Which factors explain variation in intention to disclose a diagnosis of dementia? A theory-based survey of mental health professionals

Implementation Science

Volumn 2, Issue 1, 2007, Pages

  Foy, Robbie ^a   Bamford, Claire ^a   Francis, Jillian J ^b   Johnston, Marie ^c   Lecouturier, Jan ^a   Eccles, Martin ^a   Steen, Nick ^a   Grimshaw, Jeremy ^d  

^a NEWCASTLE UNIVERSITY   (United Kingdom)

^b UNIVERSITY OF ABERDEEN   (United Kingdom)

^c UNIVERSITY OF ABERDEEN   (United Kingdom)

^d OTTAWA HOSPITAL RESEARCH INSTITUTE   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 35548944544     PISSN: None     EISSN: 17485908     Source Type: Journal    
DOI: 10.1186/1748-5908-2-31     Document Type: Article

References (42)

1. Department of Health: National Service Framework for Older People. London , Department of Health; 2001.
2. Institute of M: Crossing the Quality Chasm: A New Health System for the 21 st Century. Washington , National Academy Press; 2001.
3. Jha A, Tabet N, Orrell M: To tell or not to tell - comparison of older patients' reaction to their diagnosis of dementia and depression. International Journal of Geriatric Psychiatry 2001, 16:879-885.
4. Marzanski M: Would you like to know what is wrong with you? On telling the truth to patients with dementia. Journal of Medical Ethics 2000, 26:108-113.
5. McWilliams E: The process of giving and receiving a diagnosis of dementia: an in-depth study of sufferers', carers' and consultants' experiences. PSIGE Newsletter 1998, 64:18-25.
6. Dautzenberg PLJ, van Marum RJ, van der Hammen R, Paling HA; Patients and families desire a patient to be told the diagnosis of dementia: a survey by questionnaire on a Dutch memory clinic. Int J Geriatr Psychiatry 2003, 2003(18):777-779.
7. Elson P: Do older adults presenting with memory complaints wish to be told if later diagnosed with Alzhimer's disease? Int J Geriatr Psychiatry 2006, 21:419-442.
8. Robinson P, Ekman SL, Wahlund LO: Unsettled, uncertain and striving to understand: toward an understanding of the situation of persons with suspected dementia. Int J Aging Hum Dev 1998, 47:143-161.
9. Young RF, Harris PB: Medical experiences and concerns of people with Alzheimer's disease. In The person with Alzheimer's disease: pathways to understanding the experience Baltimore & London , The John Hopkins University Press; 2002:29-46.
10. Pratt R, Wilkinson H: A psychosocial model of understanding the experience of receiving a diagnosis of dementia. Dementia 2003,2:181-191.
11. Derksen E, Vernooij-Dassen M, Gillissen F, Olde Rikkert M, Scheltens P: Impact of diagnostic disclosure in dementia on patients and carers: qualitative case series analysis. Aging and Mental Health 2006, 10:525-531.
12. Preston L, Marshall A, Bucks RS: Investigating the ways that older people cope with dementia: a qualitative study. Aging and Mental Health 2007, 11:131 -143.
13. MacQuarrie CM: Experiences in early stage Alzheimer's disease: understanding the paradox of acceptance and denial. Aging and Mental Health 2005, 9:430-441.
14. Bamford C, Lamont S, Eccles M, Robinson L, May C, Bond J: Disclosing a diagnosis of dementia: a systematic review. Int J Geriatr Psychiatry 2004, 19:151-169.
15. Audit C: Forget Me Not 2002. London ; 2002.
16. Grimshaw JM, Thomas RE, MacLennan G, Fraser C, Ramsay CR, Vale L, Whitty P, Eccles MP, Matowe L, Shirran L, Wensing M, Dikstra R, Donaldson C, Hutchison A: Effectiveness and efficiency of guideline dissemination and implementation strategies. Health Technol Assess 2004, 8(6):.
17. Foy R, Eccles M, Jamtvedt G, Young J, GrimshawJ, Baker R: What do we know about how to do audit and feedback? Pitfalls in applying evidence from a systematic review. BMC Health Serv Res 2005, 5:50.
18. Eccles M, Grimshaw J, Walker A, Johnston M, Pitts N: Changing the behaviour of healthcare professionals: the use of theory in promoting the uptake of research findings. J Clin Epidemiol 2005, 58:107-112.
19. Oxman AD, Fretheim A, Flottorp S: The OFF theory of research utilization. J Clin Epidemiol 2005, 58(2): 113-116.
