The relationship of parental overprotection, perceived child vulnerability, and parenting stress to uncertainty in youth with chronic illness

Journal of Pediatric Psychology

Volumn 32, Issue 8, 2007, Pages 973-982

  Mullins, Larry L ^a,e   Wolfe Christensen, Cortney ^b   Hoff Pai, Ahna L ^c   Carpentier, Melissa Y ^b   Gillaspy, Stephen ^a   Cheek, Jeff ^d   Page, Melanie ^b  

^a UNIVERSITY OF OKLAHOMA HEALTH SCIENCES CENTER   (United States)

^b OKLAHOMA STATE UNIVERSITY   (United States)

^c CHILDREN S HOSPITAL OF PHILADELPHIA   (United States)

^d UNIVERSITY OF OKLAHOMA   (United States)

^e NONE   (United States)

Author keywords

Childhood chronic illness; Illness uncertainty; Overprotection; Parenting stress; Vulnerability

Indexed keywords

ADOLESCENT; ANALYTIC METHOD; ARTICLE; ASTHMA; CHILD PARENT RELATION; CHRONIC DISEASE; COMPARATIVE STUDY; CONTROLLED STUDY; DEMOGRAPHY; FEMALE; HUMAN; INSULIN DEPENDENT DIABETES MELLITUS; MAJOR CLINICAL STUDY; MALE; MEASUREMENT; OUTCOME ASSESSMENT; PARENTAL BEHAVIOR; PARENTAL STRESS; PSYCHOLOGICAL ASPECT;

EID: 36649008374     PISSN: 01468693     EISSN: 1465735X     Source Type: Journal    
DOI: 10.1093/jpepsy/jsm044     Document Type: Article

References (54)

