A proposed continuous quality improvement approach to assessment and management of patients with rheumatoid arthritis without formal joint counts, based on quantitative routine assessment of patient index data (RAPID) scores on a multidimensional health assessment questionnaire (MDHAQ)

Best Practice and Research: Clinical Rheumatology

Volumn 21, Issue 4, 2007, Pages 789-804

  Pincus, Theodore ^a   Yazici, Yusuf ^a   Bergman, Martin ^b   Maclean, Ross ^c   Harrington, Timothy ^d  

^a NYU HOSPITAL FOR JOINT DISEASES   (United States)

^b Taylor Hospital   (United States)

^c BRISTOL MYERS SQUIBB   (United States)

^d UNIVERSITY OF WISCONSIN SCHOOL OF MEDICINE AND PUBLIC HEALTH   (United States)

Author keywords

continuous quality improvement; MDHAQ; Plan Do Study Act; RAPID

Indexed keywords

CALCULATION; CLINICAL ASSESSMENT TOOL; CORRELATION ANALYSIS; DISEASE ACTIVITY; DISEASE SEVERITY; DRUG USE; HEALTH ASSESSMENT QUESTIONNAIRE; HEALTH STATUS; HUMAN; LABORATORY TEST; MEDICAL DECISION MAKING; OUTCOMES RESEARCH; PAIN ASSESSMENT; PHYSICAL PERFORMANCE; PRIORITY JOURNAL; QUALITY CONTROL; QUANTITATIVE ANALYSIS; REVIEW; RHEUMATOID ARTHRITIS; ROUTINE ASSESSMENT OF PATIENT INDEX DATA; SCORING SYSTEM; SELF REPORT; STATISTICAL SIGNIFICANCE;

ACTIVITIES OF DAILY LIVING; ARTHRITIS, RHEUMATOID; DATA COLLECTION; DISEASE PROGRESSION; HEALTH STATUS; HEALTH STATUS INDICATORS; HUMANS; MEDICAL RECORDS; PAIN MEASUREMENT; QUESTIONNAIRES;

EID: 34547535149     PISSN: 15216942     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.berh.2007.02.009     Document Type: Review

References (45)

