메뉴 건너뛰기




Volumn 16, Issue 3 A, 2007, Pages 35-43

Non-finite loss and emotional labour: Family caregivers' experiences of living with motor neurone disease

Author keywords

Caregivers; Degenerative disease; Emotional labour; Loss; Nurse; Nursing

Indexed keywords

ADULT; AGED; ARTICLE; CAREGIVER; EMOTION; FEMALE; HUMAN; INTERVIEW; LIFE EVENT; MALE; MIDDLE AGED; MOTOR NEURON DISEASE; NURSE ATTITUDE; PATHOPHYSIOLOGY; PSYCHOLOGICAL ASPECT; SOCIAL ISOLATION; SOCIAL SUPPORT;

EID: 33847414091     PISSN: 09621067     EISSN: 13652702     Source Type: Journal    
DOI: 10.1111/j.1365-2702.2006.01722.x     Document Type: Article
Times cited : (34)

References (60)
  • 1
    • 33847366883 scopus 로고    scopus 로고
    • Aoun S (2004) The Hardest Thing We Have Ever Done: The Social Impact of Caring for Terminally Ill People in Australia 2004: Full Report of the National Inquiry into the Social Impact of Caring for Terminally Ill People. Palliative Care Australia, Canberra.
    • Aoun S (2004) The Hardest Thing We Have Ever Done: The Social Impact of Caring for Terminally Ill People in Australia 2004: Full Report of the National Inquiry into the Social Impact of Caring for Terminally Ill People. Palliative Care Australia, Canberra.
  • 2
    • 0034902917 scopus 로고    scopus 로고
    • Home caregivers of the person with advanced cancer: An Australian perspective
    • Aranda SK & Hayman-White K (2001) Home caregivers of the person with advanced cancer: an Australian perspective. Cancer Nursing 24, 300-307.
    • (2001) Cancer Nursing , vol.24 , pp. 300-307
    • Aranda, S.K.1    Hayman-White, K.2
  • 4
    • 0035754729 scopus 로고    scopus 로고
    • Interviews with patients, family and caregivers in amyotrophic lateral sclerosis: Comparing needs
    • Bolmsjo I & Hermeren G (2001) Interviews with patients, family and caregivers in amyotrophic lateral sclerosis: comparing needs. Journal of Palliative Care 17, 236-240.
    • (2001) Journal of Palliative Care , vol.17 , pp. 236-240
    • Bolmsjo, I.1    Hermeren, G.2
  • 5
    • 0034263144 scopus 로고    scopus 로고
    • Who cares? Offering emotion work as a 'gift' in the nursing labour process
    • Bolton SC (2000) Who cares? Offering emotion work as a 'gift' in the nursing labour process. Journal of Advanced Nursing 32, 580-586.
    • (2000) Journal of Advanced Nursing , vol.32 , pp. 580-586
    • Bolton, S.C.1
  • 6
    • 33645780786 scopus 로고    scopus 로고
    • Palliative medicine in non-malignant neurological disorders
    • Doyle D, Hanks G, Cherny NI & Calman K eds, 3rd edn. Oxford University Press, Oxford, pp
    • Borasio GD, Rogers A & Voltz R (2004) Palliative medicine in non-malignant neurological disorders. In Oxford Textbook of Palliative Medicine (Doyle D, Hanks G, Cherny NI & Calman K eds), 3rd edn. Oxford University Press, Oxford, pp. 925-934.
    • (2004) Oxford Textbook of Palliative Medicine , pp. 925-934
    • Borasio, G.D.1    Rogers, A.2    Voltz, R.3
  • 8
    • 0031794856 scopus 로고    scopus 로고
    • Institutional respite care: Breaking chores or breaking social bonds?
    • Braithwaite V (1998) Institutional respite care: breaking chores or breaking social bonds? The Gerontologist 38, 610-617.
    • (1998) The Gerontologist , vol.38 , pp. 610-617
    • Braithwaite, V.1
  • 9
    • 0034232359 scopus 로고    scopus 로고
    • You do know he's had a stroke, don't you?' Preparation for family care-giving - the neglected dimension
    • Brereton L & NolanM(2000) 'You do know he's had a stroke, don't you?' Preparation for family care-giving - the neglected dimension. Journal of Clinical Nursing 9, 498-506.
    • (2000) Journal of Clinical Nursing , vol.9 , pp. 498-506
    • Brereton, L.1    NolanM2
  • 10
    • 0027618257 scopus 로고
    • Themes of loss and dying in caring for a family member with AIDS
    • Brown MA & Powell-Cope G (1993) Themes of loss and dying in caring for a family member with AIDS. Research in Nursing and Health 16, 179-191.
    • (1993) Research in Nursing and Health , vol.16 , pp. 179-191
    • Brown, M.A.1    Powell-Cope, G.2
  • 14
    • 0003316419 scopus 로고    scopus 로고
    • Grounded theory in ethnography
    • Atkinson P, Coffey A, Delamont S, Lofland J & Lofland L eds, Sage Publications, London, pp
    • Charmaz K & Mitchell RG (2001) Grounded theory in ethnography. In Handbook of Ethnography (Atkinson P, Coffey A, Delamont S, Lofland J & Lofland L eds). Sage Publications, London, pp. 160-174.
    • (2001) Handbook of Ethnography , pp. 160-174
    • Charmaz, K.1    Mitchell, R.G.2
  • 15