1. Abdin, R. R. (1990). Parenting stress index/short form manual. Los Angeles, CA: Western Psychological Services.
2. Abidin, R. R. (1997). Parenting Stress Index: A measure of the parent-child system. In C. P. Zalaquett, & R. J. Wood (Eds.). Evaluating Stress: A Book of Resources. Lanham, MD: Scarecrow Education.
3. Achenbach, T. (1991). Manual for the Child Behavior Checklist 4-18 and 1991 Profile. Burlington, VT: University of Vermont, Department of Psychiatry.
4. Anthony, K. K., Gil, K. M., & Schanberg, L. E. (2003). Brief report: Parental perceptions of child vulnerability in children with chronic illness. Journal of Pediatric Psychology, 28, 185-190.
5. Bennett, S. J. (1993). Relationships among selected antecedent variables and coping effectiveness in postmyocardial infarction patients. Research in Nursing & Health, 16, 131-139.
6. Carson, D. K., & Schauer, R. W. (1992). Mothers of children with asthma: Perceptions of parenting stress and the mother-child relationship. Psychological Reports, 71, 1139-1148.
7. Centers for Disease Control and Prevention. (2005). Fact sheet for SEARCH for diabetes in youth. Retrieved January 19, 2007, from http://www.cdc.gov/diabetes/pubs/factsheets/search.htm.
8. Chaney, J. M., Mullins, L. L., Frank, R. G., Peterson, L., Mace, L. D., Kashani, J. K., et al. (1997). Transactional patterns of child, mother, and father adjustment in insulin-dependent diabetes mellitus: A prospective study. Journal of Pediatric Psychology, 22, 229-244.
9. Clayton, M. F., Mishel, M. H., & Belyea, M. (2006). Testing a model of symptoms, communication, uncertainty, and well-being in older breast cancer survivors. Research in Nursing & Health, 29, 18-39.
10. Davis, C. L., Delamater, A. M., Shaw, K. H., La Greca, A. M., Eidson, M. S., Perez-Rodriguez, J. E., et al. (2001). Parenting styles, regimen adherence, and glycemic control in 4- to 10-year-old children with diabetes. Journal of Pediatric Psychology, 26, 123-129.
11. Eaton, W. W., Mengl, M., Mengel, L., Larson, D., Campbell, R., & Montague, R. B. (1992). Psychosocial and psychopathologic influences on management and control of insulin-dependent diabetes. International Journal of Psychiatry in Medicine, 22, 105-117.
12. Forsyth, B. W. C., Horwitz, S. M., Leventhal, J. M., Burger, J., & Leaf, P. J. (1996). The Child Vulnerability Scale: An instrument to measure parental perceptions of child vulnerability. Journal of Pediatric Psychology, 21, 89-101.
13. Fuemmeler, B. F., Mullins, L. L., & Marx, B. P. (2001). Posttraumatic stress and general distress among parents of children surviving a brain tumor. Children's Health Care, 30, 169-82.
14. Grey, M., Cameron, M.E., & Thurber, F. W. (1991). Coping and adaptation in children with diabetes. Nursing Research, 40, 144-149.
15. Greenberg, H. S., & Meadows, A. T. (1991). Psychosocial impact of cancer survival on school-age children and their parents. Journal of Psychosocial Oncology, 9, 43-56.
16. Grootenhuis, M. A., & Last, B. F. (1997a). Parents' emotional reactions related to different prospects for the survival of their children with cancer. Journal of Psychosocial Oncology, 15, 43-62.
17. Grootenhuis, M. A., & Last, B. F. (1997b). Predictors of parental emotional adjustment to childhood cancer. Psycho-Oncology, 6, 115-128.
18. Hasse, J. E., & Rostad, M. (1994). Experiences of completing cancer therapy: Children's perspectives. Oncology Nursing Forum, 21, 1483-1492.
19. Hoff, A. L., Mullins, L. L., Chaney, J. M., Hartman, V. L., & Domek, D. (2002). Illness uncertainty, perceived control, and psychological distress among adolescents with Type 1 diabetes. Research & Theory for Nursing Practice, 16, 223-236.
20. Hoff, A. L., Mullins, L. L., Gillaspy, S. R., Van Pelt, J. C., Page, M. C., & Chaney, J. M. (2005). An intervention to decrease uncertainty among parents of children newly diagnosed with diabetes: a pilot study. Families, Systems, & Health: The Journal of Collaborative Family Health Care, 23, 329-342.
21. Hoff, A. L., Mullins, L. L., Page, M. C., Carpentier, M. Y., Chaney, J. M., & Hommel, K. A. (2005). The relationship of control-related beliefs to depressive symptomotology among children with Type 1 diabetes or asthma: A disease-specific approach. Children's Health Care, 34, 261-272.
22. Holmbeck, G. N., Johnson, S. Z., Wills, K. E., McKernon, W., Rose, B., Erklin, S., & Kemper, T. (2002). Observed and perceived parental overprotection in relation to psychosocial adjustment in preadolescents with a physical disability: The mediational role of behavioral autonomy. Journal of Consulting & Clinical Psychology, 70, 96-110.
23. Hommel, K. A., Chaney, J. M., Wagner, J. L., White, M. M., Hoff, A. L., & Mullins, L. L. (2003). Anxiety and depression in older adolescents with long-standing asthma: The role of illness uncertainty. Children's Health Care, 32, 51-63.
24. Horner, S. D. (1997). Uncertainty in mothers' care for their ill children. Journal of Advanced Nursing, 26, 658-663.
25. Jessop, D. J., & Stein, R. E. (1985). Uncertainty and its relation to the psychological and social correlates of chronic illness in children. Social Science & Medicine, 20, 993-999.
26. Koocher, G. P., & O'Malley, J. E. (1981). The Damocles syndrome: Psychosocial consequences of surviving childhood cancer. New York: McGraw-Hill.
27. Livneh, H., & Antonak, R. F. (1997). Psychosocial adaptation to chronic illness and disability. Gaithersberg, MD: Aspen Publishers, Inc.
