Community engagement: Leadership tool for catastrophic health events

Biosecurity and Bioterrorism

Volumn 5, Issue 1, 2007, Pages 8-25

  Schoch Spana, Monica ^a   Franco, Crystal ^b   Nuzzo, Jennifer B ^b   Usenza, Christiana ^b  

^a UNIVERSITY OF PITTSBURGH MEDICAL CENTER   (United States)

^b NONE

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CONSUMER; DISASTER PLANNING; EPIDEMIC; HEALTH CARE PLANNING; HUMAN; LEADERSHIP; ORGANIZATION AND MANAGEMENT; UNITED STATES;

CONSUMER PARTICIPATION; DISASTER PLANNING; DISEASE OUTBREAKS; HEALTH PLANNING GUIDELINES; HUMANS; LEADERSHIP; UNITED STATES;

EID: 34248668212     PISSN: 15387135     EISSN: None     Source Type: Journal    
DOI: 10.1089/bsp.2006.0036     Document Type: Article

References (118)

1. Sheppard G, Rubin GJ, Wardman JK, et al. Terrorism and dispelling the myth of a panic prone public. J Public Health Policy 2006;27:219-245.
2. Tierney K. The 9/11 commission and disaster management: little depth, less context, not much guidance. Contemp Sociol 2005;34(2):l 15-120.
3. Glass TA, Schoch-Spana M. Bioterrorism and the people: how to vaccinate a city against panic. Clin Infect Dis 2002;34:217-223.
4. Dynes RR. Community emergency planning: false assumptions and inappropriate analogies. Int J Mass Emerg Disasters 1994; 12(2):14l-158.
5. Schoch-Spana M, Chamberlain A, Franco C, et al. Disease, disaster, and democracy: the public's stake in health emergency planning. Biosecur Bioterror 2006;4(3):313-319.
6. Committee on Disaster Research in the Social Sciences. Facing Hazards and Disasters: Understanding Human Dimensions. Washington, DC: National Academies Press; 2006.
7. Tierney KJ, Lindell MK, Perry RW. Facing the Unexpected: Disaster Preparedness and Response in the United States. Washington, DC: Joseph Henry Press; 2001.
8. Kreps GA. Disasters, sociology of. In: Smelser NJ, Bates PB, eds. International Encyclopedia of the Social & Behavioral Sciences. Amsterdam: Elsevier Publishing Company; 2001: 3718-3721.
9. Oliver-Smith A, Huffman S, eds. The Angry Earth: Disaster in Anthropological Perspective. New York: Routledge; 1999.
10. Quarantelli EL, ed. What Is a Disaster?: Perspectives on the Question. London: Routledge; 1998.
11. Hewitt K, ed. Interpretations of Calamity: From the Viewpoint of Human Ecology. London: Alien & Unwin; 1983.
12. Lindenbaum S. Kuru, prions, and human affairs: thinking about epidemics. Annu Rev Anthropol 2001;30:363-385.
13. Farmer P. Infections and Inequalities: The Modern Plagues. Berkeley, Calif: University of California Press; 1999.
14. Ranger R, Slack P, eds. Epidemics and Ideas: Essays on the Historical Perception of Pestilence. New York: Cambridge University Press; 1992.
15. Rosenberg CE. What is an epidemic? AIDS in historical perspective. Daedalus 1989;118(2):1-17.
16. Fee E, Fox DM, eds. AIDS: The Burdens of History. Berkeley, Calif: University of California Press; 1988:33-66.
17. Perry RW. Definitions and the development of a theoretical superstructure for disaster research. In: Quarantelli EL, ed. What Is a Disaster?: Perspectives on the Question. London: Routledge; 1998:197-215.
18. Horlick-Jones T. Modern disasters as outrage and betrayal. Int J Mass Emerg Disasters 1995;13(3):305-315.
19. Quarantelli EL. Catastrophes are different from disasters: some implications for crisis planning and managing drawn from Katrina. In: Understanding Katrina: Perspectives from the Social Sciences. New York: Social Science Research Council; 2005. Available at: http:// understandingkatrina.ssrc.org/Quarantelli/. Accessed September 20, 2006.
20. Franco C, Toner E, Waldhorn R, Maidin B, O'Toole T, Inglesby TV. Systemic collapse: medical care in the aftermath of hurricane Katrina. Biosecur Bioterror 2006;4(2)135-146.
21. Brown DL. SARS takes toll on nurses. Washington Port June 12, 2003;A14.
22. Rodriguez H, Trainor J, Quarantelli EL. Rising to the challenges of a catastrophe: the emergent and prosocial behavior following Hurricane Katrina. Ann Am Acad Pol Soc Sci 2006:604:82-101.
