The experiences of adolescents with thalassemia in West Bengal, India

Qualitative Health Research

Volumn 17, Issue 1, 2007, Pages 85-93

  Roy, Tanuka ^a   Chatterjee, Suhita Chopra ^a  

^a INDIAN INSTITUTE OF TECHNOLOGY   (India)

Author keywords

Consequence; Disability; Eexperiences

Indexed keywords

ADOLESCENT; ADOLESCENT DISEASE; ANXIETY; ARTICLE; ATTITUDE TO ILLNESS; ATTITUDE TO LIFE; BLOOD TRANSFUSION; CAUSAL ATTRIBUTION; CLINICAL ARTICLE; CULTURAL FACTOR; DESCRIPTIVE RESEARCH; DISABILITY; EDUCATION; EXPLORATORY RESEARCH; FEMALE; GENDER BIAS; HUMAN; INDIA; INTERVIEW; MALE; MENTAL STRESS; PATIENT ATTITUDE; PEER GROUP; PERSONAL EXPERIENCE; PHENOMENOLOGY; PHYSICAL STRESS; PRIORITY JOURNAL; PSYCHOSOCIAL DEVELOPMENT; QUALITATIVE RESEARCH; RELIGION; SCHOOL CHILD; SELF CONCEPT; SOCIAL PROBLEM; SOCIOECONOMICS; THALASSEMIA;

ADOLESCENT; ANXIETY; CHILD; CULTURAL CHARACTERISTICS; EDUCATIONAL STATUS; FEMALE; HUMANS; INDIA; INTERPERSONAL RELATIONS; MALE; POVERTY; QUALITY OF LIFE; RELIGION; SEX FACTORS; THALASSEMIA;

EID: 33845428753     PISSN: 10497323     EISSN: 15527557     Source Type: Journal    
DOI: 10.1177/1049732306296400     Document Type: Article

References (31)

1. Abraham, A., & Silber, T. J., & Lyon, M. (1999). Psychological aspects of chronic illness in adolescence. Indian Journal of Pediatrics, 66, 447-453.
2. Barnes, C., & Mercer, G. (Eds.). (1996). Exploring the divide: Illness and disability. Leeds, UK: Disability.
3. Barnett, J. K., Papini, D. R., & Gbur, E. (1991). Familial correlates of sexually active pregnant and non-pregnant adolescents. Adolescence, 26 (102), 458-472.
4. Barton, L., & Oliver, M. (Eds.). (1997). Disabilities studies: Past, present and future. Leeds, UK: Disability.
5. Bhattacharya, S. (2000). Thalassaemiar hat theke Banchun [Booklet on thalassemia]. Burdwan, India: Thalassaemia Welfare Society.
6. Blom, G. E., Cheney, B. D., & Shoddy, J. E. (1986). Stress in childhood: An intervention model for teachers and other professionals. New York: Teachers College Press.
7. Bury, M. (1997). Defining and researching disability: Challenges and responses. In C. Barnes & G. Mercer (Eds.), Exploring the divide: Illness and disability (pp. 74-75). Leeds, UK: Disability Press.
8. Chatterjee, S. (2001). A study on adaptation and coping strategies of the parents of Thalassaemic patients. Unpublished master's thesis, Visva-Bharati, Shantiniketan, India.
9. Choudhry, V. P. (2000). Thalassaemia: Care and control in the new millennium. Mumbai, India: Novartis India.
10. Creswell, J. W. (1998). Qualitative enquiry and research design: Choosing among five traditions. Thousand Oaks, CA: Sage.
11. Disabled Peoples International. (1982). Proceedings of the first world congress. Singapore: DPI.
12. Ferguson, P. M., Ferguson, D. L., & Taylor, S. L. (Eds.). (1992). Interpreting disability. New York: Columbia University.
13. Glaser, B., & Strauss, A. (1967). The discovery of grounded theory: Strategies for qualitative research. Hawthorne, NY: Aldine.
14. Hales, G. (Ed.). (1996). Beyond disability. London: Sage.
15. Humphrey, J. H. (1988). Children and stress. New York: AMS.
16. Hurst, R. (2000). To revise or not to revise. Disability and Society, 15 (7), 1083-1087.
17. Indian Council of Medical Research. (1988). Collaborative study on thalassaemia: An ICMR task force study. Delhi, India: Author.
18. Oliver, M. (1996). Underestimating disability: From theory to practice. Basingstoke, UK: Macmillan.
19. Oliver, M., & Barnes, C. (1998). Social policy and disabled people: From exclusion to inclusion. London: Longman.
20. Persons with Disabilities (Equal Opportunities, Protection of Rights and Full Participation) Act, 1995, with Rules 1997. Allahabad, India: Law Publishers.
21. Rice, P. L. (1966a). In quality we trust!: The role of qualitative data in health care. Medical Principles and Practice, 5, 51-57.
22. Rice, P. L. (1966b). My soul has gone: Appropriate methods for a delicate situation. In J. Daly (Ed.), Ethical intersections: Health research, methods and researcher responsibility (pp. 106-115). Sydney, Australia: Allen and Unwin.
23. Rice, P. L., & Ezzy, D. (2001). Qualitative research methods: A health focus. London: Oxford University Press.
24. Roy, T., & Chatterjee, S. C. (2005). Coping with genetic disorder: A sociological understanding of parent-caregivers' experiences. Illness, Crisis, and Loss, 13 (4), 315-331.
25. Samta, S. (1989). A study on thalassaemic patients in greater Mumbai. Unpublished master's thesis, Tata Institute of Social Sciences, Mumbai, India.
26. Thalassaemia Foundation Hospital. (2002). [Booklet on thalassemia]. Kolkata, India: Author.
27. Union of the Physically Impaired Against Segregation. (1976). Fundamental principles of disability. London: Author.
28. Weatherall, D. G., & Clegg, J. B. (2001). The thalassaemia syndromes. London UK: Blackwell Science.
29. Wendell, S. (1996). The rejected body: Feminist philosophical reflections on disability. London: Routledge.
30. World Health Organization. (1980). International classification of impairment, disability, and handicaps. Geneva, Switzerland: Author.
31. World Health Organization. (1999). International classification of functioning and disability, beta-2 draft, short version. Geneva, Switzerland: Author.