Eurocleft -- An experiment in intercenter collaboration

Cleft Lip and Palate

Volumn , Issue , 2006, Pages 765-776

  Shaw, W C ^a   Semb, G ^a  

^a UNIVERSITY OF MANCHESTER   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 35148842167     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.1007/3-540-30020-1_50     Document Type: Chapter

References (25)

1. Shaw WC, Asher-McDade C, Brattström V, Dahl E, Mars M, McWilliam J, Mølsted K, Plint DA, Prahl-Andersen B, Semb G, The RPS (1992a) A six-center international study of treatment outcome in patients with clefts of the lip and palate. Part 1: principles and study design. Cleft Palate Craniofac J 29:393-397.
2. Shaw WC, Dahl E, Asher-McDade C, Brattström V, Mars M, McWilliam J, Mølsted K, Plint DA, Prahl-Andersen B, Roberts C, Semb G, The RPS. A six-center international study of treatment outcome in patients with clefts of the lip and palate. Part 5: general discussion and conclusions. Cleft Palate Craniofac J 1992b; 29:413-418.
3. Mølsted K, Asher-McDade C, Brattström V, Dahl E, Mars M, McWilliam J, Plint DA, Prahl-Andersen B, Semb G, Shaw WC, The RPS. A six-center international study of treatment outcome in patients with clefts of the lip and palate. Part 2: craniofacial form and soft tissue profile. Cleft Palate Craniofac J 1992;29:398-404.
4. Mars M, Asher-McDade C, Brattström V, Dahl E, McWilliam J, Mølsted K, Plint DA, Prahl-Andersen B, Semb G, Shaw WC, The RPS. A six-center international study of treatment outcome in patients with clefts of the lip and palate. Part 3: dental arch relationships. Cleft Palate Craniofac J 1992;29:405-408.
5. Asher-McDade C, Brattström V, Dahl E, McWilliam J, Mølsted K, Plint DA, Prahl-Andersen B, Semb G, Shaw WC, The RPS. A six-center international study of treatment outcome in patients with clefts of the lip and palate. Part 4: assessment of nasolabial appearance. Cleft Palate Craniofac J 1992;29:409-412.
6. Mølsted K, Dahl E, Skovgaard LT, Asher-McDade C, Brattström V, McCance A, Prahl-Andersen B, Semb G, Shaw WC, The RPS. A multicentre comparison of treatment regimes for unilateral cleft lip and palate using a multiple regression model. Scand J Plast Reconstr Hand Surg 1993a; 27:277-284.
7. Mølsted K, Dahl E, Brattström V, McWilliam J, Semb G. A six-center international study of treatment outcome in patients with clefts of the lip and palate: evaluation of maxillary asymmetry. Cleft Palate Craniofac J 1993b; 30:22-28.
8. Semb G, Brattström V, Mølsted K, Prahl-Andersen B, Shaw WC. The Eurocleft Study: intercenter study of treatment outcome in patients with complete cleft lip and palate. Part 1: introduction and treatment experience. Cleft Palate Craniofac J 2005;42(1):64-68.
9. Semb G, Brattström V, Mølsted K, Prahl-Andersen B, Zuurbier P, Rumsey N, Shaw WC. The Eurocleft Study: longitudinal follow-up of patients with complete cleft lip and palate. Part 4: relationship between treatment outcome, patient/parent satisfaction and the burden of care. Cleft Palate Craniofac J 2005;42(1):83-92.
10. Brattström V, Mølsted K, Prahl-Andersen B, Semb G, Shaw WC. The Eurocleft study: longitudinal follow-up of patients with complete unilateral cleft lip and palate. Part 2: craniofacial form and nasolabial appearance. Cleft Palate Craniofac J 2005;42(1):69-77.
