Involving older people in research: Methodological issues

Health and Social Care in the Community

Volumn 13, Issue 3, 2005, Pages 268-275

  Ross, Fiona ^a   Donovan, Sheila ^a   Brearley, Sally ^b   Victor, Christina ^c   Cottee, Mark ^d   Crowther, Peter ^e   Clark, Eileen ^b  

^a KING'S COLLEGE LONDON   (United Kingdom)

^b Sutton and Merton Primary Care Trust   (United Kingdom)

^c UNIVERSITY OF READING   (United Kingdom)

^d ST GEORGE'S UNIVERSITY OF LONDON   (United Kingdom)

^e Older People's Services   (United Kingdom)

Author keywords

Community health; Consumer panel; Falls prevention; Older people; Participatory research; User involvement

Indexed keywords

AGE; AGED; ARTICLE; FALLING; HEALTH SERVICES RESEARCH; HUMAN; METHODOLOGY; PATIENT SELECTION; PROGRAM DEVELOPMENT; PSYCHOLOGICAL ASPECT; RESEARCH SUBJECT; RISK ASSESSMENT; SOCIAL WORK;

ACCIDENTAL FALLS; AGE FACTORS; AGED; AGED, 80 AND OVER; HEALTH SERVICES RESEARCH; HUMANS; PATIENT SELECTION; PROGRAM DEVELOPMENT; RESEARCH DESIGN; RESEARCH SUBJECTS; RISK ASSESSMENT; SOCIAL WORK;

EID: 17744400337     PISSN: 09660410     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1365-2524.2005.00560.x     Document Type: Article

References (34)

1. Baxter L., Thorne L. & Mitchell A. (2001) Small Voices, Big Noises. Lay Involvement in Health Research: Lessons from Other Fields. Consumers in NHS Research, Exeter Singer Press, Washington.
2. Beresford P. (2003a) User involvement in research: exploring the challenges. Nursing Times Research 8 (1), 36-46.
3. Beresford P. (2003b) Shaping Our Lives - What People Think of the Social Care Services They Receive. Joseph Rowntree Foundation, York.
4. Boaz A. & Hayden C. (2002) Pro-active evaluators: enabling research to be useful, usable and used. Evaluation 8 (4), 440-453.
5. Boote J., Telford R. & Cooper C. (2002) Consumer involvement in health research: a review and research agenda. Health Policy 61, 213-236.
6. Carter T. & Beresford P. (2000) Age and Change: Models of Involvement for Older People. Joseph Rowntree Foundation, York.
7. Coote A. (1993) Public participation in decisions about health care. Critical Public Health 4, 37-49.
8. Cordingley L., Hughes J. & Challis D. (2000) Unmet Need and Older People: Towards a Synthesis of User and Provider Views. Joseph Rowntree Foundation, York.
9. Department of Health (1999) Patient and Public Involvement in the NHS. Department of Health, London.
10. Department of Health (2000) The NHS Plan. Department of Health, London.
11. Department of Health (2001) The National Service Framework for Older People. Department of Health, London.
12. Faulkner A. (2004) Capturing the experiences of those involved in the TRUE Project: a story of colliding worlds. [WWW document.] URL http://www.invo.org.uk
13. Faulkner A. & Thomas P. (2002) User-led research and evidence-based medicine. British Journal of Psychiatry 180, 1-3.
14. Feuerstein M. (1988) Finding the methods to fit the people. Community Development 23 (1), 16-25.
15. Involve (2003a) INVOLVE Strategic Plan 2003-06: Creating the expert resource. [WWW document.] URL http://www.invo.org.uk
16. Involve (2003b) A guide to paying members of the public who are actively involved in research: for researchers and research commissioners, (who may also be people who use services). [WWW document.] URL http://www.invo.org.uk
17. Koch T., Selim P. & Kralik D. (2002) Enhancing lives through the development of a community-bases participatory action research programme. Journal of Advanced Nursing 11, 109-117.
18. Lockey R., Sitzia J., Gillingham T., Millyard J., Miller C., Ahmed S., Beales A., Bennett C., Parfoot S., Sigrist G. & Sigrist J. (2004) Training for service user involvement in health and social care research: a study of training provision and participants' experiences (The TRUE Project). Worthing and Southlands Hospitals NHS Trust, Worthing.
19. Moran R. & Butler D. (2001) Whose health profile? Critical Public Health 11 (1), 59-74.
20. Nichter M. (1984) Project community diagnosis: participatory research as a first step toward community involvement in primary health care. Social Science and Medicine 19 (3), 237-252.
21. Nicolson P., Beverley C., Booth A., Burr J., Collins K., Cooper C., O'Cathain A. & Powell J. (2001) Eliciting users' views of the processes of health care. Commissioned by Department of Health Service Delivery and Organisation Programme. [www document.] URL http://www.sdo.lshtm.ac.uk
22. Oliver M. (1996) Understanding Disability: From Theory to Practice. Macmillan, Basingstoke.
23. Peace S. (2002) The role of older people in social research. In: A. Jamieson & C. Victor (Eds) Researching Ageing and Later Life, pp. 226-244. Open University Press, Buckingham.
24. Pettigrew A., Ferlie E. & Mckee L. (1992) Shaping Strategic Change. Sage, Thousand Oaks, CA.
25. Popay J. & Williams G. (1996) Public health research and lay knowledge. Social Science and Medicine 42 (5), 759-768.
26. Poulton B. (1999) User involvement in identifying health needs and shaping and evaluating services: Is it being realised? Journal of Advanced Nursing 30 (6), 1289-1296.
27. Qureshi H. & Henwood M. (2000) Older People's Definitions of Quality Services. Joseph Rowntree Foundation, York.
28. Reason P. (1998) Three approaches to participative inquiry. In: N. Denzin & Y. Lincoln (Eds) Strategies of Qualitative Inquiry, pp. 261-291. Sage, Thousand Oaks, CA.
29. Rhodes P., Nocon A., Booth M., Chowdrey M., Fabian A. & Lambert N. (2002) A service users research advisory group from the perspectives of both service users and researchers. Health and Social Care in the Community 10 (5), 402-409.
30. Ross F., Smith E., Mackenzie A. & Masterson A. (2004) Identifying research priorities in nursing and midwifery service delivery and organisation: a scoping study. International Journal of Nursing Studies 41, 547-558.
31. Thornicroft G., Rose D., Huxley P., Dale G. & Wykes T. (2002) What are the research priorities of mental health service users? Journal of Mental Health 11 (1), 1-5.
32. Trivedi P. & Wykes T. (2002) From passive subjects to equal partners. British Journal of Psychiatry 181, 468-472.
33. Truman C. & Raine P. (2002) Experience and meaning of user involvement: some explorations from a community mental health project. Health and Social Care in the Community 10 (3), 136-143.
34. Walker A. (2002) The ESRC Growing Older Research Programme. Social Policy and Society 1 (2), 129-138.