23. Chamlee-Wright E. After the Storm: Social Capital Regrouping in the Wake of Hurricane Katrina (Global Prosperity Initiative Working Paper 70). Arlington, Va: Mercatus Center, George Mason University; August 23, 2006.
24. Kendra JM, Wachtendorf T. Elements of resilience after the World Trade Center disaster: reconstituting New York City's emergency operations centre. Disasters 2003;27(1): 37-53.
25. Wachtendorf T. Improvising 9-11: Organizational Improvisation following the World Trade Center Disaster [doctoral dissertation]. Newark, Del: Department of Sociology, University of Delaware; 2004.
26. Oshinsky DM. Polio: An American Story. New York: Oxford University Press; 2006.
27. Crosby AW. America's Forgotten Pandemic: The Influenza of 1918. New York: Cambridge University Press; 2003.
28. Jonsen AR, Stryker J, eds. The Social Impact of AIDS in the United States. Washington, DC: National Academy Press; 1993.
29. Fothergill A, Maestas E, Darlington JD. Race, ethnicity and disasters in the United States: a review of the literature. Disasters 1999;23(2):156-173.
30. Fothergill A, Peek LA. Poverty and disaster in the United States: a review of recent sociological findings. Natural Hazards 2004;32(1):89-110.
31. Klinenberg E. Heat Wave: A Social Autopsy of Disaster in Chicago. Chicago, 111: University of Chicago Press; 2002.
32. Zarrella J, et al. Hurricane that wrecked Galveston was the deadliest in U.S. history. CAW September 8, 2000. Available at: http://edition.cnn.com/2000/ WEATHER/09/07/ galveston.backgrounder/index.html. Accessed September 30, 2006.
33. Brinkley D. The Great Deluge: Hurricane Katrina, New Orleans, and the Mississippi Gulf Coast. New York: William Morrow & Company; 2006.
34. The White House. The Federal Response to Hurricane Katrina; Lessons Learned. Washington, DC: The White House; Feb 2006.
35. O'Connor D, Gates CT. Toward a healthy democracy. Public Health Rep 2000; 115:157-160.
36. Islamoglu H. Civil society, concept and history of. In: Smelser NJ, Bates PB, eds. International Encyclopedia of the Social & Behavioral Sciences. Amsterdam: Elsevier Publishing Company; 2001:1891-1897.
37. Calhoun C. Civil society/public sphere: history of the concept. In: Smelser NJ, Bates PB, eds. International Encyclopedia of the Social & Behavioral Sciences. Amsterdam: Elsevier Publishing Company; 2001:1897-1903.
38. Chu S. Who will tell the people? Pandemic risk communication in the internet age. Paper presented at: the National Academies Disaster Roundtable, Citizen Engagement in Emergency Planning for a Flu Pandemic; October 23, 2006; Washington, DC.
39. Norma Anderson, Executive Director, Salon Voices, Washington, DC; personal communication, August 25, 2006.
40. Collaborating Agencies Responding to Disasters. Available at: http://www.firstvictims.org/whoweare,html, Accessed October 17, 2006.
41. Kolb SE. Ministerio de Salud: development of a mission driven partnership for addressing health disparities in a Hispanic community, J Multicultural Nursing & Health 2003;Fall.
42. The Public Engagement Project on Community Control Measures for Pandemic Influenza-National Stakeholder Meeting. Washington, DC; November 29-30, 2006. For background on this project and its reports, see http://www. keystone.org/Public_Policy/pandemic_control.html. Accessed on January 18, 2007.
43. Carol Jordan, RN, MPH, Director of Communicable Disease, Epidemiology and Public Health Emergency Preparedness in Montgomery County, Maryland; personal communication, November 15, 2006.
44. Peterson K. A bayou community's cultural and physical survival before and after Katrina. Presentation at: Disease, Disaster and Democracy, May 23, 2006, Washington, DC, Available at: http://www.upmc-biosecurity.org/website/ events/2006_disease-disaster-democ/speakers/peterson/ transcript.html. Accessed December 10, 2006.
