A practical instrument to expore patients' needs in palliative care: The problems and needs in palliative care questionnaire - Short version

Palliative Medicine

Volumn 21, Issue 5, 2007, Pages 391-399

  Osse, Bart H P ^a,c   Vernooij Dassen, Myrra J F J ^a   Schadé, Egbert ^b   Grol, Richard P T M ^a  

^a RADBOUD UNIVERSITY MEDICAL CENTER   (Netherlands)

^b UNIVERSITY OF AMSTERDAM   (Netherlands)

^c NONE   (Netherlands)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; CHECKLIST; CLINICAL ASSESSMENT TOOL; CRONBACH ALPHA COEFFICIENT; FEMALE; HEALTH CARE NEED; HUMAN; INSTRUMENT VALIDATION; INTERNAL CONSISTENCY; MAJOR CLINICAL STUDY; MALE; MEDICAL PRACTICE; METASTASIS; PALLIATIVE THERAPY; PATIENT CARE; PROBLEMS AND NEEDS IN PALLIATIVE CARE QUESTIONNAIRE; QUALITY OF LIFE; RELIABILITY; SELF REPORT; VALIDITY; HEALTH CARE DELIVERY; HEALTH SERVICE; METHODOLOGY; MIDDLE AGED; OUTCOME ASSESSMENT; PATIENT SATISFACTION; PROGRAM DEVELOPMENT; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; REPRODUCIBILITY; STANDARD;

ADULT; AGED; AGED, 80 AND OVER; DELIVERY OF HEALTH CARE; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; MALE; MIDDLE AGED; OUTCOME ASSESSMENT (HEALTH CARE); PALLIATIVE CARE; PATIENT SATISFACTION; PATIENT-CENTERED CARE; PROGRAM DEVELOPMENT; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS;

EID: 34547879621     PISSN: 02692163     EISSN: None     Source Type: Journal    
DOI: 10.1177/0269216307078300     Document Type: Article

References (23)

1. Sepulveda C, Marlin A, Yoshida T, Ullrich A. Palliative care: the World Health Organization's global perspective. J Pain Symptom Manage 2002; 24: 91-96.
2. Detmar SB, Aaronson NK. Quality of life assessment in daily clinical oncology practice: a feasibility study. Eur J Cancer 1998; 34: 1181-86.
3. Velikova G, Booth L, Smith AB, et al. Measuring Quality of life in routine oncology practice improves communication and patient well-being: a randomized controlled trial. J Clin Oncol 2004; 22: 714-24.
4. Osse BHP Vernooij-Dassen MJFJ, de Vree BP, Schade E, Grol RPTM. Assessment of the need for palliative care as perceived by individual cancer patients and their families: a review of instruments for improving patient participation in palliative care. Cancer 2000; 88: 900-11.
5. Bruera E, Kuehn N, Miller MJ, Selmser P, Macmillan K. The Edmonton Symptom Assessment System (ESAS): a simple method for the assessment of palliative care patients. J Palliat Care 1991; 7: 6-9.
6. Bonevski B, Sanson-Fisher R, Girgis A, Burton L, Cook P, Boyes A. Evaluation of an instrument to assess the needs of patients with cancer. Supportive Care Review Group. Cancer 2000; 88: 217-25.
7. Osse BHP, Vernooij-Dassen MJFJ, Schade E, Grol RPTM. Towards a new clinical tool for needs assessment in palliative care of cancer patients; the PNPC instrument. J Pain Symptom Manage 2004; 28: 329-41.
8. Osse BHP Vemooij-Dassen MJFJ, Schade E, Grol RPTM. The problems experienced by patients with cancer and their needs for palliative care. Support Care Cancer 2005; 13: 722-32.
9. Osse BHP, Vemooij-Dassen MJFJ, Schade E, van den Muijsenbergh METC, Grol RPTM. Problems to discuss with cancer patients in palliative care: a comprehensive approach. Patient Educ Couns 2002; 47: 195-204.
10. Baker FB. The basics of item response theory, second edition ERIC Clearinghouse on Assessment and Evaluation, University of Maryland, 2001.
11. Lohr KN. Assessing health status and quality-of-life instruments: Attributes and review criteria. Qual Life Res 2002; 11: 193-205.
12. Nunnally JC, Bernstein IH. Psychometric theory, third edition. McGraw-Hill, 1994.
13. Vernooij-Dassen MJ, Felling AJ, Brummelkamp E, Dautzenberg MGH, van den Bos GA, Grol R. Assessment of caregiver's competence in dealing with the burden of caregiving for a dementia patient: a Short Sense of Competence Questionnaire (SSCQ) suitable for clinical practice. J Am Geriatr Soc 1999; 47: 256-57.
14. Courtens AM. Characteristics of care and quality of life of patients with cancer [Kenmerken van zorg en kwaliteit van leven bij patienten met kanker] Rijksuniversiteit Limburg, 1993.
15. Mor V, Masterson Allen S, Houts P, Siegel K. The changing needs of patients with cancer at home. A longitudinal view. Cancer 1992; 69: 829-38.
16. Fayers PM, Aaronson NK, Bjordal K, Sullivan M. EORTC QLQ-C30 scoring manual. EORTC Study Group on Quality of Life, 1997.
17. Aaronson NK, Ahmedzai S, Bergman B, et al. The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology. J Natl Cancer Inst 1993; 85: 365-76.
18. Aaronson NK, Cull A, Kaasa S, Sprangers MA. The European Organization for Research and Treatment of Cancer (EORTC) modular approach to quality of life assessment in oncology; an update. In Spilker B ed. Quality of life and pharmaoeconomics in clinical trials, second edition. Lippincott-Raven, 1996: 179-89.
19. van Weel C, Konig-Zahn C, Touw-Otten FWMM, Meyboom-de Jong B. Measuring functional status with the coop/wonca charts: a manual. Noordelijk Centrum voor Gezondheidsvraagstukken, 1995.
20. Nelson E, Wasson J, Kirk J, et al. Assessment of function in routine clinical practice: description of the COOP chart method and preliminary findings. J Chronic Dis 1987; 40 (Suppl 1): 55S-69S.
21. Nelson EC, Wasson JH, Johnson DJ, Hays RD. Dartmouth COOP Functional Health Assessment Charts: brief measures for clinical practice. In: Spilker B ed. Quality of life and pharmacoeconomice in clinical trials, second edition. Lippincott-Raven, 1996: 161-68.
22. van Duijn NP, Groenier K, Schuling J. The sensitivity of the COOP charts for changes in clinical condition [De gevoeligheid van de COOP kaarten voor veranderingen van de klinische toestand]. Huisarts Wet 1995; 38: 139-44.
23. Barofsky I. Patients' rights, quality of life, and health care system performance. Qual Life Res 2003; 12: 473-84.