11. Mølsted K, Brattström V, Prahl-Andersen B, Semb G, Shaw WC. The Eurocleft study: longitudinal follow-up of patients with complete unilateral cleft lip and palate. Part 3: dental arch relationship. Cleft Palate Craniofac J 2005;42(1):78-82.
12. Grunwell P, Brøndsted K, Henningsson G, Jansonius K, Karling J, Meijer M, Ording U, Wyatt R, Vermeij-Zieverink E, Sell D. A six-centre international study of the outcome of treatment in patients with clefts of the lip and palate: the results of a cross-linguistic investigation of cleft palate speech. Scand J Plast Reconstr Hand Surg 2000;34:219-229.
13. Diggle PJ, Liang KY, Zeger SL. Analysis of longitudinal data. Oxford Scientific Publications, Oxford; 1994.
14. Shaw WC, Brattström V, Mølsted K, Prahl-Andersen B, Roberts CR, Semb G. The Eurocleft Study: longitudinal followup of patients with complete cleft lip and palate. Part 5: discussion and conclusions. Cleft Palate Craniofac J 2005;42(1):93-98.
15. Long AF. Outcomes within audit: a process and outcome perspective. UK Clearing House on Health Outcomes, Outcomes Briefing 1996;7:4-7.
16. Bearn D, Mildinhall S, Murphy T, Murray JJ, Sell D, Shaw WC, Williams AC, Sandy JR. Cleft lip and palate care in the United Kingdom - the Clinical Standards Advisory Group (CSAG) Study. Part 4: outcome comparisons, training, and conclusions. Cleft Palate Craniofac J 2001;38:38-43.
17. Friede H, Enemark H, Semb G, Paulin G, Åbyholm F. Bolund S, Lilja J, Östrup L. Craniofacial and occlusal characteristics in unilateral cleft lip and palate patients from four Scandinavian centres. Scand J Plast Reconstr Hand Surg 1991;25:269-276.
18. Enemark H, Friede H, Paulin G, Semb G, Åbyholm F, Bolund S, Lilja J, Östrup L. Lip and nose morphology in patients with unilateral cleft lip and palate from four Scandinavian centres. Scand J Plast Reconstr Hand Surg 1993;27:41-47.
19. Morris T, Roberts C, Shaw WC. Incisal overjet as an outcome measure in unilateral cleft lip and palate management. Cleft Palate Craniofac J 1994;31:142-145.
20. Bearn D. Outcome assessment in unilateral cleft lip and palate. PhD Thesis, University of Manchester; 2000.
21. World Health Organisation. Global strategies towards reducing the health-care burden of craniofacial anomalies. Report of WHO meetings on international collaborative research on craniofacial anomalies. WHO Human Genetics Programme; 2002.
22. Shaw WC, Semb G, Nelson P, Brattström V, Mølsted K, Prahl-Andersen B, Gundlach KK. The Eurocleft Project 1996-2000: overview. J Cranio-Maxillofac Surg 2001;29:131-140.
23. Fitz Patrick DR, Carr IM, McLaren L, Leek JP, Wightman P, Williamson K, Gautier P, McGill N, Hayward C, Firth H, Markham AF, Fantes JA, Bonthron DT. Identification of SATB2 as the cleft palate gene on 2q32-q33. Hum Mol Genet 2003;12:2491-2501.
24. Kondo S, Schutte BC, Richardson RJ, Bjork BC, Knight AS, Watanabe Y, Howard E, De Lima RL, Daack-Hirsch S, Sander A, McDonald-McGinn DM, Zackai EH, Lammer EJ, Aylsworth AS, Ardinger HC, Lidral AC, Pober BR, Moreno L, Arcos-Burgos M, Valencia C, Houdayer C, Bahuau M, Moretti-Ferreira D, Richieri-Costa A, Dixon MJ, Murray JC. Mutations in IRF6 cause Van der Woude and popliteal pterygium syndromes. Nat Genet 2002;32:285-289.
25. World Health Organisation. Global registry and database on craniofacial anomalies. WHO Human Genetics Programme; 2003.