Validity and reliability of the Portuguese version of the quality of life in epilepsy inventory (QOLIE-31) for Brazil

Epilepsy and Behavior

Volumn 10, Issue 2, 2007, Pages 234-241

  da Silva, Tatiana Indelicato ^a   Ciconelli, Rozana Mesquita ^a   Alonso, Neide Barreira ^a   Azevedo, Auro Mauro ^a   Westphal Guitti, Ana Carolina ^a   Pascalicchio, Tatiana Frascarelli ^a   Marques, Carolina Mattos ^a   Caboclo, Luís Otávio Sales Ferreira ^a   Cramer, Joyce A ^b   Sakamoto, Américo Ceiki ^a   Yacubian, Elza Márcia Targas ^a  

^a FEDERAL UNIVERSITY OF SÃO PAULO   (Brazil)

^b YALE UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

Juvenile myoclonic epilepsy; Portuguese version of Quality of Life in Epilepsy 31 Inventory; Quality of life; Temporal lobe epilepsy

Indexed keywords

ADULT; ANXIETY; ARTICLE; BECK DEPRESSION INVENTORY; BRAZIL; COGNITION; CONSTRUCT VALIDITY; CONTROLLED STUDY; CORRELATION COEFFICIENT; CULTURAL FACTOR; DISEASE ASSOCIATION; DRUG EFFECT; EMOTIONAL STABILITY; ENERGY; EPILEPSY; FATIGUE; HIPPOCAMPAL SCLEROSIS; HUMAN; INTERNAL CONSISTENCY; LANGUAGE; MAJOR CLINICAL STUDY; MYOCLONUS EPILEPSY; NEUROPSYCHOLOGICAL TEST; PSYCHOMETRY; QUALITY OF LIFE; SOCIAL STATUS; SURGICAL PATIENT; TEMPORAL LOBE EPILEPSY; TEST RETEST RELIABILITY;

ADULT; BRAZIL; CEREBROVASCULAR CIRCULATION; COGNITION; CULTURE; EMOTIONS; EPILEPSY; EPILEPSY, TEMPORAL LOBE; FEAR; FEMALE; HUMANS; LANGUAGE; MAGNETIC RESONANCE IMAGING; MALE; NEUROPSYCHOLOGICAL TESTS; PSYCHIATRIC STATUS RATING SCALES; PSYCHOMETRICS; QUALITY OF LIFE; REPRODUCIBILITY OF RESULTS; SCLEROSIS; SOCIAL BEHAVIOR; TEMPORAL LOBE;

EID: 33947288416     PISSN: 15255050     EISSN: 15255069     Source Type: Journal    
DOI: 10.1016/j.yebeh.2006.08.022     Document Type: Article

References (39)