28. Mast, M. E. (1995). Adult uncertainty in illness: A critical review of the research. Scholarly Inquiry for Nursing Practice: An International Journal, 9, 3-24.
29. McNulty, K., Livneh, H., & Wilson, L. M. (2004). Perceived uncertainty, spiritual well-being, and psychosocial adaptation in individuals with multiple sclerosis. Rehabilitation Psychology, 49, 91-99.
30. Mishel, M. H. (1984). Perceived uncertainty and stress in illness. Research in Nursing and Health, 7, 163-171.
31. Mishel, M. H. (1990). Reconceptualization of the uncertainty in illness theory. Journal of Nursing Scholarship, 22, 256-262.
32. Mishel, M. H., & Sorenson, D. S. (1991). Uncertainty in gynecological cancer: A test of the mediating functions of mastery and coping. Nursing Research, 40, 167-171.
33. Mullins, L. L., Chaney, J. M., Hartman, V. L., Olson, R. A., Youll, L. K., Reyes, S., et al. (1995). Child and maternal adaptation to cystic fibrosis and insulin-dependent diabetes mellitus: Differential patterns across disease states. Journal of Pediatric Psychology, 20, 173-186.
34. Mullins, L. L., Chaney, J. M., Pace, T. M., & Hartman, V. L. (1997). Illness uncertainty, attributional style, and psychological adjustment in older adolescents and young adults with asthma. Journal of Pediatric Psychology, 22, 871-880.
35. Mullins, L. L., Cote, M. P., & Fuemmeler, B. F. (2001). Illness intrusiveness, uncertainty, and distress in individuals with multiple sclerosis. Rehabilitation Psychology, 46, 139-153.
36. Mullins, L. L., Fuemmeler, B. F., Hoff, A., Chaney, J. M., Van Pelt, J., & Ewing, C. (2004). The relationship of parental overprotection and perceived child vulnerability to depressive symptomotology in children with Type 1 Diabetes Mellitus: The moderating influence of parenting stress. Children's Health Care, 33, 21-34.
37. Mullins, L. L., & Hartman, V. L. (1995). Children's Uncertainty in Illness Scale. Unpublished manuscript, University of Oklahoma Health Sciences Center.
38. National Center for Health Statistics. (2002). Asthma prevalence, health care use and mortality, 2002. Retrieved January 19, 2007, from: http://www.cdc.gov/nchs/products/pubs/pubd/hestats/asthma/asthma.htm.
39. National Institutes of Health. (2006). PA-06-97: Parenting capacities and health outcomes in youths and adolescents (R21). Retrieved May 10, 2006, from: http://grants.nih.gov/grants/guide/pa-files/PA-06-097.html
40. Pai, A. L. H., Mullins, L. L., Drotar, D., Burant, C., Wagner, J., & Chaney, J. M. (2007). Exploratory and confirmatory factor analysis of the child uncertainty scale among children with chronic illness. Journal of Pediatric Psychology, 32, 288-296.
41. Peterson, C., Schmidt, S., & Bullinger, M. (2006). Coping with a chronic pediatric health condition and health-related quality of life. European Psychologist, 11, 50-56.
42. Power, T. G., Dahlquist, L. M., Thompson, S. M., & Warren, R. (2003). Interactions between children with juvenile rheumatoid arthritis and their mothers. Journal of Pediatric Psychology, 28, 213-221.
43. Riekert, K.A., & Drotar, D. (1999). Who participates in research on adherence to treatment in insulin-dependent diabetes mellitus? Implications and recommendations for research. Journal of Pediatric Psychology, 24, 253-258.
44. Steele, R.G., Tripp, G., Kotchick, B.A., Summer, P., & Forehand, R. (1997). Family members' uncertainty about parental chronic illness: The relationship of hemophilia and HIV infection to child functioning. Journal of Pediatric Psychology, 22, 577-591.
45. Stein, R.K., Gortmaker, S.L., Perrin, E.C., Perrin, J.M., Pless, I.B., Walker, D.K., et al. (1987). Severity of illness: Concepts and measurements. The Lancet, 340, 1506-1509.
46. Stewart, J. L., & Mishel, M. H. (2000). Uncertainty in childhood illness: A synthesis of the parent and child literature. Scholarly Inquiry for Nursing Practice: An International Journal, 14, 299-319.
47. Thomasgard, M., & Metz, W. P. (1993). Parental overprotection revisited. Child Psychiatry & Human Development, 24, 67-80.
48. Thomasgard, M., & Metz, W. P. (1997). Parental overprotection and its relation to perceived child vulnerability. American Journal of Orthopsychiatry, 67, 330-335.
49. Thomasgard, M., Metz, W. P., & Edelbrock, C. (1995). Parent-child relationship disorders: I. Parental overprotection and the development of the Parent Protection Scale. Journal of Developmental & Behavioral Pediatrics, 16, 244-250.
50. Thompson, R. J., & Gustafson, K. E. (1996). Adaptation to chronic illness. Washington, DC: American Psychological Association.
51. Thompson, R. J., Gustafson, K. E., & Bonner, M. J. (2002). Neurocognitive development of young children with sickle cell disease through three years of age. Journal of Pediatric Psychology, 27, 235-244.
52. White, M. M., Chaney, J. M., & Mullins, L. L. (2005). Children's perceived illness uncertainty as a moderator in the parent-child distress relation in juvenile rheumatic diseases. Rehabilitation Psychology, 50, 224-231.
53. Wysocki, T., Huxtable, K., Linscheid, T.R., & Wayne, W. (1989). Adjustment to diabetes-Mellitus in preschoolers and their mothers. Diabetes Care, 12, 524-529.
54. Zehnder, D., Prchal, A., Vollrath, M., & Landolt, M.A. (2005). Prospective study of the effectiveness of coping in pediatric patients. Child Psychiatry and Human Development, 36, 351-368.