Boundary ambiguity in parents with chronically Ill children: Integrating theory and research

Family Relations

Volumn 56, Issue 2, 2007, Pages 123-134

  Berge, Jerica M ^a   Holm, Kristen E ^b  

^a UNIVERSITY OF MINNESOTA   (United States)

^b NATIONAL JEWISH MEDICAL AND RESEARCH CENTER   (United States)

Author keywords

Boundary ambiguity; Child chronic health conditions; Childhood illness; Contextual model of family stress

Indexed keywords

EID: 33947615197     PISSN: 01976664     EISSN: 17413729     Source Type: Journal    
DOI: 10.1111/j.1741-3729.2007.00446.x     Document Type: Article

References (48)

1. Andersen, S. M., & Schwartz, A. H. (1992). Intolerance of ambiguity and depression: A cognitive vulnerability factor linked to hopelessness. Social Cognition, 10, 271-298.
2. Berge, J. M., & Patterson, J. (2004). Cystic fibrosis and the family: A review and critique of the literature. Families, Systems & Health, 22(1), 74-100.
3. Berge, J. M, Patterson, J. M., & Rueter, M. (2006). Marital satisfaction and mental health of couples with children with chronic health conditions. Families, Systems & Health, 24(3), 267-285.
4. Boss, P. (1999). Ambiguous loss. Cambridge, MA: Harvard University Press.
5. Boss, P. (2002). Family stress management: A contextual approach (2nd ed.). Thousand Oaks, CA: Sage.
6. Boss, P. (2004). Ambiguous loss research, theory, and practice: Reflections after 911]. Journal of Marriage and Family, 66, 551-566.
7. Boss, P. (2006). Loss, trauma, and resilience: Therapeutic work with ambiguous loss. New York: W.W. Norton.
8. Boss, P., Caron, W., Horbal, J., & Mortimer, J. (1990). Predictors of depression in caregivers of dementia patients: Boundary ambiguity and mastery. Family Process, 29, 245-254.
9. Boss, P., & Couden, B. A. (2002). Ambiguous loss from chronic physical illness: Clinical interventions with individuals, couples, and families. Journal of Clinical Psychology, 58, 1351-1360.
10. Boss, P., & Greenberg, J. (1984). Family boundary ambiguity: A new variable in family stress theory. Family Process, 23, 535-546.
11. Boss, P. G., Greenberg, J. R., & Pearce-McCall, D. (1990). Measurement of boundary ambiguity in families (Station Bulletin 593-1990). University of Minnesota, Minnesota Agricultural Experiment Station, St. Paul, MN.
12. Clark, S. M., & Miles, M. S. (1999). Conflicting responses: The experiences of fathers of infants diagnosed with severe congenital heart disease. Journal of the Society of Pediatric Nurses, 4(1), 7-14.
13. Cohen, M. S. (1999). Families coping with childhood chronic illness: A research review. Families, Systems dr Health, 17(2), 149-164.
14. Davidoff, A. J. (2004). Identifying children with special health care needs in the National Health Interview Survey: A new resource for policy analysis. Health Services Research, 39(3), 53-71.
15. Davis, C. C., Brown, R. T., Bakeman, R., & Campbell, R. (1998). Psychological adaptation and adjustment of mothers of children with congenital heart disease: Stress, coping and family functioning. Journal of Pediatric Psychology, 23, 219-228.
16. Eddy, M. E., Carter, B. D., Kronenberger, W. G., Conradsen, S., Eid, N. S., Bourland, S. L., Adams, G. (1998). Parent relationships and compliance in cystic fibrosis. Journal of Pediatric Health Care, 12(4), 196-202.
17. Gartstein, M. A., Short, A. D., Vannatta, K., & Noll, R. B. (1999). Psychosocial adjustment of children with chronic illness: An evaluation of three models. Journal of Developmental and Behavioral Pediatrics, 20(3), 157-163.
18. Hymovich, D. P., & Baker, C. D. (1985). The needs, concerns and coping of parents of children with cystic fibrosis. Family Relations, 34(1), 91-97.
19. Kaplan, L., & Boss, P. (1999). Depressive symptoms among spousal caregivers of institutionalized mates with Alzheimer's: Boundary ambiguity and mastery as predictors. Family Process, 38(1), 85-103.
20. Khan, R. L., Wolfe, D., Quinn, R., Snoek, J. D., & Rosenthal, R. (1964). Organizational stress; Studies in role conflict and role ambiguity. New York John Wiley & Sons.
21. Mastroyannopoulou, K., Stallard, P., Lewis, M., & Lenton, S. (1997). The impact of childhood non-malignant life-threatening illness on parents: Gender differences and predictors of parental adjustment. Journal of Child Psychology And Psychiatry, and Allied Disciplines, 38, 823-829.
22. McLain, D. L. (1993). The MSTAT-I: A new measure of an individual's tolerance for ambiguity. Educational and Psychological Measurement, 53, 183-189.
23. Moos, R. H., & Moos, B. S. (1986). Family Environment Scale Manual (2nd ed.). Palo Alto, CA: Consulting Psychologists Press.
