Validation of a self-administered, computerized tool for collecting and displaying the family history of cancer

Journal of Clinical Oncology

Volumn 24, Issue 34, 2006, Pages 5395-5402

  Acheson, Louise S ^a   Zyzanski, Stephen J ^a   Stange, Kurt C ^a   Deptowicz, Amy ^a   Wiesner, Georgia L ^a  

^a CASE WESTERN RESERVE UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; AUTOMATION; BREAST CANCER; CANCER PATIENT; CANCER RISK; COMPUTER SYSTEM; CONTROLLED STUDY; FAMILY HISTORY; FEMALE; GENETIC COUNSELING; GENETIC RISK; HUMAN; INTERVIEW; MAJOR CLINICAL STUDY; MALE; PEDIGREE; PRIORITY JOURNAL; QUESTIONNAIRE; RISK ASSESSMENT; TELEPHONE; VALIDATION STUDY; ANAMNESIS; COMPUTER PROGRAM; EVALUATION; GENETICS; HEALTH SURVEY; INFORMATION PROCESSING; INSTRUMENTATION; MEDICAL RECORD; METHODOLOGY; NEOPLASM;

DATA COLLECTION; DATA DISPLAY; FEMALE; HUMANS; MALE; MEDICAL HISTORY TAKING; MEDICAL RECORDS SYSTEMS, COMPUTERIZED; NEOPLASMS; PEDIGREE; POPULATION SURVEILLANCE; QUESTIONNAIRES; SOFTWARE; SOFTWARE DESIGN;

EID: 34247191198     PISSN: 0732183X     EISSN: None     Source Type: Journal    
DOI: 10.1200/JCO.2006.07.2462     Document Type: Article

References (46)