1. Goldsmith C.H., Smythe H.A., and Helewa A. Interpretation and power of pooled index. The Journal of Rheumatology 20 (1993) 575-578
2. Pinals R.S., Masi A.T., Larsen R.A., et al. Preliminary criteria for clinical remission in rheumatoid arthritis. Arthritis and Rheumatism 24 (1981) 1308-1315
3. van der Heijde D.M.F.M., van't Hof M.A., van Riel P.L.C.M., et al. Judging disease activity in clinical practice in rheumatoid arthritis: first step in the development of a disease activity score. Annals of the Rheumatic Diseases 49 (1990) 916-920
4. van der Heijde D.M.F.M., van't Hof M., van Riel P.L.C.M., and van de Putte L.B.A. Development of a disease activity score based on judgment in clinical practice by rheumatologists. The Journal of Rheumatology 20 (1993) 579-581
5. Smolen J.S., Breedveld F.C., Schiff M.H., et al. A simplified disease activity index for rheumatoid arthritis for use in clinical practice. Rheumatology (Oxford, England) 42 (2003) 244-257
6. Aletaha D., and Smolen J. The simplified disease activity index (SDAI) and the clinical disease activity index (CDAI): a review of their usefulness and validity in rheumatoid arthritis. Clinical and Experimental Rheumatology 23 (2005) S100-S108
7. Pincus T. The DAS is the most specific measure, but a patient questionnaire is the most informative measure to assess rheumatoid arthritis. The Journal of Rheumatology 33 (2006) 834-837
8. Wolfe F., Pincus T., Thompson A.K., and Doyle J. The assessment of rheumatoid arthritis and the acceptability of self-report questionnaires in clinical practice. Arthritis Care and Research 49 1 (2003) 59-63
9. Pincus T., and Segurado O.G. Most visits of most patients with rheumatoid arthritis to most rheumatologists do not include a formal quantitative joint count. Annals of the Rheumatic Diseases 65 (2006) 820-822
10. Pincus T. Advantages and limitations of quantitative measures to assess rheumatoid arthritis: joint counts, radiographs, laboratory tests, and patient questionnaires. Bulletin of the Hospital for Joint Diseases 64 (2006) 32-39
11. Pincus T., Strand V., Koch G., et al. An index of the three core data set patient questionnaire measures distinguishes efficacy of active treatment from placebo as effectively as the American College of Rheumatology 20% response criteria (ACR20) or the disease activity score (DAS) in a rheumatoid arthritis clinical trial. Arthritis and Rheumatism 48 3 (2003) 625-630
12. Pincus T., Amara I., and Koch G.G. Continuous indices of Core Data Set measures in rheumatoid arthritis clinical trials: lower responses to placebo than seen with categorical responses with the American College of Rheumatology 20% criteria. Arthritis and Rheumatism 52 (2005) 1031-1036
13. Pincus T., Chung C., Segurado O.G., et al. An index of patient self-reported outcomes (PRO Index) discriminates effectively between active and control treatment in four clinical trials of adalimumab in rheumatoid arthritis. The Journal of Rheumatology 33 (2006) 2146-2152
14. Wells G., Li T., Maxwell L., et al. Sensitivity of measures of function and patient reported outcomes following treatment with abatacept in patients with rheumatoid arthritis. Arthritis and Rheumatism 52 (2005) S467
15. Wolfe F., Michaud K., and Pincus T. A composite disease activity scale for clinical practice, observational studies and clinical trials: the patient activity scale (PAS/PAS-II). The Journal of Rheumatology 32 (2005) 2410-2415
16. Pincus T., Bergman M., Yazici Y., et al. Rheumatoid arthritis patient index data (RAPID): performance in two abatacept clinical trials of 4 absolute indices of 2-5 core data set measures based on patient reported outcomes for use in standard clinical care. Arthritis and Rheumatism 54 (2006) S 3751
17. Berwick D.M. Sounding Board: continuous improvement as an ideal in health care. The New England Journal of Medicine 320 (1989) 53-56
18. Berwick D.M. A primer on leading the improvement of systems. British Medical Journal 312 (1996) 619-622
19. Pincus T., Yazici Y., Bergman M., et al. A proposed approach to recognise 'near remission' quantitatively without formal joint counts or laboratory tests: a patient self-report questionnaire routine assessment of patient index data (RAPID) score as a guide to a 'continuous quality improvement' strategy. Clinical and Experimental Rheumatology 24 S43 (2006) S60-S73
20. Pincus T., Gibofsky A., and Weinblatt M.E. Urgent care and tight control of rheumatoid arthritis as in diabetes and hypertension: better treatments but a shortage of rheumatologists. Arthritis and Rheumatism 46 4 (2002) 851-854
21. Fries J.F., Spitz P., Kraines R.G., and Holman H.R. Measurement of patient outcome in arthritis. Arthritis and Rheumatism 23 (1980) 137-145
22. Meenan R.F., Gertman P.M., and Mason J.H. Measuring health status in arthritis: the arthritis impact measurement scales. Arthritis and Rheumatism 23 (1980) 146-152
23. Callahan L.F., Brooks R.H., Summey J.A., and Pincus T. Quantitative pain assessment for routine care of rheumatoid arthritis patients, using a pain scale based on activities of daily living and a visual analogue pain scale. Arthritis and Rheumatism 30 (1987) 630-636