45. Leavitt JW. Public resistance or cooperation? A tale of smallpox in two cities. Biosecur Bioterror 2003;1(3):185-192.
46. Mangan KS. Fate of the castaways: group tallies where 18,000 students displaced by Katrina ended up. Chron High Educ November 16, 2005. Available at: http:// chronicle.com/daily/2005/11/2005111603n.htm. Accessed February 27, 2007.
47. Freitag R. The impact of Project Impact on the Nisqually earthquake. Natural Hazards Observer 2001;25(5).
48. Arrietta Chakos, Assistant City Manager, City of Berkeley, Calif; personal communication, November 15, 2006.
49. Ann Patron, former director Tulsa Project Impact; personal communication, November 24, 2006.
50. Stephen B. Thomas, PhD, Principal Investigator, The Healthy Black Family Project, a program of the Center for Minority Health in the Graduate School of Public Health at the University of Pittsburgh; personal communication, November 15, 2006.
51. Onora Lien, MA, Mass Fatality Planner, Seattle/King County Health Department; personal communication, December 10, 2006.
52. Chatigny E. Public involvement at the Public Health Agency of Canada. Presentation at: the National Academies Disaster Roundtable, Citizen Engagement in Emergency Planning for a Flu Pandemic; Washington, DC; October 23, 2006.
53. Schoch-Spana M. Educating, informing and mobilizing the public. In: Levy B, Sidel V, eds. Terrorism and Public Health. New York: Oxford University Press; 2003:118-135.
54. Steury S, Spencer S, Parkinson GW. The social context of recovery. Psychiatry 2004;67(2): 158-163.
55. Rowe G, Frewer LJ. A typology of public engagement mechanisms. Sci Technol Human Values 2005:30(2): 251-290.
56. Health Canada, Corporate Consultation Secretariat, Health Policy and Communications Branch. Health Canada Policy Toolkit for Public Involvement in Decision Making. Ottawa: Minister of Public Works and Government Services Canada; 2000.
57. Webler T. The craft and theory of public participation: a dialectical process. Journal of Risk Research 1999;2(1):55-71.
58. Arnstein SR. A ladder of citizen participation. J Am Inst Plann 1969;35:216-224.
59. American Red Cross. Be Prepared-American Red Cross Preparedness Information. Available at: http://www.redcross. org/services/disastet/0, 1082,0_500_,00.html. Accessed October 15, 2006.
60. U.S. Department of Homeland Security. http://www. ready.gov/. Accessed October 15, 2006.
61. Vanderford ML. Breaking new ground in WMD risk communication: the pre-event message development project. Biosecur Bioterror 2004;2(3): 193-194.
62. Hajer MA, Wagenaar H, eds. Deliberative Policy Analysis: Understanding Governance in the Network Society. New York: Cambridge University Press; 2003.
63. Forester J. The Deliberative Practitioner; Encouraging Participatory Planning Processes, Cambridge, Mass: MIT Press; 1999.
64. Beierle TC, Cayford J. Democracy in Practice: Public Participation in Environmental Decisions. Washington, DC: Resources for the Future; 2002.
65. Depoe SP, Delicath JW, Elsenbeer MA, eds. Communication and Public Participation in Environmental Decisionmaking. Albany, NY: State University of New York Press; 2004.
66. Morgan LM. Community participation in health: perpetual allure, persistent challenge. Health Policy Plan 2001; 16(3): 221-230.
67. Butterfoss FD. Process evaluation for community participation. Annu Rev Public Health 2006;27:323-340.
68. Roussos ST, Fawcett SB. A review of collaborative partnerships as a strategy for improving community health. Annu Rev Public Health 2000;21:369-402.
69. Chambers S. Deliberative democracy theory. Annu Rev Polit Sci 2003;6:307-326.
70. Ryfe DM. Does deliberative democracy work? Annu Rev Polit Sci 2005;8:49-71.
71. st Century. San Francisco, Calif: Jossey-Bass; 2005.
72. Rowe G, Frewer LJ. Public participation methods: a framework for evaluation. Sci Technol Human Values 2000;25(1): 3-29.
73. Perrin AJ. Citizen Speak: The Democratic Imagination in American Life. Chicago, Ill: Chicago University Press; 2006.