1. Kutner SE: Breast cancer genetics and managed care. Cancer 86:2570-2574, 1999 (suppl)
2. Burke W: Taking family history seriously. Ann Intern Med 143:388-389, 2005
3. US Preventive Services Task Force: Genetic risk assessment and BRCA mutation testing for breast and ovarian cancer susceptibility: Recommendation and statement. Ann Intern Med 143:355-361, 2005
4. Whittemore AS: Genetically tailored preventive strategies: An effective plan for the twenty-first century? Cancer Epidemiol Biomarkers Prev 8:649-658, 1999
5. Rubinstein W, O'Neill S, Peters JA, et al: Mathematical modeling for breast cancer risk assessment: State of the art and role in medicine. Oncology (Williston Park) 16:1082-1094, 2002
6. Acheson L, Stange K, Zyzanski S: Clinical genetics issues encountered by family physicians. Genet Med 7:501-508, 2005
7. Carroll J, Brown J, Blaine S, et al: Genetic susceptibility to cancer: Family physicians' experience. Can Fam Physician 49:45-52, 2003
8. Emery J, Watson E, Rose P, et al: A systematic review of the literature exploring the role of primary care in genetic services. Fam Pract 16:426-445, 1999
9. House W, Sharp D, Sheridan E: Identifying and screening patients at high risk of colorectal cancer in general practice. J Med Screen 6:205-208, 1999
10. Leggatt V, MacKay J, Yates J: Evaluation of questionnaire on cancer family history in identifying patients at increased risk in general practice. BMJ 319:757-758, 1999
11. Frezzo TM, Rubenstein WS, Dunham D, et al: The genetic family history as a risk assessment tool in internal medicine. Genet Med 2003:584-91, 2003
12. Gould RL, Lynch HT, Smith RA, et al: Cancer and Genetics: Answering Your Patient's Questions: A Manual for clinicians and their patients. Huntington, NY, American Cancer Society, 1997
13. American Society of Clinical Oncology. Cancer Genetics and Cancer Predisposition Testing. Alexandria, VA, American Society of Clinical Oncology; 1998
14. Rogers J, Durkin M: The semi-structured genogram interview: I. Protocol, II - Evaluation. Family Systems Medicine 2:176-188, 1984
15. Rogers JC, Rohrbaugh M: The SAGE-PAGE trial: Do family genograms make a difference? J Am Board Fam Pract 4:319-326, 1991
16. Stange KC, Zyzanski SJ, Jaen CR, et al: Illuminating the 'Black Box': A description of 4454 patient visits to 138 family physicians. J Fam Pract 46:377-389, 1998
17. Mechanic D, McAlpine D, Rosenthal M: Are patients' office visits with physicians getting shorter? N Engl J Med 344:198-204, 2001
18. Yarnall K, Pollack K, Ostbye T, et al: Primary care: Is there enough time for prevention? Am J Public Health 93:635-641, 2003
19. Medalie JH, Zyzanski SJ, Langa D, et al: The family in family practice: Is it a reality? J Fam Pract 46:390-396, 1998
20. Acheson LS, Wiesner GL, Zyzanski SJ, et al: Family history-taking in community family practice: Implications for genetic screening. Genet Med 2:180-185, 2000
21. Church J, McGannon E: Family history of colorectal cancer: How often and how accurately is it recorded? Dis Colon Rectum 43:1540-1544, 2000
22. Sweet K, Bradley T, Westman J: Identification and referral of families at high risk for cancer susceptibility. J Clin Oncol 20:528-537, 2002
23. Emery J, Walton R, Coulson A, et al: Computer support for recording and interpreting family histories of breast and ovarian cancer in primary care (RAGS): Qualitative evaluation with simulated patients. BMJ 319:32-36, 1999
24. Emery J, Walton R, Murphy M, et al: Computer support for interpreting family histories of breast and ovarian cancer in primary care: Comparative study with simulated cases. BMJ 321:28-32, 2000
25. Westman J, Hampel H, Bradley T: Efficacy of a touchscreen computer based family cancer history questionnaire and subsequent cancer risk assessment. J Med Genet 37:354-360, 2000
26. Acheson L: Fostering applications of genetics in primary care: What will it take? Genet Med 5:63-65, 2003
27. Hampel H, Sweet K, Westman J, et al: Referral for cancer genetics consultation: A review and compilation of risk assessment criteria. J Med Genet 41:81-91, 2004
28. Emmons K, Wong M, Puleo E, et al: Tailored computer-based cancer risk communication: Correcting colorectal cancer risk perception. J Health Commun 9:127-141, 2004
29. Emery J: The GRAIDS Trial: The development and evaluation of computer decision support for cancer genetic risk assessment in primary care. Ann Hum Biol 32:218-227, 2005
30. Shabo A, Hughes K: Family history information exchange services using HL7 clinical genomics standard specifications. Int J Semantic Web Information Syst 2005:142-65, 2005
31. Gail MH, Brinton LA, Byar DP, et al: Projecting individualized probabilities of developing breast cancer for white females who are being examined annually. J Natl Cancer Inst 81:1879-1886, 1989
32. Euhus D: Understanding mathematical models for breast cancer risk assessment and counseling. Breast J 7:224-232, 2001
33. Wideroff L: The Connecticut family history of cancer validation study: Methodologic and analytic issues. Presented at Family History Tools to Improve the Public's Health, Atlanta, GA, November 17, 2005
34. Ziogas A, Anton-Culver H: Validation of family history data in cancer family registries. Am J Prev Med 24:190-198, 2003
35. Grant D: Developing a family history module - California Health Interview Survey. Presented at Family History Tools to Improve the Public's Health, Atlanta, GA, November 17, 2005
36. Sweet K: Cancer risk assessment and pattern recognition - JamesLink. Presented at Family History Tools to Improve the Public's Health, Atlanta, GA, November 17, 2005
37. Hampton T: Family health history. JAMA 294: 3075, 2005
38. Stein C: Evaluating prevention messages - Your Disease risk. Presented at Family History Tools to Improve the Public's Health, Atlanta, GA, November 17, 2005
39. Jorgensen C: Developing and testing health messages - Family Healthware. Presented at Family History Tools to Improve the Public's Health, Atlanta, GA, November 17, 2005
40. Cohn W: Health Heritage (HH) a Web-based family health history tool. Presented at Family History Tools to Improve the Public's Health, Atlanta, GA, November 17, 2005
41. Braithwaite D, Sutton S, Mackay J, et al: Development of a risk assessment tool for women with a family history of breast cancer. Cancer Detect Prev 29:433-439, 2005
42. O'Neill S: Communicating familial risk - My-Generations. Presented at Family History Tools to Improve the Public's Health, Atlanta, GA, November 17, 2005
43. Hughes K: Breast/ovarian cancer risk assessment tool (AVON). Presented at Family History Tools to Improve the Public's Health, Atlanta, GA, November 17, 2005
44. Euhus D, Smith K, Robinson L, et al: Pretest prediction of BRCA1 or BRCA2 mutation by risk counselors and the computer model BRCAPRO. J Natl Cancer Inst 94:844-851, 2002
45. Scheuner MT, Wang SJ, Raffel LJ, et al: Family history: A comprehensive genetic risk assessment method for the chronic conditions of adulthood. Am J Med Genet 71:315-324, 1997
46. Rich E, Burke W, Heaton C, et al: Reconsidering the family history in primary care. J Gen Intern Med 19:273-280, 2004