    • 4444382172 scopus 로고    scopus 로고
    • Caring as worrying: The experience of spousal carers
    • Cheung J & Hocking P (2004) Caring as worrying: the experience of spousal carers. Journal of Advanced Nursing 47, 475-482.
    • (2004) Journal of Advanced Nursing , vol.47 , pp. 475-482
    • Cheung, J.1    Hocking, P.2
  • 17
    • 0038545193 scopus 로고    scopus 로고
    • Mapping the journey: Family carers' perceptions of issues related to end-stage care of individuals with muscular dystrophy or motor neurone disease
    • Dawson S & Kristjanson LJ (2003) Mapping the journey: family carers' perceptions of issues related to end-stage care of individuals with muscular dystrophy or motor neurone disease. Journal of Palliative Care 19, 36-42.
    • (2003) Journal of Palliative Care , vol.19 , pp. 36-42
    • Dawson, S.1    Kristjanson, L.J.2
  • 18
    • 0032176002 scopus 로고    scopus 로고
    • An exploration of anticipatory grief: The lived experience of people during their spouses' terminal illness and in bereavement
    • Duke S (1998) An exploration of anticipatory grief: the lived experience of people during their spouses' terminal illness and in bereavement. Journal of Advanced Nursing 28, 829-839.
    • (1998) Journal of Advanced Nursing , vol.28 , pp. 829-839
    • Duke, S.1
  • 21
    • 0035287096 scopus 로고    scopus 로고
    • The emotions and coping strategies of caregivers of family members with a terminal cancer
    • Grbich C, Parker D & Maddocks I (2001) The emotions and coping strategies of caregivers of family members with a terminal cancer. Journal of Palliative Care 17, 30-36.
    • (2001) Journal of Palliative Care , vol.17 , pp. 30-36
    • Grbich, C.1    Parker, D.2    Maddocks, I.3
  • 22
    • 80052750723 scopus 로고
    • Diagrammatic assessment of family relationships
    • Hartman A (1995) Diagrammatic assessment of family relationships. Families in Society 76, 111.
    • (1995) Families in Society , vol.76 , pp. 111
    • Hartman, A.1
  • 24
    • 84970447059 scopus 로고
    • Emotional labour: Skill and work in the social regulation of feelings
    • James N (1989) Emotional labour: skill and work in the social regulation of feelings. The Sociological Review 37, 15-42.
    • (1989) The Sociological Review , vol.37 , pp. 15-42
    • James, N.1
  • 25
    • 84995084414 scopus 로고
    • Care = organisation + physical labour + emotional labour
    • James N (1992) Care = organisation + physical labour + emotional labour. Sociology of Health and Illness 14, 488-509.
    • (1992) Sociology of Health and Illness , vol.14 , pp. 488-509
    • James, N.1
  • 26
    • 17644404645 scopus 로고    scopus 로고
    • Bereavement
    • Doyle D, Hanks G, Cherny NI & Calman K eds, 3rd edn. Oxford University Press, Oxford, pp
    • Kissane DW (2004) Bereavement. In Oxford Textbook of Palliative Medicine (Doyle D, Hanks G, Cherny NI & Calman K eds), 3rd edn. Oxford University Press, Oxford, pp. 1137-1151.
    • (2004) Oxford Textbook of Palliative Medicine , pp. 1137-1151
    • Kissane, D.W.1
  • 29
    • 0032063452 scopus 로고    scopus 로고
    • Loss, grief and bereavement in family members of cancer patients
    • Lev EL & McCorkle R (1998) Loss, grief and bereavement in family members of cancer patients. Seminars in Oncology Nursing 14, 145-151.
    • (1998) Seminars in Oncology Nursing , vol.14 , pp. 145-151
    • Lev, E.L.1    McCorkle, R.2
  • 30
    • 33646450312 scopus 로고    scopus 로고
    • Social aspects of care giving for people living with motor neurone disease: Their relationships to carer well being
    • Love A, Street AF, Ray RA, Harris R& Lowe R (2005) Social aspects of care giving for people living with motor neurone disease: their relationships to carer well being. Palliative and Supportive Care 3, 33-38.
    • (2005) Palliative and Supportive Care , vol.3 , pp. 33-38
    • Love, A.1    Street, A.F.2    Ray, R.A.3    Harris, R.4    Lowe, R.5
  • 34
    • 0035282209 scopus 로고    scopus 로고
    • The role of social and psychologic resources in care giving of cancer patients
    • Nijboer C, Tempelaar R, Triemstra M, van den Bos GAM & Sanderman R (2001) The role of social and psychologic resources in care giving of cancer patients. Cancer 91, 1029-1039.
    • (2001) Cancer , vol.91 , pp. 1029-1039
    • Nijboer, C.1    Tempelaar, R.2    Triemstra, M.3    van den Bos, G.A.M.4    Sanderman, R.5
  • 36
    • 0035837888 scopus 로고    scopus 로고
    • Professional issues. Supporting family carers in the UK: Overview of issues and challenges