74. Markus GB. Micropolitics and macropolitics of public participation in environmental assessment and decision making. Background paper for the NAS/NRC Panel on Public Participation in Environmental Assessment and Decision Making; Washington, DC; April 7-8, 2004. Available at: http://qp.nas.edu/QuickPlace/ publicparticipation/Main.nsf /h_Toc/lDF1DAA90EE8333985256E4C006557AF/ ?OpenDocument. Accessed September 15, 2006.
75. Light PC. The Katrina Effect on American Preparedness. New York: New York University Center for Catastrophe Preparedness and Response; November 2006. Available at: http://www.nyu.edu/ccpr/katrina-effect.pdf. Accessed December 11, 2006.
76. American Association for Retired Persons. AARP offers tips to help older Americans prepare for emergencies [news release]. September 6, 2006. Available at: http://www.aarp. org/research/presscenter/presscurrentnews/preparing_for_ emergencies.html. Accessed October 17, 2006.
77. Gursky E. Progress and Peril: Bioterrorism Preparedness Dollars and Public Health. Washington, DC: Century Foundation; 2003.
78. Putnam R. Bowling Alone: The Collapse and Revival of American Community. New York: Simon & Schuster; 2000.
79. Skocpol T. Diminished Democracy; From Membership to Management in American Civic Life. Norman, Okla: University of Oklahoma Press; 2003.
80. Theiss-Morse E, Hibbing JR. Citizenship and civic engagement. Annu Rev Polit Sci 2005;8:227-249.
81. Delli Carpini MX, Cook FL, Jacobs LR. Public deliberation, discursive participation, and citizen engagement. Annu Rev Polit Sci 2004;7:315-344.
82. Hibbing JR, Theiss-Morse E. Stealth Democracy: American 's Beliefs about How Government Should Work. Cambridge, UK: Cambridge University Press; 2002.
83. Eliasoph N. Avoiding Politics: How Americans Produce Apathy in Everyday Life. Cambridge, UK: Cambridge University Press; 1999.
84. Hibbing JR, Theiss-Morse E. Process preferences and American politics: what the people want government to be. Am Polit Sci Rev 2001;95(1):145-153.
85. Multihazard Mitigation Council. Natural Hazard Mitigation Saves: An Independent Study to Assess the Future Savings from Mitigation Activities. Washington, DC: National Institute of Building Sciences; 2005.
86. Fetterman M. Corporate muscle is brought to bear on national disaster planning. USA Today October 12, 2006. Available at: http://www.usatoday. com/money/companies/ management/2006-10-11 -disaster-planningjc.htm. Accessed December 7, 2006.
87. Herbert S. The trapdoor of community. Ann Assoc Am Geogr 2005;95(4):850-865.
88. Cooke B, Kothari U, eds. Participation: The New Tyranny? London: Zed Books; 2001.
89. Wilson M, Weltman E. Government's job. In: Sabel C, Fung A, Karkkainen B, eds. Beyond Backyard Environmentalism. Boston, Mass: Beacon Press; 2000:49-53.
90. Zakus JDL. Resource dependency and community participation in primary health care. Soc Sci Med 1997;46(4-5): 475-494.
91. Corburn J, Street Science: Community Knowledge and Environmental Health Justice. Cambridge, Mass: MIT Press; 2005.
92. Beierle TC. The quality of stakeholder-based decisions, Risk Analysis 2002;22(4):739-749.
93. Buck DA, Trainor JE, Aguirre BE. A critical evaluation of the incident command system and NIMS. Journal of Homeland Security & Emergency Management 2006;3(3). Available at: http://www.bepress.com/cgi/viewcontent. cgi?article= 1252&context=jhsem. Accessed December 10, 2006.
94. May PJ. Reconsidering policy design: policies and publics. / Public Policy 1990; 11:187-206.
95. Birkland TA. Natural disasters as focusing events: policy communities and political response. Int J Mass Emerg Disaster? 1996;14(2):221-243.
96. Bingham G. When the Sparks Fly: Building Consensus When the Science Is Contested. Washington, DC: RESOLVE; 2003.
97. Verba S, Scholzman KL, Brady HE. Voice and Equality: Civic Voluntarism in American Politics. Cambridge, Mass: Harvard University Press; 1995.
