Telehospice tools for caregivers: A pilot study

Clinical Gerontologist

Volumn 31, Issue 1, 2007, Pages 43-57

  Demiris, George ^a   Oliver, Debra Parker ^b   Courtney, Karen L ^c   Day, Michele ^b  

^a UNIVERSITY OF WASHINGTON   (United States)

^b UNIVERSITY OF MISSOURI   (United States)

^c UNIVERSITY OF PITTSBURGH   (United States)

Author keywords

Aged; Anxiety; Caregiver quality of life index; Hospice care; Informatics; Social work; Telehospice; Telemedicine; Videophone

Indexed keywords

AGED; ARTICLE; CAREGIVER; CAREGIVER BURDEN; CAREGIVER SUPPORT; CLINICAL ARTICLE; CLINICAL RESEARCH; CLINICAL TRIAL; CONTROLLED STUDY; FEMALE; HOSPICE CARE; HUMAN; INSTITUTIONAL CARE; MALE; MEDICAL STAFF; PILOT STUDY; QUALITY OF LIFE INDEX; SOCIAL WORK; TELECOMMUNICATION; TELEHEALTH; TERMINAL CARE; VIDEORECORDING;

EID: 35448973590     PISSN: 07317115     EISSN: 15452301     Source Type: Journal    
DOI: 10.1300/J018v31n01_04     Document Type: Article

References (50)