24. Pincus T., Callahan L.F., Sale W.G., et al. Severe functional declines, work disability, and increased mortality in seventy-five rheumatoid arthritis patients studied over nine years. Arthritis and Rheumatism 27 (1984) 864-872
25. Pincus T., Summey J.A., Soraci Jr. S.A., et al. Assessment of patient satisfaction in activities of daily living using a modified Stanford health assessment questionnaire. Arthritis and Rheumatism 26 (1983) 1346-1353
26. Callahan L.F., Smith W.J., and Pincus T. Self-report questionnaires in five rheumatic diseases: Comparisons of health status constructs and associations with formal education level. Arthritis Care and Research 2 (1989) 122-131
27. Pincus T., Swearingen C., and Wolfe F. Toward a multidimensional health assessment questionnaire (MDHAQ): assessment of advanced activities of daily living and psychological status in the patient friendly health assessment questionnaire format. Arthritis and Rheumatism 42 (1999) 2220-2230
28. Tugwell P., Wells G., Strand V., et al. Clinical improvement as reflected in measures of function and health-related quality of life following treatment with leflunomide compared with methotrexate in patients with rheumatoid arthritis: sensitivity and relative efficiency to detect a treatment effect in a twelve-month, placebo-controlled trial. Leflunomide rheumatoid arthritis investigators group. Arthritis and Rheumatism 43 (2000) 506-514
29. Pincus T., Yazici Y., Sokka T., et al. Methotrexate as the 'anchor drug' for the treatment of early rheumatoid arthritis. Clinical and Experimental Rheumatology 21 (2003) S179-S185
30. Pincus T., Sokka T., and Kautiainen H. Patients seen for standard rheumatoid arthritis care have significantly better articular, radiographic, laboratory, and functional status in 2000 than in 1985. Arthritis and Rheumatism 52 (2005) 1009-1019
31. Pincus T., Sokka T., and Kautiainen H. Further development of a physical function scale on a multidimensional health assessment questionnaire for standard care of patients with rheumatic diseases. The Journal of Rheumatology 32 (2005) 1432-1439
32. Mason J.H., Anderson J.J., Meenan R.F., et al. The Rapid Assessment of Disease Activity in Rheumatology (RADAR) questionnaire: validity and sensitivity to change of a patient self-report measure of joint count and clinical status. Arthritis and Rheumatism 35 (1992) 156-162
33. Stucki G., Liang M.H., Stucki S., et al. A self-administered rheumatoid arthritis disease activity index (RADAI) for epidemiologic research. Arthritis and Rheumatism 38 (1995) 795-798
34. Escalante A. What do self-administered joint counts tell us about patients with rheumatoid arthritis?. Arthritis Care and Research 11 (1998) 280-290
35. Houssien D.A., Stucki G., and Scott D.L. A patient-derived disease activity score can substitute for a physician-derived disease activity score in clinical research. Rheumatology 38 (1999) 48-52
36. Taal E., Abdel-Nasser A.M., Rasker J.J., and Wiegman O. A self-report Thompson articular index: what does it measure?. Clinical Rheumatology 17 (1998) 125-129
37. Hanly JG, Mosher D, Sutton E et al. Self-assessment of disease activity by patients with rheumatoid arthritis. The Journal of Rheumatology 23: 1531-1538.
38. Prevoo MLL, Kuper IH, van Leeuwen M et al. Validity and reproducibility of self-administered joint counts. A prospective longitudinal followup study in patients with rheumatoid arthritis. The Journal of Rheumatology 23: 841-845.
39. Voon E., Phan L., Ruttkay D., et al. Patient self-administered joint tenderness and swelling counts in RA are reliable and responsive to therapy. Arthritis and Rheumatism 40 (1997) S286
40. Hewlett S.E., Haynes J., Shepstone L., and Kirwan J.R. Rheumatoid arthritis patients cannot accurately report signs of inflammatory activity. British Journal of Rheumatology 34 (1995) 547-553
41. Stewart M.W., Palmer D.G., Knight R.G., and Highton J. A self-report articular index: relationship to variations in mood and disease activity measures. British Journal of Rheumatology 32 (1993) 631-632
42. Wolfe F. Comparative usefulness of C-reactive protein and erythrocyte sedimentation rate in patients with rheumatoid arthritis. The Journal of Rheumatology 24 (1997) 1477-1485
43. Pincus T., Yazici Y., Bergman M., et al. Simplified formats of visual analog scales for use in standard rheumatology clinical care: agreement between a 10 cm horizontal line and 21 numbered circles. Arthritis and Rheumatism 54 (2006) S345-S346
44. Pincus T., Yazici Y., and Bergman M. Saving time and improving care with a multidimensional health assessment questionnaire: 10 practical considerations. The Journal of Rheumatology 33 (2006) 448-454
45. Pincus T., and Wolfe F. Patient questionnaires for clinical research and improved standard patient care: is it better to have 80% of the information in 100% of patients or 100% of the information in 5% of patients?. The Journal of Rheumatology 32 (2005) 575-577