Determination of vital status by linkage of anonymised hospital and national mortality data;Détermination du statut vital par chaînage entre des données hospitalières et les données de mortalité nationales anonymisées

Revue d'Epidemiologie et de Sante Publique

Volumn 55, Issue 5, 2007, Pages 365-373

  Fournel, I ^a   Schwarzinger, M ^b   Benzenine, E ^a   Binquet, C ^a   Hill, C ^b   Quantin, C ^a  

^a DIJON UNIVERSITY HOSPITAL   (France)

^b INSTITUT GUSTAVE ROUSSY   (France)

Author keywords

Anonymisation; Cancer. Irreversible hash coding. Encryption; Hospitalisation databases; Mortality databases; Record linkage; Validity

Indexed keywords

ARTICLE; BIRTH; CANCER PATIENT; COHORT ANALYSIS; DATA ANALYSIS; FRANCE; HOSPITAL ADMISSION; HOSPITAL PATIENT; HOSPITALIZATION; HUMAN; LAW; MALIGNANT NEOPLASTIC DISEASE; MEDICAL INFORMATION; MEDICAL RECORD; MORTALITY; PROBABILITY; SENSITIVITY AND SPECIFICITY; STATISTICAL ANALYSIS; VALIDATION PROCESS; VITAL SIGN; CANCER CENTER; FACTUAL DATABASE; NEOPLASM; NOMENCLATURE; REGISTER; STATISTICS; VITAL STATISTICS;

ANONYMS AND PSEUDONYMS; CANCER CARE FACILITIES; COHORT STUDIES; DATABASES, FACTUAL; FRANCE; HOSPITAL RECORDS; HUMANS; MEDICAL RECORD LINKAGE; MORTALITY; NEOPLASMS; REGISTRIES; SENSITIVITY AND SPECIFICITY; VITAL STATISTICS;

EID: 34948822365     PISSN: 03987620     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.respe.2006.10.004     Document Type: Article

References (45)

