Sudden and unexpected health situation: From suffering to resilience

Illness Crisis and Loss

Volumn 14, Issue 4, 2006, Pages 337-354

  Lefebvre, Hélène ^a,b   Levert, Marie Josée ^a  

^a UNIVERSITÉ DE MONTRÉAL   (Canada)

^b Research Department   (Canada)

Author keywords

Adaptation; Family intervention; Grief; Health situations; Partnership; Resilience; Traumatic brain injury

Indexed keywords

EID: 34547183332     PISSN: 10541373     EISSN: 15526968     Source Type: Journal    
DOI: 10.1177/105413730601400403     Document Type: Article

References (41)

1. Blaise, J. L. (1997). Traumatisme crânien: Blessure sociale. [Traumatic brain injury: A social wound]. Handicaps et inadaptations. Les cahiers du CTNERHI, 75-76, 5-20.
2. Bouchard, J. M. (1999). Famille et savoirs à partager: Des intentions à l'action. [Family and sharing knowledge: From intentions to action]. Apprentissage et Socialisation, 19(2), 47-57.
3. Boss, P. (1999). Ambiguous loss. Cambridge, MA: Harvard University Press.
4. Brzustowski, M. (2001 ). L'annonce du handicap au grand accidenté. [Breaking the news of handicap to the accident victim]. France: Éres.
5. Cohadon, F. (2000). Sortir du coma. Paris: Odile Jacob.
6. Cohadon, F., Castel, J. P., Richer, E., Mazaux, J. M., & Loiseau, H. (2002). Les traumatismes crâniens, de l'accident à la réinsertion. Rueil-Malmaison: Arnette.
7. Cohen, M.H. (1993). The unknown and the unknowable. Managing sustained uncertainty, Western Journal of Nursing Research, 15(1), 77-96.
8. Colantonio, A., Ratcliff, G., Chase, S., Kelsey, S., Escobar, M., & Vernich, L. (2004). Long-term outcome after moderate to severe traumatic brain injury. Disability &Rhabilitation, 26(5), 253-261.
9. Cyrulnik, B. (2002). Un merveilleux malheur. [A magnificent misfortune]. Paris: Odile Jacob.
10. Dell Orto, A. E., & Power, P. W. (2000). Head injury and the family. A life living perspective. Boca Raton, Florida: Gr/St. Lucie Press.
11. Denormandie, P., & Hirsch, E. (1999). Espace éthique. Mission Handicaps. L'annonce du handicap. [Breaking the news of handicap]. Paris: Assistance publique - Hôpitaux de Paris.
12. Doka, J. C. L. (1989). Disenfranchised grief: Recognizing hidden sorrow. Toronto: Lexington Books.
13. Ergh, T. C., Hanks, R. A., Rapport, L. J., & Coleman, R. D. (2003). Social support moderates caregiver satisfaction with life following TBI. The Journal of Clinical and Experimental Neuropsychology, 25(8), 1090-1101.
14. Ergh, T. E., Rapport, L. J., Coleman, R. D., & Hanks, R. A. (2002). Predictors of distress among caregivers of patients with traumatic brain injury. Journal of Head Trauma Rehabilitation, 17(2), 155-174.
15. Fallowfield, L., & Jenkins, V. (2004). Communicating sad, bad, and difficult news in medicine, The Lancet, 363, 312-319.
16. Horowitz, R. C., Horowitz, S. H., Orsini, J., Antoine, R. L. & Hill, D. M. (1998). Including families in collaborative care. Families Systems Health, 16, 71-83.
17. Kalubi, J. C., Michallet, B., Bouchard, J. M., & Pelchat, D. (1998). Des silences et des maux: Regard sur les perceptions de parents et de médecins suite à l'annonce de la déficience motrice cérébrale. [Silences and wounds: A glance at the perceptions of parents and physicians regarding the disclosure of cerebral palsy]. In: Groupe inter-réseaux de recherche sur l'adaptation de la famille et de son environnement et Centre de réadaptation Le Bouclier, (Eds.), Innovations, apprentissages & réadaptation en déficience physique [Innovations, learning, and rehabilitation in physical deficiency] (pp. 23-32). Montréal: Isabelle Quentin Éditeur.
18. Kim, M. K., & Alvi, A. (1999). Breaking the bad news of cancer: The patient perspective, Laryngoscope, 109, 7(1), 1064-1067.
19. Koskinen, S. (1998). Quality of life 10 years after a very severe traumatic brain injury: The perspective of the injured and the closest relative. Brain Injury, 12(8), 631-648.
20. Krier, M. (1997). Les familles de traumatisés crâniens graves: Actions et représentations. [Families of person with traumatic brain injury: Actions and representations]. Handicaps et inadaptations-Les cahiers du CTNERHI, 75-76, 33-48.
21. Kübler-Ross, E. (1981). Living with death and dying. New York: Macmillan.
22. Lacroix, A., & Assal, J. P. (2003). L'éducation thérapeutique du patient. [Patients' therapeutic education], Paris: Maloine.
23. Lefebvre, H., & Levert, M. J. (2006). Breaking the news of traumatic brain injury and incapacities. Brain Injury, 20, 711-718.
