Quality of life after bilateral prophylactic mastectomy

Annals of Surgical Oncology

Volumn 14, Issue 2, 2007, Pages 686-694

  Geiger, Ann M ^a,b   Nekhlyudov, Larissa ^c   Herrinton, Lisa J ^d   Rolnick, Sharon J ^e   Greene, Sarah M ^f   West, Carmen N ^a,g   Harris, Emily L ^h   Elmore, Joann G ⁱ   Altschuler, Andrea ^d   Liu, In Liu A ^a   Fletcher, Suzanne W ^c   Emmons, Karen M ^j  

^a Research and Evaluation   (United States)

^b WAKE FOREST SCHOOL OF MEDICINE   (United States)

^c HARVARD PILGRIM HEALTH CARE   (United States)

^d DIVISION OF RESEARCH   (United States)

^e HEALTHPARTNERS RESEARCH FOUNDATION   (United States)

^f CENTER FOR HEALTH STUDIES   (United States)

^g UNIVERSITY OF SOUTHERN CALIFORNIA   (United States)

^h CENTER FOR HEALTH RESEARCH   (United States)

ⁱ UNIVERSITY OF WASHINGTON SCHOOL OF MEDICINE   (United States)

^j DANA FARBER CANCER INSTITUTE   (United States)

more..

Author keywords

Breast cancer; Mastectomy; Prophylaxis; Quality of life; Satisfaction

Indexed keywords

ADULT; AGED; ARTICLE; BODY IMAGE; BREAST CANCER; CANCER RISK; CANCER SURGERY; CONFIDENCE INTERVAL; CONTROLLED STUDY; DEMOGRAPHY; DEPRESSION; DISEASE ASSOCIATION; FEMALE; GENERAL HEALTH QUESTIONNAIRE; HEALTH SURVEY; HUMAN; INSTRUMENT VALIDATION; LOGISTIC REGRESSION ANALYSIS; MAJOR CLINICAL STUDY; MASTECTOMY; MEDICAL DECISION MAKING; OUTCOME ASSESSMENT; PATIENT SATISFACTION; QUALITY OF LIFE; SEXUAL BEHAVIOR; SEXUALITY; SOCIAL PSYCHOLOGY; SURGICAL TECHNIQUE; TIME SERIES ANALYSIS; TREATMENT OUTCOME; VALIDATION PROCESS;

ADULT; AGED; BREAST DISEASES; BREAST NEOPLASMS; FEMALE; HEALTH SURVEYS; HUMANS; MASTECTOMY; MIDDLE AGED; QUALITY OF LIFE; RANDOM ALLOCATION; RISK FACTORS;

EID: 33846625147     PISSN: 10689265     EISSN: 15344681     Source Type: Journal    
DOI: 10.1245/s10434-006-9206-6     Document Type: Article

References (28)

