Disability, technology, and place: Social and ethical implications of long-term dependency on medical devices

Ethics, Place and Environment

Volumn 10, Issue 1, 2007, Pages 7-28

  Gibson, B E ^a   Upshur, R E G ^a   Young, N L ^b   McKeever, P ^c  

^a UNIVERSITY OF TORONTO   (Canada)

^b LAURENTIAN UNIVERSITY   (Canada)

^c University of Toronto   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

DISABILITY; ETHICS; MEDICINE; TECHNOLOGY;

EID: 33847102189     PISSN: 1366879X     EISSN: 14696703     Source Type: Journal    
DOI: 10.1080/13668790601150685     Document Type: Article

References (60)

1. American Thoracic Society (2004) Respiratory care of the patient with Duchenne muscular dystrophy: ATS consensus statement. American Journal of Respiratory and Critical Care Medicine, 170, pp. 456-465.
2. Bach, JR and Barnett, V. (1994) Ethical considerations in the management of individuals with severe neuromuscular disorders. American Journal of Physical Medicine & Rehabilitation, 73:2, pp. 134-140.
3. Barnes, C. (1996) Theories of disability and the origins of the oppression of disabled people in western society. Disability and Society: Emerging Issues and Insights, pp. 43-60. Longman Publishing, New York
4. Bendelow, GA and Williams, S. (1995) Transcending the dualisms: Towards a sociology of pain. Sociology of Health and Illness, 17:2, pp. 139-165.
5. Bickenbach, JE (2001) Disability, human rights, law and policy. Handbook of Disability Studies, pp. 565-584. Sage Publications, Thousand Oaks, CA
6. Connell, RW (1995) Masculinities, University of California Press, Berkeley, CA
7. Crossley, N. (1995) Merleau-Ponty, the elusive body and carnal sociology. Body and Society, 1:1, pp. 43-63.
8. Crossley, N. (2001) The phenomenological habitus and its construction. Theory and Society, 30, pp. 81-120.
9. Dear, MJ and Wolch, JR (1987) Landscapes of Despair: From Deinstitutionalization to Homelessness, Princeton University Press, Princeton, NJ
10. Dyck, I. (1995) Hidden geographies: The changing lifeworlds of women with multiple sclerosis. Social Science and Medicine, 40:3, pp. 307-320.
11. Fraser, N. (1995) From redistribution to recognition? Dilemmas of justice in a 'post-socialist' age. New Left Review, 212, pp. 68-73.
12. Freund, P. (2001) Bodies, disability, and spaces: The social model and disabling spatial organizations. Disability and Society, 16:5, pp. 689-706.
13. Thomson, R Garland (1997) Extraordinary Bodies: Figuring Physical Disability in American Culture and Literature, Columbia University Press, New York
14. Gibson, B. (2001) Long-term ventilation for patients with Duchenne muscular dystrophy: Physician's beliefs and practices. Chest, 119, pp. 940-946.
15. Gibson, BE (2006) Disability, connectivity and transgressing the autonomous body. Journal of Medical Humanities, 27, pp. 187-196.
16. Gibson, BE, Upshur, REG, Young, NL and McKeever, P. (1899) (under review) Men on the margin: A Bourdieusian examination of living into adulthood with muscular dystrophy. Social Science & Medicine
17. Gleeson, B. (1999) Geographies of Disability, Routledge, London
18. Golledge, RG (1993) Geography and the disabled: A survey with special reference to vision impaired and blind populations. Transactions, Institute of British Geographers, 18:1, pp. 63-85.
19. Golledge, RG, Klatzky, RL and Loomis, JM (1996) Cognitive mapping and wayfinding by adults without vision. The Construction of Cognitive Maps, Kluwer, Dordrecht
20. Golledge, RG and Stimson, RJ (1997) Spatial Behaviour: A Geographic Perspective, Guilford Press, New York
21. Gray, J. (2002) Woman wins right to die. Toronto: The Globe and Mail
22. Hahn, H. (1988) The politics of physical differences: Disability and discrimination. Journal of Social Issues, 44:1, pp. 39-47.
23. Hall, E. (2000) 'Blood, brain and bones': Taking the body seriously in the geography of health and impairment. Area, 32:1, pp. 21-29.
24. Haraway, D. (1991) Simians, Cyborgs and Women: The Reinvention of Nature, Routledge, New York
25. Hedgecoe, AH (2004) Critical bioethics: Beyond the social science critique of applied ethics. Bioethics, 18:2, pp. 120-143.
26. Hughes, B. and Paterson, K. (1997) The social model of disability and the disappearing body: Towards a sociology of impairment. Disability and Society, 12:3, pp. 325-340.
27. Imrie, R. (2000) Disabling environments and the geography of access policies and practices. Disability and Society, 15:1, pp. 5-24.
28. O'Toole, E., Jardine, M., Paton, JY and Wallis, C. (1999) Current status of long term ventilation of children in the United Kingdom: questionnaire survey. British Medical Journal, 318:7179, pp. 295-299.