98. Bullard RD, ed. Unequal Protection: Environmental Justice and Communities of Color. San Francisco: Sierra Club; 1994.
99. Schudson M. Why conversation is not the soul of democracy. Crit Stud Mass Commun 1997;14(4):297-309.
100. Reissman DB, Watson PJ, Klomp RW, et al. Pandemic influenza preparedness: adaptive responses to an evolving challenge. Journal of Homeland Security and Emergency Management 2006;3(2). Available at: http://www.bepress. com/jhsem/vol3/iss2/13/.
101. Public Engagement Pilot Project on Pandemic Influenza. Citizen Voices on Pandemic Flu Choices: A Report of the Public Engagement Pilot Project on Pandemic Influenza. December 2005. Available at http://ppc.unl.edu/ publications/ documents/PEPPPI_FINALREPORT_DEC_2005.pdf. Accessed February 27, 2007.
102. Cetron M. Presentation at: CDC meeting on community mitigation strategies for pandemic influenza consultants meeting; Atlanta, Georgia; June 14, 2006.
103. National Association of County and City Health Officials. Local Health Department Guide to Pandemic Influenza Planning. Washington, DC: NACCHO; 2006. Available at: http://www.naccho.org/topics/infectious/influenza/documents/ NACCHOPanFluGuideforLHDsII.pdf. Accessed September 10, 2006.
104. Inglesby TV, Nuzzo JB, O'Toole T, Henderson DA. Disease mitigation measures in the control of pandemic influenza. Biosecur Bioterror 2006;4(4):366-375.
105. Barbera J, Macintyre A, Gostin L, et al. Large-scale quarantine following biological terrorism in the United States: scientific examination, logistic and legal limits, and possible consequences. JAMA 2001 Dec 5;286(21):2711-2717.
106. DiGiovanni C, Conley J, Chiu D, Zaborski J. Factors influencing compliance with quarantine in Toronto during the 2003 SARS outbreak. Biosecur Bioterror 2004;2(4):265-272.
107. Blendon RJ, DesRoches CM, Cetron MS, et al. Attitudes toward the use of quarantine in a public health emergency in four countries. Health Aff 2006 Mar-Apr;25(2): 15-25.
108. Lovell V. No Time To Be Sick: Why Everyone Suffers When Workers Don't Have Paid Sick Leave. Washington, DC: Institute for Women's Policy Research; May 2004. Available at: http://www.iwpr.org/pdf/B242.pdf. Accessed April 25, 2006.
109. In the case of an outbreak of pandemic flu, large majority of Americans willing to make major changes in their lives [press release], Cambridge, Mass: Harvard School of Public Health; October 26, 2006. Available at: http://www. hsph.harvard.edu/press/releases/press 10262006.html. Accessed October 27, 2006.
110. U.S. Department of Agriculture. Food and Nutrition Service Data. Available at: http://www.fns.usda.gov/pd/cnpmain. htm. Accessed June 27, 2006.
111. Toner E, Waldhorn R, Maidin B, et al. Hospital preparedness for pandemic influenza. Biosecur Bioterror 2006;4(2): 207-217.
112. Rubinson L, Nuzzo JB, Talmor DS, et al, Augmentation of hospital critical care capacity after bioterrorist attacks or epidemics: recommendations of the Working Group on Emergency Mass Critical Care. Crit Care Med 2005 Oct;33(10): 2393-2403.
113. Doctor accused of murder in Katrina hospital deaths says she's innocent. Associated Press September 21, 2006. Available at: http://www.iht.com/ articles/ap/2006/09/21/america/ NA_GEN_US_Katrina_Hospital_Deaths.php. Accessed September 22, 2006.
114. John Fitch, Senior Vice President, National Funeral Directors Association; personal communication, August 2006.
115. Iserson KV. Death to Dust: What Happens to Dead Bodies? 2d ed. Tucson, Ariz: Galen Press; 2001.
116. Lobar SL, Youngblut JM, Brooten D. Cross cultural beliefs, ceremonies, and rituals surrounding death of a loved one. Pediatr Nurs 2006;32(1):44-50.
117. Pan American Health Organization (PAHO). Management of Dead Bodies in Disaster Situations. Washington, DC: PAHO; 2004.
118. Blakeney RA. Providing relief to families after a mass fatality: roles of the medical examiner's office and the family assistance center. Bulletin - US Department of Justice, Office for Victims of Crime, November 2002.