1. Quantin C., Allaert F.A., Bouzelat H., Rodrigues J.S., Trombertpaviot B., Brunet-Lecomte P., et al. Security of healthcare data networks used for epidemiological studies. Rev. Epidemiol. Santé Publique 48 1 (2000) 89-99
2. Vallet O, Villeminot S, Gasquet I, Falissard B. Direction de la recherche, des études, de l'évaluation et des statistiques (DREES). Élaboration d'un outil de mesure de la mortalité hospitalière. Série Études 2004; 40.
3. AUTOMATCH Generalized record linkage system. In. Silver Spring: Match Ware Technologies, Inc; 1992.
4. Jaro M.A. Probabilistic linkage of large public health data files. Stat. Med. 14 5-7 (1995) 491-498
5. Schnell R., Bachteler T., and Bender S. A toolbox for record linkage. Austrian J. Stat. 33 1-2 (2004) 125-133
6. Arellano M.G., Petersen G.R., Petitti D.B., and Smith R.E. The California Automated Mortality Linkage System (CAMLIS). Am. J. Public Health 74 12 (1984) 1324-1330
7. Howe G.R., and Lindsay J. A generalized iterative record linkage computer system for use in medical follow-up studies. Comput. Biomed. Res. 14 4 (1981) 327-340
8. Fair M., Cyr M., Allen A.C., Wen S.W., Guyon G., and MacDonald R.C. An assessment of the validity of a computer system for probabilistic record linkage of birth and infant death records in Canada. The Fetal and Infant Health Study Group. Chronic Dis. Can. 21 1 (2000) 8-13
9. Gill L.E. OX-LINK: the Oxford Medical Record Linkage System 1997. Proceedings of an international workshop and exposition (1997), Virginia, Arlington 15-33
10. Dal Maso L., Braga C., and Franceschi S. Methodology used for "software for automated linkage in Italy" (SALI). J. Biomed. Inform. 34 6 (2001) 387-395
11. Kendrick S., and Clarke J. The Scottish Record Linkage System. Health Bull. (Edinb.) 51 2 (1993) 72-79
12. Gomatam S., Carter R., Ariet M., and Mitchell G. An empirical comparison of record linkage procedures. Stat. Med. 21 10 (2002) 1485-1496
13. Wadja A., Roos L.L., Layefsky M., and Singleton J.A. Record linkage strategies: Part II. Portable software and deterministic matching. Methods Inf. Med. 30 3 (1991) 210-214
14. Langley J.D., and Botha J.L. Use of record linkage techniques to maintain the Leicestershire Diabetes Register. Comput. Methods Programs Biomed. 41 3-4 (1994) 287-295
15. Elfeky MG, Verykios VS, Elmagarmid AK. "TAILOR: A Record Linkage Toolbox," IEEE International. Conference on Data Engineering 2002, 17-28.
16. Nitsch D., Morton S., DeStavola B.L., Clark H., and Leon D.A. How good is probabilistic record linkage to reconstruct reproductive histories? Results from the Aberdeen children of the 1950s study. BMC Med. Res. Methodol. 6 (2006) 15
17. Newcombe H.B., Kennedy J.M., Axford S.J., and James A.P. Automatic linkage of vital records. Science 130 (1959) 954-959
18. Fellegi I.P., and Sunter A.B. A theory for record linkage. J. Am. Stat. Assoc. 40 (1969) 1183-1210
19. Quantin C., Bouzelat H., Allaert F.A., Benhamiche A.M., Faivre J., and Dusserre L. Automatic record hash coding and linkage for epidemiological follow-up data confidentiality. Methods Inf. Med. 37 3 (1998) 271-277
20. Black R.J., Simonato L., Storm H.H., and Démaret E. Automated data collection in cancer registration (1998), IARC Technical Reports n, Lyon
21. Churches T., and Christen P. Some methods for blindfolded record linkage. BMC Med. Inform. Decis. Mak. 4 (2004) 9
22. Quantin C., Gouyon B., Allaert F.A., and Cohen O. Méthodologie pour le chaînage de données sensibles tout en respectant l'anonymat : application au suivi des informations médicales. Journal de la SFdS 146 3 (2005) 15-26
23. Bowden R.J., and Sim A.B. The privacy bootstrap. J. Bus. Econ. Stat. 10 (1992) 337-345
24. Cox B., Causey L.H., and Ernst R. Application for transportation theory of statistical problems. J. Am. Stat. Assoc. 80 392 (1958) 903-909
25. Cox L.H. A constructive procedure for unbiased controlled rounding. J. Am. Stat. Assoc. 82 (1987) 520-524
26. Dalenius T. A simple procedure for controlled, rounding. Statistik Tidskrift 3 (1981) 202-208
27. Sweeney L. Three computational systems for disclosing medical data in the year 1999. Medinfo 9 Pt 2 (1998) 1124-1129
28. Borst F., Allaert F.-A., and Quantin C. The swiss solution for anonymously chaining patient files. Proc. MEDINFO 2001. IMIA (2001) 1239-1241
29. Bouzelat H. Anonymat et chaînage de fichiers médicaux en vue d'études épidémiologiques. Thèse de docteur d'université spécialiste en informatique médicale. Université de Bourgogne. 1998: 97.
30. Gill L., Goldacre M., Simmons H., Bettley G., and Griffith M. Computerised linking of medical records: methodological guidelines. J. Epidemiol. Community Health 47 4 (1993) 316-319
31. Blakely T., and Salmond C. Probabilistic record linkage and a method to calculate the positive predictive value. Int. J. Epidemiol. 31 6 (2002) 1246-1252
32. Quantin C., Bouzelat H., Allaert F.A., Benhamiche A.M., Faivre J., and Dusserre L. How to ensure data security of an epidemiological follow-up: quality assessment of an anonymous record linkage procedure. Int. J. Med. Inform. 49 1 (1998) 117-122
33. Pastore G., Mosso M.L., Carnevale F., di Montezemolo L.C., Forni M., Madon E., et al. Survival trends of childhood cancer diagnosed during 1970-1994 in Piedmont, Italy: a report from the Childhood Cancer Registry. Med. Pediatr. Oncol. 36 4 (2001) 481-488
34. Viscomi S., Pastore G., Mosso M.L., Terracini B., Madon E., Magnani C., et al. Population-based analysis of survival after childhood cancer diagnosed during 1970-1998: a report from the Childhood Cancer Registry of Piedmont, Italy. Haematologica 88 9 (2003) 974-982
35. Vulliet-Tavernier S. Réflexions autour de l'anonymat dans le traitement des données de santé. Med. Droit 40 (2000) 1-4
36. Newman T.B., and Brown A.N. Use of commercial record linkage software and vital statistics to identify patient deaths. J. Am. Med. Inform. Assoc. 4 3 (1997) 233-237
37. Zigmond D.S., Ye Z., Ettner S.L., and Liu H. Linking hospital discharge and death records- accuracy and source of bias. J. Clin. Epidemiol. 57 (2004) 21-29
38. Quantin C., Binquet C., Bourquard K., Allaert F.A., Gouyon B., Ferdynus C., et al. Assesment of the discriminating power of identifiers for record linkage. Rev. Epidemiol. Sante Publique 52 5 (2004) 431-440
39. Winkler W. String comparator metrics and enhanced decision rules in the Fellegi-Sunter model or record linkage. Am Stat Assoc (1990), Proceedings of the section on Survey Research Methods, Washington DC 354-359
40. Grannis S.J., Overhage J.M., and McDonald C. Real world performance of approximate string comparators for use in patient matching. Medinfo 11 Pt1 (2004) 43-47
41. Thirion X., Sambuc R., and San-Marco J.L. Anonymity in epidemiological surveys: study and initiation of a new method. Rev. Epidemiol. Sante Publique 36 1 (1988) 36-42
42. Trouessin G., and Allaert F.A. FOIN: a nominative information occultation function. Stud. Health Technol. Inform. 43 Pt A (1997) 196-200
43. Rumeau Rouquette C. Linking of individual data. Methods of linkage. Rev. Epidemiol. Sante Publique 45 (1997) 248-256
44. Arellano M.G., and Weber G.I. Issues in identification and linkage of patient records across an integrated delivery system. J. Healthc. Inf. Manag. 12 3 (1998) 43-52
45. Quantin C., Guinot C., Tursz A., Salomez J.L., Rogier C., and Salamon R. Le traitement épidémiologique du dossier médical personnel au service des malades ?. Rev. Epidemiol. Sante Publique 54 2 (2006) 177-184