    • Nolan M (2001) Professional issues. Supporting family carers in the UK: overview of issues and challenges. British Journal of Nursing 10, 608-609, 611-613.
    • (2001) British Journal of Nursing , vol.10
    • Nolan, M.1
  • 37
    • 0012357672 scopus 로고    scopus 로고
    • Palliative care for motor neurone disease
    • Oliver D (2002) Palliative care for motor neurone disease. Practical Neurology 2, 68-79.
    • (2002) Practical Neurology , vol.2 , pp. 68-79
    • Oliver, D.1
  • 39
    • 84928507539 scopus 로고
    • Bereavement as a psychosocial transition: Process of adaption to change
    • Parkes CM (1988) Bereavement as a psychosocial transition: process of adaption to change. Journal of Social Issues 44, 53-65.
    • (1988) Journal of Social Issues , vol.44 , pp. 53-65
    • Parkes, C.M.1
  • 42
    • 85032070789 scopus 로고
    • The experiences of gay couples affected by HIV infection
    • Powell-Cope G (1995) The experiences of gay couples affected by HIV infection. Qualitative Health Research 5, 36-62.
    • (1995) Qualitative Health Research , vol.5 , pp. 36-62
    • Powell-Cope, G.1
  • 45
    • 19744375660 scopus 로고    scopus 로고
    • Ecomapping: An innovative research tool for nurses
    • Ray RA & Street AF (2005a) Ecomapping: an innovative research tool for nurses. Journal of Advanced Nursing 50, 545-552.
    • (2005) Journal of Advanced Nursing , vol.50 , pp. 545-552
    • Ray, R.A.1    Street, A.F.2
  • 46
    • 27344447594 scopus 로고    scopus 로고
    • Who's there and who cares: Age as an indicator of social support networks for caregivers among people living with motor neurone disease
    • Ray RA & Street AF (2005b) Who's there and who cares: age as an indicator of social support networks for caregivers among people living with motor neurone disease. Health and Social Care in the Community 13, 542-552.
    • (2005) Health and Social Care in the Community , vol.13 , pp. 542-552
    • Ray, R.A.1    Street, A.F.2
  • 48
    • 0032040238 scopus 로고    scopus 로고
    • Loss: An analysis of a concept of particular interest to nursing
    • Robinson DS & McKenna HP (1998) Loss: an analysis of a concept of particular interest to nursing. Journal of Advanced Nursing 27, 779-784.
    • (1998) Journal of Advanced Nursing , vol.27 , pp. 779-784
    • Robinson, D.S.1    McKenna, H.P.2
  • 49
    • 33847398097 scopus 로고    scopus 로고
    • Sach & Associates (2003) Future Service Directions Review 2003. Motor Neurone Association of Victoria, Melbourne.
    • Sach & Associates (2003) Future Service Directions Review 2003. Motor Neurone Association of Victoria, Melbourne.
  • 51
    • 0031612747 scopus 로고    scopus 로고
    • Alertness to the needs of others: A study of the emotional labour of caring
    • Staden H (1998) Alertness to the needs of others: a study of the emotional labour of caring. Journal of Advanced Nursing 27, 147-156.
    • (1998) Journal of Advanced Nursing , vol.27 , pp. 147-156
    • Staden, H.1
  • 52
    • 0038545189 scopus 로고    scopus 로고
    • Examining the perspectives of family members involved in the delivery of palliative care at home
    • Stajduhar KI (2003) Examining the perspectives of family members involved in the delivery of palliative care at home. Journal of Palliative Care 19, 27-35.
    • (2003) Journal of Palliative Care , vol.19 , pp. 27-35
    • Stajduhar, K.I.1
  • 54
    • 0031985292 scopus 로고    scopus 로고
    • New directions in bereavement research: Exploration of gender differences
    • Stroebe M (1998) New directions in bereavement research: exploration of gender differences. Palliative Medicine 12, 5-12.
    • (1998) Palliative Medicine , vol.12 , pp. 5-12
    • Stroebe, M.1
  • 55
    • 0030162650 scopus 로고    scopus 로고
    • The role of loneliness and social support in adjustment to loss: A test of attachment versus stress theory
    • Stroebe W, Stroebe M, Abakoumkin G & Schut H (1996) The role of loneliness and social support in adjustment to loss: a test of attachment versus stress theory. Journal of Personality and Social Psychology 70, 1241-1249.
    • (1996) Journal of Personality and Social Psychology , vol.70 , pp. 1241-1249
    • Stroebe, W.1    Stroebe, M.2    Abakoumkin, G.3    Schut, H.4
  • 58
    • 0142150071 scopus 로고    scopus 로고
    • Grief and loss: I'm not myself anymore
    • Tully J (2003) Grief and loss: I'm not myself anymore. Australian Family Physician 32, 697-700.
    • (2003) Australian Family Physician , vol.32 , pp. 697-700
    • Tully, J.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.