The importance of perspective: Evaluation of hospice care from multiple stakeholders

American Journal of Hospice and Palliative Medicine

Volumn 24, Issue 5, 2007, Pages 376-382

  Hiatt, Kelly ^a   Stelle, Charlie ^b   Mulsow, Miriam ^c   Scott, Jean Pearson ^c  

^a Bowling Green State University ^*

^b BOWLING GREEN STATE UNIVERSITY   (United States)

^c TEXAS TECH UNIVERSITY   (United States)

Author keywords

Assessment; Care providers; Care recipients; Hospice; Program evaluation; Qualitative; Utilization focused methodology

Indexed keywords

ARTICLE; ATTITUDE TO HEALTH; FAMILY; HEALTH CARE DELIVERY; HEALTH CARE QUALITY; HEALTH PERSONNEL ATTITUDE; HOME CARE; HOSPICE CARE; HUMAN; INFORMATION PROCESSING; INTERPERSONAL COMMUNICATION; METHODOLOGY; NEEDS ASSESSMENT; NURSING METHODOLOGY RESEARCH; ORGANIZATION AND MANAGEMENT; PATIENT CARE; PERCEPTION; PHILOSOPHY; PROGRAM DEVELOPMENT; PSYCHOLOGICAL ASPECT; PUBLIC RELATIONS; QUALITATIVE RESEARCH; QUESTIONNAIRE; STANDARD; UNITED STATES; VOLUNTARY WORKER;

ATTITUDE OF HEALTH PERSONNEL; ATTITUDE TO HEALTH; COMMUNICATION; COMMUNITY-INSTITUTIONAL RELATIONS; FAMILY; FOCUS GROUPS; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH SERVICES ACCESSIBILITY; HOME CARE SERVICES; HOSPICE CARE; HUMANS; NEEDS ASSESSMENT; NURSING METHODOLOGY RESEARCH; PATIENT CARE TEAM; PHILOSOPHY, MEDICAL; PROGRAM DEVELOPMENT; PROGRAM EVALUATION; QUALITATIVE RESEARCH; QUALITY OF HEALTH CARE; QUESTIONNAIRES; RESEARCH DESIGN; SOCIAL PERCEPTION; SOUTHWESTERN UNITED STATES; VOLUNTARY WORKERS;

EID: 35349028357     PISSN: 10499091     EISSN: None     Source Type: Journal    
DOI: 10.1177/1049909107300760     Document Type: Article

References (51)