20. The Improved Clinical Effectiveness through Behavioural Research G: Designing theoretically-informed implementation interventions. BMC Implementation Science 2006:4.
21. Vassilas CA, Donaldson J: Telling the truth: what do general practitioners say to patients with dementia or terminal cancer? SJGP 1998, 48:1081-1082.
22. Heal HC, Husband HJ: Disclosing a diagnosis of dementia: is age a factor? Aging and Mental Health 1998, 2:144-150.
23. Johnson H, Bouman WP, Pinner G: On telling the truth in Alzheimer's disease: a pilot study of current practice and attitudes. International Psychogeriatrics 2000, 12:221-229.
24. Rice K, Warner N: Breaking the bad news: what do psychiatrists tell patients with dementia about their illness? International Journal of Geriatric Psychiatry 1994, 9:467-471.
25. Downs M, Clibbens R, Rae C, Cook A, Woods R: What do general practitioners tell people with dementia and their families about the condition? Dementia 2002, 1:47-58.
26. Fortinsky RH, Leighton A, Wasson JH: Primary care physicians' diagnostic, management and referral practices for older persons and families affected by dementia. Research on Aging 1995, 17:124-148.
27. Vernooij-Dassen MJ, Moniz-Cook ED, Woods RT, De Lepeleire J, Leuschner A, Zanetti O, de Rotrou J, Kenny G, Franco M, Peters V, lliffe S: Factors affecting timely recognition and diagnosis of dementia across Europe: from awareness to stigma. Int J Geriatr Psychiatry 2005, 20:377-386.
28. Michie S, Abraham C: Identifying techniques that promote health behaviour change: Evidence based or evidence inspired? Psychology & Health 2004, 19:29-49.
29. Chodosh J, Berry E, Lee M, Connor K, DeMonte R, Ganaits T, Heikoff L, Rubenstein L, Mittman B, Vickery B: Effect of a dementia care management intervention on primary care provider knowledge, attitudes, and perceptions of quality of care. J Am Geriatr Soc 2006, 54(2):31 1-317.
30. Sheeran P: Intention-behavior relations: A conceptual and empirical review. European Review of Social Psychology 2002, 12:1-36.
31. Armitage CJ, Conner M: Efficacy of the theory of planned behaviour: a meta-analytic review. British Journal of Social Psychology 2001,40:471-499.
32. Eccles MP, Hrisos S, Francis J, Kaner EF, Dickinson HO, Beyer F, Johnston M: Do self- reported intentions predict clinicians behaviour: a systematic review. Implementation Science 2006, 1:28.
33. Orbell S, Sheeran P: 'Inclined abstainers': a problem for predicting health-related behaviour. Br J Soc Psychol 1998, 37:151-165.
34. Medical Research C: A framework for development and evaluation of RCTs for complex interventions to improve health. London ; 2000.
35. Eccles MP, Foy R, Bamford CH, Hughes JC, Johnson M, Whitty PM, Steen N, Grimshaw JG: A trial platform to develop a tailored theory based intervention to improve professional practice in the disclosure of a diagnosis of dementia. BMC Implementation Science 2006, 1:7.
36. Ajzen I: The theory of planned behaviour. Organizational Behaviour and Human Decision Processes 1991, 50:179-211.
37. Bandura A: Social foundations of thought and action: A social cognitive theory. Upper Saddle River, NJ , Prentice-Hall; 1986.
38. Keightley J, Mitchell A: What factors influence mental health professionals when deciding whether or not to share a diagnosis of dementia with the person? Aging and Mental Health 2004, 8:13-20.
39. Conner M, Sparks P, Conner M, Norman P: The theory of planned behaviour and health behaviours, In Predicting health behaviour Open University Press; 1996:121-162.
40. Francis JJ, Eccles MP, Johnston M, Walker AE, Grimshaw JM, Foy R, Kaner EFS, Smith L, Bonetti D: Constructing questionnaires based on the theory of planned behaviour. A manual for health services researchers. Cetnre for Health Services Research, University of Newcastle upon Tyne; 2004.
41. Tabachnik B, Fidell L: Using multivariate statistics. New York, Harper Collins; 1996.
42. Green S: "How many subjects does it take to do a regression analysis?". Multivariate Behavioural Research 1991, 26:499-510.