practical guide to their development and use. New York: Oxford University Press, 2004.
34. Oppenheim AN. Questionnaire design, interviewing and attitude measurement. London: Continuum, 1992.
35. Charmaz K. Qualitative interviewing and grounded theory analysis. In: Gubrium JF, Holstein JA. Handbook of interview research: context and method. California: Sage Publications, 2002:675-94.
36. Fielding J. Coding and managing data. In: Gilbert N. Researching social life. London: Sage Publications, 1993.
37. Byrne CM, Pager CK, Rex J, Roberts R, Solomon MJ. Assessment of quality of life in the treatment of patients with neuropathic fecal incontinence. Dis Colon Rectum 2002;45:1431-6.