24. Lefebvre, H., Pelchat, D., Swaine, B., Gélinas, I., & Levert, M.J. (2004). Le traumatisme craniocérébral suite à un accident de la route: les mots des personnes, des familles, des médecins et des professionnels. [Traumatic brain injury following a road accident: Perceptions of persons, families, physicians, and health care professionals]. Recherche en soins infirmiers, 78, 14-34.
25. Lefebvre, H., Vanier, M., Swaine, B., Dutil, E., Pépin, M., Fougeyrollas, P., Rainville, C., McColl, M. A., Dumont, C., Pelchat, D., Michallet, B., Gélinas, I., Denis, S., Morin, M., Trottier, H., & Levert, M. J. (2004). La participation sociale à long terme de personnes ayant subi un traumatisme crânien et l'impact chez les proches 10 ans post-traumatisme. [Long-term social participation of persons with traumatic brain injury and impacts on close relatives, 10 years post-trauma]. Research report, Montréal: ÉRIFAM, Université de Montréal.
26. Lucyshyn, J. M., Nixon, C., Glang, A., & Cooley, E. (1996). Comprehensive family support for behaviour change in children with ABI. In G. H. S. Singer, A. Glang, & J. M. Williams (Eds.), Children with acquired brain injury: Educating and supporting the families (pp. 99-136). Baltimore: Paul H. Brookes.
27. Madinier, P. (1997). Les familles àl'épreuve du traumatisme crânien [Families facing traumatiac brain injury]. Handicaps et inadaptations-Les cahiers du CTNERHI, 75-76, 21-32.
28. Maguire, P. (1998). Breaking bad news. European Journal of Surgical Oncology, 24, 188-199.
29. Man, D. W. K. (2002). Family caregiver's reactions and coping for persons with brain injury. Brain Injury, 16(12), 1025-1037.
30. Mazaux, J. M., & Richer, E. (1998). Rehabilitation after traumatic brain injury in adults. Disability & Rehabilitation, 20(12), 435-447.
31. McColl, M. A., Davies, D., Carlson, P., Johnson, J., & Minnes, P. (2001). The community integration measure: Development and preliminary validation. Archives of Physical Medicine and Rehabilitation, 82(4), 429-434.
32. Nolte, M.-L. (2000). Disablement, context, and quality of life after brain injury: Measuring what matters. Dissertation Abstracts International: Section B: The Sciences and Engineering, 60(9-B):4900.
33. Pelchat, D. ( 1989). Programme d 'intervention précoce auprès de parents d'un enfant ayant une déficience physique. [Early intervention programme for parents of child with physical deficiency]. Doctoral thesis (unpublished), Université de Montréal, Montréal, Canada.
34. Pelchat, D. (1995). La famille et la naissance d'un enfant ayant une déficience physique. [Family and the birth of a child with physical deficiency]. In F. Duhamel (Ed.), La santé et la famille: approche systémique en soins infirmiers [Health and the family: Systemic approach in nursing] (pp. 103-125). Montréal: Gaétan Morin.
35. Pelchat, D., & Lefebvre, H. (2005). Apprendre ensemble. Le PRIFAM, programme d'intervention interdisciplinaire et familiale. [Learning together: The PRIFAM, interdisciplinary family intervention programme]. Montréal: Chenelière McGraw-Hill.
36. Pelchat, D., Lefebvre, H., Bouchard, J. M., Kalubi. J. C., Michallet, B. & Rousseau, S. (2000). Processus de l'annonce de la déficience motrice cérébrale: expérience des parents, des professionnels et des médecins. [Disclosure of Cerebral Palsy: Parents', professionals, and physicians' experiences]. Research Report. Montréal: ÉRIFAM, Université de Montréal.
37. Ptacek, J. T., & Ellison, N. M. (2000). Healthcare providers' perspectives on breaking bad news to patients. Critical Care Nursing Quarterly, 23(2), 51-59.
38. Société de l'assurance automobile du Québec (SAAQ). (2001). Bilan routier 2001.[Road report 2001]. Québec: Gouvernement du Québec.
39. Sohlberg, M.M., McLaughlin, K.A., Todis, B., Larsen, J., & Glang, A. (2001). What does it take to collaborate with families affected by brain injury? A preliminary model. The Journal of Head Trauma Rehabilitation, 16(5), 498-511.
40. Statistiques Canada. (1999). Rapport statistique sur la santé de la population canadienne. [Statistical report on Canadian population health]. Ottawa: Gouvernement du Canada, Catalogue no 82-570-XIF.
41. St-Charles, D. (1998). La reconstruction identitaire des "proches-soignants" des personnes traumatisées craniocérébrales. [Identity reconstruction of caregivers of persons with traumatic brain injury], In J.C. Kalubi, B. Michallet, N. Korner-Bitensky, & S. Tétreault (Eds.), Innovations, apprentissages et réadaptation en déficience physique [Innovations, learning, and rehabilitation in physical deficiency]. Montréal: Isabelle Quentin Éditeur.