1. National Hospice and Palliative Care Organization (NHCPO). NHCPO 2004 Facts and Figures. Available at: http://www.nhpco.org/files/public/ Facts_Figures_for2004data.pdf. Accessed Aug 1, 2006.
2. Buckingham RW, Foley SH A guide to evaluation research in terminal care programs. Death Educ. 1978 ; 2 (1 suppl 2). 127-141.
3. Parkes CM Terminal care: evaluation of in-patient service at St. Christopher's hospice. Part 1. Views of surviving spouses on effects of the service on the patient. Postgrad Med J. 1979 ; 55: 517-522.
4. Silver S. Evaluation of a hospice program: effects of terminally ill patients and their families. Eval Health Prof. 1981 ; 4: 306-315.
5. Bass DM The hospice ideology and success of hospice care. Res Aging. 1985 ; 7: 307-327.
6. Bly JL, Kissick P. Hospice care for patients living alone. Hosp J. 1994 ; 9: 9-20.
7. Fox A. Dying at home: Supporting patient choices. Nurs Times. 1999 ; 95: 50-51.
8. Godkin MA, Krant MJ, Doster, NJ The impact of hospice care on families. Int J Psychiatry Med. 1983 -84; 13: 153-165.
9. Grobe ME, Ilstrup DM, Ahmann JC, et al. Evaluation of a coordinated community approach to hospice services. Prog Clin Biol Res. 1983: 411-415.
10. Kane RL, Klein SJ, Bernstein L., Rothenberg R., Wales J. Hospice role in alleviating the emotional stress of terminal patients and their families. Med Care. 1985 ; 23: 189-197.
11. Kane RL, Wales J., Bernstein L., Leibowitz A., Kaplan S. A randomized controlled trial of hospice care. Lancet. 1984 ; 8382: 890-894.
12. Koffman J., Higginson I., Naysmith A. Hospice at home-a new service for patients with advanced HIV/AIDS: a pilot evaluation of referrals and outcomes. Br J Gen Pract. 1996 ; 46: 539-540.
13. Marco CA, Buderer N., Thum D. End-of-life care: perspectives of family members of deceased patients. Am J Hospice Palliat Care. 2005 ; 22: 26-31.
14. Miceli PJ, Mylod DE Satisfaction of families using end-of-life care: current successes and challenges in the hospice industry. Am J Hosp Palliat Care. 2003 ; 20: 360-370.
15. Parkes CM Terminal care: home, hospital, or hospice? Lancet. 1985: 1: 155-157.
16. Nolen-Hoeksema S., Larson J., Bishop M. Predictors of family members' satisfaction with hospice. Hosp J. 2000 ; 15: 29-47.
17. Roessler A., Carter H., Campbell L., MacLeod, R. Diversity among hospice volunteers: a challenge for the development of a responsive volunteer program. Am J Hosp Palliat Care. 1999 ; 16: 656-664.
18. Rasmussen BH, Jansson L., Norberg A. Striving for becoming at home in the midst of dying. Am J Hosp Palliat Care. 2000 ; 17: 31-43.
19. Raudonis BM, Kirschling JM Family caregivers' perspectives on hospice nursing care. J Palliat Care. 1996 ; 12: 14-19.
20. Seale C. A comparison of hospice and conventional care. Soc Sci Med. 1991 ; 32: 147-152.
21. Steele LL, Mills B., Long MR, Hagopian GA Patient and caregiver satisfaction with end of life care: does high satisfaction mean high quality of care? Am J Hosp Palliat Care. 2002 ; 19: 19-27.
22. Welk TA, Smith WB Family surveys: measuring more than just satisfaction. Am J Hosp Palliat Care. 1999: 16: 533-540.
23. Rutman D., Parke B. Palliative care needs of residents, families, and staff in long-term care facilities. J Palliat Care. 1992 ; 8: 23-29.
24. DeLoach R. Job satisfaction among hospice interdisciplinary team members. Am J Hosp Palliat Care. 2003 ; 20: 434-440.
25. DiTullio M., MacDonald D. The struggle for the soul of hospice: stress, coping, and change among hospice workers. Am J Hosp Palliat Care. 1999 ; 16: 641-655.
26. Wilson SA The family as caregivers: hospice home care. Fam Community Health. 1992 ; 15: 71-80.
27. Zimmerman S., Applegate JL Person-centered comforting in the hospice interdisciplinary team. Commun Res. 1992 ; 19: 240-263.
28. Walsh D. The Harry R. Horvitz center for palliative medicine (1987-1999): development of a novel comprehensive integrated program. Am J Hosp Palliat Care. 2001 ; 18: 239-250.
29. Ogle K., Mavis B., Wang T. Hospice and primary care physicians: attitudes, knowledge and behavior. Am J Hosp Palliat Care. 2003 ; 20: 41-51.
30. Patton MQ Utilization-Focused Evaluation (3 rd ed). Thousand Oaks, Calif: Sage Publications ; 1997.
31. Barzelai LP Evaluation of a home based hospice. J Fam Pract. 1981 ; 12: 241-245.
32. Byrne D., McMurray A. Caring for the dying: nurses' experiences in hospice care. Aust J Adv Nurs. 1997 ; 15: 4-11.
33. Creek LV A homecare hospice profile: description, evaluation, and cost analysis. J Fam Pract. 1982 ; 14: 53-58.
34. Doyle D. A home care service for terminally ill patients in Edinburgh. Health Bull. 1991 ; 49: 14-23.
35. King G., MacKenzie J., Smith H., Clark D. Dying at home: evaluation of a hospice rapid-response service. Int J Palliat Nurs. 2000 ; 6: 280-287.
36. Voltz R., Akabayashi A., Reese C., Ohi G., Sass H. Organization and patients' perception of palliative care: a cross-cultural comparison. Palliat Med. 1997 ; 11: 351-357.
37. Woodruff RK, Jordan L., Eicke JP, Chan A. Palliative care in a general teaching hospital: establishment of a service. Med J Aust. 1991 ; 155: 662-665.
38. Chan A., Woodruff RK Palliative care in a general teaching hospital: assessment of need. Med J Aust. 1991 ; 155: 597-599.
39. Hull MM Sources of stress for hospice caregiving families. Hosp J. 1990 ; 6: 29-54.
40. McGrath P., Vun M., McLeod L. Needs and experiences of non-English speaking hospice patients and families in an English-speaking country. Am J Hosp Palliat Care. 2001 ; 18: 305-312.
41. Ratner E., Norlander L., McSteen K. Death at home following a targeted advance-care planning process at home: the kitchen table discussion. J Am Geriatr Soc. 2001 ; 49: 778-781.
42. Fainsinger RL, Bruera E., MacMillan K. Innovative palliative care in Edmonton. Can Fam Physician. 1997 ; 43: 1983-1992.
43. Whitwell MM A Qualitative Study of the Local Hospice Care Experience as perceived by Physicians [unpublished master's thesis]. Lubbock, Tex: Texas Tech University ; 1996.
44. Miller KE, Miller MM, Single N. Barriers to hospice care: family physicians' perceptions. Hosp J. 1997 ; 12: 29-41.
45. Bodine GE Evolution of a community program for the dying and their families. Death Educ. 1983 ; 6: 301-311.
46. Stillman MJ, Syrjala KL Differences in physician access patterns to hospice care. J Pain Symptom Manage. 1999 ; 17: 157-163.
47. Wiles R., Payne S., Jarrett N. Improving palliative care services: a pragmatic model for evaluating services and assessing unmet need. Palliat Med. 1999 ; 13: 131-137.
48. Brechling BG, Heyworth JA, Kuhn D., Peranteau MF Extending hospice care to end-stage dementia patients and families. Am J Alzheimer Care Relat Disord Res. 1989 ; 4: 21-29.
49. Picou TA Coordinating hospice and nursing care. Provider. 1998 ; 24: 62-64.
50. Casey MM, Moscovice IS, Virnig BA, Durham SB Providing hospice care in rural areas: challenges and strategies. Am J Hosp Palliat Care. 2005 ; 22: 363-368.
51. Basile JL, Stone DB Profile of an effective hospice team member. Omega. 1986 -87; 17: 353-362.