Assessment of outcomes and parental effect on quality-of-life endpoints in the management of atopic dermatitis

Managed Care Interface

Volumn 20, Issue 2, 2007, Pages 18-23

  Arnold, Renée J Goldberg ^a   Donnelly, Ann ^c   Altieri, Leah ^d   Wong, Ken S ^b   Sung, Jennifer ^b  

^a Arnold Consultancy and Technology LLC   (United States)

^b NOVARTIS PHARMA AG   (Switzerland)

^c Fleet Michigan ^*  (United States)

^d ProHealth Physicians Inc   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; ATOPIC DERMATITIS; CAREGIVER; CHILD; COMORBIDITY; COST OF ILLNESS; DISEASE EXACERBATION; DISEASE SEVERITY; ECZEMA; FEMALE; HEALTH CARE UTILIZATION; HUMAN; MAJOR CLINICAL STUDY; MALE; OUTCOME ASSESSMENT; PARENT; QUALITY OF LIFE;

CHILD; CHILD, PRESCHOOL; COST OF ILLNESS; DATA COLLECTION; DERMATITIS, ATOPIC; FEMALE; HUMANS; MALE; OUTCOME ASSESSMENT (HEALTH CARE); PARENTS; QUALITY OF LIFE;

EID: 33947174111     PISSN: 10965645     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (29)

1. O'Connell EJ: The burden of atopy and asthma in children. Allergy 2004;59(suppl 78):7-11.
2. Emerson RM, Williams HC, Allen BR: What is the cost of atopic dermatitis in preschool children? Br J Dermatol 2001; 144:514-522.
3. Kemp AS: Atopic eczema: Its social and financial costs. J Paediatr Child Health 1999;35:229-231.
4. Kemp AS: Cost of illness of atopic dermatitis in children: A societal perspective. Pharmacoeconomics 2003;21:105-113.
5. Weinmann S, Kamtsiuris P, Henke KD, et al: The costs of atopy and asthma in children: Assessment of direct costs and their determinants in a birth cohort. Pediatr Allergy Immunol 2003;14:18-26.
6. Herd RM: The financial impact on families of children with atopic dermatitis. Arch Dermatol 2002;138:819-820.
7. Fivenson D, Arnold R, Kaniecki D, et al: The effect of atopic dermatitis on total burden of illness and quality of life on adults and children in a large managed care organization. J Manag Care Pharm 2002;8:333-342.
8. Eichenfield LF, Hanifin JM, Beck LA, et al: Atopic dermatitis and asthma: Parallels in the evolution of treatment. Pediatrics 2003;111:608-616.
9. Ellis C, Drake L, Prendergast M, et al: Cost of atopic dermatitis and eczema in the United States. J Am Acad Dermatol 2002;46:361-370.
10. Leung DY: Atopic dermatitis: New insights and opportunities for therapeutic intervention. J Allergy Clin Immunol 2000; 105:860-876.
11. Paller AS, McAlister RO, Doyle JJ, et al: Perceptions of physicians and pediatric patients about atopic dermatitis, its impact, and its treatment. Clin Pediatr 2002;41:323-332.
12. Whalley D, Huels J, McKenna SP, et al: The benefit of pimecrolimus (Elidel, SDZ ASM 981) on parents' quality of life in the treatment of pediatric atopic dermatitis. Pediatrics 2002; 110:1133-1136.
13. McKenna SP, Whalley D, Dewar AL, et al: International development of the Parents' Index of Quality of Life in Atopic Dermatitis (PIQoL-AD). Qual Life Res 2005;14:231-241.
14. McKenna SP, Doward LC, Niero M, et al: Development of needs-based quality of life instruments. Value Health 2004;7 (suppl 1):17-21.
15. Friedman JY, Reed SD, Weinfurt KP, et al: Parents' reported preference scores for childhood atopic dermatitis disease states. BMC Pediatr 2004;4:21-25.
16. Petrou S, Murray L, Cooper P, et al: The accuracy of self-reported healthcare resource utilization in health economic studies. Int J Technol Assess Health Care 2002;18:705-710.
17. Asadi-Lari M, Tamburini M, Gray D: Patients' needs, satisfaction, and health related quality of life: Towards a comprehensive model. Health Qual Life Outcomes 2004;2:32-47.
18. Asadi-Lari M, Packham C, Gray D: Is quality of life measurement likely to be a proxy for health needs assessment in patients with coronary artery disease? Health Qual Life Outcomes 2003;1(1):50.
19. Bicanich E, Slivinski T, Hardwicke S, et al: Internet-based testing: A vision or reality? Technology Horizons in Education 1997;24:61-65.
20. Buchanan T, Smith JL: Using the Internet for psychological research: personality testing on the World Wide Web. Br J Psychol 1999;90(pt 1):125-144.
21. Bushnell DM, Martin ML, Parasuraman B: Electronic versus paper questionnaires: A further comparison in persons with asthma. J Asthma 2003;40:751-762.
22. Drummond HE, Ghosh S, Ferguson A, et al: Electronic quality of life questionnaires: A comparison of pen-based electronic questionnaires with conventional paper in a gastrointestinal study. Qual Life Res 1995;4:21-26.
23. Johannes C, Woods J, Crawford S, et al: Electronic versus paper instruments for daily data collection. Ann Epidemiol 2000;10:457-478.
24. Kleinman L, Leidy NK, Crawley J, et al: A comparative trial of paper-and-pencil versus computer administration of the Quality of Life in Reflux and Dyspepsia (QOLRAD) questionnaire. Med Care 2001;39:181-189.
25. Pettit F: Exploring the use of the World Wide Web as a psychology data collection tool. Comp Human Behav 1999;15:67-71.
26. Pouwer F, Snoek FJ, van der Ploeg HM, et al: A comparison of the standard and the computerized versions of the Well-Being Questionnaire (WBQ) and the Diabetes Treatment Satisfaction Questionnaire (DTSQ). Qual Life Res 1998;7:33-38.
27. VanDenKerkhof EG, Goldstein DH, Blaine WC, et al: A comparison of paper with electronic patient-completed questionnaires in a preoperative clinic. Anesth Analg 2005;101:1075-1080.
28. Velikova G, Wright EP, Smith AB, et al: Automated collection of quality-of-life data: A comparison of paper and computer touch-screen questionnaires. J Clin Oncol 1999;17:998-1007.
29. Gore C, Johnson RJ, Caress AL, et al: The information needs and preferred roles in treatment decision-making of parents caring for infants with atopic dermatitis: A qualitative study. Allergy 2005;60:938-943.