1. Nubukpo P., Clément J.P., Houinato D., et al. Psychosocial issues in people with epilepsy in Togo and Benin (West Africa): II. Quality of life measured using the QOLIE-31 scale. Epilepsy Behav 5 (2004) 728-734
2. Torres X., Arroyo S., Araya S., and de Pablo J. The Spanish version of the Quality-of-Life in Epilepsy Inventory (QOLIE-31): translation, validity and reliability. Epilepsia 40 (1999) 1299-1304
3. Beghi E., Niero M., and Roncolato M. Validity and reliability of the Italian version of the Quality-of-Life in Epilepsy Inventory (QOLIE-31). Seizure 14 (2005) 452-458
4. Picot M.C., Crespel A., Daures J.P., Baldy-Moulinier M., and El Hasnaoui A. Psychometric validation of the French version of the Quality of Life in Epilepsy Inventory (QOLIE-31): comparison with a genetic health related quality of life questionnaire. Epileptic Disord 6 (2004) 275-285
5. Devinsky O., and Cramer J.A. Introduction: quality of life in epilepsy. Epilepsia 34 (1993) S1-S3
6. Devinsky O., Vickrey B.G., Cramer J.A., et al. Development of the Quality of Life in Epilepsy Inventory. Epilepsia 36 (1995) 1089-1104
7. Devinsky O. Clinical uses of the quality of life in epilepsy inventory. Epilepsia 34 (1993) S39-S44
8. Cramer J.A., Perrine K., Devinsky O., Bryant-Comstock L., Meador K., and Hermann B. Development and cross-cultural translations of a 31-item quality of life in epilepsy inventory. Epilepsia 39 (1998) 81-88
9. May T.W., Pfäfflin M., and Cramer J.A. Psychometric properties of the German translation of the QOLIE-31. Epilepsy Behav 2 (2001) 106-114
10. Lám J., Rózsavölgyi M., Gyöngyvér S., Vincze Z., and Rajna P. Quality of life of patients with epilepsy (Hungarian survey). Seizure 10 (2001) 100-106
11. Djibuti M., and Shakarishvili R. Influence of clinical demographic and socioeconomic variables on quality of life in patients with epilepsy: findings from Georgian study. J Neurol Neurosurg Psychiatry 74 (2003) 570-573
12. Janz D., and Christian W. Impulsiv petit mal. Dtsch Z Nervenheilk 176 (1957) 348-386
13. Commission on Classification and Terminology of the International League Against Epilepsy. Proposal for revised classification of epilepsies and epileptic syndromes. Epilepsia 1989;30:389-99.
14. Thomas P., Genton P., Gelisse P., and Wolf P. Juvenile myoclonic epilepsy. In: Roger J., Bureau M., Dravet Ch., Genton P., Tassinari C.A., and Wolf P. (Eds). Epileptic syndromes in infancy and adolescence (2002), John Libbey, London 335-355
15. Teixeira-Salmela L.F., Magalhães L.C., Lima R.C., and Goulart F. Adaptation of Nottingham Health Profile: a simple measure to assess quality of life. Cad Saúde Pública 20 (2004) 905-914
16. Abetz L., Jacoby A., Baker G.A., and McNulty P. Patient-based assessments of quality of life in newly diagnosed epilepsy patients: validation of the NEWQOL. Epilepsia 41 (2000) 1119-1128
17. Gorenstein C., and Andrade L. Beck Depression Inventory: psychometric properties to the Brazilian cross-cultural version. Rev Psiq Clin 25 (1998) 245-250
18. Gilliam F.G. Optimizing health outcomes in active epilepsy. Neurology 58 Suppl .5 (2002) S9-S19
19. Gilliam F.G., Fessler A.J., Baker G.A., Vahler V., Carter J., and Attarian H. Systematic screening allows reduction of adverse antiepileptic drug effects: a randomized trial. Neurology 62 (2004) 23-27
20. Strauss E., Sherman M.S., and Spreen O. A compendium of neuropsychological tests. administration, norms and commentary. third ed. (2006), Oxford Univ. Press, New York
21. Nascimento E. Adaptação e validação do teste WAIS-III para um contexto brasileiro. Tese de Doutorado (2000), Instituto de Psicologia, Universidade de Brasília, Brazilia
22. Cramer JA, Van Hammee G, and the N132 Study Group. Maintenance of improvement in health-related quality of life during long-term treatment with levetiracetam. Epilepsy Behav 2003;4:118-23.
23. Grudzinski A.M., Hakim Z., Coons S.J., and Labiner D.M. Use of the QOLIE-31 in routine clinical practice. J Epilepsy 11 (1998) 34-47
24. Choi-Kwon S., Chung C., Kim H., et al. Factors affecting the quality of life in patients with epilepsy in Seoul, South Korea. Acta Neurol Scand 108 (2003) 428-434
25. Vazquez B., and Devinsky O. Epilepsy and anxiety. Epilepsy Behav 4 (2003) S20-S25
26. Meldolesi G.N., Picardi A., Quarato P.P., et al. Factors associated with generic and disease-specific quality of life in temporal lobe epilepsy. Epilepsy Res 69 (2006) 135-146
27. Perrine K., Hermann B.P., Meador K.J., et al. The relationship of neuropsychological functioning to quality of life in epilepsy. Arch Neurol 52 (1995) 997-1003
28. Vermeulen J., Aldenkamp A.P., and Alpherts W.C. Memory complaints in epilepsy: correlations with cognitive performance and neuroticism. Epilepsy Res 15 (1993) 157-170
29. Giovagnoli A.R., Mascheroni S., and Avanzini G. Self-reporting of everyday memory in patients with epilepsy relation to neuropsychological, clinical, pathological and treatment factors. Epilepsy Res 28 (1997) 119-128
30. Giovagnoli A.R., and Avanzini G. Quality of life and memory performance in patients with temporal lobe epilepsy. Acta Neurol Scand 101 (2000) 295-300
31. Elixhauser A., Leidy N.K., Meador K., Means E., and Willian M.K. The relationship between memory performance, perceived cognitive function, and mood in patients with epilepsy. Epilepsy Res 37 (1999) 13-24
32. Motamedi G., and Meador K. Epilepsy and cognition. Epilepsy Behav 4 (2003) S25-S38
33. Alanis-Guevara I., Pena E., Corona T., Lopez-Ayala T., Lopez-Meza E., and Lopez-Gomez M. Sleep disturbances, socioeconomic status, and quality of life in epilepsy. Epilepsy Behav 7 (2005) 481-485
34. Mrabet H., Mrabet A., Zouari B., and Ghachem R. Health-related quality of life of people with epilepsy compared with a general reference population: a Tunisian study. Epilepsia 45 (2004) 838-843
35. Baker G.A., Gagnon D., and McNulty P. The relationship between seizure frequency, seizure type and quality of life: findings from three European countries. Epilepsy Res 30 (1998) 231-240
36. Leidy N.K., Elixhauser A., Vickrey B.G., Means E., and Willian M.K. Seizure frequency and health-related quality of life of adults with epilepsy. Neurology 53 (1999) 162-166
37. Leder A. Zur psychopathologie der schlaf und aufwachepilepsie (Eine psychodiagnostiche untersuchung). Nervenarzt 38 (1967) 434-442
38. Bech P., Pedersen K., Simonsen N., and Lund M. A multidimensional study of personality traits ad modum Sjobring. Acta Neurol Scand 54 (1976) 348-358
39. Lund M., Reintoft H., and Simonsen N. Eine kontrollierte soziologische und psychologische Untersuchung on patienten mit juveniler myoklonischer epilepsie. Nervenarzt 47 (1976) 708-712