1. Addington-Hall, J., Lay, M., Altmann, D., & McCarthy, M. (1998). Community care for stroke patients in the last year of life: Results of a national retrospective survey of surviving family, friends and officials. Health & Social Care in the Community, 6(2), 112-119.
2. Anderson, C. S., Linto, J., & Stewart-Wynne, E. G. (1995). A population-based assessment of the impact and burden of caregiving for long-term stroke survivors. Stroke, 26(5), 843-849.
3. Antonovsky, A. (1987). Unraveling the Mystery of Health: How People Manage Stress and Stay Well. San Francisco, CA: Jossey-Bass Publishers.
4. Argyle, M., Lalljee, M., & Cook, M. (1968). The effects of visibility on interaction in the dyad. Human Relations, 28, 289-304.
5. Armer, J. M. (2003). A case study of the use of telemedicine by advanced practice nurses in rural Missouri. Journal of Continuing Education in Nursing, 34(5), 226-233.
6. Barusch, A. S. (1988). Problems and coping strategies of elderly spouse caregivers. Gerontologist, 28(5), 677-685.
7. Bashshur, R. (1995). On the definition and evaluation of telemedicine. Telemedicine Journal, 1(1), 19-30.
8. Baur, C. & Kanaan, S. B. (2006). Expanding the Reach and Impact of Consumer e-health tools. A report by the U.S. Department of Health and Human Services; The Office of Disease Prevention and Health Promotion (ODPHP).
9. Clark, H. & Brennan, S. (1991). Grounding in communication. In Resnick, L. B., Levine, J., & Teasley, S. (Eds.), Perspectives on socially shared cognition (pp. 127-149). Washington, DC, APA Press.
10. Clark, H. & Schaefer, E. (1989). Contributing to discourse. Cognitive Science, 13, 259-292.
11. Collins, S. C., Bhatti, J. Z., Dexter, S. L., & Rabbitt, P. M. (1992). Elderly people in a new world: Attitudes to advanced communications technologies. In Baima, H. & Graafmans, J.A.M. (Eds.), Gerontechnology (pp. 277-282) (Amstersam; IOS Press).
12. Courtney, K. L., Demiris, G., & Parker Oliver, D. (2005). Handheld computer data collection in the Missouri Telehospice Project. Paper presented at the National Library of Medicine Fellowship Directors Meeting 2005, Bethesda, MD.
13. Courtney, K. L., Demiris, G., Parker Oliver, D., & Porock, D. (2005). Conversion of the CQLI to an interview instrument-Research in brief. European Journal of Cancer Care, 14(5), 463-464.
14. Demiris, G., Oliver, D. R. & Courtney, K. (2006). A study of the suitability of videophones for psychometric assessment. Behaviour and Information Technology, 25(3), 233-237.
15. Demiris, G., Parker Oliver, D. R., Courtney, K. L., & Porock, D. (2005). Use of technology as a support mechanism for caregivers of hospice patients. Journal of Palliative Care, 21(4), 303-309.
16. Demiris, G., Parker-Oliver, D., Fleming, D., & Edison, K. (2004). Hospice attitudes toward "Tele-hospice." American Journal of Hospice & Palliative Care, 21(5), 343-347.
17. Doolittle, G. C. (2000). A cost measurement study for a home-based telehospice service. Journal of Telemedicine & Telecare, 6(Suppl 1), S193-S195.
18. Duncan, S. (1972). Some signals and rules for taking speaker turns in conversation. Journal of Personal and Social Psychology, 23, 283-292.
19. Edwards, B. & Ung, L. (2002). Quality of life instruments for caregivers of patients with cancer. Cancer Nursing, 25(5), 342-349.
20. Ekman, P. & Friesen, W. (1975). Unmasking the face. Upper Saddle River, NJ: Prentice Hall.
21. Elsey, B. & McIntyre, J. (1996). Assessing a support and learning network for palliative care workers in a country area of South Australia. Australian Journal of Rural Health, 4(3), 159-164.
22. Folkman, S. (1997). Positive psychological states and coping with severe stress. Social Science & Medicine, 45, 1207-1221.
23. Gordon, A. K. (1996). Hospice and minorities: A national study of organizational access and practice. The Hospice Journal, 11(1), 49-70.
24. Glueckauf, R. L. & Ketterson, T. U. (2004). Telehealth interventions for individuals with chronic illness: Research review and implications for practice. Professional Psychology: Research and Practice, 35, 615-627.
25. Haley, W. E., LaMonde, L. A., Han, B., Narramore, S., & Schonwetter, R. (2001). Family caregiving in hospice: Effects on psychological and health functioning among spousal caregivers of hospice patients with lung cancer or dementia. Hospice Journal, 15(4), 1-18.
26. Heaven, C. M. & Maguire, P. (1997). Disclosure of concerns by hospice patients and their identification by nurses. Palliative Medicine, 11(4), 283-290.
27. Hopkinson, J. B., Wright, D. N., & Corner, J. L. (2005). Seeking new methodology for palliative care research: Challenging assumptions about studying people who are approaching the end of life. Palliative Medicine, 19(7), 532-537.
28. Johnson, J. (1988). Cancer: A family disruption. Recent Results in Cancer Research, 108, 306-310.
29. McMillan, S. C. (1996). Quality of life of primary caregivers of hospice patients with cancer. Cancer Practice, 4(4), 191-198.
30. McMillan, S. C. & Mahon, M. (1994). The impact of hospice services on the quality of life of primary caregivers. Oncology Nursing Forum, 21(7), 1189-1195.
31. Mehrabian, A. (1971). Silent messages. Belmont, NJ: Wadsworth Press.
32. National Center for Health Statistics. (2005). Deaths: Preliminary Data for 2003. National Vital Statistics Report (NVSR), 53(15).
33. National Hospice and Palliative Care Organization. (2004). NHPCO Facts and Figures. Retrieved April 13, 2006 from http://www.nhpco.org/files/ public/Facts_Figures_for2004data.pdf
34. Northouse, L. L. (1988). Social support in patients' and husbands' adjustment to breast cancer. Nursing Research, 37(2), 91-95.
35. Oberst, M. T., Thomas, S. E., Gass, K. A., & Ward, S. E. (1989). Caregiving demands and appraisal of stress among family caregivers. Cancer Nursing, 12(4), 209-215.
36. Oyama, H. (1997). Virtual reality for the palliative care of cancer. Studies in Health Technology and Informatics, 44, 87-94.
37. Parker-Oliver, D. & Demiris, G. (2004). An assessment of the readiness of hospice organizations to accept technological innovation. Journal of Telemedicine & Telecare, 10, 170-174.
38. Parker Oliver, D., Demiris, G., Day, M., Courtney, K., & Porock, D. (2006). Telehospice support for elder caregivers of hospice patients: Two case studies. Journal of Palliative Medicine, 9(2), 264-267.
39. Parker Oliver, D., Demiris, G., & Porock, D. (2005). The usability of videophones for seniors and hospice providers: A brief report of two studies. Computers in Biology and Medicine, 35(9), 782-790.
40. Pilisuk, M. & Parks, S. H. (2001). Caregiving: Where families need help. Social Work, 33(5), 436-440.
41. Reid, J. (1996). A Telemedicine Primer: Understanding the Issues. Billings: Innovative Medical Communications.
42. Sales, E. (1991). Psychosocial impact of the phase of cancer on the family: An updated review. Journal of Psychosocial Oncology, 9(4), 1-18.
43. Schulz, R. (Ed.). (2000). Handbook of dementia caregiving: Evidence-based interventions for family caregivers. New York: Springer.
44. Spielberger, C. D., Gorsuch, R. L., & Lushene, R. E. (1970). Manual for the State-Trait Anxiety Inventory (Self Evaluation Questionaire). Palo Alto, CA: Consulting Psychologist Press.
45. Straton, J. (2003). Quality of life and emotional distress of elderly caregivers of terminally ill patients enrolling in hospice. The Gerontologist, 43(Special Issue 1), 235.
46. Teno, J. M., Weitzen, S., Fennell, M., & Mor, V. (2001). Dying trajectory in the last year of life: Does cancer trajectory fit other diseases? Journal of Palliative Medicine, 4(4), 457-464.
47. Toseland, R. W., Blanchard, C. G., & McCallion, P. (1995). A problem solving intervention for caregivers of cancer patients. Social Science & Medicine, 40(4), 517-528.
48. Virnig, B. A., Moscovice, I., Durham, S., & Casey, M. (2003). Do rural elders have limited access to medicare hospice services? Research Brief, 10(4), Retrieved April 13, 2006 from http://www.hsr.umn.edu/res_pubs/ files/research_briefs/03/RB_09_03.htm
49. Whitten, P., Doolittle, G. & Mackert, M. (2005). Providers' acceptance of telehospice. Journal of Palliative Medice, 8(4), 730-735
50. Whitten, P. S., Doolittle, G. C., Mackert, M., & Rush, T. (2003). Telehospice: End-of-life care over the lines. Nursing Management, 34(11), 36-39.