1. Pichert G, Bolliger B, Buser K, Pagani O. Evidence-based management options for women at increased breast/ovarian cancer risk. Ann Oncol 2003; 14:9-19.
2. Hartmann LC, Schaid DJ, Woods JE, et al. Efficacy of bilateral prophylactic mastectomy in women with a family history of breast cancer. N Engl J Med 1999; 340:77-84.
3. Hartmann LC, Sellers TA, Schaid DJ, et al. Efficacy of bilateral prophylactic mastectomy in BRCA1 and BRCA2 gene mutation carriers. J Natl Cancer Inst 2001; 93:1633-1637.
4. Meijers-Heijboer H, van Geel B, van Putten WL, et al. Breast cancer after prophylactic bilateral mastectomy in women with a BRCA1 or BRCA2 mutation. N Engl J Med 2001; 345:159-164.
5. Rebbeck TR, Friebel T, Lynch HT, et al. Bilateral prophylactic mastectomy reduces breast cancer risk in BRCA1 and BRCA2 mutation carriers: the PROSE Study Group. J Clin Oncol 2004; 22:1055-1062.
6. Geiger AM, Yu O, Herrinton LJ, et al. A population-based study of bilateral prophylactic mastectomy efficacy in women at elevated risk for breast cancer in community practices. Arch Intern Med 2005; 165:516-520.
7. Stefanek ME, Helzlsouer KJ, Wilcox PM, Houn F. Predictors of and satisfaction with bilateral prophylactic mastectomy. Prev Med 1995; 24:412-419.
8. Borgen PI, Hill AD, Tran KN, et al. Patient regrets after bilateral prophylactic mastectomy. Ann Surg Oncol 1998; 5:603-606.
9. Frost MH, Schaid DJ, Sellers TA, et al. Long-term satisfaction and psychological and social function following bilateral prophylactic mastectomy. JAMA 2000; 284:319-324.
10. Hopwood P, Lee A, Shenton A, et al. Clinical follow-up after bilateral risk reducing ('prophylactic') mastectomy: mental health and body image outcomes. Psychooncology 2000; 9:462-472.
11. Hatcher MB, Fallowfield L, A'Hern R. The psychosocial impact of bilateral prophylactic mastectomy: prospective study using questionnaires and semistructured interviews. BMJ 2001; 322:1-7.
12. Metcalfe KA, Esplen MJ, Goel V, Narod SA. Psychosocial functioning in women who have undergone bilateral prophylactic mastectomy. Psychooncology 2004; 13:14-25.
13. Metcalfe KA, Esplen MJ, Goel V, Narod SA. Predictors of quality of life in women with a bilateral prophylactic mastectomy. Breast J 2005; 11:65-69.
14. Wagner EH, Greene SM, Hart G, et al. Building a research consortium of large health systems: the cancer research network. J Natl Cancer Inst Monogr 2005; 3-11.
15. Dillman DA. Mail and Internet Surveys New York: John Wiley 2000.
16. Brady MJ, Cella DF, Mo F, et al. Reliability and validity of the Functional Assessment of Cancer Therapy-Breast quality-of-life instrument. J Clin Oncol 1997; 15:974-986.
17. Geiger AM, Mullen ES, Sloman PA, Edgerton BW, Petitti DB. Evaluation of a breast cancer patient information and support program. Eff Clin Pract 2000; 3:157-165.
18. Horowitz M, Wilner N, Alvarez W. Impact of Event Scale: a measure of subjective stress. Psychosom Med 1979; 41:209-218.
19. Hopwood P, Fletcher I, Lee A, Al Ghazal S. A body image scale for use with cancer patients. Eur J Cancer 2001; 37:189-197.
20. Radloff LS. The CES-D Scale: A self-report depression scale for research in the general population. Appl Psychol Measure 1977; 1:385-401.
21. Ware JE Jr, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care 1992; 30:473-483.
22. Centers for Disease Control and Prevention. Behaviorial Risk Factor Surveillance System, 2000 Questionnaire. Available at: http://www.cdc.gov/brfss/ questionnaires/pdf-ques/2000brfss.pdf (last accessed April 29, 2006).
23. Willis GB. Cognitive Interviewing: A "How To" Guide. 1999. Available at: http://appliedresearch.cancer.gov/areas/cognitive/interview.pdf (last accessed April 30, 2006).
24. Willis GB, Lessler JT. Question Appraisal System (QAS-99). 1999. Available at: http://appliedresearch.cancer.gov/areas/cognitive/qas99.pdf (last accessed April 30, 3006).
25. Bromberger JT, Harlow S, Avis N, et al. Racial/ethnic differences in the prevalence of depressive symptoms among middle-aged women: The Study of Women's Health Across the Nation (SWAN). Am J Public Health 2004; 94:1378-1385.
26. Zahran HS, Kobau R, Moriarty DG, et al. Health-related quality of life surveillance-United States, 1993-2002. MMWR Surveill Summ 2005; 54:1-35.
27. Metcalfe KA, Narod SA. Breast cancer risk perception among women who have undergone prophylactic bilateral mastectomy. J Natl Cancer Inst 2002; 94:1564-1569.
28. Greene SM, Geiger AM, Harris E, Altschuler A, Nekhlyudov L, Barton M, Rolnick SJ, Fletcher S. Impact of IRB requirements on a multi-site Cancer Research Network study. Ann Epidemiol 2006; 16:275-278.