29. Jeppesen, J., Green, A., Steffensen, BF and Rahbek, J. (2003) The Duchenne muscular dystrophy population in Denmark, 1977-2001: prevalence, incidence and survival in relation to the introduction of ventilator use. Neuromuscular Disorders, 13, pp. 804-812.
30. Kelly, SE (2003) Bioethics and rural health: Theorizing place, space and subjects. Social Science and Medicine, 56, pp. 2277-2288.
31. Kitchin, R. (1998) 'Out of place', 'knowing one's place': Space, power and the exclusion of disabled people. Disability and Society, 13:3, pp. 343-356.
32. Latour, B. (1996) ARAMIS or the Love of Technology, Harvard University Press, trans. Catherine Porter) (Cambridge, MA
33. Locker, D. and Kaufert, J. (1988) The breath of life: Medical technology and the careers of people with post respiratory poliomyelitis. Sociology of Health and Illness, 10:1, pp. 23-40.
34. Longmore, P. (1991) To live, to die-who decides?: The strange case of David Rivlin. Rehabilitation Medicine-Adding Life to Years, pp. 615-616.
35. Lupton, D. and Seymour, W. (2000) Technology, selfhood and physical disability. Social Science and Medicine, 50, pp. 1851-1862.
36. Make, BJ, Hill, NS, Goldberg, AI, Bach, JR, Criner, GJ, Dunne, PE, Gilmartin, ME, Heffner, JE, Kacmarek, R., Keens, TG, McInturff, S., O'Donohue, WJ, Oppenheimer Jr, EA and Robert, D. (1998) Mechanical ventilation beyond the intensive care unit. Report of a consensus conference of the American College of Chest Physicians. Chest, 113, pp. 289S-344S.
37. Miller, JR, Colbert, AP and Osberg, JS (1990) Ventilator dependency: decision making, daily functioning and quality of life of patients with Duchenne muscular dystrophy. Developmental Medicine and Child Neurology, 32, pp. 1078-1086.
38. Moss, P. (1997) Negotiating spaces in home environments: Older women living with arthritis. Social Science & Medicine, 45:1, pp. 23-33.
39. Oliver, M. (1996) Understanding Disability: From Theory to Practice, St. Martin's Press, New York
40. Pape, T. L. -B., Kim, J. and Weiner, B. (2002) The shaping of individual meanings assigned to assistive technologies: A review of personal factors, Disability and Rehabilitation, 24, pp. 5-20.
41. Peter, E. and Liaschenko, J. (2004) Perils of proximity: A spatiotemporal analysis of moral distress and moral ambiguity. Nursing Inquiry, 11:4, pp. 218-225.
42. Purtilo, RB (1986) Ethical issues in the treatment of chronic ventilator-dependent patients. Archives of Physical Medicine & Rehabilitation, 67:10, pp. 718-721.
43. Rowles, GD (1978) Prisoners of Space?: Exploring the Geographical Experience of Older People, Westview Press, Boulder, CO
44. Sapey, B., Stewart, J. and Donaldson, G. (2004) The social implication of increases in wheelchair use
45. Sherwin, S. (1998) A relational approach to autonomy in health care. The Politics of Women's Health, Temple University Press, Philadelphia
46. Shilling, C. (1993) The body and physical capital. The Body and Social Theory, pp. 127-149. Sage Publications, London
47. Silvers, A., Wasserman, D. and Mahowald, MB (1998) Disability, Difference, Discrimination: Perspectives on Justice in Bioethics and Public Policy, Roman and Littlefield, Lanham, MD
48. Skelton, T. and Valentine, G. (2003) 'It feels like being Deaf is normal': An exploration into the complexities of defining D/deafness and young D/deaf people's identities. Canadian Geographer, 47:4, pp. 451-466.
49. Skelton, T. and Valentine, G. (2003) Political participation, political action and political identities: Young D/deaf people's perspectives. Space and Polity, 7:2, pp. 117-134.
50. Smith, SA (1999) Where does the body end?. M/C: A Journal of Media and Culture, 2:3
51. Taylor, C. (1994) Multiculturalism, Princeton University Press, Princeton, NJ
52. Thomas, C. (1999) Female Forms: Experiencing and Understanding Disability, Open University Press, Buckingham, England
53. Timmermans, S. and Berg, S. (2003) The practice of medical technology. Sociology of Health and Illness, 25, pp. 97-114.
54. Turner, B. (1984) The Body and Society, Blackwell, Oxford
55. Turner, B. (1992) Regulating Bodies: Essays in Medical Sociology, Routledge, London
56. Turner, B. (2001) Disability and the sociology of the body. Handbook of Disability Studies, pp. 252-266. Sage Publications, Thousand Oaks, CA
57. UPIAS (1976) Fundamental Principles of Disability, Union of the Physically Impaired Against Segregation, London
58. Williams, S. (1999) Is anybody there? Critical realism, chronic illness and the disability debate. Sociology of Health and Illness, 21:6, pp. 797-819.
59. Yasuma, F. (1996) Effects of noninvasive ventilation on survival in patients with Duchenne's muscular dystrophy. Chest, 109:2, p. 590.
60. Young, IM (1990) Justice and the Politics of Difference, Princeton University Press, Princeton, NJ