24. Mu, P., Kuo, H., & Chang, K. (2005). Boundary ambiguity, coping patterns and depression in mothers caring for children with epilepsy in Taiwan. International Journal of Nursing Studies, 42, 273-282.
25. Mu, P., Ma, F., Ku, S., Shu, H., Hwang, B., & Kuo, B. I. (2001). Families of Chinese children with malignancy: The factors impact on mother's anxiety. Journal of Pediatric Nursing, 16,287-295.
26. Mu, P., & Tomlinson, P. (1997). Parental experience and meaning construction during a pediatric health crisis. Western Journal of Nursing Research, 19, 608-636.
27. Mu, P., Wong, T., Chang, K., & Kwan, S. (2001). Predictors of maternal depression for families having a child with epilepsy. Journal of Nursing Research, 5(4), 116-126.
28. Nagy, S., & Ungerer, J. A. (1990). The adaptation of mothers and fathers to children with cystic fibrosis: A comparison. Children's Health Care, 19(3), 147-154.
29. Newacheck, P. W., Strickland, B., Shonkoff, J. P., Perrin, J. M., McPherson, M., McManus, M., Lauver, C., Fox, H., and Arango, P. (1998). An epidemiologic profile of children with special health care needs. Pediatrics, 102(1), 117-123.
30. Norton, R. W. (1974). Measurement of ambiguity tolerance. Journal of Personality Assessment, 39, 607-619.
31. Olson, D. H., Portner, J., & Lavee, Y. (1985). FACES III, St. Paul: University of Minnesota, Family Social Science.
32. Palmer, M. L., & Boisen, L. S. (2002). Cystic fibrosis and the transition to adulthood. Social Work in Health Care, 36, 45-58.
33. Pearlin, L. I., & Schooler, C. (1978). The structure of coping. Journal of Health and Social Behavior, 19(1), 2-21.
34. Perrin, E. C., Newacheck, P., Pless, B., Drotar, D., Gortmaker, S. L., Leventhal, ]., et al. (1993). Issues involved in the definition and classification of chronic health conditions. Pediatrics, 91, 787-793.
35. Phillips, S., Bohannon, W. E., Gayton, W. F., & Friedman, S. B. (1985). Parent interview findings regarding the impact of cystic fibrosis on families. Developmental and Behavioral Pediatrics, 6(3), 122-127.
36. Quittner, A. L., DiGirolamo, A. M., Michel, M., & Eigen, H. (1992). Parental response to cystic fibrosis: A contextual analysis of the diagnosis phase. Journal of Pediatric Psychology, 17, 683-704.
37. Quittner, A. L., Espelage, D. L., Opipari, L. C., Carter, B., Eid, N., & Eigen, H. (1998). Role strain in couples with and without a child with a chronic illness: Associations with marital satisfaction, intimacy, and daily mood. Health Psychology, 17(1), 112-124.
38. Reiss, D. (1971). Varieties of consensual experience. Family Process, 10(1), 1-35.
39. Rolland, J. S. (1994). Families, illness, and disability. New York: Basic Books.
40. Skinner, H. A., Steinhauer, P. D., & Santa-Barbara, J. (1983). Family assessment measure. Canadian Journal of Community Mental Health, 2(2), 91-105.
41. Spanier, G. B. (1976). Measuring dyadic adjustment: New scales for assessing the quality of marriage and similar dyads. Journal of Marriage and the Family, 38(1), 15-28.
42. Stein, R. E. K., Bauman, L. J., Westbrook, L. E., Coupley, S. M., & Ireys, T. (1993). Framework for identifying children who have chronic conditions: The case for a new definition. The Journal of Pediatrics, 122, 342-347.
43. Thompson, R. J., Gil, K. M., Gustafson, K. E., George, L. K., Keith, B. R., Spock, A., & Cohen, M. (1994). Stability and change in the psychological adjustment of mothers of children and adolescents with cystic fibrosis and sickle cell disease. Journal of Pediatric Psychology, 19(2), 171-188.
44. Tomlinson, P. S., & Harbaugh, B. L. (2004). Assessing ambiguity at the family-nurse boundary interface in pediatric health crisis. Journal of Pediatric Nursing, 19, 399-410.
45. Tomlinson, P. S., Swiggum, P., & Harbaugh, B. L. (1999). Identification of nurse-family intervention sites to decrease health-related family boundary ambiguity in PICU. Issues in Comprehensive Pediatric Nursing, 22(1), 27-47.
46. Turner, M. A., Tomlinson, P. S., & Harbaugh, B. L. (1990). Parental uncertainty in critical care hospitalization of children. Maternal-Child Nursing Joumal, 19(1), 45-62.
47. Van Dyck, P. C., Kogan, M. D., McPherson, M. G., Weissman, G. R., & Newacheck, P. W. (2004). Prevalence and characteristics of children with special health care needs. Archives of Pediatrics & Adolescent Medicine, 158, 884-890.
48. Walker, L. S., Van Slyke, D. A., & Newbrough, J. R. (1992). Family resources and stress: A comparison of families of children with cystic fibrosis, diabetes and mental retardation. Journal of Pediatric Psychology, 17, 327-343.